I’m glad you enjoyed it. It was a strange one to try to describe. Vision is so insanely complex. I hope It made sense. What has been your experience with blindness (if you don’t mind me asking)?
@3rdeyevisions3 жыл бұрын
@@UnsightlyOpinions as far as I know, mine has been very simple, earlier in my years, people who didn’t understand used to ask me what I could see, some held their hands in front of me and asked me if I can see their hand, you know, things like that other than that, I would get the occasional stairs because I could feel them looking but I didn’t let that bother me as some people would have, that’s all
@rjst13 жыл бұрын
Hi, Nice to see that you have surpassed your srecent ubscription goal!
@UnsightlyOpinions3 жыл бұрын
It’s amazing how fast things have been growing. Leaps and bounds! I’ve got something really fun planned for the big 500 😉
@karihus6855 Жыл бұрын
You are an inspiration! I wish when I was younger we had KZbin and a way to connect with others with the same conditions. My sister and I both have the same diagnosis as you. For us finding an ophthalmologist willing to work with us to find our best corrected vision was so important. We had Dr’s Tell us they would not offer corrected lenses, “go to a low vision clinic and get on with your life.” My corrected vision is 20/40 in one eye and 20/60 in the other. Without glasses…l the big E is as far as I go. I am blessed enough to be fully independent. I use magnifiers. Thank goodness for the technology we have today. I love the Kindle app for book reading. I grew up with the only option in school were the huge books with large print, that were so embarrassing to use. You are a great inspiration for young people and parents of children with albinism that they can lead a productive full life.
@TechnicallyLenard2 жыл бұрын
Hello Tamara. I too am legally blind. My visual condition is technically optic atrophy secondary to neurofibromatosis. Basically, I was born with a growth in my head that put pressure on the optic nerves/redness. Said growth damaged my retinas causing scar tissue. Said growth has since drastically decreased in size, however I am still left with the visual condition. My vision has been somewhat stable throughout my life. However, as I am now in my early 40s, I am finding that my vision is starting to fall off considerably. However, I am still able to largely navigate independently without a king. I was told when I was younger that I was a good liar because I could navigate so well without a cane and visibly seem as though I had good vision. I learned ways to kind of work around my visual impairment as you said. Great video. Keep up the great videos.
@UnsightlyOpinions2 жыл бұрын
Thanks Leonard. I’ve heard similar things from a lot of VI folks who have had vision loss from early on. It’s amazing his you can accommodate for vision loss and “fool” the sighted folks into thinking we are more than we do.
@amandareed18712 ай бұрын
Thank you for showing me how you see it gives me a much better idea what you and others are going through and how we take our vision for grated. Your are a strong person incredibly amazing person.
@claudiaanderson6210 Жыл бұрын
Hello, Tamara. I'm a sighted subscriber, and glad I found your channel. This particular video popped up on my feed today, so I took time to watch it. I thought you did a very good job of verbalizing how and what you see, and your explanation of why was very informative. I think back over the relationships I've had with VI friends and while they were, I think, positive for us both, I'm realizing how much richer they might have been had I been less shy about learning about the things you talk about on your channel and allowing them to teach me things that would both inform me and be a benefit to them. You do an excellent job of bridging the gap for both your VI subscribers and us sighted ones. Thanks.
@UnsightlyOpinions Жыл бұрын
Thank you Claudia! You made my day. :) I'm sure any blind/VI person was all the richer to have you in their life. We all talk about what we need at different points, so if it didn't come up, I'm sure you were doing just fine.
@still_becoming3 жыл бұрын
Thanks for answering my question in such great detail !
@UnsightlyOpinions3 жыл бұрын
I’m glad you enjoyed it. Vision is so complex and hard to explain. Haha it was a tough one to try to get right but I think I was able to get a sense across. I wish I could get people living in my brain sometimes to see what I can see. :)
@LawrenceChung3 жыл бұрын
Your video is so inspiring!! I really enjoy listening and gaining your perspective of the world. You made me feel very grateful for what people normally take for granted ❤️ Sending a lot of love from London
@UnsightlyOpinions3 жыл бұрын
Thank you so much! That is incredibly thoughtful and kind of you to say. It was always my hope that I can help people explore new possibilities and ideas. :) How are things in London? It’s been quite a while since I’ve visited with the pandemic and all. But I love London! Awesome transport and so many possibilities of things to try. I can’t wait to go back when it’s safe again.
@LawrenceChung3 жыл бұрын
@@UnsightlyOpinions London is under lockdown until April! It's been difficult but it'll get better once we can go out again. London will always welcome you back!!! 😇
@blindlyexploring3 жыл бұрын
Thank you for all the details. Got lot of info. Vy the way i have retinitis pigmentosa
@UnsightlyOpinions3 жыл бұрын
Glad you enjoyed it! RP is an interesting disease. Everyone o know seems to have a very different experience with it.
@sarahchapman36752 жыл бұрын
Hi Tamara, I slso have Albinism, i wasnt given much information growing up or when i lost modt of my vision in my left eye a decade ago, in fact. Its only been since watching some of your vodeos that i have been paying attention and to be honest, i think i need a new eye test becsuse everything uou said made sense. I actually found myself purposely looking to see if i have peripheral vision - nope, my brsin has obviously been playing tricks on me, and tge floaters? I thought they were down to the light. You have been incredibly inspirationsl to me and I will definately continue wstching.
@UnsightlyOpinions2 жыл бұрын
I’ve never had an experience where I could see floaters, but if you feel your eyesight is failing or chainring always for the best to go see the ophthalmologist again. Wishing you well. 💜
@LaceyArtemis2 ай бұрын
I briefly dated someone a couple years ago who had at least a couple of the same things as you, so it was really interesting to get a bit more detail about them that I didn't get to learn from her.
