My Cancer Had Been There For YEARS! - Faye | Rare Appendix Cancer | The Patient Story

[@brooks6348]

A friend was diagnosed with this 10 years ago. She has gone through the mother of all surgeries twice. Her cancer was more advanced at the time of her first surgery, but she has been able to watch her son grow up and continues to thrive. Best wishes for continued good health.

[@fayelouise7113]

This is great too hear ❤x

[@laureebaker8885]

My girlfriend had same cancer same surgery. It's been 16yrs doing great. I wish you many many healthy happy years ahead. ❤

[@fayelouise7113]

That's great to know 😊x

[@tee584]

Do you recall what her original symptoms were?

[@justsusan8606]

Excellent video! She explained everything so clearly. I can’t imagine losing that many organs at once! She’s a strong woman!

[@fayelouise7113]

Thank you ❤x

[@newnewsbrooklyn1513]

She explained very well. In 1996 i was told i had ovarian cancer because of high ca 125 and a swollen belly full of fluid. I was told to agree to an appendectomy and hysterectomy but they had not confirmed if i had cancer or not before surgery. So i only agreed to the tumor removal. Turned out i had an ovarian cyst and a fibroid growing on a stalk outside my uterus attached to my peritonium! The fibroid and cyst were removed and i had no cancer. Ca 125 went back to normal. I also got clots in my leg after and a clot in my lung before surgery. Never had a problem after.

[@ginajean9270]

My daughter had this same disease in 2022 😢😢 she’s doing good but recently got diagnosed with another rare disease called CIDP. I’m grateful for videos like this. Trying to encourage my daughter to do the same

[@fayelouise7113]

Awarness is so important x

[@maryg5982]

The exact same thing happened to me!

[@fayelouise7113]

@@maryg5982 are you well now? X

[@maryg5982]

@@fayelouise7113 The cancer has not returned (thank God!) but I have had CIDP for 5 years counting. My appendiceal cancer was found early during another abdominal surgery and they gave me an unplanned right hemicolectomy in addition to the surgery I was already having that day. I developed CIDP 9 years after my surgery.

[@maryg5982]

@@fayelouise7113 The cancer has not returned but I still have CIDP.

[@justagirl5593]

I was lying down at home feeling sorry for myself when I came across your story. I’m so sorry you’ve been through so much. I hope everything works out well for you now and that your future is bright. God bless ❤

[@fayelouise7113]

Thank you x

[@adrianasalerno5228]

Wow! My husband had a Whipple surgery and I thought that was horrific. Your surgery tops them all. So glad you’re doing well.

[@jasonellis8180]

I’m so sorry to hear about your situation, I do pray that you stay healthy & happy.

[@fayelouise7113]

Thank you x

[@pamelamiller4289]

My husband was advised to have his appendix out last year. A scan showed a cyst. Thank God no cancer. God bless for all you have been through.

[@wrewlf279]

That's what they told my son. His appendix "stone" was cancer. That was 4.5 years ago. So far he's NED!

[@alinamorejon9048]

Yourc story is remarkable. You are very articulate when telling your story. I am also recovering from Cancer. Ovarian Cancer. I had a full historectomy. Also a rare cancer, Clear Cell Carcinoma. Little is known and no clear cure. I had chemo, despite the fact that it doesn't respond to chemo. I lost my hair. It really wasn't a big deal to me. I nought a wig. Kinda fun. I had radiation and it was much more effective. Thank you for your detailed story. I will pray for healing for you. My faith in God has allowed me to get through everything very easily. I can't explain it. So I will pray for your complete healing.

[@fayelouise7113]

Thank you Alina. I'm sorry to hear about your own battle How have you felt after the hysterectomy? I have pelvic aches still but apart from that no sweats anymore I always said to my mother "hair loss is minor when your still alive" I hope you can be healed 🙏 xx

[@jenc4016]

What a resilient and brave young lady you are ❤ best wishes for a long and healthy life xx

[@fayelouise7113]

Thank you so much x

[@dawnmaddison3150]

HI I Had my appendix removed in February as a emergency. The hospital did biopsy they put it down as routine . I was told via call from consultant that my Appendix was cancer . Booked in to have my right Colon removed on 11th July. Thankyou for sharing as your right there is not enough about Appendical Cancer.

