IN MEMORY OF AMBER RAE | Born Without Kidneys at 36 Weeks

[@isabelmorinigo5795]

My daughter was born with Group B Strep. I remember the department of vital statistics came in and asked me for her name to put on her death certificate. They said she wasn't going to make it through the night. She did and is 36 years old now and has blessed me with 7 grandchildren.

[@TT-cu7ze]

My first baby was born with group B strep. That morning there was a segment on good morning America about it. I never heard of it before that. After several hours I began to throw up and they treated me for it. Sure enough she had it. I waited for 3 days to find out what organs were affected. After 5 days I got to take her home. That was 33 years ago. If the nurses didn't catch it, there would have been a different turn out.

[@Sea-cucumber1151]

Now they test a head of time, my daughter had group strep B as well, so she was treated with antibiotics at least doses and then he was. Now they always test just in case.

[@pattidale7968]

@@TT-cu7ze thank you for the kudos to nurses. We don't necessarily get much from our employers, but it's great to get it from those who matter - our patients.

[@ColleenH38]

My fourth/last baby was born in April 1990. At that time women were not tested for GBS and even though I had every warning sign during labor, and the nurses were begging my OB to do something, he ignored it all. My full term baby died just 8 1/2 hours after her birth. Sadly even all these years later, most doctors know very little and do very little because as they say "only 2000 babies die each year from GBS so it's not on our radar". REALLY! When did it ever become okay that "ONLY 2000" die"!

[@kathymckay6112]

The same story happened to me with my first born. They came in at 3 am and said, you need to say your goodbyes she won’t make it through the night. She had Strep B. I was alone, no one there to help me process what was happening. She made it through the night and was in the NICU for 2 weeks. Bringing her home was the happiest day of my life. She is 34 and a mom now! I’m so sorry for the mommy’s that don’t get to bring their babies home. Hardest thing any woman can go through. ❤️

[@umjination4022]

I'm so sorry for your loss. I too have had a still birth at 32 weeks. That was followed by 4 miscarriages in 4 years. I was about to give up when I found out I'm pregnant last year. I had a very difficult pregnancy. I suffered from preeclampsia, gestational diabetes and my baby has growth restriction. I gave birth via emergency CS last 04/23 at only 34 weeks. My little warrior fought for a month in the NICU. I cried and prayed almost everyday for the good Lord to have mercy on my baby. She just got discharged from the NICU a week ago. Such a miracle baby.

[@reneemcgee9623]

God bless you and your baby. may God continue to bless you both and your family.

[@AngelinaATF]

Wow, you’ve beeen thru so much! I’m happy you have a lil warrior‼️💜💜💜😘

[@joannesbardella5413]

God bless your little blessing ❤

[@chauncyreed4492]

My baby Thea was born on 4/20/23. She has IUGR and I had severe pre-eclampsia. She was delivered at 27 weeks. Due to severe complications she lived u til 4/27/23. Completely heartbroken and devastated. We tried for 5 years to have her and to lose her in one week is unimaginable. I will forever cherish the little time we spent together

[@ratherboutside2]

I’m sorry. My heart breaks for you. 🫂

[@barbrovaage7309]

l am sp sorry for your loss!

[@Vivian-nv9hb]

It hurts so much to lose your baby! Our first daughter, Lisa, lived for five days in November of 1967

[@ipacarrollread]

I’m so sorry. So very sad.

[@Millymoobags]

So sorry for your loss xx

[@dannadonahue916]

Our daughter, Carah Grace was born at 42 weeks. She was born with Trisomy Mosaic 18 syndrome. We were completely unaware of any problems as with the ob appointments. But for me, I knew something wasn’t right. I felt like I was having first time Mom nerves and anxiety and yet something didn’t feel normal my whole pregnancy. Our lil Beauty lived for 15 days. She had multiple complications. She was a miracle that she made it that far. God has a reason for everything. Our lives were forever changed in those 15 days for the better. I learned so much about what a parent was and could be. As heart wrenching as it was, those days are precious to me. Our lil Beauty made her mark on this world and forever changed ours. Her brother was born 4 years later and as a baby he would look over in the corner of the room and giggle and coo often. We feel she was looking out for him. She would be 21 now and still she is so loved and talked about often. I am a Momma of 2 babies. One heaven side and one earth side. My heart is full of love and joy for both of them.

