Vitamin D in Rheumatology - Why Rheumatologists care

[@peaceandlove544]

Great info. You remind me of My great rheumatologist rip in TJ, she told me do the anti-inflammatory diet, have sun baths for D3 (I do not have lupus), walk in the grass, sand, soil, water, drink a very big glass of lukewarm water as if you were chewing it, before taking any medication or breakfast, at least half an hour before, everyday. Do water exercises in a pool, during good climate days, learn how to breath, walk and move gently Xi Chong, Tai Chi, go to bed early, so your sleeping hours are 10-2am at least. Told to learn how to cope with stress. To take care of my digestive tract first and foremost aside from my sleep, as 80 percent of ones immune system is in digestive system.

[@caseyslove]

Only 4 hours of sleep? I wouldn’t be able to function. You did have a great rheumatologist. Thank you for sharing her wisdom. I really hope you are feeling good. ❤️🇨🇦

[@Jinjerbread317]

@@caseyslove it says 4 hours of sleep at least. My sleep Dr told me to make sure I get a minimum of 4 hrs sleep every 24 hrs. (I had been sleeping 3 hours or less).

[@tonicallahan7787]

I love that you don’t hesitate to say “we don’t know” or “you don’t know”. I’ve been sick for almost three years and almost all of the Dr.‘a I’ve seen would stop speaking to or seeing me if I questioned anything. I was always polite and respectful but here in Northern Ontario Canada we have so few Doctors let alone specialists so there is no competition. I would love to have a Dr. That was willing to explain things to me, look into things and respect my concerns about what my body seemed to be doing wrong

[@OLDNATUROPATHY77]

auto immune?

[@OLDNATUROPATHY77]

its just mycoplasma and virus

[@jackjack4412]

Did you ever ask for books or resources to look into?

[@cxh1225]

Don't forget vitamin K2 (MK-7) with D3. From what I've read 100mcg for every 10,000 UI of D3. Purportedly K2 absorbed better in SL form. Just thought I'd throw that out there. If you've got any thoughts on that Dr. Ortiz I'd love to hear it.

[@daddyshoneygirlusa7030]

YES! This is extremely important regarding getting the calcium into the bone and not in soft tissue, like arteries. I was so upset that my physicians never advised me to take K2 while advising Vitamin D, IMO that is quasi malpractice! I have been telling all family and friends about the importance of K2 (I prefer the MK7 form). Thanks again for helping to educate!!!!

[@marisapaola9010]

I am taking methotrexate and arava, plus live in Australia. My skin burns easily because of this. My rheumatologist told me to take 4,000u daily vit D. I sleep almost 16 hrs daily have been told I have fibromyalgia, chronic fatigue and heart failure, am 53, and this has been my life for 16 yrs. Not easy.

[@elenaruelas4726]

Hi Marisa, I also take Methotrexate to treat my Ankylosis Spondylitis the marker for that is HLA-B27 has your Doctor tested you for that. I also take Vitamin D3 everyday. I have to keep myself moving to lessen the pain in my bones otherwise I'm in alot of pain. Hope you get the right care for your condition. I feel your pain, stay positive and I hope all goes well with you.

[@marisapaola9010]

@@elenaruelas4726 💓 Thanks for your message. My dr won't test for it, says almost certain as my mother had asthma and my grandmother RA which started after menopause. I didn't get a correct diagonisis until it was too late I guess. Best wishes 🙋

[@ceilconstante640]

Hi everyone! I ran out of my Life Extension Vitamin D3 and really feeling it! I learned from Dr. Eric Berg to take 40,000 IU's daily then kick back to 20,000. Yes: 40,000 IU's puts autoimmune conditions into remission. Watch his videos on D,3 and it will make more sense than what I can explain.

[@pavanlakkavathula7683]

How long r u diagnosed with heart failure

[@tiffanyb.7596]

I appreciate your thoughts on vitamin D3. I was told that I am losing bone density in my hips very quickly due to receiving chemotherapy for breast cancer a few years ago. I never get clear information on vitamin D. But I am doing my best. 😊

[@Johnny-dp5mu]

Thanks I take 9000+ daily And see improvement of my health broadly Especially relating to flues and colds and joints

[@gabriellecattani2846]

Excellent advise. I live in England and a lot of our doctors don’t consider the great advantages of Vitamin D. It is so good to be able to listen to you!