[@fayelouise7113]

I wish you the best for your treatment x

[@dawnmaddison3150]

Thankyouxxx

[@blucky1250]

Sending you the best. 💙

[@CrystalVargas-f1r]

Me too same thing and now they want me to do chemo but they never offer me the hípec treatment

[@fayelouise7113]

@user-yt8ro7jv4g they will do chemo before I believe they can only offer this when tumour is a certain size. I know a few here who have had before chemo then HIPEC X

[@SeamsLikeAGoodIdea]

You are so articulate and helpful. May your scans be clear for the next 20 years. All the best to you.

[@fayelouise7113]

Thank you x

[@Pakalani03]

Faye, you handle things as they come. You're a beautiful inspiration to survive your cancer. I hope there is a way you can become a paid/salaried survivor to help new patients. You have a very matter-of-fact attitude towards health and illness. Get strong, live your life. Enjoy the world as only you can.

[@fayelouise7113]

Thank you xx❤

[@MarilynMayaMendoza]

What an amazing story! I hope we are getting close to finding a cure for this horrible disease. This woman is courageous and mentally strong. I’m praying for her total healing.

[@keepitclassy7895]

Faye I follow Paul in Perth. I believe he has the exact same diagnosis. He is a wonderful person. Thought you might want to reach out to him. Sending prayers

[@alisonnewman4925]

So brave of you to share your story to help other people. You are truly a remarkable person. Hope you make a full recovery and have a very happy life xx

[@fayelouise7113]

Thank you Alison x

[@HollieBenji]

You are very well spoken. Thank you for sharing your story and being clear what the treatment was. Prayers for a full and complete healing.

[@fayelouise7113]

Thank you x

[@Sushi233]

What an amazing story, and person you are! You went through a lot, but I bet you'll have a long and healthy life ahead because of it!!

[@fayelouise7113]

I hope so 1st scan November 🙏 for no evidence of disease x

[@jimhenderson387]

What a brutal story! I'm so glad that awful surgery is in your past and your prognosis is good. Fortunately, you look healthy, and I wish nothing but good health and clean scans forever! Thank you for sharing your story.

[@fayelouise7113]

Thank you Jim my 1st scan is tomorrow 1 year on x

[@melissapoole8580]

You are the epitome of strength and courage. And so well spoken. Well done.

[@fayelouise7113]

Thank you so much ❤❤

[@debisusan4338]

You are so brave!

[@fayelouise7113]

I wasn't given a choice do or die was my reality 😢 x

[@brendandoherty2159]

You're certainly a character, one of a kind kinda person, you told your story well.....wishing you the best for your future.

[@fayelouise7113]

Thank you ❤ x

[@jerradmechals1]

Ive heard a lot of these stories and yours my take the cake. What an unbelievably strong beautiful woman Faye is!

[@fayelouise7113]

Thank you so much ❤❤

[@fayelouise7113]

Happy to share with everyone my 1st scan has came back as ALL CLEAR so here's to a cancer free xmas and new year 🎉

[@09addzy]

Yippee! I'm going through the same thing.

[@fayelouise7113]

@09addzy sending you positive thoughts! Have you had the op yet? Have they graded the cancer? Lamn ? X

[@originalcindy3211]

@fayelouise7113 Thank you for sharing your story. I’m happy to hear you are doing well.

[@LouFederer]

What a brave person you are. I can’t imagine going through even 1% of this ordeal. Your strength is inspirational. Thank you for sharing your story and raising awareness and giving hope to others.

[@fayelouise7113]

Thank you ❤

[@Deedee_9090]

My best friend died of this cancer. He fought is for 10 years, with a very major surgery and several types of chemo, but this a relentless cancer. I wish you all the luck in the world fighting this disease. ❤

[@fayelouise7113]

There is high grade and low grade and actual appendix cancer which spread through lymph nodes and bloods atm I am free of the disease and hope to stay that way I was low grade x

[@dshe8637]

​@fayelouise7113 it sounds as though your medical team went all out (literally) to get that cancer removed. Thank goodness it was discovered before spreading to essential parts and given such expert treatment. That hot chemotherapy wash sounds wild too. Wishing you all the very best for a long, cancer-free, future ❤

[@roxysimmons]

You've been through a LOT. Much love to you - I hope you have a wonderful life xxx

[@fayelouise7113]

Thank you I hope so too x

[@glennbaker5430]

She said it the way it was for her. Brave women as can cancer can hit us all,

[@sophiejackson7148]

Thank you for sharing your remarkable story.