[@mochacellow]

We just buried our baby two weeks ago. Nothing comes close to this pain. Sending all the prayers and love to you and your family.

[@StephAnie....]

😢

[@dianacurry6248]

My prayers for peace for you.

[@stacy6994]

You will get through this. You will never not feel sad. But with time it comes easier. But the disappointment will always be there. I'm so sorry. But it will get easier.

[@carrielopez1728]

Hugs and kisses from a complete stranger who is praying for you now. I'm so incredibly sorry ❤

[@SandyKTJV]

❤❤❤❤

[@wyattb2012]

How comforting to know your little boy was waiting to wrap his arms around his little sister in heaven ❤️

[@CatFromFL]

I lost my first two pregnancies. No one spoke about it. Others in the family had babies due similar times. It was so hard. Finally I gave birth to my daughter and 3 yrs later my son. When ever I hear of fetal demise ,stillborn or death shortly after birth, i make sure I acknowledge the loss. Families need it.

[@756Nichols]

That is very courageous of you. I'm glad you managed to have children and no doubt that you will see your 2 that you lost in heaven- they'll be waiting &free from pain,hurt just as perfect as you made them 🌻

[@glentong3543]

i am so sorry for your loose

[@danyellediguardia8833]

I lost my daughter when she was 13 days old. I developed severe pre eclampsia at 28 weeks. She was growth restricted. I delivered at 29 weeks. She weighed 1 lb 11 oz. It’s been 11 years and I miss her terribly. I had two other children after her.

[@kaylaking7845]

So very sorry you faced this. I had preeclampsia in both my pregnancy and I was terrified during both. Could not relax. Just had my daughter 12 days ago and consider both my kids my miracles. Things could have gone very wrong but they didn't. My heart breaks for you. Heartwrenching loss😢💔

[@lisajhay4387]

So sorry to read this, my first baby I ended up in full blown eclampsia suffered seizures, sickness, nose bleeds and migraines… they delivered him and it was 7 weeks before his due date, and he was 3lb8oz and did very well but my blood pressure wouldn’t stay down for a few days so I felt terrible. My second pregnancy I got pre-eclampsia again and again they had to deliver my little girl and she ended up the exactly same weight. I wanted one more baby and we tried but I lost four pregnancies and we stopped and decided we couldn’t go through any more loss xx

[@sweetjewelstar]

So heart breaking can't even imagine

[@raefarnsworth4278]

My daughter was an IUGR baby. 37 weeks 3lbs. 11 ozs. She turned 25 on July 11th.

[@chauncyreed4492]

I too had severe pre-eclampsia and delivered at 27 weeks. Also with iugr. Baby Thea was born at 15 ounces. She lived one week and passed on 4/27/23. Very heart breaking. We tried for 5 years to have her. And to lose her in one week is just devastating.

[@reneemcgee9623]

I had twin girls Sabrina and Audrina. Audrina lived 11 weeks and passed with SIDS they were born June 30, 1993. Sabrina is still with us. Thank God, we never forget Audrina. we talk about her almost every day she still lives in our hearts. R.I.P. SWEET BABY GIRL.

[@suedu9609]

I had twins who were fine and are now 34. I can't imagine the shock of that. She is waiting for you on the other side of the veil.

[@TheGutscheLife]

Amber is so beautiful ♥️ I lost my son when I was 36 weeks and couldn’t imagine going through that pain twice. You are so brave telling your story. Sending lots of love to you and your family xx

[@kat.jax99]

My twins were born at 36 weeks. I can't imagine losing them. My heart goes out to all mothers who have lost a baby. You are so strong. ❤

[@DefiantAngel87]

I'm so sorry.

