How long does someone live with AML?

[@annettenewton6240]

I was diagnosed with AML in June of 1996. I was 32 and had 2 small children ages 2 and 4. I fought hard to live for them. During my treatment every thing that could go wrong went wrong. I never had to do the transplant which I was told I had over 250 possibly matches, but I had to do the second round of chemo because the first one did not get me in remission. Out of 7 months time I was in the hospital 4 months. I will be 60 years old in October so I have been in remission 27 years. So thankful for my doctors they were so kind.

[@HTUforBloodCancers]

That is amazing! Thank you for sharing your story and congratulations on defying all odds!

[@joyantabiswas2854]

Hlw sir

[@hadihasan4661]

Sir , do you gone stem cell transplant? Or just chemotherapy works in your case ?

[@annettenewton6240]

@@hadihasan4661 just chemo, no transplant.

[@thenmozhikrishnamoorthi7099]

Inspiring

[@rebecca78612]

My husband just got the news he has AML today. He is 55 and has health issues. Praying for miracles and struggling to remain positive and strong

[@reshavdas2447]

God bless him

[@saraswathy8207]

Stay strong...

[@OtomeGameHell]

Stay strong, hope things are going well. My 64 years old mother just got the news this week, also struggling to keep strong and praying all kinds of miracles

[@reshavdas2447]

@@OtomeGameHell I am also AML patient. DON'T WORRY... It is curable..

[@raguraman9006]

Where you have been taking the treatment for AML

[@KQuinn672]

im in remission four years....i was diagnosed march 14 2019....had several rounds of chemo...had my bmt on july 17 same year...next year is my five year mark....so im living but its in the back of my head that it can return...so i pray for you all...im so sorry for those who have lost their loved ones to this..prayers

[@HTUforBloodCancers]

I'm glad to hear that you're in remission! Thank you for your support and prayers for those who need it

[@KQuinn672]

@@HTUforBloodCancers thank you....

[@bikashpatel1358]

Hello please help me I am also AML patient with FLT3 positive mutation please donate me midostaurin or gilteritinib to survive

[@KQuinn672]

@@bikashpatel1358 im so sorry i dont even have the money...my insurance pays for me...i pray someone can help you

[@bikashpatel1358]

@@KQuinn672 anyone you know him he have left midostaurin or gilteritinib he can donate me easily . To buy medicine from US I need US prescription but I am from Nepal one of the poorest countries I don't have even enough money to buy can you help me to buy medicine from US if you help it's very helpful to me

[@annryan1098]

My name is Ann Ryan I was diagnosed with alm in Sept 16 had a stem cell transplant in feb17 and doing really well thanks to my doner and hope to keep doing well

[@QuestForGood]

How old are you?

[@dbown1959]

Right on, glad your doing well. Im going in for a stem cell transplant at City of Hope in Duarte Ca, starting on April 24th, I'll probably be there for about a month I hope. The cancer i have started out as CMML-2 and advanced to AML. Was diagnosed on Aug. 15th. I hope the best for you good luck.

[@bikashpatel1358]

Hello please help me midostaurin or gilteritinib tablet I am also AML patient

[@KQuinn672]

so happy for you...i dont know if you have any changes...but i can say your dna will change...in fact i think next year im going to do the ancestry thing to see how much of my donor i have...also im interested in things i never was before..like colonial times and civil war so you may pick up interests that you never had...because the donor's dna is inside you...i wish you well and blessings. i do pray that my Irish ancestry stays!

[@nicopocho8749]

How are you?

[@jac9508]

My boyfriend passed away from AML complications last month. He was only 32 years old when he passed away. I am so glad that there is more survivors of AML.

[@HTUforBloodCancers]

I am so very sorry to hear that! I can't imagine how you must feel. I hope all the best moving forward at this difficult time.

[@jac9508]

@@HTUforBloodCancers Thank you. Let's just hope that the prognosis and survival rate of AML would increase in the future

[@Tonykayemusic]

Im so sorry to hear this... take care.