[@fayelouise7113]

Thank you for watching x

[@peterbland7227]

Thank you for telling your story. I wish you decades of great health!

[@fayelouise7113]

I hope so too! Xx

[@borowski07]

Thank you for sharing. I have never heard of this cancer. I wish you the best life.

[@constancestripling8816]

Wow, aren't you amazing. Such a lovely lady. All good vibes coming your way sweetie. ❤ 🇺🇸

[@fayelouise7113]

❤❤❤ thannk you xx

[@ldfjlas]

it is eye opening and absolutely brutal what doctors have learned they must do to battle some cancers. they must have seen some terrible stuff in the past to take this kind of radical action.

[@jessiedoggie1942]

What an intelligent, strong, and courageous woman. Great sense of humor and beautiful to boot. Amazing the body can do without all those organs. Interesting to learn that chemo was done via local perfusion and that metastasis is very rare. Her treatment was very aggressive and that should bode well for her. Her doctors did not leave any stone unturned.

[@fayelouise7113]

❤❤❤❤ thank you so much ❤

[@jessiedoggie1942]

@@fayelouise7113 You're welcome Faye. My wife is a stage 3b colon cancer survivor. 11 years now and no longer needs CT scans. My brother is a 23 year survivor of a gastrointestinal stromal tumor on his small intestine. He still has to have CT scans as that cancer can be late recurring. That's how I knew about perfusion as they use it as well for that disease. You've got the right attitude. And your dog is a great friend to have.

[@fayelouise7113]

​@@jessiedoggie1942❤

[@sandraagens9646]

Yeah,.Paul in Perth also has this diagnosis and has been through the surgery. He's doing well, and is a good guy.

[@fayelouise7113]

I'm glad he's doing well he has had one hell of a rough recovery 😢x

[@avarose316]

Yes he has.. My prayers for everyone who is suffering from Cancer and all illnesses 🙏🙏🙏🙏

[@DD-si6qm]

Thank you for sharing your story. This means a lot to some people, you bring hope

[@fayelouise7113]

Thank you❤

[@brendakyer6913]

I worked with a lady who had this rare appendix cancer also about 20 years ago, she is alive doing well and getting ready to retire. There were only 2 hospitals in the United States at that time that preformed the surgery she needed and she went to the hospital that was about a 6 hour drive. I don’t remember them removing all the organs like they did with you but they did scrape and wipe down internally with chemo and then poured chemo in her abdomen and rolled her mechanically on a table for a long time, to wash her insides. Whatever they did, she has lived, she saw her children and grandchildren grow up and about 20 years of life that they really didn’t give her much hope without the procedure. Medicine has come a long way - I wish you the best - I hope your healing goes smooth and quickly and life treats you the best- you so deserve it after going through this so gracefully! Many prayers

[@fayelouise7113]

Comments like this really lift me up thank you❤

[@carolpainter4305]

When you think that you're on your own dealing with your cancer, watching videos like this is incredibly informative. Just looking at the feedback is when you realise that you're not alone. I truly can't imagine what it must be like to be told that you have cancer although, having that connection and empathy must be a great strength of support. You are a beautiful amazing young lady and I thank you for sharing your journey with cancer. God bless you

[@fayelouise7113]

Thank you ❤ x

[@sharonscott1776]

What a lovely lady u are, u have been through a lot. I’ll be praying for u. Wishing u all the best x

[@fayelouise7113]

Thank you so much xx

[@jennyrose2200]

My daughter had appendix cancer, she did have pain and they took it seriously. She did have thyroid cancer about 6 yr ago, two types so she was treated with radiation and multiple nodes were removed along with the thyroid. The cancer in her appendix was a "hormonal" type that they said had migrated from her thyroid nodules. During a total hysterectomy 4 yr ago, there were no signs of cancer. She is still at a greater risk of other cancers now even though scans show nothing and the cancer in the appendix seemed to be isolated. Crazy word, when cancer starts as cellular changes that can't be seen.

