How to discuss systemic sclerosis with a newly diagnosed patient

A Systemic sclerosis diagnosis can be extremely difficult for many patients. Physicians have much to consider when delivering this news. Prof Christopher Denton explores how he delivers this news and the advice he gives his patients.
He also discuss the long term monitoring and management of systemic sclerosis patients internal and external symptoms.

[@lillyrocks2011]

I hope treatments to stop the collagen extra production can be found. 🙏🏼

[@bijanderkumar5295]

Hi dr m also a patient of scleroderma

[@AtortAerials]

I just found out today my sister has Diffuse cutaneous systemic sclerosis seems pretty serious the more I look into it. 😞

[@boehringeringelheim]

Thank you for your comment. We are very sorry to hear about your sister’s health situation. If you are interested in getting more information and helpful tips about life with scleroderma, we invite you to visit: www.morethanscleroderma.com/ Wishing you and your sister all the best, Helen

[@CyndisKrist]

I'm sure there is variability among patients, but can anyone tell me how many years a patient with this disease is generally expected to live?

[@boehringeringelheim]

Hi Cyndis Krist, the life expectancy of a person with scleroderma depends on many individual factors. We therefore recommend that you discuss this question with your doctor. If you are looking for more information about scleroderma, this website may be useful for you: patient.boehringer-ingelheim.com/more-than-scleroderma/understanding-scleroderma/what-is-scleroderma Wishing you all the best, Helen

[@CyndisKrist]

@@boehringeringelheim Thank you very much.

[@amberpatterson9077]

I was just diagnosed with this.....I in fact AM terrifed, I know nothing about this disease and am so scared, I can't find anything positive about it.

[@boehringeringelheim]

Dear Amber, We are sorry to hear about your diagnosis and understand that this is not easy but terrifying. We recommend you to openly talk about how you feel with your treatment team/doctor and ask all the questions you may have. It is very important that you understand the disease you are living with and what you can do to manage it. We also invite you to visit our website where you can find out more about the condition including helpful tips for the daily life: patient.boehringer-ingelheim.com/more-than-scleroderma/ Wishing you much strength and all the best, Helen

[@BrianMillsSkills]

Gadolinium based contrast exposure for MRI scans can cause this in patients regardless of kidney function. Triggered it in me over night. Ruined my life.