[@christinemuschiato5895]

mine do

[@p47rr]

My new rheumatologist didn’t even check my vitamin D level. ( I just moved.) He also to me that I don’t have PMR or RA because the tests don’t show the right levels of inflammation. He also said I’m to young to have PMR. I was fifty when my problems started. I had to tell him to look at what mayo has to say on age. How many people don’t have the right numbers etc. This guy took over for his fathers practice. And apparently isn’t nearly as smart as he think he is. Went to my new primary care doctor. Who tested my vitamin D levels. Counties that test and promote vitamin D levels had the lowest death rate from COVID according to a recent study.

[@nora768]

I find your take on "When" to take Vit D3 interesting. I have Lupus and my Vit D was very low, as a result, I am on Vit D. when I started I immediately asked my pharmacist when to take it and she said first thing in the morning unless you are on thyroid medication, then take it 2 hours after your thyroid medication.

[@RomeliaGomez-Calmell7934]

People said it could cause insomnia if taken at night. I take it in the morning.

[@deborahrea7375]

I am also on thyroid meds. Never been told to take my meds plus Vit D

[@Annie261.]

@@deborahrea7375 Always take other medications or supplements several hours after taking your thyroid med.

[@kaukabazim8912]

Excellent review by a lovely rheumatologist. Thankyou

[@karenhamilton504]

I go back to my Rheumatologist tomorrow. I hope she sees it the way you do bc my primary physician says my levels are toxic bc she doesn't know much about it. But it works for me and I continue to take it.

[@neelaprakaashd9436]

Very well explained. The information you impart is educational and extremely helpful. Thank you once again 😊

[@leslieisepic]

I have celiac and it lowered my vitamin d. I managed to double my total vitamin d by taking a D3 supplement (started with 5000 and then went down to 2500 IU… still want to increase my level a bit more before I lower my D3 dosage again). My b-12 also still continued to drop even once I was on a GF and DF diet to manage the celiac. I was deficient in b-12 when my hematologist checked it in Dec with my ferritin and saturation. I got an iron infusion and she scheduled 3 b-12 shots, getting the third later this week.

[@AWalkerbtweenworlds]

I have celiac, and I give myself a monthly injection of B12. My B12 is only in the normal range, and has never been high, despite this. Only to offer-- have then recheck and see if taking a once monthly injection for a year might result in a more normal level of B12. Good luck!

[@nenawells3916]

Alot of people are saying vit d is best taken together with vit k7. What are your thoughts on this? Can you do a video on this?

[@johnf6267]

K2

[@nenawells3916]

@@johnf6267 sorry, correction. It is K2👍

[@bajienado5479]

I've been on 50,000 units of vitamine D per week for a long time now. That was the first thing my Dr. put me on when I first went in for my joint and body pain.

[@primabersabal7045]

Where can we meet you Dr. Ortiz? You are such an angel to us who has all these medical conditions. You have the patience to educate us and your explanation really gets us. Thank you so much for doing so.

[@linda1541]

I love your content. When I lived in another state my rheumatologist tested my vitamin D and it was extremely low. I’ve been taking supplements ever since. The rheumatologist in my new state says it’s up to my primary care to test it. I’m glad that I have a good primary physicians assistant

[@gailsfoodandstuff]

i have not had cancer, since my breast cancer over 5 years ago. i had to find out, on my own, that d3 can help fight cancer, along with zinc. started on it soon after, and have had NO other treatment other the removing the tumor, thats it. i opted out of the other garbage since it appeared i didnt need it. also, the hubby got skin cancer a lot, or pre cancers, so, i put him on d3 and zinc and so far, so good, for years now.

[@johnsmith-ht3sy]

On KZbin " Dr John Campbell" discusses the importance of Vitamin D.

[@dianem2071]

When calcium and vitamin D3 are given without K2 increases Cardio Vascular problems by more than 10%. Please revise your recommendations . Vitamin K2 is the traffic cop that tells your body to put the calcium in your bones and not your blood vessels. But this is a wonderful series. Thank you!