[@jennifermckeown7093]

I’m very sorry for your loss…..I’m a survivor of aml since 2018 and I feel blessed. However, chemo has destroyed so much of my body that I had no knowledge of the complications that would arise. Cancer sucks..

[@jagjitsingh-ps3fc]

My girlfriend 18 years old fighting with AML, she's didn't have confidence. what can I do for her, she's always in sadness

[@fadam132]

I was diagnosed in Nov 2017 at age 47. Failed 3+7 but then got the venetoclax combo as a last resort. It fixed me and on Feb 8 2018 had my transplant. NEVER GIVE UP HOPE !

[@FierceOfficial]

my father is diagnosed with AML at age 47 aswell. He will receive 7+3 chemo , and i rly hope a sustainable survival rate can be achieved

[@VedRajak-ef8gm]

How are you now dear sir

[@conniechloe53]

AML diagnosed in 2014, age 53. Relapsed twice, once each year. Had a stem cell transplant in 2016 with my half matched sister, just turned 64. I was inversion 16, which is a favorable outcome condition.

[@karenp7046]

I was diagnosed with AML in January 2015 at age 62. Following chemo I had a stem cell transplant in August of that year from a donor that went well. I am now healthy, happy and grateful. I found a study online that found AML survivors overall report better quality of life than the general public!

[@HTUforBloodCancers]

This warms my heart! We're so happy that you are doing so well!

[@bikashpatel1358]

Hello if you can help me please help me I am also AML patient I need midostaurin or gilteritinib for my FLT3 mutations please help me donate it

[@KQuinn672]

amen to that! so happy for you too!! :)

[@SarahLynnLee]

So very happy for your health! My husband (64) didn't make it unfortunately. He passed away on day +60 after his transplant. I wish you well!!🙏

[@mtminds1132]

What drugs were you prescribed Sir?

[@annaserrao8948]

My dad has aml almost 3yrs and has had stem cell transplant. But the fucken cancer still comes back he is strong and positive

[@smokekush52991]

😢

[@KQuinn672]

so sorry...i dont understand it...ive been having survivor guilt...i lost one cousin ten years ago to colon cancer...he was 41..i just dont understand why im here but...im sorry for your loss

[@annaserrao8948]

@kellydube1050 don't feel sorry ever. Be happy enjoy life do crazy things cos u leave this earth with only memories and laughter 😀👍

[@KQuinn672]

@@annaserrao8948 I know but my friend of 40 years...54...is in hospice now with a brain tumor...so i just dont understand why im here...but ill do my best...thank you!

[@annaserrao8948]

@kellydube1050 I'm sorry for ur friend. Some people do well with treatment others not so good. My dad passed away coming onto 2mths now miss him very much 😢

[@DanieBoshoff-x9c]

My mother beaten aml 6 years ago but sadly it returned more agressive and she sadly past away 2 weeks back . My heart goes out to all fam who kmows what they go thru

[@HTUforBloodCancers]

I'm so sorry to hear about your mother and how heartbroken you must feel right now! It's so great that you had 6 extra years with her. My heart goes out to you as well.

[@SarahLynnLee]

I am so sorry to hear about your mother's passing. That is so heartbreaking, especially after six years remission. My husband passed away 60 days after his stem cell transplant a month ago.

[@angelisone]

@@SarahLynnLee I am sorry for your loss. May I ask how was your husband? When was he labeled, "AML" and how many days/months My sister died in 17 days after they told her she was under remission.

[@SarahLynnLee]

@@angelisone Thank you. He was 64. He had acute myeloid and acute lymphoid leukemia. He passed 60 days after transplant. Previously, when he was doing chemo last year, he was told he was in remission and he came out about 15 days after that and had to do different chemotherapy to try and get it in remission. He kept coming out of remission and he went through a year of treatments before they got it under control and he had a bone marrow transplant, but sadly passed two months after that.

[@SarahLynnLee]

@@angelisone I am sorry about your sister losing her life to this. It's devastating.

