IB Myositis #15 - IBM's Morbidity and Mortality

[@williamlevy4315]

Jerry, an excellent video emphasizing the importance of AVOIDING falls and guarding against aspiration. Very well done!

[@michaeldwyer4994]

Thank you.....very informative. I'll be perusing you other videos on IBM

[@ronhenney4546]

Good video Jerry i had symptoms for close to 20 years before I sought a diagnosis i would think im close to 30 years in ive been active the entire time but wether fas or slow we get there ive just about had enough and would welcome a terminal disease. Im 69 and genetics say I could live another 25 + years i hope not. Keep up the good work mate you do us a great service thank you and regards

[@dianshumway6696]

Another great source of information and help! Thanks again, Jerry!

[@cherylcarlson3315]

So helpful.Am struggling to get MD's to see whole body, am going to deal as I am able. Neuro seemed disappointed haven't fallen again giving advice to just eat less when questioning how much protein. PCP said she will refer me to palliative now . trying to get help is way more stressful than the disease.

[@jimmathews7069]

Jerry, this is a great video as are the others of yours I have viewed. You do a great service to the IBM community. Now excuse me for being picky. Dysphasia is difficulty in speaking. I think you mean Dysphagia, which is difficulty swallowing.

[@maribelmarini2819]

Thank you for the valuable information!!!! Very useful!

[@brianbutler1602]

Thank you, very helpful

[@TheJrj430]

My buddy is in a wheelchair in 18 months. Is this normal?

[@IBMyositis]

That is much faster than the normal IBMer.

[@TheJrj430]

@@IBMyositis thanks. I worry about him. I watch your videos to be informed. Very helpful by the way. I wonder if he is Mis diagnosed? He did have the tissue sample done. That’s how they found out about it. Thanks sir

[@JoseMarquez-lt6yx]

Deep down inside I know we can heal ourselves with the power of the mind but as a species we relied on technology to speed things up now I'm afraid it's too late for our species to evolve progressively anymore I'm not talking superhuman abilities I'm just saying maybe we could of licked our wounds too