How to talk about your pain to your doctor - a Rheumatologist’s point of view

[@neelaprakaashd9436]

Thank you Doc Not all doctors especially rheumatologists are as understanding as you are and that’s because you seem to have gone through it yourself.

[@LaShumbra_Bates_AuDHD]

Another problem with being able to properly describe the pain is when you've been in so much pain for so long that you can no longer tell how bad it actually is. Some of my tests and images seem like I should be in way more pain than I've described.

[@irishpm01]

That's me

[@suemathew8375]

@@irishpm01 Me Too !!

[@suemathew8375]

Me Too

[@ElainesAutoimmuneAdventure]

This is such a good topic! Thank you.

[@kathytracy7952]

I have pain in my joints,hips knees back arms and legs and feet

[@elizabethsilva2455]

Thanks you for your video. Very good advice. This has been the hardest and most frustrating part of doctor appointments.

[@DB-pm2vy]

How right you are about pain from varying sources. I’ve been autoimmune all my life and have had RkA for about 30 years. Now on Methotrexate but in August this year had whooping cough followed by cellulitis in right leg 🙄 Have been off methotrexate for nearly 3 months as well as pain from leg and ankle my joints are really joining in. I’m having to learn to walk again at 85 yo. 🤨My inflammatory markers are the bit the Drs can see 😊so regular blood tests are really helpful. Regards from UK

[@bjohnson1149]

Could you comment on Actemra?

[@kathytracy7952]

How do you figure out where the pain is coming from? And how to treat it without opioids please

[@mariado3690]

but so many lazy girl don't cook even without pain, like I used to eat snacks as I can't cook. I could not get out of bed due to laziness either. No pain. But with pain it is same! Just pain instead of laziness. Ok, laziness can be called tiredness too, it is same.

[@mariado3690]

because I look better than doctor and I talk yes too much something else, not on topic, they assume I am too good and I look better than doctor. I can not explain about pain nothing? I think people who moan are moaner for little thing, in fact, and not that bad. I don't want be same, so I don't know how to explain anything? I want do something, I do, I was doing gym classes to last minute when already everyone complained and asked me not to come to any class any more as I struggle too much, so I was forced to leave! Not like I can't do, I can! But other people do not want me doing because I am in pain and doing? So I can not explain. I have brain fog since childhood, it is like lack of attention and fatigue, so I can not focus or explain much. Also, when someone else talking to me they are in pain, but they can do task better than me, or look just lazy to me, what am I supposed to think? Yes, they are not much painful. SO after watching your video I still did not understand how to explain about pain, also I do not want tell I can not do something (I can not cook because I am lazy and did not learn it? also no focus to construct any dish), or I can not walk due to pain much (as I walked faster than doctor just now). I can not explain this? It is fibromyalgia-hypermobile joint?-but feels like lupus thing. They don't know what.

[@mariado3690]

No, you can't describe to doctors like this as I can't remember? Also, fatigue. Like who cares? Painful and that's it, if you talk too much surely no one believes you are in pain nr 1 rule as ill person is too ill to talk. They should ask, no? Also many people with anxiety aswell will tell you I am fine I can do everything, but they are in more pain than 'talkative' painful patient! So you can not judge by one's skill to talk/literacy! It only means he/she is good talker vs other one struggle to explain anything.

[@mariado3690]

I have phobia of medications, can not use (only rarely) and have to tolerate pain? I brave to try once a year and sick more? So I am in pain but medications phobia means doctors think I am not in pain as my phobia is severe. Pain is type: diazepam worked immediately for pain, dulox. also worked after one dose, but not as good - could not use more due to stoke like after effects for weeks. Tramad. works little bit. but I avoid and they don't give it. I think I need something else? For someone who avoids meds. Pain is all the time and I could not sleep for years when pain was worse. I wake up in pain so should not sleep more than 6 hour. How can I describe my pain type? I tried here my best.

[@margarita5155]

Wow 😮. Why ?

[@margarita5155]

Or how