[@gwenking7700]

I was just diagnosed with leukocytosis before Christmas. My white blood cell count is over 14,000. I am sweating bullets waiting for my next oncology visit to see if the count has risen or gone down.

[@HTUforBloodCancers]

We at the HealthTree Foundation are thinking of you Gwen during this time. If you are diagnosed with AML, joining our Facebook group might be helpful so you can learn from others who have been diagnosed as well: facebook.com/groups/adultaml

[@KQuinn672]

any updates how you are?

[@gwenking7700]

@@KQuinn672 Oncologist doesnt think it is leukemia. Thinks it is something autoimmune. Going to a rheumatoligist next month

[@KQuinn672]

@@gwenking7700 🙏🙏

[@gwenking7700]

@Kelly Dube thank you Kelly ❤️

[@HenriVanPraet]

I was diagnosed with AML in September 2015, at the age of 55. I went through the first lot of chemo in hospital and the following 2 lots as an outpatient. And got admitted back into hospital both times. I've been in remission now for 9 years and am now 65. I kept working, and have just retired on my 65th birthday. I thank and am appreciative of all the doctors, nurses and the rest of the hospital staff, who cared for me, at the RAH. For those fighting AML at the moment, stay strong, stay positive and fight........ Herb

[@ushaanand2450]

My 28 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy but we lost our only child within two months . Before diognose he was very healthy,no any bad habits how he got this bad things happen to good people only parents we have till today very much suffering

[@HTUforBloodCancers]

I am deeply sorry for your loss. My heart goes out to you and your family during this difficult time.

[@KQuinn672]

im truly sorry...i would take his place if i could....prayers to you...

[@igotbandaids]

God bless those with AML and their loved ones. Amen. Big hugs ❤

[@hawwaeve4421]

On august 2019 at the age of 59 i was diagnose with AML. Go for chemo 24/7 for 6 days. Got infected. Intubated in ICU for 13 days. Get through but bed ridden and got myself blacken left thumb. I find out i could no longer tolerate the modern medicine. Discharge myself after signing all the documents. I turn to hemeopathy. Physiotheraphy. Eats a lot of king's salad from my garden. I also take supplement aphanizomenon flos-aquae a type of algae found in Greats lakes. Remission is always on the back of my mind

[@Katie75023]

18 month survival rate for AML with chemo treatments is just prolonging my suffering! So then --why even bother going through all the chemo treatments when they can't guarantee that I'll still be alive in 15-18 months? I might as well just live my life the best way I can until this blood cancer finishes me off in another year. 😢

[@fadam132]

Look at my comment above. Hope it helps.

[@llisagomez5706]

No, fight for your life!

[@Tonykayemusic]

Your choice, friend! Hope you find your way.

[@kevinyonan9666]

Because there's still hope. Whether you win or lose, your fight can help make better treatments and possibly even cures! You might also be one of the people cured, so why not take that chance?

[@darknesswinz0525]

God blesss

[@philpalma894]

Who's here after knowing Kyedae's diagnose with AML? Damn it saddens me so much.

[@brandon-je3rh]

So sad man

[@bri....7656]

She's still so young, so unfortunate

[@QuestForGood]

@@bri....7656 nah but she is young so with chemo there is 60 - 65 percent chance of curing.

[@ryanchen9010]

😢

[@Makgeulli]

Yes I am doing a deep dive since then

[@Tonykayemusic]

My mom passed from AML after a decade of living with a rare blood disease (APA and MDS) that very usually changes into AML. Her diagnosis was less than 2 weeks before she passed. It was very fast. Total organ/system failure.

[@OT_Shady]

Same here mom passed from organ/system failure in just 2 weeks of admission in the hospital 😢

[@Tonykayemusic]

@@OT_Shady so sorry to hear that. Rest easy Momma!

[@usamahadayat7136]

Well yesterday my cousin passed away he was dealing withAML M3 With in week after chemotherapy yesterday he lost his beautiful life at age was just 35 years😢😢😢😢😢

[@estherofori4354]

Hi I have a friend with this disease. How do I help him?

