I Had A Sore On The Side of My Tongue! - Eva | Stage 4 Oral Cancer | The Patient Story

[@moe9265]

By far the best patient testimonial. What an experience so many years ago!

[@elenigeorga6467]

That is exactly what i said when i watched her

[@EvaGrayzel]

People tell me there is a reason why I was the one to endure this horrific cancer. I prefer to think about it this way: It's not WHAT life challenge you are handed, but how you handle it. We all have challenges, and this was mine. That you for your support:)

[@KATYMCGINN]

​@@EvaGrayzel💜 SO POWERFUL! YOU HAVE ENDURED SO MUCH, GOD BLESS YOU EVA 😇🙏🏼✝️💜💜💜

[@AuthenticallyAlvarez]

One of my dear friends got oral cancer, she had her tongue removed and rebuilt from another part of her body, then removed it again because her body rejected it, removed all teeth, voice box and jaw bone removed, and had a trach and a feeding tube. Never smoked a day in her life. The dentist found it, and she went thru absolute hell with pain and deformed face, as well as not being able to talk anymore. She fell into a bad depression and became a home body. It came back a 2nd time, and it killed her at age 44. I miss my sweet friend Kathy😢

[@youngryl0116]

I’m so sorry 😣 I’m sorry she had to undergo all of that. And I’m sorry you lost her so young. I can’t image the depression she went through. That’s so heartbreaking. 😣

[@brendandoherty2159]

Wow, it sounds like Kathy had a horrific time, I'm truly sorry she had to endure the multitude of injuries her cancer caused, life is often so unfair. That said, she was lucky to have as great a friend as you obviously were and still are, kudos to you both.

[@naligsEkr]

What a truly horrific life she was forced to live. It's really hard for me to imagine the pain , fear, disturbance in her life, + blow to her self-esteem that she must have gone through. And then to have it come back!!! She must have been a very strong lady. They say that "God never gives us anything that we can't handle" but this poor soul's diagnosis, really invasive treatment, + the most severe pain she must have gone through.....I can't even imagine it!!! And after going through all that just to have it come back - I know it would be too much for me + I'd do that euthanasia where they supply you with the meds. What a nightmare she must have gone through. If you don't mind could you tell me more about your dear friend Kathy's life, diagnosis, treatment, etc. She must have been one very strong lady! May she R.I.P 💐

[@CB-wq9wp]

My condolences on your loss🙏

[@tofuluvrr837]

poor kathy :'( she did not deserve that torment... sometimes i do not understand this life...

[@iriswilliamson1133]

this beautiful lady is a treasure! and what a storyteller. God bless her and her family - she’s been through it. amoral cancer is brutal.

[@Ceerads]

I must say: You meant to type “oral cancer,” not “amoral.” 😅Autocorrect strikes again!

[@elviamunguia8397]

Loved this lady! I wish I could be her friend!! She has a genuine soul, what she said touched me deeply, thank you! ❤

[@shobhamuralikrishna3837]

More than agree !!!!!!!! Feel she has already effused that energy into the community !!!!!!!!!

[@nking532]

I just finished watching this video and I feel like I found somebody who really knows how brutal this cancer can be. I was diagnosed earlier this year with a sore tongue on my left side and it was chalked up to allergies. I also didn't know there was such a thing as oral cancer. Two weeks went by and I was getting concerned that it had not gone away. A dentist appointment saved my life. Things quickly changed in my life and I felt like I was just given the "death sentence". I had many emotions and kept saying "why me" because I thought I had been taking care of myself - going to the gym, eating healthy, not smoking, occasionally drinking. The only good news was that they found it early and it was Stage 1 squamous cell. I had surgery with a reconstruction as well and 30 radiation treatments. Today I am 3 weeks out from radiation and still feel like this journey will never end. But after reading your harrowing story I feel like there really is a second chance waiting for me out there. Thank you so much for posting your story and I am so glad that you are educating people that you need to pay attention to your mouth. I wish I could talk with you via phone or email sometime if that would be okay. Again, thank you for your uplifting story. God bless you!!!!!❤❤❤❤❤❤

[@Malmo117]

🙏🙏🙏🌸 healing peace and joy to you.