[@fayelouise7113]

Sending wishes for your daughter x

[@ginajean9270]

My daughter had this same cancer in 2022. They repeatedly diagnosed her as having an inflamed appendix. They finally took it out after months of ER visits. The tumor was super sized needless to say and cancerous. Praying for your daughter and you as well

[@mbhike]

Incredible story. Incredible resilience. What an amazingly strong woman!! ❤

[@fayelouise7113]

❤

[@xMichelex]

A very good friend of mine had this exact diagnosis and operation and the HIPEC in 2020. It is a major surgery and full recovery took a very long time, but she is doing great and living her best life again. She had bloating that wouldn't go away and this is what it turned out to be. She is truly brave and so are you. Keep on healing and well done on spreading awareness. 🤗

[@fayelouise7113]

I'm always grateful to hear people are doing wel it gives me alot of reassurance that I desperately need. Was she low grade? My 1st scan is November x

[@xMichelex]

@@fayelouise7113 I will see her later today and ask. She had everything just like you had to have removed etc. Because it was during Covid her husband had to just drop her off at the hospital in Miami and wasn't allowed to even go in. I will show her this video and ask her to answer for you. (I'm also English, but in Florida.) She just had clear scans two week ago, she has to go every six months still.

[@fayelouise7113]

@xMichelex I am annual so she may of had a different type to me low grade seem to be annually I had LAMN tell her I wish her the best and thank you xx

[@fatemad4012]

How can you survive without many organs in your life? Is there pain lifetime? Or any medicine to keep on?​@@xMichelex

[@xMichelex]

@@fayelouise7113 My friend Lauree said she had LAMN like you. I gave her the link to your video and she said she will comment here, maybe you can connect with her. xx

[@otreacey]

Best wishes from London. You’re very brave girl

[@fayelouise7113]

❤thank you x

[@naemasufi]

Sat here with my mouth open. So sorry that you had to go through that

[@fayelouise7113]

Thank you yes been an ordeal but still here to bring global awarness xx

[@daisymae3258]

6 weeks for biopsy results?? Absolutely unacceptable!!!

[@fayelouise7113]

Yes every week call saying sorry no MDT medical discussions no results 😢 really did spiral me x

[@jokjones1]

I have a very rare cancer too. Took 6 weeks for diagnosis after surgery by the MDT. Quite a normal time for very rare cancers.

[@dawnhoughton4533]

Probably because it's the NHS

[@stedydubdetroit]

Seriously? That’s normal.

[@jokjones1]

@@dawnhoughton4533 Australia

[@sallysmith4231]

Thanks for sharing I’d never heard of it before listening to you. Hope you continue to thrive , you look great xx

[@fayelouise7113]

Thank you so much ❤🎗I am glad more people are aware x

[@kimberleycameron5761]

Amazing to listen to your journey! So positive, God Bless you

[@sheepseven7588]

Oh God is so good He has a better way ,to handle cancer coming closer to God is teaching me patience am praying for you all remember disease never comes without a cause remove cause and remove cancer or anything thank you for sharing your life

[@gouldgirl1966]

What an ordeal you have been through. Happy that you are currently NED. Your cancer seems very similar to a youtuber, Paul from Perth. He went through a treatment that sounds the same.

[@fayelouise7113]

Yes I know Paul he has been through it poor guy but glad he is doing OK these days x

[@fayelouise7113]

Thank you for all your kindness ❤❤

[@darrellhicks360]

Thank you for your concern for all. That makes us worry and pray for you. 💕💕💕

[@elainerobertson1988]

Well done you. I’m s happy you are doing well - your personality and honesty shines through. Enjoy the trees, flowers and everything else. 💕🙏🏻🌲

[@fayelouise7113]

❤❤❤❤ thank you I certainly am xx

[@lademac5791]

This is such an uplifting story. My sister suffered for many years from this disease at a time before it was understood or even classified as a cancer. As a result, her treatment was piecemeal and prolonged over that time, with her abdominal organs being removed one surgery after another, along with part of her lung. She did have that heated chemotherapy treatment but by then it was too late to be effective. Consequently, I thought this diagnosis to be hopeless. It's not. Thank you for your testimony.

[@fayelouise7113]

Treatment has really progressed over the years for PMP yes a mammoth op but still here to share my story and bring much needed awarness worldwide x

[@littlemommacormier415]

Thank goodness you are cancer free, good luck on your recovery as you continue getting better every day.