[@cathylaycock5598]

My brother is end stage Leukemia, mutant gene DDX41. I have since been tested and I also have this mutant gene. He's treated by chemo for about 18 months. He had emergency blood transfusions a few weeks back.

[@onlykris2468]

Remembering my 18 year old granddaughter that developed and lost her amazing life th this crule disease... for our jess 💞

[@KQuinn672]

so sorry....

[@KQuinn672]

im so sorry! (

[@SarahLynnLee]

It's terrible. I'm so sorry.

[@tamcocar3507]

I lost my dear friend of 40 years last month to AML. He had 2 vax, and 2 boosters. I have seen several people reporting AML after getting the jabs. He insisted that they weren't related, but I don't know. He was very healthy & athletic all his life until he got the shots. First blood clots & he had to have a leg amputated, then AML killed him less than a year after being diagnosed. I really would like answers.

[@HTUforBloodCancers]

I'm really sorry for the loss of your friend. We can understand how you're feeling and why you would be looking for answers about what happened. Firstly, it's important to know that the COVID-19 vaccines have been thoroughly tested and have been found to be safe and effective at preventing COVID-19 and its complications. While it's natural to wonder if there might be a link between the vaccines and your friend's diagnosis of AML, there's currently no scientific evidence to suggest such a connection. It's possible that your friend's diagnosis of AML was not related to the vaccines and could have happened spontaneously, as this is the case of the majority of primary AML diagnoses. However, there could also be other factors at play, like underlying health issues or risk factors, like genetics. If you have concerns or questions about your own health or the health of someone you care about, it's always a good idea to talk to your trusted physician. They can provide you with accurate and up-to-date information and help address any concerns you might have. Again, I'm really sorry for your loss, and I hope that this information can provide you with some comfort during this difficult time.

[@Mani-fx8pb]

Same happened to my mother.. She was diagnosed Cancer ALL after a dose of vaccination..

[@jenny1234361]

My brother had 4 jabs, was diagnosed with AML and passed away 4 months later. I saw a video where a medical person said the onset of AML was a possible outcome from the shots

[@screenarts]

It's not the shots. My roommate got covid twice not to bad. He's now diagnosed with testicular cancer 47yo. I had all the shots and had covid twice, second time I was in the hospital. I also now have cancer, tumor in lung and lukeima at 67yo. The commonality in this house is we both suddenly have cancer, we both got covid. It's not the shots. How can you ignore covid as a catalyst of other diseases? Like long covid reported. The shots are still available, people are not dropping dead from the shot. Covid is the unknown not the vax.

[@marks9774]

I lost my wife to AML. We both did not take any shots / boosters, but I do still think that all the COVID everything - played some sort of a role as we both experienced abnormal things with our blood within 2-3 years after COVID.

[@NilukshiMiranda]

My son is 2 years and 10 months old. He could not put his leg on the ground 4 months ago and was taken to Ledrichwe Hospital. It is up to you how successful this course will be. Because his aml status was first bonemerro 50% second 5% less now I don't know what was done yet can I know details about this

[@bybyhycndlblt5435]

03.04.2024 my sister was pregnant and was diagnosed with AML M4-m5. They removed the baby and she received chemotherapy. They applied 7+3 chemotherapy. daunorubicin, mitoxantrone, idorobicin. After a 2-month break, he received chemotherapy again, three days of cytarabine. took it three times, two weeks apart. 7 months have passed. Transplantation will not be performed. doctors say he is fine. I'm very curious what will happen.

[@CrimsonBlack313]

My girlfriend was diagnosed with aml last year in October. She is going through it right now with the radiation. She had three to 4 chemotherapies before the chemo. I just want her to be better, that's all😢😢😢. It hurts me to see her in this state.