[@raider7829]

You've got this! Keep fighting. Keep fighting. ❤❤❤❤

[@cathylaycock5598]

That one Doctor who said you talk too much, is the type of person who needs the Karma bus that I’ll be driving one day! What a hard time you went through! You’re amazing! 😊❤️🇨🇦

[@K-bq3lv]

I wonder what the relevance of that comment from the doctor was about. Did he mean to imply that when she talked her tongue hung out and got sunburned and hence the keratosis? Absolutely uneducated and overpaid academic fools.

[@raider7829]

If you see my comment above. Im a dental assistant in 🇨🇦 Canada and MANY CRAZY DENTISTS...HATE HATE HATE TALKING. IT'S INSANITY.

[@cathylaycock5598]

@@raider7829 I agree!

[@tomjgrant]

I have a 40 year old niece who has undergone your story. The courage she has displayed serves for my courage dealing with challenges in my life. I thank you for sharing your story and send you endless hugs and love.

[@maralisil]

Wow, almost identical to my experience! I'm 6 years out.

[@terrybartick1754]

❤beautiful ❤

[@billie381]

God bless you. You have such strength. You are incredible Sending prayers

[@heartburn6160]

You are a tough person. Your story is riveting. God bless you!

[@EvaGrayzel]

I never knew I was that tough. I believe ALL human beings are tougher than they think they are. And, that includes you:)

[@naligsEkr]

When we think of cancer we think of the usual sites like breast, brain, bowel, lung, etc. I don't think I've ever heard of a patient with cancer of the tongue. I am a retired nurse + I remember a lady we had who had an aneurysm in her tongue. I think that you must have been an amazingly strong woman. I can't see me going through all that pain, etc but I must say that you must have had the best Dr's because you look fabulous. Sending love + best wishes from Toronto! ❤️

[@fluffykitten992]

You can get cancer anywhere on the body

[@elizabethdumas4147]

You are a beautiful woman. Always self advocate when a Dr dismisses you. I learned a long time ago to ALWAYS trust my gut feeling or intuition. It never fails me. I doubt that Dr would tell a man he “ talks too much”.

[@brucebiendarra9843]

My husband also had stage 2 tongue cancer twice and has never smoked nor chewed tobacco. He had radical surgery the first time a clinical trial of radiation and immunotherapy the second time,

[@DebbieBennett-p5v]

My person guess when we get these things that they are caused from venereal diseases like HPV, herpes and those things. I guess we should always use mouth washes and anti viral vitamins to help to keep us strong. But dentists do not check for oral cancers even though I remember that several years ago our government said they are to do it each visit. But again, these are the same dentists who don't know how important irrigation is during cleanings and procedures to keep germs and plaques from being swallowed

[@Ceerads]

@@DebbieBennett-p5vFind a dentist who does or whose hygienist does. I know that, depending on the location, it may not be easy to find good dentists.

[@brucebiendarra9843]

@@DebbieBennett-p5v Not always. One of his oncologists said that his cancer has a genetic component. Both of my in-laws are cancer survivors.

[@EvaGrayzel]

@@DebbieBennett-p5v There is a big difference between oral cavity cancer and oropharynx cancer. Oral cavity cancer (mine) in the visible part of the mouth, is usually not caused by HPV. HPV loves the tonsils crypts, the base of tongue and places you cannot see. Mouthwash with alcohol is NOT recommended unless you have gingivitis or some other issue.

[@reginaheath6131]

Children do need therapy when a parent is undergoing cancer treatment. Sadly my cancer center did not offer therapy for children. It's hell on the whole family

[@RustyShakleford1]

I agree there was only therapy for me when my mom was at hospice. I needed it sooner

[@darrellhicks360]

Praying for you, and ALL who are fighting this terrible thing. 🥰

[@amaliachirino5135]

Thank you! We do need prayers!