[@paperandtwine]

I’ve just had surgery to remove a 3rd separate cancer. You have been through so much,I’m sending you my very best wishes for the future .Live life to the fullest,you deserve it after recovering from such brutal surgery 🤗

[@fayelouise7113]

3rd cancer? Omg your a warrior also! X

[@laurenpetrovic4582]

I resonate so much I had a similar cancer when i was 37years old (now 45) , appendix but Low grade Appendiceal Mutinous Neoplasm/LAMN , I got mine so early I was lucky it hadn't spread to my stomach cavity... thanks for sharing your story .. you are one BRAVE woman , that is a brutal surgery you went through..so happy you are thriving now..xxx

[@fayelouise7113]

Thank you I had my first scan last week just awaiting results now and it's agnosing pray for all clear x

[@Steelerschick2109]

You’re AMAZING💪🏼!!! Thank you for sharing your story to raise awareness 💛💛 !!

[@fayelouise7113]

❤ thank you x

[@terencetaylor4600]

Thankyou Faye for sharing your story.

[@carolineszepessy5331]

❤️thank goodness you were able to keep your stomach ❤

[@nancysrios]

My goodness, you went through a lot! Glad you are healing well.

[@Pavlova4534]

Wow you are Beautiful young Lady giving hope to a lot of people. What you have been through is definitely the Mother of all surgeries,and here you are with your strength and resilience,and your Never giving up attitude. It’s people like you that give hope to many,who find themselves in your position. God Bless you and good luck with your life ahead ❤❤ love from Sydney Australia 🇦🇺

[@fayelouise7113]

Ahh thank you so much ❤x

[@IndigoRoses7]

A friend of mine lost her father a few years ago to appendix cancer. Before him, I'd never heard of someone having this type of cancer. I knew it existed, it just was rare to hear or know a first hand patient. John fought like a badass for 4 years and passed away in June 2021. This woman is amazing and I truly, truly hope she beats this. She's so young and i love her strength. I'm wishing her a very, very long life full of happiness ❤

[@fayelouise7113]

Sorry to hear he passed away was it pseudomyxoma or appendix cancer primary? Thank you for you wishes I too hope i can remain disease free xx

[@IndigoRoses7]

@fayelouise7113 I should have clarified, honestly I'm not sure. I saw appendix cancer in the title and really wrote my comment before I watched the entire video. I definitely am not saying he had the same type. My friend and her dad never gave specifics, and her father was quite private about his cancer diagnosis and what he was really fighting. I truly hope you are well!! Remember, you are not a statistic and only you have fought the exact battle you are fighting. ❤️

[@fayelouise7113]

Thank you appreciate that! X​@IndigoRoses7

[@theresadavis4885]

You have an amazing attitude. I’m praying for you!!!!

[@fayelouise7113]

❤❤

[@holliethomson6147]

Bless your beautiful heart ❤️ I’m so glad you’re doing well. Stay strong 💪 I’m sending you so much love xxx

[@fayelouise7113]

Thank you ❤❤

[@janeshipley6993]

wow, you are some woman - my best wishes for you!

[@fayelouise7113]

❤thank you x

[@SantiBergoor]

May God give u strength ❤

[@stephaniepersin4222]

Congratulations for surviving that surgery!

[@carolineszepessy5331]

Great informative video ❤

[@SandySmith-i7u]

Thank you for sharing ❤

[@karmatoys]

Thank you for sharing your story. Very inspiring ❤❤❤❤

[@YanxiLi-d3f]

My mom had the same disease (LAMN induced low grade pmp), she went through the same procedure last year. Fortunately, she also got CCR0😊

[@fayelouise7113]

How is she now? Has she had her 1st clear scan? Mine is due soon I'm so on edge 😫

[@YanxiLi-d3f]

@@fayelouise7113 Her 1st half-year scan was clear, and we are due our second scan this month too. Everything will be fine!

[@fayelouise7113]

Its hard to think it will be... im jsyg a​@@YanxiLi-d3f

[@fayelouise7113]

​@YanxiLi-d3f I'm just anxious 😟 1 year on soon and my 1st scan mine are annually as I was LAMN

[@lindasalconi2039]

I just learn yesterday that i have a appendice cancer but do not yet know what type ,thank you for your video

[@fayelouise7113]

Have they done a biopsy? I hope your low grade and treatable x

[@frankiegraham3918]

You’re a young, beautiful, and very courageous and strong women.

[@fayelouise7113]

❤thank you x

[@fayelouise7113]

❤❤thank you x

[@GinaSherman-gc2cx]

You are so beautiful ! God bless you . Wish u well

[@fayelouise7113]

Thank you so much xx

[@rubyray777]

You're amazing! Thank you for sharing your story!! I wish you continued health and wellness!!

