Putting Scleroderma into Remission with Katie Spilka

[@RebeccaSong]

I was 11 when I got diagnosed and boy do I wish they gave me therapy to help me navigate it. You look great! You have zero visible manifestations, which is a blessing! ❤️

[@Angelaangelinoo_]

Bless you ❤ So when you got diagnosed nobody started you on a treatment? How long it took you to find out that you had scleroderma from you first sign let’s say ?

[@RebeccaSong]

@@Angelaangelinoo_ My parents noticed changes when I was around 6/7 years old. We didn’t have health insurance to go to the doctor until I turned 11 & that’s when the doctors figured it out. As soon as I got diagnosed, I was started on medication treatment~

[@Angelaangelinoo_]

God bless you 🙏🏻🫶🏻 thank you for the reply and I’m really sorry you couldn’t go earlier and for going through this at such a young age. My symptoms started last January and after 5 months I went to the doc as i didn’t find it normal. I was very persistent and went to more than 4 doc at the same time. I started already treatment a month after diagnosis. Are you now in remission or the condition is still active? If you don’t mind me asking what medication you are on now and do you use anything specific for the skin that you have seen results ? Thank you 🙏🏻

[@CoolInOlympia]

Great interview! What a fun person! So glad she is happy and so well!!!

[@lillyrocks2011]

I pray for a medication for our skin! ⚕️🙏🏼🕯️ To control or to stop the collagen over production.. It's terrible what this disease causes us😢. I hope scientists, pharma find better medications so we can live the most normal possible. 🙏🏼

[@JaneWestdyke]

Can I ask what your SCL-70 was? This was very informative. I'm glad you look so well...

[@NessrineEl]

هذا تحليل دم تصلب مجموعي

[@rachelsmith9823]

Hi my name is Rachel Smith , I would rather not be here any more the pain is all day and night , all most 30;years I have crest sick of the pain as with pain causes depression