[@darrellhicks360]

@@amaliachirino5135 God is able.

[@EvaGrayzel]

Let's to more than pray. ASK for a thorough oral cancer screening at your dental check up. If you are not getting one, move to another practice. The pain to dentists of losing patients will motivate them to raise the bar, make changes, and provide the care you deserve. Oral cancer screenings is in the American Dental Association guidelines!

[@badnewssourgrapes]

I love the way her doctor told her to find the strength he really cared 👍

[@EvaGrayzel]

My surgeon and radiation oncologist became like second parents who birthed me another life. I'm still in touch with him. And, yes, he cared. He knew I could do better and I had a good reason to push forward.

[@badnewssourgrapes]

@@EvaGrayzel well Eva I have nothing but love & respect for you & those doctors I'm glad they were able to keep you around 👍 it's not easy what you went through thanks for sharing your story I enjoyed watching it 🙂

[@lisalee9182]

When I was a senior in high school, my great uncle had oral cancer that he was a nearly live long smoker of no filter camel cigarettes. They did surgery on him and took over half of his tongue, half of his jaw, part of his neck, but they didn’t reconstruct it.. I took him to all of his appointments at the doctors and held his hand while they took the stitches out of his tongue and bless his heart. He just cried like a baby. I’m all I can imagine how painful that was. He also had a trach and I got to clean that out for him.. unfortunately he passed away right after I graduated high school.

[@raider7829]

Horrible. I'm so so sorry. 😢 bless his soul.

[@devonhealy4553]

What a powerful story! Thank you so much for sharing. Everyone needs to hear this and what to watch for! You are so strong! It's truly inspirational! ❤

[@marydawnpafford9969]

Excellent share and educational. I was a dental assistant and we had a few patients who dealt with this. The side effects of the burning mouth/throat was sad and we delivered products aimed at moisturizing the tissues that seemed to help. My own cousin.. I'm so impressed with your NY surgeon, kudos.

[@Teaselpoppy]

She's marvellous. I wish you all the luck in the world.

[@susanehlava3808]

I feel so grateful to your medical team for getting you through such a horrible ordeal. Quite amazing what the human body and mind can tolerate. Life is so precious ❤

[@EvaGrayzel]

Humans are reliant. I believe your state of mind is a good part of the strategy for surviving.

[@nilsanarvaez7947]

I love her! ❤ She is so upbeat and funny!

[@tinareinforth973]

U are one amazing strong lady ❤🤗🏅🏅🏅xx

[@PerryNight-gc3fp]

I live in Brooklyn it's good to see you're still around.

[@Ceerads]

Same here, born and bred. Yay, Brooklynites!

[@milliesantiago5563]

You’re so beautiful, lady. Thank you for sharing your story.❤

[@EvaGrayzel]

Patient stories matter. By sharing my story, I'm playing a part in raising awareness and saving lives. That makes it all worth it.

[@maryroberts9315]

You are an outstanding speaker! Your discussion of the impact on your children is such an important topic.

[@dj_1969]

Thank you for sharing your experience. I am so touched . That bow tie wearing doctor is a God send ! Bless you ! ❤

[@LoobyLoo71]

Wow that really moved me x

[@cathywithac3793]

My dentist goes the extra mile at my annual cleanings and offers me this rinse that you swish around your mouth for a minute or two. After I spit it out, he looks inside my mouth with a special light. The stuff is nasty, ngl, but I'll put up with the horrible taste for a couple of minutes to know that I have no oral cancers. They probably didn't have this rinse at the time this lovely lady had her cancer. I'm grateful she's alive and well and educating others!

