Is there a cure for AML?

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HealthTree University for Blood Cancers

HealthTree University for Blood Cancers

Күн бұрын

Пікірлер: 86
@reshavdas2447
@reshavdas2447 Жыл бұрын
I m AML m4 Patient. I completely done bonemarrow transplant. Now i m suffering liver gvhd. Day by day getting fine. By grace of God & doctors
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
I'm sorry to hear that you have been going through such a difficult time with your health. It's wonderful that you have such a positive attitude. If you need any more resources or information on AML you can follow our channel or visit our website at healthtree.org
@skygirlanjali2558
@skygirlanjali2558 Жыл бұрын
Kitne .me hua bmt
@ankushbharti2882
@ankushbharti2882 Жыл бұрын
Bhai❤
@MattieGorman
@MattieGorman Жыл бұрын
God bless you brother 🙏🏻❤️
@reshavdas2447
@reshavdas2447 Жыл бұрын
PGI chandigarh (India) se huaa mera treatment.. All over 10 lakh kharcha hua
@AfghanStarNet
@AfghanStarNet Жыл бұрын
I have AML and hospital and taking my second chemotherapy, and after this I have stamcell and bone morrow transplant, I am very new to all these so thank you for your informative video
@officialmelanin3936
@officialmelanin3936 7 ай бұрын
I have this as well and I am pregnant but I haven’t tried the chemo yet am afraid of my baby dying
@thenmozhikrishnamoorthi7099
@thenmozhikrishnamoorthi7099 6 ай бұрын
How r u
@cautioushubbard3074
@cautioushubbard3074 2 ай бұрын
​@@officialmelanin3936God Bless 🙏
@cautioushubbard3074
@cautioushubbard3074 2 ай бұрын
God Bless 🙏
@dc1mc2mc3
@dc1mc2mc3 Жыл бұрын
My son was cured of APL leukemia. At time of admission his platelet count was 11,000 (250,000+ is normal) and 10,000 is usually fatal. 🙏
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
That is great news!
@amandasmith7043
@amandasmith7043 Жыл бұрын
My mother passed away from this terrible cancer. oncologist tend to do a lot of test while keeping family members in the dark regarding prognosis
@YourDoor
@YourDoor 11 ай бұрын
It's 4th day I also lost my mother from this fatal disease.This disease is not curable
@DeniseMontez-mg5dj
@DeniseMontez-mg5dj 5 ай бұрын
i know. dont go to princess margaret hospital in toronto unless you want to die. The doctor we had could have saved my spouse, but refused to give him a top up.and it was too late.
@kevanhubbard9673
@kevanhubbard9673 10 ай бұрын
Maybe a Stem Cell transplant might defeat it?A friend of mine had one of those for a different cancer, Mycosis Fungoides T Cell Lymphoma at the advanced stage, but it is too early to say if it'll work?
@aloobags
@aloobags 2 жыл бұрын
This is very helpful in understanding what my husband has
@HTUforBloodCancers
@HTUforBloodCancers 2 жыл бұрын
Glad you found this video helpful. You can watch many more at www.healthtree.org/aml/university!
@mwenda3798
@mwenda3798 Жыл бұрын
I fought this disease with my dad of 70 but we lost him to side effects of drugs.
@MFaith777
@MFaith777 27 күн бұрын
What drugs?
@cyndieross2162
@cyndieross2162 2 жыл бұрын
What if a person does not have any mutations and no underlying health conditions? Patient is not eligible for transplant because of age? Can you address any of these questions?
@HTUforBloodCancers
@HTUforBloodCancers 2 жыл бұрын
Hi Cyndie, In this instance it would be best to speak with a specialist as all AML cases are unique. Find a specialist near you here healthtree.org/aml/community/directory
@podapatimurali4136
@podapatimurali4136 9 ай бұрын
I was diagnosed with aml. and comleted stemcell transplant now iam all right
@mtminds1132
@mtminds1132 9 ай бұрын
From which hospital you received your treatment?