[@Millymoobags]

So so heartbreaking bless to lose a son then a daughter so devastating y niece gave birth ro her son Dominic he was born at 29+3 her waters went at 17 weeks but resealed but because then had gone before 8 weeks his lungs didn't form properly he was so strong and brave and faught for 2 days we all miss him so much xx

[@sandrabowman8935]

God bless you and your family so sorry for your losses may God keep his loving arms around you all. 🙏🏽❤️❤️

[@jenniferbooth9348]

I cannot imagine losing two babies to the same disease. You are so strong to tell your story not once but twice. God works in mysterious ways and she was greeted in heaven by her brother. God bless you all!!!!

[@annieroberts3818]

I also had a baby born with the same thing , it’s called potters syndrome 45 years ago it still breaks my heart today. He lived only 4 hours, back then you weren’t allow to hold your baby. I saw him briefly i still struggle. 2 years later I had another child and the had 7 more babies in the next 12 years. All healthy. They are grown now, all of the children as adults with each pregnancy were tested as it is generic. Stay strong my prayers are with you.

[@angmoulton8528]

I'm so sorry you went through this 😔 not being able to hold your baby is the cruelest, simply not okay

[@ygfamily1947]

I lost twin boys a week ago, I feel your pain as a mother this is a worst nightmare. Prayers to you and your family may God restore your broken heart. We have guardian angels surrounded by us. Much love 🤍

[@reallyrandomthings615]

Sorry for your loss.

[@ox4920]

Praying for you to heal 🙏

[@bdlimea7018]

I'm so sorry for the loss of your twins.

[@carolkontur1442]

Condolences on your loss!

[@carrielopez1728]

My heart is breaking for you. I will keep you in my prayers and I hope you find peace as soon as possible.

[@debbiekeithley7440]

May the Lord comfort you and your husband and sweet young daughter. I lost 1 baby and I completely fell apart. I can't even tell you how much I grieve for you. I can't even imagine losing 2. Your the strongest woman I've ever seen. And your little family is right there with you. May God Bless you in the future and give you another healthy baby. My prayers are there for you and your beautiful little family. 💜🙏

[@SherryDyck]

You are a very good speaker and have told the story of your grief very well. Thank you so very much for sharing. On November 27, 1986, my 3 triplet daughters who were conceived naturally were born prematurely. My very precious babies spent hours in the NICU before they passed away. I was so impressed to see how far hospitals have come with parents spending time with their babies after they pass. 24 hours~ I couldn't believe it. I have no photos to speak of, only a few horrible polaroid snaps that the hospital took, and none of my babies taken together. The photos are so awful I can't share them, in fact, my other children have never seen them. As we both know, some children's lives are measured in utero, some in minutes, some in hours, some in days, some in hours, some in days, weeks, months or years. I love my daughters as much as I love my living children and miss them every day. The pain eases but the love never fades.

[@756Nichols]

God bless you, oh my goodness, the fact that you have said that, well sending love, prayers &hugs sending too you. 💟💟💟🌈

[@reneebarnhart1836]

I'm so very sorry for you loss. Three precious daughters watch over you. I'm so sorry you don't have better pictures. Now there's NILMDTS to help with pictures and saving those moments.

[@holly8274]

I am so sorry about your photos. There are free photoshop groups online like on Facebook that have people that can do amazing things with photos. I don't know if they would be able to help you but I hope maybe it could, so so sorry for your loss ❤️‍🩹

[@sassy7999]

Absolutely heartbreaking. I’m so sorry for your losses and thank you for sharing little Jeff and Amber Rae with us. ❤

[@pamudithabmahadiulwewa1503]

I am truly sorry for your losses. My baby boy James had the same issue. I pray that no one has to go through this 🤍 Thank you for sharing your story and the pictures are so gorgeous.

[@karincampbell9289]

I don't even have words. I look back to 35 years ago after delivering my second baby, and back then, there were very few ultrasounds. I can't imagine going through what you all have experienced. May God wipe away your tears, and have you feel his presence each and every day. I wish the best for your family, now and in the future.