[@raider7829]

That's a GOOD DENTIST. KEEP HIM. ❤

[@anitagurns9480]

Oh my dear you are beautiful inside an out.I have 4cancer, rectal colon the treatment in that area radiation! I had 2nd 3rd degree burns on vagina an rectum but I can’t imangine oral cancer! Treatment there! Radiation omg!! I’m old alone through it all!! I am prone to oral cancer now an all of a sudden my teeth are failing!! I’m so scared! I was also misdiagnosed so many times missed biopsies also!! Lady you are truly lovely and blessed❤

[@kathieeidem5670]

My mom had oral cancer on the inside of her cheek…for 3 years or more her primary doctor told her it was nothing but a fungus…she was a smoker….when they finally diagnosed her it was advanced stage 4…she started chemo and died two weeks later….could have been prevented

[@4BarbaraJ]

Wow. Such a powerful and important message. Thank you for sharing. I’m so happy you fought for your life. Best wishes.

[@rebeccabeech4505]

You are incredible

[@Ceerads]

Thank you soooo much! I was wondering when “The Patient Story” would have someone with a head and neck cancer history. I’ve seen your videos. You are helping so many people. I know that nowadays, dentists say that any sore or discoloration in the mouth that doesn’t heal or go away in two weeks should be shown to a dentist. I’m a long-time survivor of breast cancer but am very aware of oral cancers. My dental hygienist always does an inter-oral cancer exam but doesn’t have the dentist do a neck exam. Now I’ll request that exam, annually (I, too, don’t drink or use tobacco or vape or weed, btw). I know that HPV-caused oral cancers are on the rise, too. Anyway, I wish you everything that’s good in life and health.

[@suzukigirl950]

wow, just wow. What courage.

[@darrellhicks360]

We need to get over some of these beliefs. You never smoked and you got cancer I know people with lung cancer, who never smoked and got cancer. It makes it an elusive concept, but we just need to be alert to our bodies advocate

[@diann546]

My mother died of lung cancer. She never smoked, but she lived with smokers and was a cleanaholic. Who knows what really killed her.

[@darrellhicks360]

@@diann546 Wow! 💔

[@Ceerads]

Google: “Globally: Over 50% of women with lung cancer are non-smokers, compared to 15-20% of men.”

[@stirlingrae2465]

it comes down to genes and environmental causes

[@darrellhicks360]

@@stirlingrae2465 And diet. 💯💕

[@perkman2009]

what a great story it wisent your time god bless you

[@Myschamber]

Very powerful story! 🙏🙏

[@holly50575]

WOW! I’m so impressed with you, your friends, your mom and the Mt Sinai medical team!!!!!! Just brilliant! So happy for you!💙💙💙💙

[@BlackCat-s4n]

"you are talking too much.." huh??? Unbelievable suggestion from a "doctor"!

[@fluffykitten992]

Exactly so I guess people that do talk radio school teaching etc where you talk a lot on a daily basis would get tongue sores .

[@deedt8279]

OMG - What a brave lady you are. I can imagen the pain which you must have faced. I am glad you are here to share your story.

[@claudiayapgsell105]

Touching deeply beautiful Lady!❤

[@heidi1651]

Beautiful woman 💖 There's a story of a female ancestor of mine who was said to have tongue cancer. She was given the option of having her tongue cut out and not being able to talk again or to leave it be. She opted to leave it and live out her days. Must've been early 1900s. I'm glad to see how far treatments have come.

[@hutchinson54]

What an amazing story. I wholeheartedly agree on the oral cancer screening. My dentist performs this annually if you choose to have it done. It costs me $25. It’s money well spent as far as I’m concerned. Some people don’t want to get because they don’t want to spend more money than they have to. Yes, it’s a very small price to pay. But you owe it to yourself. Please get an annual oral cancer screening. 🙏

[@kristinasims9351]

This is such a beautiful story! And YOU tell it with such passion and I appreciate you sharing ❤

[@jessiedoggie1942]

What an incredibly intelligent woman and a great storyteller as well. I had radiation 32 years ago, but it was to both legs below the knees. Nothing like head and neck radiation. Just tanning of the skin.

[@130crowd]

Wow. This is mind blowing for me.

[@robtrevisanutto4939]

Amazing woman. Thanks for sharing your story❤❤

[@Dmcsw-xg9cq]

Thank you so much for sharing your story. Very powerful. ❤

[@susanpache4063]

I shall now after watching all of The Patients Story. I will have the Drs test for cancer first! Then work their way down from that. It’s cancer until I find out it not!

