I Review Dr. Mike's EDS Videos!

[@ehlersdanlosandi]

If you have any videos you think I should review, link them here in the comments!

[@evilmarken]

I could help with my eds I have been trying to find help but my work is making it incredibly difficult

[@Catlily5]

Well, my primary care doctor took me seriously when I asked about EDS. Unfortunately the specialist (geneticist) did not. He looked at my chart and told my doctor that I probably had EDS but there was no point in diagnosing me and he refused to see me. He told her to just deal with my symptoms as they come up.

[@ehlersdanlosandi]

I'm sorry that happened to you!

[@mischelepentz3613]

I too was pleasantly surprised by Dr. Mike’s brief introduction to EDS. It seems that most who discuss EDS are those who have it so I was happy to see a medical doctor stepping out in support of the medical zebras. I was diagnosed relatively young (10) but suffered thousands of dislocations before receiving my diagnosis when a doctor noticed I was hypermobile because I was doing contortion tricks when he walked in the room. I was also the first in my family to receive a diagnosis although there are plenty of relatives on my father’s side with EDS (and probably still more undiagnosed). Thank you for your informative videos.

[@ehlersdanlosandi]

You're right, it does seem like mostly patients talking about! I was really excited to see Dr. Mike do a video on it.

[@emilymarilynn]

I’m 28 & just sent my spit test off yesterday! Pretty spot on with the stats😅