[@delaneybartling7463]

It breaks my heart to see that this family went through not only one but two heartbreaks. I probably wouldn’t be as strong as them if that happened to me. Stay strong and I’ll keep them and Amber in my prayers.❤️❤️💕

[@patriciasavage4899]

No one should ever have to go through the death of 2 babies. You will be with them again when this life is done. Forever! I am so very sad for you and Jeff. You guys are so strong and I'm sure you telling this story helped so many people in similar situations.

[@lisajeter9511]

I give your husband Mad PROPS for being so hands on at the cemetery!

[@susan710734]

I’m so sorry that you had to bare the loss of two babies. I’m sending good thoughts, hugs and saying prayers for all of you. God Bless You and Your Family. 🙏🙏🙏🙏

[@carolyn9349]

Praying for you and your family 🙏🏽

[@lisajhay4387]

Thanks for sharing your sad story. I guess I see myself as a very unlucky parent in that I had three miscarriages at 12, 8,and 15 weeks gestation, and then a still birth at 39 weeks, and she was a little girl we named Kira Leigh Ann. Then we had Kaitlyn Grace who was so beautiful and fun and happy. She helped with all the emotional pain we’d suffered. To cut it short she got seriously ill at 7 years old. She had leukaemia and fought for almost a year but we lost her. We never had anymore kids. Heartbroken forever xx

[@debraronan8389]

So sorry that you have had such heartache. May God comfort you. XX 😢

[@cherylwaller4826]

God bless you, Lisa, my heart breaks for you. Just know that it is never God’s will that any of our Angel babies perish. He knows that pain all to well in losing His only Son. He is touched by your grief and sadness. My favorite scripture comes from King David, when his son died. He was praising God in the middle of his heartache and proclaimed “ I can’t bring him back, but I can go to be with him”. We will see our little ones again.❤️🙏🏻🥲

[@crazydee1955]

I am so sorry to hear this.

[@nancycurtis488]

So very sorry about the sorrow you had with your babies. I had only one miscarriage at 9 weeks and I lost my oldest son 3 days before his 54th birthday on 9-4-19. We lost the smartest, most handsome, most wonderful son, husband, father, grandson, and employer ever. His death is still an open homicide investigation in Sherman, Texas. Rick was a CPA and owned his own accounting firm in Allen, Texas. The woman who is still being investigated is the woman to whom he was married for 20 months when he died. I am so thankful that I have a younger son and 5 younger daughters. But losing a child, regardless of that child’s age, is so VERY painful. I am so sorry that you have had to suffer this horror so many times. Bless your heart and the family you do have. I hope the doctors discover the reason for this anomaly.

[@Jimntrix2407]

I'm so sorry for your loss. I had an ectopic pregnancy at 21 then when I got married we weren't able to have children. I know it's not the same. My heart aches for your family. God bless.

[@Bnice2any1]

I stumbled upon this and so glad I listened even though it’s hard to digest what you went through and remembering how mine went, I didn’t get to talk much about my daughter when I lost her so listening to you talk made me feel like I’m apart of the important conversations. I’m so sorry & thank you so much for sharing 🙏

[@mrspokitstheriot477]

If your willing to share, I'd love to hear about your amazing daughter.

[@elmienliebenberg9145]

I just want to say to all the mothers and fathers who have angel babies, you are so amazing. You are so strong. Even if there are times that you feel you want to breakdown and cannot go on, it does not change that. Its ok to feel that way. There is a reason there is no term in the english language that can be given to parent that lost a child. Its one of the most traumatic events to happen to a person. Never stop telling the world your story. So many moms and dads suffer in silence. It needs to stop. Your story is part of you and you should be allowed to talk and tell the world. Its so important for healing. I'm sending my love to anyone reading this comment. Know you are part of a community. You arw NOT alone.❤❤❤🙏

[@amystull5832]

Thank you! I lost my son... he was 39 years old, from pneumonia and MRSA. Two little girls and Jen at home. When you lose a child, doesn't matter at what age, it's the most gut wrenching pain and loss.... 💔😢🙏🙏

[@carrieanderson1889]

My very first baby, son never developed his bladder or kidneys he was alive for 2 hrs. and 9 minutes after birth 3 weeks early. They told me it was called Potters syndrome also renal genisis. That was 30 years ago this past November 13th. He’s always in my heart. My Angel! I’m very sorry for your loss. It’s very devastating.