[@diannefitzmaurice9813]

Drop the calcium supplement and get the calcium from food. New research says calcium supplements contribute to hardening arteries.

[@dianem2071]

@@diannefitzmaurice9813 Its the lask of vitamin K2 that causes "hardening of the arteries! Not the calcium itsel.

[@healingwisdomarts]

I love the illustrations its very helpful thank you dr !

[@usacrochetpodcastgloria6132]

I am new to your channel and my podiatrist has said I need a m r I on my right foot because I have ra the bone in my right has a big chunk of my bone eaten up by arthritis so this Monday I have to go see a rheumatologist to get a MRI done so hopefully I can get some answers and also have one kidney so this ought to interesting to see how they can help me I'm also on vitamin d 50,000 ui because of my kidney I'm so tired of being in pain I'm ready to get fixed hopefully they can help me and of I've been researching about Ra to know what I have to look forward to do I'm trying to learn everything I can about this condition and what I'm gathering so far it's gonna meds and diet change. Thank you for all the knowledge that you have to help people like me to understand what I need to know.

[@clarechomyn9686]

Thank you so much. This is the second one of your videos I've watch. You've answered so many questions I had. I will now binge watch your other videos.

[@stephanieschwartz677]

DR. Please do reactive arthritis

[@KateAtkinsbalinorelle]

Thanks for the great info! Could you do a video on APS at some point?

[@erikat5678]

I have Sarcoidosis with inflammatory arthritis and my 1,25 Vit D is high, 87. I’m told NOT to take Vit D but I don’t understand if it’s anti inflammatory, why do I have inflammation with high Vit D? Thank you! Your videos are very informative.

[@neelaprakaashd9436]

As usual excellent information Thank you 😊

[@calimom2518]

I love how you explained everything. Thanks doc!

[@gloriabailey6170]

At age of 70 I’ve taken a big interest in my health one question has been for myself has been sense I’m a kidney stone former it’s like slmidt my kidneys seem to not slwsys eork in this conversion of the vit I’m in need of I’m active snd eork my garden early morning sun shirt sleeves and no sun screen just love it now with this video I’m able to inhance my health thinking thank you

[@bssandhu-jd7gg]

I have also anklosing syponditis

[@elenaruelas4726]

I also have AS plus Uveitis how are you managing your AS everyday?

[@bethanylund5095]

These videos are great. Thanks for explaining in a relatable way!

[@donnaaugustine7995]

I’ve been vitamin D3 deficient for years. I need to become more diligent in taking it.

[@notbroken4342]

Thank you so much for your helpful videos and for sharing your lovely self with us.

[@ruby955]

Hello mam , my mother has shaky hands for 25 years her condition is terrible she can't even drink water from glass we have tried a lot of medicine doctors say it's a nerve condition called essential tremor but i recently heard about *LUPUS* ...i think she has similar Symptoms she has photosensitivity ,gets butterfly rashes, rashes on hands, had kidney failure in 1995 and pregnancy complications 3 times, arthritis,joint pain and swelling.....we have tried best doctors in india I'm afraid if she had been treated all wrong for past 25 years if u can guide us a little that will be a great help🙏

[@pamchircop7776]

Wonderful presentation…very helpful

[@noneofurbusiness5223]

Thank you. I know equipment is expensive, but hopefully, one day you'll be able to get rid of tinny sound.

[@brendaconway4949]

Love your content! Can you move your mic closer to you as the sound quality is not that great. I have to turn my volume all the way up.

[@jordaningle5645]

I need to see you! My vitamin D has been low for so long. My doctors don’t know what is going on with my body. Other than my vitamin d being low, some liver panel numbers being low and I have positive tpo perioxidase antibodies. We have been trying to figure this out and I’m giving up because everything keeps coming back normal besides these 3 things

[@jamesreynolds6719]

I really like this channel, however the audio is so poor it’s hard to understand everything that is being said, I have bad arthritis, and I’d like to learn all about it that I can

[@drkmlakshmipathy]

Dr Monica Agarwal cardiologist USA and Seema umashankar engineer from Mumbai who were diagnosed Rhuematoid arthritis had all medications however not relived by disease but proved that with veg diet and changing life style they reversed Rhuematoid arthritis...any comment regarding this ?

