I'm Struggling... Kidney Stones, Stents & The Problems With The NHS

[@chandramoon100]

I’m so sorry this is all happening to U. You’ve definitely been through sooo much & by the sounds of it have a ways to go yet 😔…. I totally understand, 100%, what it’s like to live with chronic pain, frustrating medical staff & procedures & always feeling like I’m having to heal from something… My heart & prayers go out to U… & thank U for being so brave & sharing this life experience. Your story & perseverance definitely helps give strength to me & I’m sure many others!! So pls, hang in there my dear, keep up the strength & I just hope that you’re feeling better & getting closer to some kind of freedom from your kidney troubles 💚💛✨✨ Really… all the best & God speed 💚

[@Essentially-Ella]

Thank you so much for this lovely comment. All the best xx

[@NINmomma]

I am so sorry. I wish I could give you a big hug. I need one too. I just came across your post and feel the emotions you have. I had a 7mm stone stuck 4 weeks ago. Went in to get removed but was almost sepsis so they put stent and reschdduled surgery and filled me up with antibiotics. Then myself and family got covid, which Im extremely high risk. Just got stone out last Thursday and they put new stent in. I get it removed this Thursday, but feel like I'm dying. They are do painful and I don't know how to handle the pain. I'm taking multiple meds, and I don't like that. Nothing seems to help. Do you have any tips? Also, since you've had multiple ones, have you noticed that you started your period/cycle after the stent is put in? I have a nexplanon for endometriosis that prevents my cycles, so haven't had period in almost 8 years. I don't think this is a coincidence that I started both tines stents were put in. Please feel free to message me. I'm here in Texas. Hugs to you.

[@sammierahimi6553]

Hi there. I am happy I found your channel and please excuse my TMI, so anyone who feels squeamish. Dont finish reading my comment.. 💜 I've been dealing with a recurrent urosepsis issue where I developed two almost half inch kidney stone clusters. I had a stent in for a year before my urin was sterile enough to proceed. I ended up having a PCNL to break down and remove stones. They replaced my stent that had become fragmented with a temporary stent and also placed a nephrostomy tube. I just had the stent removed Friday. So glad to be stent free after a year. They told me I still had a small stone fragment to be removed but it's small enough to do a less invasive procedure. I was told if I am okay in a week I can grt the nephrostomy removed. The issue is they replaced my bag and attempted to add a stop-cock so that I could stop drainage drainage that week to see how I manage. Well it was leaking and nothing they did fixed it, except just reconnecting the new bag directly with out a stop-cock. It seems ok, but I got home it was leaking. Then overnight it did not leak. So I am just keeping an eye on it, because I really don't eat to go through a PCNL again, as I had extreme nerve damage. Have you ever had to deal with a minor leak, and if so what did you do?

[@sammierahimi6553]

I should mention the leak is where the bag tube connects to the PCN tube, not at the site at my bsck.

[@cherripaterson6066]

your very brave young lady, I wish there was some relief for your pain, makes me sad to see you cry

[@PLEVI]

Pray for you, Hope you find peace,I have some stones tooo , Dont know what to do. God bless

[@lucieverbeke3907]

I really hope you'll get better, I wish you all the courage in the world, from a belgian girl ;)

[@Essentially-Ella]

Thank you ❤️❤️

[@yeezymunee]

So Sorry to hear what you’ve been going through. Sounds awful! Have you tried drinking distilled water? It’s very good for the body and my help prevent build up of calcium. Good luck!

[@Essentially-Ella]

Hi! I haven't actually tried purely drinking distilled water. I've heard mixed reviews about it, do you drink distilled water? I currently just drink filtered water but it's certainly worth looking into. Thank you 💚

[@Essentially-Ella]

I've been looking into this. This is definitely something I am seriously thinking about trying now. Its worth trying anything! I'm so surprised I had never thought about this before too. I'd love to hear about your experience with distilled water if you are willing to share!

[@yeezymunee]

Hi, Distilled water is pure H2O with no mineral, heavy metals, VOCs, chlorine, pesticides, micro organisms or their chemicals. I’ve been drinking distiller water for 5 years and it’s amazing! It’s the only water that is truly fit for human consumption! Remember that you cannot use even use tap or bottled water for your car engine! If it’s not good enough for your car then is shouldn’t be anywhere near the human body. Inorganic mineral deposits harden and cause havoc all over the body. Just look inside your kettle, or the limescale in and around the shower. This what you are ingesting. Dialysis machines at hospital ONLY use distilled water. There are two types of minerals. Organic and Inorganic. Our bodies can ONLY process ORGANIC minerals that come from fruit and veg! Our bodies CANNOT process organic minerals, like those that are found in both bottled and tap water! Yes it’s true that distilled water removes minerals from your body but ONLY THE INORGANIC MINERALS THAT YOU CANNOT PROCESS. I’m not a doctor! But sadly with live in a world where doctors are not even taught about diet and nutrition. Pharmaceutical companies profit from our sickness. It’s not in their interest to find cures for anything because they need you to keep coming back as a repeat customer. If every human being drank distilled water, we wouldn’t have the need for Big Pharma. That why they tell you it’s bad for you. I would recommend you buy a water distiller and give it a few months. Drink lots and lots (about 6 - 8 pints day). Hope this helps. I can some useful video etc if you need more info. Peace

[@Essentially-Ella]

@@yeezymunee This is extremely helpful. Thank you so much. It's my birthday soon and I think a water distiller machine may be on the list. Thank you 🙏

[@LifewithParadise-x2c]

Sorry to hear this you should get a new kidney I guess or something they could do to fix this you should get the kidney stones removed 😢