@Empowerment7pte Жыл бұрын
You did a great job of explaining vision loss. I have retinitis pigmentosa, and could totally identify with so much that you said. Thanks for putting forth this video. It gave me great perspective as well as the words needed to express what I am unable to see. Thanks a bunch.
@UnsightlyOpinions Жыл бұрын
It can be so complicated explaining vision loss. I'm glad I could help you find words to express what you see. :)
@nancydriessen5943 жыл бұрын
Very interesting! Thank you 😊
@UnsightlyOpinions3 жыл бұрын
I’m glad you enjoyed it! 😀
@jericho66573 жыл бұрын
that really hurt me .... you are so sweet ,,, you have the most beautiful eyes ive ever seen , i really wish you a good life .
@LawrenceChung3 жыл бұрын
The channel subscription link in your video description has an extra space bar between the channel link, and the subscription element part starting with a question mark ?. I hope you can hear this and get it amended 😇
@UnsightlyOpinions3 жыл бұрын
Thanks for letting me know! I’ll get right on fixing that!
@hei-chinglam33423 жыл бұрын
Hi, I'm also albino. So glad to find this channel
@UnsightlyOpinions3 жыл бұрын
So glad to have another PWA as a part of the Unsightly crew. 💜
@ernestcallenbach9953 Жыл бұрын
Fascinating. Great combo of facts and personal experience and very clear
@UnsightlyOpinions Жыл бұрын
Thank you!
@amandareed18718 ай бұрын
Im so grateful I met you. You give out excellent information.
@UnsightlyOpinions8 ай бұрын
Thank you! I'm so glad you find it helpful. :)
@meatofpeach2 жыл бұрын
very interesting, thank you for sharing
@UnsightlyOpinions2 жыл бұрын
So glad you enjoyed it. It’s a bit of a complicated thing to explain. :)
@Gary-z5y2 ай бұрын
Love your channel!
@bethyoung36543 жыл бұрын
Very informative. Thank you!
@UnsightlyOpinions3 жыл бұрын
Glad you enjoyed it!
@danielwipf70412 жыл бұрын
I also have albinism but I think my eyesight is some better then yours..... I often have work outside I have to read small print ( I use my phone for that) work on solidworksand and pro nest with magnifier on windows 10 I started welding I can do a beautifull job but not In many positions I cant do upside down (never really tried doing upside down) been working with steel for going on 7 years and I love it the 1st 5 I did all the precast steel and now I work for a steel company do all the table plasma cutting (that was hard for me to learn ) opperate the band saw and a press and a sheer.... so yeah my eyes always get exercise also my sister she always works in the garden she puts on some sunglasses and a hat with a wide brim and she loves it.. hardly gets sun burned always wares sunblock.... she does baking cooking and she loves she has a beautiful voice ( honestly the best voice I ever heard ) ( she got that from my old man) who also has albinism he's been working with Hoge the past 4 30 years and a part time painter (like makes sure there's always paint flowing ) and my mom her dad also had albinism he worked with chickens for about 40-50 years and a peddler on the side when we were kids he spoiled the heck out of us 🙂
@jocelynpetalio15686 ай бұрын
I am also an albino and experience the same blur vision but at the age of 44 my vision become worse i can no longer settings clearly even doctors don't know what's happening to my eyes
@UnsightlyOpinions6 ай бұрын
I've heard similar things from other PWA who have had stable vision all of their lives. I have a friend who is about 40 going through the same thing. I hope they can figure out what's going on for you. :)
@dona4him942 Жыл бұрын
Hi. I've just subscribed to your fascinating channel like, a day ago. My twin brother and I are both legally blind without our glasses. I'm not sure exactly what his current vision is, but mine is 20/400 without my glasses. With my glasses, my eyes are 20/20. All I know is his vision is a little bit worse. I don't know why. And we can both drive.
@bananian3 жыл бұрын
Is it some sort of autoimmune reaction causing the optic nerve to atrophy? I'm just curious why it happens.
@UnsightlyOpinions3 жыл бұрын
There are quite a few reasons that can cause an optic nerve to atrophy. At the moment my doctors think it has to do with a genetic mutation. Although auto immune reactions, illnesses, and other things can cause it as well.
@bananian3 жыл бұрын
@@UnsightlyOpinions This is unrelated but I drew a character that's albino as well. I titled it Being Emma and she's got two friends with her as well, haha. Many thanks for your inspiration! 😄
@rickypasketofficial3 жыл бұрын
Morning my friend
@UnsightlyOpinions3 жыл бұрын
Morning Ricky. Glad you stopped by :)
@rickypasketofficial3 жыл бұрын
@@UnsightlyOpinions I'm always around
@BilalAhmed-us1ne3 жыл бұрын
Tamara yu are really nice yu are much beautiful love from Pakistan ♥️
@appley1793 жыл бұрын
you are so beautiful
@talhazubair4295 Жыл бұрын
Dear I like your videos but my English language is not very good place type in Urdu language in your videos please 🥺
@UnsightlyOpinions Жыл бұрын
I would love to, but unfortunately I don't have the funds at the moment to translate my videos. I will definitely keep this in mind for the future. Wishing you the best!
@KoeDomo2 ай бұрын
do you have a caretaker? what happen if a person goes blind and dont have family or friends.....
@UnsightlyOpinions2 ай бұрын
I live independently. I don’t need a caretaker. A blind person can develop all of the skills needed to do things independently. While friends and family are a nice support network for anyone regardless of disability, it isn’t strictly necessary for success and independence.