[@eunicelcastilloeunicelarac9421]

I found that a vegetarian diet helped some, but definitely did not "cure" my disease.

[@peaceandlove544]

Anti inflammatory diet (no refined sugar, grains, carbs, starch, and no dairy, no hot spices, no fried food, no chocolate, no alcohol ) low on tomato sauce, cabbage, broccoli, beans, peanuts, berries; is better it worked for me, sleeping well, managing stress, tai chi, rosary, huge glass of lukewarm water as if chewing it half an hour before any meds or breakfast, eating and sleeping on time, natural herbs for sleeping, sun baths, walking on grass, soil, sea, river barefoot, hug a tree.

[@davyg8864]

So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and codiene

[@sharinmythoughts2510]

ENBREL is my MIRACLE DRUG!!!! Those of you who are not feeling well most of the time should ask your doctor for Enbrel. And brown make a huge difference in my life. I still take methotrexate, and brown, prednisone. I still have flareups and I’m in a lot of pain. I have plantar fasciitis in both of my feet and Surgery and both of them for that reason. But my feet still hurt. I hurt all the time!

[@andrewtaylor9799]

Good video, but we know more than you say. For example, it's informative that the Masai, who live a traditional hunger-gather lifestyle outdoors have an average Vit D level of 47 ng/ml. And there are studies which show how much Vitamin D supplementation is needed to reach levels like that, taking into account each individual's body-mass index (BMI) (low BMI people need less supplementation than high BMI people). All of that info is available in on-line papers published in peer-reviewed journals. Search for "Traditionally living populations in East Africa have a mean serum 25-hydroxyvitamin D concentration of 115 nmol/l" "The Importance of Body Weight for the Dose Response Relationship of Oral Vitamin D Supplementation and Serum 25-Hydroxyvitamin D in Healthy Volunteers" Also Vitamin k2 is probably a good idea if you supplement with Vitamin D to avoid all the calcium that is absorbed going to the wrong place. How much Vitamin D do you supplement with?

[@nancyinoregon809]

Thank you for your nuanced presentation. I was gobsmacked last year to hear a youtube talk by a cardiologist (Dr. Pradip Jamnadas) who seemed to be giving a talk to a medical crowd that started out with "So we all know that calcium seems to be what's plugging up the arteries..." and I was sitting there saying "Wait a minute what's this WE ALL KNOW???" While acknowledging the importance of Vitamin D, his talk was about the fact that Vitamin K2 is responsible for moving the calcium into the bones instead of into the arteries and he has some good data to argue that point. So when you emphasized "WE ALL KNOW, that to make strong bones you need calcium" I had to laugh. But your talk was more about D3 in immune system health, not calcium and bone health, and it seems like there's more that's not known in how D3 works for that. Please keep us updated!

[@plumeria8357]

Great information. Thank you!

[@bdawn1982]

I had a recent lab done and my ANA was borderline positive with speckle D. Where do I go from here? I have more than the 4 symptoms of Lupus

[@charlestonscnative9083]

I have a diagnosis of SLE; you may want to ask your doctor for a titer and then a "cascade" to see if any autoantibodies show up. Not sure if your insurance would cover it because ANA is only "borderline positive". It's worth it to at least ask. Hope that helps! 🙂

[@bdawn1982]

@@charlestonscnative9083 thank you!!

[@nivi2046]

I'm suffering from pain in my foot for the past 2 years and couldn't stand or walk for more than 5 min. My RA factor is positive(53), ANA is weakly positive, Vitamin D is around 29 and Anti-CCP is negative. Doctors say it could be RA or Fibromyalgia, but not got the proper diagnoses. I'm suffering a lot for the past 2 years without able to get proper diagnoses and treatment.Kindly guide me doctor.

[@peaceandlove544]

How is your knee? Or is it a fascia issue. Does local infiltration help on your foot?