[@lindacampbell1559]

You are so brave!! Thank goodness you got through the surgery. Bless you and i wish you a speedy recovery.

[@fayelouise7113]

Thank you x

[@colleenmarcotte5578]

God Bless You. You are an inspiration to all.❤🙏

[@fayelouise7113]

Thank you x

[@lisagreene4193]

Great video. It's great you're doing so well. You're too young and I understand how bad it feels to think you can't be declared cancer free for decades. But some people don't get long periods of NED, they recur and need ongoing treatment and regular scans forever. Take the one per year and be happy you don't need more. I wish you all the best!!

[@fayelouise7113]

Thank you I know some have it come back but 20% do and that's across all grade of pmp pseudomyxoma I am just living life to fullest now while I can x

[@SuperBBetty]

Aww ❤you are an inspiration ❤ such a strong woman!! Your story will help so many people in the future 😊 thank you for sharing xx 😘

[@fayelouise7113]

Thank you ❤

[@Ceerads]

Thank you for this video. You’ve been through so much. I hope you’re NED until you’re declared entirely cancer-free.

[@fayelouise7113]

Thank you and me xx

[@plops993]

What a tough lady!

[@eddiepriesty2525]

Thanks for this video. I had my ruptured appendix removed in March, told 16 weeks later they found cancer during the biopsy. Thankfully my scans and bloods are all clear. I'm starting my journey with Basingstoke for the HIPEC and I'm very nervous about the whole process. Your story resonated. I'm also 39, and lost my father 2 years ago to bowel cancer.

[@deemehmet9018]

Brave woman bless 🙌

[@cathylaycock5598]

My oldest brother and his daughter both had cancer of the appendix. My brothers was quite bad, part of his colon had to be removed. A couple of years later, he passed from Leukemia. My niece had an appendectomy and was fine after. I had my appendix removed in 2020 and luckily was appendicitis no cancer.

[@t0ncsyy]

Wish you many happy years ahead!

[@fayelouise7113]

Thank you x

[@fayelouise7113]

I am well aware of PAUL in Perth! We have our own journeys with the cancer I've gone out for the last 8 months of all my recovery to bring awarnes And reach the world... he does his via you tube channel. We have had same diagnosis but our visions are different Thank you I work tirelessly to make others aware and hope to save lives x

[@jamessilby1814]

Lesssshgo faye 💯🤙🏾👍🏽be powerful and continue too be a strong woman

[@fayelouise7113]

❤❤❤

[@Robin5957]

My daughter had colon cancer years ago and she also said the NG tube was the worst part!!! ❤

[@fayelouise7113]

Yes and the drains x

[@terismedley7467]

A dear friend of mine also had appendix cancer and went through two of the Hipec surgeries in less than a year. She was a warrior! Blessings to you.

[@fayelouise7113]

How is she doing now? X

[@terismedley7467]

@@fayelouise7113, unfortunately, she lost her battle but passed with grace and dignity. Her story isn’t your story, though.

[@fayelouise7113]

@terismedley7467 I know I just feel scared when I see people passed from it.. was it low grade pseudomyxoma like mine?x

[@terismedley7467]

@@fayelouise7113, I'm really not certain. She had already battled breast cancer and a reoccurrence for that cancer when she was diagnosed with appendix cancer. Her appendix cancer was very advanced at the time she was diagnosed. She was in her mid 60's when she was diagnosed and her immune system was diminished from prior chemo treatments. Like every cancer, each person's journey is different. My husband battled a rare cancer (Follicular Dendritic Cell Sarcoma) and was later diagnosed with Leukemia. I've battled stage IIIC Colon cancer, myself. All you can do is make the very best decision you can make at the time you need to make the decision. Take care of yourself and a positive attitude goes a long way to making you feel mentally strong.

[@heatherlindsay4278]

I had GCC adenocarcinoma on my appendix 3yrs ago I had a radical hysterectomy when I was 41 I thought that operation was bad until I had a right hemicolectomy debulked an a bit removed from my bladder no chemo as you say recovery is slow but grateful for every day

[@fayelouise7113]

Oh wow no chemo? Glad your OK now x

[@anitarose7915]

Doctors are nuts!!