@anahitash8845
@anahitash8845 Жыл бұрын
Urgent. Hi. My mom is a 60 years old Middle Eastern woman who lives out of States. She has just diagnosed with AML. Can you please let me know if ATRA is something that IT'S SAFE TO TAKE, or it should be prescribed by her Dr.? Please let me know how if I can purchase ATRA. Thank you 🙏
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi there! I'm so sorry to hear about your mom. ATRA is a prescription medication, so she should talk to her doctor about it. To learn about this medication and what specific type of AML it is used for, you can visit this link on our website: healthtree.org/aml/community/medications/retinoids/atra . Best wishes for her!
@podapatimurali4136
@podapatimurali4136 9 ай бұрын
5:23 ​@@HTUforBloodCancers
@edits-et8rw
@edits-et8rw 2 жыл бұрын
Did patient take atra capsule life time?? Plz reply
@builddotassets
@builddotassets Жыл бұрын
Hi, my family needs help as we found that our 18 year special needs daughter has AML. She has chromosal, Monosomy 21, by birth with other pre existing condition. What’s the best way to contact you? We want to understand the targeted approach in curing AML.
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi there. We are terribly sorry to hear what your daughter and your family are going through. You can visit our website for AML related information: healthtree.org/aml/community. You can also call or email us to speak to a patient navigator: (800) 930-5159 or support@healthtree.org.
@erikapaulinasantanaespinos3799
@erikapaulinasantanaespinos3799 2 жыл бұрын
My mom has AML, I am from Mexico and she is right now under quimio therapy, 24/7 the whole week full of that, she is 61 years old, now that I watched this video I need more information about the new treatments, do you know where in Mexico are applying this kind of medicine? Please help
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hola Erika! En la siguiente dirección de la COFEPRIS, al seleccionar "Condición" y buscar "LEUCEMIA MIELOIDE AGUDA", aparecerá un listado de los ensayos clínicos que incluyen algunos de estos nuevos tratamientos, en cada uno encontraras el "sitio de investigación" así como una explicación mas detallada de lo que se incluye en el tratamiento: siipris03.cofepris.gob.mx/Resoluciones/Consultas/ConWebRegEnsayosClinicos.asp
@sagarjawaress
@sagarjawaress Жыл бұрын
Hey my father too diagnosed of aml and he is 60. Is it possible to have bone marrow transplant at this age?
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
@@sagarjawaress Hi Sagar, In this instance it would be best to speak with a specialist as all AML cases are unique. Find a specialist near you here healthtree.org/aml/community/directory
@sagarjawaress
@sagarjawaress Жыл бұрын
@@HTUforBloodCancers Dude I'm Doctor myself but making descision is really hard. I would like to know the survival benefits of routine vs palliative chemo at this age. So sharing experience would help a bit.
@anahitash8845
@anahitash8845 Жыл бұрын
Hi Erika. My mom is 60 years-old and was just diagnosed with AML around your mom's age. She is about to start the therapy in a week. We are waiting for her second test result. Can you tell me how's your mom doing? I hope everything is going well with her.
@kilaparthilavanya5090
@kilaparthilavanya5090 Жыл бұрын
My mother have AML .she got chemo before one year,but it rutuned again .Again chemo is going on, facing more side effects than before and she got with a mild heartstok .is it safe to do BMT?
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
I'm sorry to hear about your mother. You should reach out to and meet with a specialist for any advice on treatment, they will have a more accurate assessment of what is possible.
@bankimpaul540
@bankimpaul540 5 ай бұрын
My sister have AML with monosomy in chromosome 7 and trisomy at chromosome 8, can you please tell me how much possibility of curable by chemotherapy?
@CrimsonBlack313
@CrimsonBlack313 4 ай бұрын
My wife was diagnosed in October, and she has three rounds of chemotherapy. She has Flt3 mutation aml, the hospitals told us they can't treat her anymore to chemotherapy sessions, we have been together for 14 years, and we dont have any more options.
@HTUforBloodCancers
@HTUforBloodCancers 3 ай бұрын
We're so sorry to hear this, if you need any more resources or information on AML you can follow our channel or visit our website at healthtree.org and we'll be happy that any information we can provide could be helpful for her.