[@KateColors]

I heard somewhere that you take Vitamin D in through your eyes and to go outside for a while everyday first thing in the morning for at least an hour. You can get your daily walk in at the same time.

[@Paarthurnaxdova]

I love you so much! 🙏🏻

[@deniseg112]

I have parathyroid disease high calcium levels high PTH and very low vitamin D level. So confusing endocrinologist says don’t take vitamin D internist says yes take it. What are your thoughts

[@pottersclay77]

Dr. Berg has a video here talking about Vitamin D in relationship to PTH. He believes that if you PTH is high then your Vitamin D will be low. He also thinks that we should try to get our PTH to the lower end of normal by taking more Vitamin D. He explains it all on that video. I am not a doctor so I cannot verify if this is legit or not.

[@niagarafallscondos7982]

D? can be useful. but I suggest you to try a Canadian product Arthron 5. It may help you drop the RA factor.

[@rebmedina2835]

In blood tests my vit D levels are always 33. My neuro tells me it's too low and it should be at 50. Whenever I take Vit D tablets my body doesn't absorb it

[@Vixinaful]

50 is ridiculess. At least 240nml.

[@rebmedina2835]

@Vixinaful 50 is from blood tests not the amount to take

[@sharonshelton8494]

Why do you rarely, if ever, mention psoriatic arthritis. Why?

[@misszsazsa6288]

She DOES have a video on it.

[@Thehappyme02]

This video is really good but I'm amazed at the information that is NOT provide. There are hundreds, if not millions, of different kinds, brands and varities all of these supplements and vitamins. Just trying to find a good brand/kind of Omega 3 is so overwhelming.

[@anitahendershot3754]

Great video! Wonder why you didn’t mention K2?

[@bettyshaffer8289]

Thank you so much💕

[@kerbunkysmith5537]

Please get a microphone you sound like you are in a stairwell! You have great info it's just REALLY hard to hear you.

[@karenhamilton504]

I take 30,000 of d3 and 90mg of k2 for each 10,000 iu of vitamin d3. I have been off of meds for 1 year. It works for me as I have 3 auto immune condtions.

[@Simonay7]

@Karen Hamilton - Can calcium be taken with vitamin D3 and K2?

[@vivecawoods285]

That's D3 30,000 and k2 270 mg's per day? Is that right? In a single dose? Just starting on this journey ,thanks for the reply in advance.

[@gifgit8613]

Greetings from Poland❤️❤️

[@twinkledesigns9764]

I am hypoParaThyroid. I have NO paras. I take calcitriol every day plus calcium. Now have RA. Is there a correlation?

[@alexandralowder4680]

I wish to have a rheumatologist just like you, do you do consultation online?

[@imeldacabag7804]

Thank you

[@caz7363]

Please advise if you can. Thanks in advance. Why does vitamin D make me so sleepy??

[@gjvanderlaan4476]

Hi can you also make a movie with Noduli van Heberden or poly-atrose. There is not a lot off movie or info about it. But it is a sister of R.A. hoop to hear from you greatings Gerhard Johannes

[@farhiafarah6954]

Vitimin c Iron. Calsiam

[@mariebarreto5728]

For 90% of the questions self -asked, you’re saying ‘we don’t know’ please tell us what you know. Dats imparting knowledge & showing credibility . Thank you

[@dawncrossland3028]

EXCELLENT!

[@moviemaker159]

Doctor thank you for sharing this information. A few months back after suffering dryness in my nose and mouth I tested positive for sjrogrens syndrome but an antibody result led my GP to come to the conclusion I don't have sjrogrens syndrome. I am suffering a lot of pain all over my body, could she be mistaken?

[@1957es]

Of course. 20 to 30 percent of people with SS have negative tests. I was one of them. The gold standard is a lip biopsy but my rheumatologist just looked at me after she heard from my ophthalmologist and gastroenterologist and said, I know you have Sjogren’s and why do any invasive biopsy.

[@moviemaker159]

@@1957es Thank you I know I have it but I don't fancy a lip biopsy so I will suffer.

[@dannettesavas3269]

You are an earth angel❤

[@Thehappyme02]

How many units of Vit D3 was suggested by anyone's doctor for sjogrens?