[@damla9978]

I hope she is doing okay now. Try to support her all the time

[@ferdikorkmaz3347]

Hello i have symptoms MDS i think 3 months i have leg pain both tiredi no eating very well what can i do

[@yaohan91]

My mum just turned AML from CML after a year. She is 68 this year. Transplant is out of the picture given her age so what doctor suggest is low intensity chemo. Im scared what can i do....

[@sank4930]

My mom is diagnosed with aml last month. We found that these markers are positive CD45-Dim positive CD34- positive CD117-partial dim positive CD99 - moderate positive HLA-DR - Positive CD58- positive MP0 - dim positive CD13 - Moderate positive CD33 - moderate positive CD64-positive CD11c - moderate positive CD14 - Positive CD36 - positive These are all the positive markers found. Can you please tell me the stage, treatment and prognosis.

[@HTUforBloodCancers]

Hi there, This is something that your mother's doctor will be able to tell her. In order to stage her AML and determine the best treatment, her doctor will look at the whole picture and perform other tests to see which gene mutations are positive. To learn more about AML gene mutations, you can check out those videos on our website here: healthtree.org/aml/university/courses/Ga5cTDmmrDNEtznyDBuS

[@funwithnoorandkabeer5605]

I have been diagnsed with cancer aml. Can u tell me, if the count of copies in abl test is less thn 10k can it b cure through medicines?

[@HTUforBloodCancers]

I'm sorry to hear that. We recommend that you see an AML specialist to get that answer as it is a complicated disease. You can learn more about your cancer for free from the top AML experts in the US with our AML University healthtree.org/aml/university/courses

[@SAGYCIVIL]

My father diagnosed with AML 64 age the low chemo of Amacitidine and venetoclox is giving by doctor today they stable but how many days survival ..for long term servival what is process stem cell or bone marroe

[@HTUforBloodCancers]

Hi there, to know the process of an allogenic stem cell transplant or other treatments, you can check our AML Treatment Options unit on our website. I will link it here for you: healthtree.org/aml/university/modules/iQEuDMjf8rW5X4HjslEp Hope this helps!

[@saurabhrawat5999]

My Grandfather (aged 80) is diagnosed with AML in June 23 with RUNX1 mutation. Doctor suggested low intensity chemo (Decitabine + Venetoclax) to prevent it and help him to have a good quality of life. They rejected the idea of Bone Marrow Transplation and told that it can't be cured at this age. He don't have any comorbodities and is physically fit. Looking for a second opinion. Can anyone help here ?

[@HTUforBloodCancers]

Hi there! I'm very sorry to hear about your grandfather. A second opinion is a great idea! I recommend you search our specialist directory ( healthtree.org/aml/community/directory ) to find a second opinion from AML specialists near you!

[@SarahLynnLee]

KU Medical Center specializes in leukemia and may be a good option. They treated my husband.

[@fadam132]

A transplant is very very hard on the body. That's why they don't usually do it with elderly.

[@tulbahadurpariyar3076]

Aml my sister pass away coz of Aml

[@nitinsinghania007]

My mother (53) diagnose AML at 3 feb 2024 and passed away at 28 feb 2024 due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip. I lost my mother in only less then a month which is unbelievable for me.

[@HTUforBloodCancers]

That is heartbreaking, I'm so sorry to hear that. We hope you and your family the best during this difficult time.

[@SAGYCIVIL]

Due to low platelet my father is also diagnosed in platelets are only 5000 but they can survival and the chemo is continuously

[@paulinenewton2215]

My husband managed 2 years

[@baro6217]

where is he now

[@paulinenewton2215]

@@baro6217 passed away 16 January 2022

[@Makgeulli]

@@paulinenewton2215so sorry for your loss

[@nitinsinghania007]

My mother (53) diagnose AML at 3 feb but passed away at 28 feb due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip.

[@beijingbrandon6220]

So basically Kyedae is faking it.

[@johnnyblaze522]

Venetoclax...... Your welcome 😊

[@HunterTheBeagle-lb1ti]

What do you mean

[@fadam132]

MAGIC !!!