[@pam164]

I had lump on the side of my tongue, but thankfully, it was benign.

[@PerryNight-gc3fp]

@@pam164 That's good news.

[@candyvigil550]

I can't believe how you were repeatedly dismissed. What a nightmare for you.

[@ericahalmai8490]

Thank you 🙏🍀 you are amazing 🇦🇺🌈

[@19th-Nervous-Breakdown]

My father was a dentist so I have some knowledge of oral cancer but I had no idea that people who neither smoked nor drank could get oral cancer. Best of luck on remaining cancer free and thank you for sharing your story.

[@jodeeblue9663]

🙏🙏🙏

[@reneeparker5219]

I was told I brush my teeth too hard! Not Cancer but a severe abscess in my jaw for 7 months. Then told I needed emergent procedure or it would spread to my brain!

[@rnempson1]

I loved your story so glad you are doing great❤

[@margaretlim6535]

You’re amazing thank you for sharing you have a champion spirit ❤

[@jeans.5756]

I just wait to my dentist for yearly cleaning he did not check!!! Years ago my favorite dentist always checked!!!

[@NonhlanhlaVundhla]

Super mummy

[@zeldadesantiago6974]

Wow

[@lisamahoney7766]

In 1985 at the age of 18 I was diagnosed stage 3 Hodgkin’s lymphoma. I understand the radiation treatment part. I was just finished with nine months of chemo and then needed six weeks of radiation. Since my tumor was between my lung and rib cage near my heart, they had to radiate me from my belly button all the way up to my chin, and just under my ears. Going through the first three weeks of radiation was harder than the nine months of chemo. I gave up after three weeks, because all my hair was falling out which I did not do during chemo, and I couldn’t eat or swallow hardly at all, because the radiation on my throat. When I gave up after three weeks, I was called into the doctors office and was given that speech about living and fighting. I did go back and finish the last three weeks. But I weighed 87 pounds after I was done with that. I’m 5 foot six and I looked horrible. I ended up having to spend the next couple weeks in the hospital to get IV fluids, and other things that they needed to do to help me gain weight. Since I had so much radiation on my chest, I ended up having to have a bilateral mastectomy in 2010. Then a couple years ago I had a quarter size spot on my chest that came back as basal cell carcinoma. That had to be removed and then earlier this year I was diagnosed with stage 0 vulva cancer. Our bodies take a toll on how many times you’ve been diagnosed with any type of cancer. Hopefully for me four times was enough.

[@mcanultymichelle]

It’s terrible you had to go through this, but I must say you are a great storyteller

[@luv2learn995]

They did an amazing job! Those other doctors need to have their license yanked.

[@m.bustock5265]

EMDR & Psilocybin dosing (micro or more) will do WONDERS for your daughter…and with little or no side effects.

[@anitagurns9480]

❤🙏🏾❤️🙏🏾❤️🙏🏾❤️

[@motherdaughtertravels]

Amen 🙏

[@bobbyhousley9877]

You are as beautiful as a model.

[@jeansteele7685]

Thank you Eva for telling your story. I worked 20+ years in dentistry. All the Hygienists did the oral cancer screening orally. They do need to check externally as well. Looking at your post tongue reconstruction, it looks like you have taste buds on that side. Am I mistaken? Did the radiation kill your salivary glands permanently? 😊

[@melissapoole8580]

Talk too much??? TALK TOO MUCH? That doctor should lose his license.

[@krysomish]

Ополаскиватели с антисептиком? Пасты с антисептиком? Если в этом месте язык подвергался постоянному травмированию, то это уже может легко быть причиной само по себе. А если ещё добавить усугубляющие факторы, то тем более.

[@merylslabbert3570]

Read the stuff from Dr Annette Bosworth [Dr Boz on KZbin] .. US certified internist, etc ... relating to body dynamics -- years of chronic inflammation create conditions for cancer development ... very much due to food choices.