[@kathyouthere]

I was told to take Calcium 600mg with D3 20mcg. My Sjogrens has been horrible. We have more problems because the sun can cause flare ups and I blister easily. Also was told to be very careful with supplements. I can't take Biotin. Ask your doctor since he knows your lab results.

[@tracysmith245]

the sound is very poor enjoyed the video I'm photosensitive lupus

[@Biskiesbug]

What a coincidence that this video was just uploaded. I had low vitamin d and ro correcntlt this I took 3K IU a day for two months. I somehow ended up with near toxic levels but no studies I've looked at showed participants achieving those D levels at this dose. All the studies I looked at had people take closer to 40-50K IU a day for many months or years to achieve this. Big conundrum, but my PCP seems to think it's possible for it to happen. Personally, im skepitcal. If anyone has any thoughts on this, I would appreciate it.

[@Katrn30]

Was the test re done? As an RN of 30 years I have seen lab results that were not correct often.

[@eunicelcastilloeunicelarac9421]

I have RA and Sjogrens. Vitamin D really helped my overall health. I still require medications, but overall I noticed a remarkable difference after I started vitamin D. I will definitely take it after a nice dinner and will report any difference.

[@petrprecious4345]

his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure..

[@peaceandlove544]

Lots of water, sunbath, walking on grass, hugging a tree, tai chi, anti inflammatory diet.

[@cynthiaarrowsmith5709]

Agree, my flares don’t seem to last as long since I’ve been on it.

[@ritchie065]

Solid gold

[@lisathompson1409]

Are you suppose to take vit D with K ?

[@cxh1225]

Vitamin K2 (MK7 variety); not vitamin K.

[@katiedid1851]

K2

[@cynthiaarrowsmith5709]

I take vitamin D. Mine gets low sometimes. I have RA

[@foxywhitetip7387]

Interesting. I’m having some autoimmune issues (debilitating) and I’m trying to find out which. My vit D levels just tested Very Low. I wonder if the chicken or egg came first .? I live in the tropics and have been consuming all the D animal foods for year, only the last 5 months have I been unable to tolerate the sun. I don’t think I’ve ever had low D before.

[@Vixinaful]

Those with autoimmune conditions are said to have problems with the absorption due to the VDR gene.

[@baileyumans3115]

can you please do a video on UCTD and hydroxiqluarquine!!! I just got diagnosed and I was put on this medication and it has caused me extreme itching. I want to go off of it but it has helped me. Do i have any other options.

[@petrprecious4345]

his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure..

[@stopitrightnow70]

Hi...my PCP a few days ago diagnosed me with RA with lab work and x-rays of my hand. My question is the test for SED rate was 45 and RA factor of 1000. Does this mean I be be in active heart failure?! I am waiting for paperwork to be sent to Rheumatology dept to be seen for first appointment. Ive been researching on internet and it's been helpful. But when I seen the info about SED rate and being high and associated with heart failure in freaked out now. Any response would be so appreciated. Thank you 💓

[@petrprecious4345]

his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure..

[@charlestonscnative9083]

I have had sed rates up to 120 and it didn't affect my heart, but my entire body was in extreme pain. Hope you get some info soon. 🤞

[@gamaltaher9714]

Thanks

[@rayanneP4]

I was told I was D deficient, & MD gave me Vitamin D, 50,000 IU/day. It constipated me so bad, I'll never supplement it, ever again. I've never been so miserable.

[@Jones607]

If you have an autoimmune disease wouldn’t Vitamin-D strengthen your immune system, and hasten a worsening of your symptoms?

[@Vixinaful]

No because when deficient, the immune system malfunctions and attacks wrong, with healthy levels, it doesnt.