@mylataguba1397
@mylataguba1397 Ай бұрын
What if the patient undergo a surgery of Pancreatic Cancer and after 2 years,her cancer came back,.and while she's undergoing chemotherapy,.. his doctor noticed that she has a leukemia... as of the moment, she's undergoing treatment to her leukemia..What I'm asking doctor..there is a possibility to cure her 2 cancer?she has more years live to stay?please pray for her,..I felt so sad, everytime she's going on her chemotherapy,, can't really help her...
@CrimsonBlack313
@CrimsonBlack313 Ай бұрын
@mylataguba1397 she passed away on August 13th 2024
@zeenatansari8805
@zeenatansari8805 Жыл бұрын
My brother is diagnosed with AML. he is undergoing treatment. First chemotherapy has done. But still he has constant fever and zero TLC. also platelets are going down. Can you please suggest what should we do in this case.
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hello, I'm so sorry to hear about your brother, my thoughts are with your family. This question is one that needs to be discussed with his oncologist/hematologist. It may be beneficial to get a second opinion from an AML specialist. If you live in the U.S., you can look for a specialist near you here: healthtree.org/aml/community/directory
@DeniseMontez-mg5dj
@DeniseMontez-mg5dj 5 ай бұрын
My spouse has aml. My spouse went for a first round of chemo and they stopped it because he has a slight fever. It is normal for people with AML to get chills and fever and normal for their blood counts to go down. This is why they require constant blood and platelet transfusions. Now we have to wait one week to see if he has no more fever and they can start with the 2nd round. b.t.w. AML also gives one bone pain and so does the chemo :(
@nouralhuda6101
@nouralhuda6101 Жыл бұрын
i didn’t understand the newst therapy he mentioned at the end?? what the name of it so i search it ?please
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hello there, at the end of the video, Dr. Rizzieri mentions targeted therapy. There are many examples of AML targeted therapy that are listed in this other video: kzbin.info/www/bejne/Y4bXi2WlbJhpo5o. Hope that helps!
@balajipm5007
@balajipm5007 2 жыл бұрын
One of my parent is suffering from AML every chemo treatment given to her is failed like induction,FLAG-IDA, Decitabine with venitoclox. So we have continued Decitabine till today. But still platelets and blood are getting low day by day again and again after evry transfusion of blood and platelets, so can you please provide me a contact of the doctor so that I can talk little more bit deeper about it and move on to further treatments, i hope you will do the needful. Thankyou
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi Balaji, we are updating our AML specialist directory, but currently only have it in the United States. It can be accessed here depending on what region your parent lives. healthtree.org/aml/community/directory
@ntertainme9615
@ntertainme9615 Жыл бұрын
How many times does your parent have blood and platelets transfusion?
@screenarts
@screenarts Жыл бұрын
Cartcell
@kamnasharma7255
@kamnasharma7255 Жыл бұрын
Hi i need ur help regarding leukemia my close one is suffering from this plz connect with me .. i really need ur help
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
I'm so sorry to hear that, we are here to support you! If you would like to talk to someone or find resources that help patients with aml and their loved ones, please don't hesitate to reach out via healthtree.org/aml!
@alankraj9139
@alankraj9139 Жыл бұрын
Plzz give gmail ya any contact
@farhanarimi7255
@farhanarimi7255 Жыл бұрын
My brother is 1.5 years old.. Few days( 1 week) ago he diagnose AML cancer.. What can i do now? What treatment will be best? And his platelet day by day decreaseing. Doctor gave him - platelate.. Please suggest me, what can i do now?????
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi there, I am so very sorry to hear about your brother's diagnosis! We're committed to helping patients and caregivers learn more about AML so that together with their doctor they can choose the best treatment options that fit their individual cancer. I suggest learning all you can at healthtree.org/aml/university/courses, especially the Childhood AML course. If you live in the U.S., you can utilize the specialist directory ( healthtree.org/aml/community/directory ) to find an AML specialist to obtain a second opinion. Our thoughts are with your family and we're hoping for the absolute best!
