How to treat and manage a vulvar lichen sclerosus flare

[@susanmarich5487]

I mostly have a pain component. Lidocaine burn cream works the best for me. I also wash with emu oil soap,very gentle. When i want to swim, i use a lot of Vaseline.

[@lichensclerosussupportnetwork]

Thanks for sharing!!

[@daniellemcvay5832]

My doc suggested Sarna lotion -- its got menthol in it so its cooling and the sensation can be nice.

[@petalblossom96]

So grateful for this channel 🙏🙏🙏

[@lichensclerosussupportnetwork]

Grateful to your and your support

[@angelicabrown6221]

Awesome Information ❤

[@lichensclerosussupportnetwork]

Glad it was helpful!

[@vandaguthrie1782]

good information! Thank you!

[@yolandahulley8798]

Thank you for your videos. I'm desperate for help. I've had vulva LS for 8 years now. It seems mine is different, I don't have the very bad itch like I see most ladies do but I have burning all the time. I basically burn every day and I have been for 8 years now. My doctor has told me there is nothing more they can do for me, the steroid creams and ointment just make it worse. I'm 48 and live in South Africa, health care here is just not as accessible or on the level like it is overseas. Your help will be much appreciated. Lord bless.

[@coachyamyam9666]

Have you tried tacrolimus ? It’s an immunosuppressant

[@carolearchambault7560]

Thank you I am very happy that I have find your channel I have lichen for almost 10 yrs and I have been using dermovate . For me it’s burning no itch. My biggest problem I have been having it all over my body and worst for a couple months. Besides steroids nothing to do. I just can’t fin😢any information for the body skin, the dermatologist just don’t know . Would you have more information? I also read that you need to stop eating sugar, gluten and alcohol what do you think about this? Thank you 🙏🏻

[@2541.Treehouse]

Thank you so much for this info. Super helpful information. Can’t wait to get the ice pack things. I have a really hard time getting comfortable when sleeping. When I flair up I tend to realize it right before going to bed. The pain hits and the whole area feels swollen and irritated. Once I can calm my body down and go to sleep I try hard not to move around to stir up the pain. I don’t get very good sleep like that and often wake up worn out. I can see how using ice could be very helpful. Also love the of adding Vaseline first before peeing. I had not thought of that. I use the same water bottle to rinse off but will also try it when I’m peeing that will probably help a lot. I try to drink plenty of water or tea when I’m not in a flare but when I start to feel the tingle of irritation I don’t even think about it I just automatically stop drinking so much. Which is counterproductive because it makes the urine more concentrated…..UGH but using the water bottle to dilute the urine flow! I can see the value in that as well as trying to remember to keep getting in my fluids. Looking forward to watching more of your videos. Thanks for the helpful content.

[@h.lilone6673]

Does the steriod cause skin thinning in a long run? Or have bad affects in a long run? Since its the only treatment for ls 😢

[@lichensclerosussupportnetwork]

When used properly, it does not thin the skin. Take a look at this interview with Dr. Jill Krapf. kzbin.info/www/bejne/kJKndXV3Z8R5bZY There are other treatments for LS. Ultrapotent steroids are just the gold standard. Check out our treatment page at lssupportnetwork.org/treatments

[@sandrarios4636]

Where did you buy the water bottle?

[@RoseGillinge]

Hi how to heal the vulvar wound

[@lichensclerosussupportnetwork]

Do you mean tears or fissures? Check our this resources. lssupportnetwork.org/managing-vulvar-fissures-from-vulvar-lichen-sclerosus/ lssupportnetwork.org/recurrent-tearing-and-lichen-sclerosus/

[@Elza.27]

So, you had flares?( Even using clobetazole…I thought remission means no flares… So what is the difference between your 3 months of using steroid (you got a flare at that period) and today?😔

[@geralyned9530]

Why would you buy those products ? I avoid anything with chemicals in it and find the herbal anti-inflammatory oils like Calendula oil, Castor oil, or Vitamin-E ?

[@jospi1844]

Do these help stop the itching?

[@lichensclerosussupportnetwork]

Everyone is different and natural treatments aren't always strong enough to treat lichen sclerosus. The levels of inflammation created by LS make it the most inflammatory condition of the vulva. Personally these products have kept me symptom free for almost 3 years and Jaclyn for almost 5.

[@Cruiselover-it6td]

I have not been officially diagnosed but 99.9 sure I have it. Confused what type of doctor to see.

[@lichensclerosussupportnetwork]

We have a provider directory you can use at lssupportnetwork.org/providers