[@saiyadauzmaazim6238]

Dear doctor, i am 42years old female i myself a doctor 2 years back i was diagnosed as RA +ve arthritis, SlE, i am also hypothyroid since 15 years, i also have interstatial lung disease, i am taking thyroxine, hydroxychloroquine, took rituximab twice, but my symptoms are becoming worse day by day i frequently have severe flares, joint pain swelling, muscle soasms, severe stiffness thro out my body extreme dryness of mouth, my doctor told me yesterday that i have MCTD i am very confused kindly help me what to do next

[@peaceandlove544]

Doctor, do not take diagnosis as if it were written in stone, I personally have thyroid issues, was diagnosed years a go with Fibromyalgia and giant cell enteritis/polymialgia but did not take literally, took the mind over matter, healthy lifestyle, as does meds are to hard on ones system, and as I have from very young stomach issues, colitis, bronchi issues, later migraines, cramps, goldbladder, etc chose not to. And have being doing good for 20 years. I saw how meds started complicating things for my aunt with RA. And I read the small print. Keep the faith and take the alternative healthy living root, but keep yourself checked and non opioid painkillers at bay just if you really have too, natural sleeping pills with valerian root and or melatonin are good. Cold or hot therapy too. Lots of water.

[@michelephillips4197]

My vitamin d was 12. The doctor had to prescribe vitamin d. She prescribed me vitamin d2, should i be on d3?

[@katiedid1851]

Yes. D3 .

[@karikruska]

Follow your own doctor’s recommendations. They are the one who knows your whole medical history, test results, other medications & supplements you take and have actually examined you in person. You can always schedule with another doctor in person for a second opinion. That’s much safer than taking medical advice from random strangers online.

[@farhiafarah6954]

Bones

[@yvonnesalcido776]

You need to turn up the volume on your videos. I have the volume on my laptop at max and I can barely hear you.

[@beverleyspugsandhomestead.]

Mine was less than 5.

[@Vixinaful]

Less than 5?! I didnt feel well until I was at 242nml. At that level I felt great!

[@deborahrea7375]

Hi, I am presently taking 4000 iu of Vit D (following advice of doctor) however, while I feel a little better, I still don't see a vast improvement. Everything I have read and listened to says it's hard to become toxic. As you say, rheumatologist etc al don't know enough about Vit D so I want to up myself to 5000. As a side note, I 'apparently' have Fatty Liver Disease.

[@whateverwhatever6496]

YOU have to take way more. 10,000 a day or 50,0-00 IU a week in one pill plus the 4,000 IU a day.

[@deborahrea7375]

@@whateverwhatever6496 Try telling that to my GP (now live in England)!

[@deborahrea7375]

@@whateverwhatever6496 I was actually put on a course of Vit D tablets at 50,000/week for 6 weeks. I never felt better in my life!!! I was just about running up the stairs. And now, I struggle to walk and turn over in my bed! According to my son, I am shouting out in pain!

[@janicecrose376]

@@deborahrea7375 Your comment is so interesting to me. I can't understand my recent energy surge. I eat exactly the same things and amount too. Maybe it's my updosage on Vit. D3 also. I was taking 2000 iu per day and went up another 5000 iu per day. Every once in a while I'll skip a day as I think it may be a little much. Who knows... Just know I feel good and energetic.

[@noneyabusiness9441]

It only took me 11 months to get a referral to a rheumatologist even though my antibodies are attacking my platelets. None of you on KZbin answer any questions

[@patricialivingston5349]

I have no faith in my MD. She should have known this - given I had a THR in 1980 she should have recommended it and explained why! Add the fact she used C. 19. injections and everyone who researches knows there is a 5 - 30 testing protocol for short and longitudinal studies examining side effects and all other factors including gender, height and weight. I knew this as a clinical Social Worker studying with PHd Nurses and Resident MD's for the final year of my Masters. If I know this there should not be an MD in N. America who would 'jab' (because it is not a vaccine) anyone for a condition with a 99.998% recovery rate. Disgusted. They've been calling me for 2.5 years to go in and hell will freeze over before I see any MD who used the jab!

[@rundogrun297]

Would love to listen but you need to have a mic! do better

[@elainelily9910]

Not much news here. You need vit D but we don’t know for sure how much and our latest data is from the 1990s.

[@farhiafarah6954]

Shugranfarhiashappinesssssssssss

[@shanarstra2129]

I dont think my rheumatologist cares about me at all hes neutral!

[@claudette09singh]

Thank you