@afnanhossain-ff9de
@afnanhossain-ff9de Жыл бұрын
Sister how are your brother now my brother have also aml and he is just 15 year old and the doctors give him chemotherapy 😭😭😭🤭
@shaiksajid9049
@shaiksajid9049 5 ай бұрын
Hello sir my sis in law is suffering from this dreadful disease chemotherapy has started two days back this disease can be cured or not sir plsss reply sir😥
@poojasposh4858
@poojasposh4858 Жыл бұрын
Hello there my mum has been diagnosed with AML and the doc says she’s already become weak n he has advised us go to for targeted therapy she’s 54yrs can u pls help us know hoq much successful can ths targeted therapy be?
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi Pooja! In the following video, an AML specialist explains more about targeted therapies, including the success rate: kzbin.info/www/bejne/mGnWmpVtYrWshc0
@priyanshbhakuni1480
@priyanshbhakuni1480 Жыл бұрын
My father(51 years) was also diagnosed with AML(high risk) this year. Chemo was not working in his case. Venetoclax + azacitidine helped in lowering the TLC. Later the doctor added Midostaurin also.
@sagarjawaress
@sagarjawaress Жыл бұрын
@@priyanshbhakuni1480 are you planning for bone marrow transplant?
@priyanshbhakuni1480
@priyanshbhakuni1480 Жыл бұрын
@@sagarjawaress yes we were going for bone marrow transplant but unfortunately my dad passed away because of sepsis
@sagarjawaress
@sagarjawaress Жыл бұрын
@@priyanshbhakuni1480 thats so sad😔
@kasandraking3743
@kasandraking3743 Жыл бұрын
P53 you say. That me and I’m currently fighting thanks for horrifying me
@ChandiniSyed
@ChandiniSyed Жыл бұрын
Hello there One of my friends is suffering from AML TP53 mutation, has undergone chemotherapy and AML has been cured. Is there a chance of reoccurance? Please let me know.
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
Hi Chandini, it's good to hear that your friend's AML is in remission! AML with the TP53 mutation is a stubborn disease, and the chance of relapse is high. Fortunately, there are many clinical trials seeking to achieve better responses for relapsed patients. You can learn more at healthtree.org/aml
@ChandiniSyed
@ChandiniSyed Жыл бұрын
@@HTUforBloodCancers What is the maximum lifespan of the people with remission sir? Doctors has suggested her, bone marrow transplant but due to financial crisis she is unable to undergo transplant. Sir, Is there any alternative medicine other than transplantation?
@HTUforBloodCancers
@HTUforBloodCancers Жыл бұрын
​@@ChandiniSyed Since all AML cases are unique, it is best for your friend to speak with an AML specialist to get a second opinion on the recommended treatments and/or available clinical trials, and to receive answers to other questions regarding her remission. Find a specialist near you here: healthtree.org/aml/community/directory
@archana3918
@archana3918 Жыл бұрын
I lost my mother this month
@davidgleeson1716
@davidgleeson1716 Жыл бұрын
May God bless you.
@1reeree2k
@1reeree2k 2 ай бұрын
My condolences 💐
@iloveallah8195
@iloveallah8195 2 жыл бұрын
my daughter aml
@carlosxiiisanchez7105
@carlosxiiisanchez7105 2 жыл бұрын
My son is AML also
@HTUforBloodCancers
@HTUforBloodCancers 2 жыл бұрын
I'm sorry to hear that, we are currently working on our 'Childhood AML' unit. It is currently in BETA but can still answer questions you might have. healthtree.org/aml/university/courses
@aqsahammad7492
@aqsahammad7492 2 жыл бұрын
Kase pta chla orr kia symptoms ty
@4344906
@4344906 Жыл бұрын
Can you please share your mail id.. Have few doubt on the topic
@farhanarimi7255
@farhanarimi7255 Жыл бұрын
Hello sir...
@AlDerwas
@AlDerwas 3 ай бұрын
I was diagnosed with Apl ( AML m3 ) before 50 days and I’m now in complete remission 🎉 in consolidation phase, I’m taking ATO and Atra 😛 , Who much years can I survive after cure ? 🌚
How quickly does AML progress? #AML
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