[@Cat-qn1yw]

I had a HIPEC surgery in 2016 for the same cancer. My appendix was removed 3 months prior and two different hospitals determined I had the same cancer. My abdominal cavity was filled with the mucin. During the HIPEC surgery it was discovered ALL the mucin cancer was gone. I had many people praying for me and God answered the prayers. Unfortunately my surgeon made a mistake. I have had to have all my small and large intestines removed and my bladder. When God heals from cancer, it never returns. I’m expecting a creative miracle from Him. I thank God for the doctors, but my life is in The Lord’s hands, not man’s.

[@fayelouise7113]

Sorry to hear about the mistake may I ask where you was treated? I was Basingstoke x

[@Cat-qn1yw]

@@fayelouise7113 I was treated in Portland, Oregon. The surgeon thinks she touched my transverse colon with a hot cautery tool that created a blister. After I was sewn back up it burst. This was discovered three weeks later when I was very ill and went to the emergency. Unfortunately, they didn’t do another surgery to fix it for fifteen months and so much damage was done.

[@fayelouise7113]

@@Cat-qn1yw omg!! Are you OK now? Still NED? X

[@Cat-qn1yw]

@@fayelouise7113 I’m doing well, however my life is rather small because of fatigue and I am on nightly infusions for nutrition. I fortunately can eat , but not much is absorbed.

[@fayelouise7113]

@@Cat-qn1yw sorry to hear this 😢 x

[@magdavanderlith925]

You are amazing. ....😊

[@jim4528]

Nothing easy about that surgery. I think of you as super lady.

[@cherryblossoms2692]

Thank you for your story.your inspirational ❤️

[@alinasanders6169]

This is a strange cancer..😢

[@svenjasvensson26]

Wou thank you so much for this Video. i have also 8 weeks ago an HIPEC operation here in Germany (sorry for my Bad englisch) but i find nothing online in german About The Pain and how long it takes it that i feel better.

[@fayelouise7113]

It can vary person to person but usually within 12 weeks the pain eases off but 12 months for full recovery from fatigue and groin lower back ache I have experienced x

[@kimberlyharris4445]

Thank You for sharing your experience,it's very much appreciated 💕...I've just been diagnosed with Uterine Canver(a very aggressive form)..undergoing "scans" now(to see if it has 'spread' to other organs) before the hysterectomy AND to see if I'll be having chemotherapy before surgery as well as chemotherapy & radiation, afterwards.. Yours is only the second video I've watched. Even though the 'type' of cancer you experienced is very different from mine,I'm finding reassurance and knowledge from your video..Thank You again,I'll keep you in my prayers💕🙏🙌✝️🕊

[@kimberlyharris4445]

Btw,I'm in Southern Tennessee (100 miles from Nashville,Tennessee🤠🎵🎸🎼🪕🎶) U.S.A.

[@fayelouise7113]

I hope you have a successful treatment are much more than a diagnosis and a statistic xx

[@Katwinser1958]

Wow that is sad.

[@TheKylie777]

Wow! Thank you for sharing your story. I’ve had breast cancer and have had a double mastectomy and ovaries removed as I carry the BRCA1 gene mutation. In addition to being at risk of lots of other cancers, peritoneal cancer is another I’m at risk of. Seeing as your mum also had bowel cancer, do you mind me asking about your genetic testing and results? Wishing you continued NED. xx

[@fayelouise7113]

I was told this isn't linked to mum's cancer not sure about genetic testing? X

[@KMyer]

If not treated on time this can lead to having what's called the motherload of all surgeries. It's when the organs are scrubbed and it takes hours and hours. I cared for someone who had it and they're doing great many years later.

[@fayelouise7113]

@@KMyer that is what I've had MOAS x

[@KMyer]

@@fayelouise7113 Ah ok, I stepped out of the room and missed the better part. You did great because it was VERY rough going through it for my relative. Even though they call it a pseudo cancer, her oncologist did not put her under any treatment but watched her for 5 years.

[@fayelouise7113]

@KMyer yes watch and wait but I was given this operation if I get recurrence in future as I'm Low Grade LAMN I will have watch and wait more than Likely which will really torture me tbh x

[@KMyer]

@@fayelouise7113 It's going to take several years before you can relax and not think about it daily. I'm also a cancer survivor and while it doesn't go away, it gets easier over time. The stats are in your favour which means you can lead a long, healthy life. My relative was an extreme case, so much so that surgeons came just to watch the operation. She runs circles around me now.