[@vuyanisibisi495]

Ohh God, no parent deserves this kind of pain 😭 I would literally lose myself. Rest well little Angel🕊️

[@believeinjesus8862]

Can't watch this with dry eyes😭 How courageous to share your life in this way.

[@stephanieann8115]

Bre, I wanted to Thank you so much for sharing your beautiful children with us. I hope you are all a little lighter in your grief. I can’t imagine. My heart hurts for you terribly. God’s Blessings on you and your family.

[@libra88888]

I will FOREVER be praying for your whole family.

[@michaelaleach8195]

Your daughter is perfect and beautiful. I’m so glad you were able to have a few precious moments with you, I know that meant the world to you. One day you will get to meet your beautiful babies again and hold them both in your arms. Thank you for sharing your story.

[@carolw569]

I'm so sorry for your enormous losses. I lost my parents 10 weeks apart. One minute I'd be crying/mourning for one parent which would only remind me of the other so I'd start crying for that one. So what you're feeling is understandable. I ended up being diagnosed with PTSD later on.

[@stacypierce530]

I lost my baby when i was 8 weeks pregnant and had lost a pregnacy in 2006. It still hurts everyday. I ending up having to have a hysterectomy recently. My first baby was born at home.

[@TexasbyStorm]

My mother's oldest sister died shortly after birth. She was born with a very small section of intestine that was severely deformed, no colon, no rectum. She lived a few days as she slowly starved. It was horrific. It was my grandmother's first baby. They named her Joanne. This was long before there was any way to even attempt to fix issues like this. I'm so sorry for the loss of both Little Jeff and Little Amber.

[@sandywuerch]

Beautiful boy I am so sorry.

[@southernbelle2478]

My son was born without kidneys at 35 weeks. I never thought I would've been burrying a child when I was 22.

[@barbarahertig237]

Thank you so much for sharing your story. It is heartbreakingly beautiful. It helps so much to have a glimpse, a piece of your heart, of your joy overwhelmed with the terrible pain of separation. Little Jeff and Amber live in our hearts, too!! They will never be forgotten!! 😇😇❤️❤️

[@ag5amanda]

When I was 22 weeks pregnant with my daughter the doctor also told me that she didn’t have kidneys and also a heart defect. I remember feeling devastated and broken, however we saw a different doctor for a second opinion who also didn’t find the kidneys but he was able to see fluid around the babies lungs which he said it meant the baby does have at least one working kidney. Thank god the doctors and nurses acted quickly and were able to get me an appointment for an MRI I think 2 days later and they found the kidneys both located at the right place. I remember crying of happiness and being so thankful for saying yes to that second opinion. My daughter still had the heart defect which thankfully has been fixed but I understand the pain and the fear of hearing those words. I send you my deepest condolences. Stay strong and just remember you have two Ángels watching you and taking care of you all the time.

[@rubaiyasahnama2616]

I lost my daughter too .when I was pregnant my doctor told me that the was baby anencephaly. She doesn't have brain and skull .she could die any time. And after 39 week she born but return to our lord. I remember her all the time

[@peachmelba9333]

@@rubaiyasahnama2616 a Mama ALWAYS does- may it comfort you to know she will be waiting with her arms outstretched- I too lost a son- not a baby but still I miss him- wish I could him again.

[@tanyabrown9839]

Sorry for your looses, children are so precious. I've never actually lost a child but know what it feels like to think one has lost one as my daughter stopped breathing due to a sudden major hemorrhage which blocked her airways and her heart stopped for about 8 to 9 minutes when she was 6 weeks old so we thought she was gone,, I was left doing CPR on her till the ambulance arrived. I always had wanted a large family but ended up only being able to have the two so my grandchildren I have now are so important to me. My daughter's have given me 5 lovely grandkids.

[@karenshepler7128]

Thank you for sharing this with us, and may the two babies rest in peace .All the best in the future.

[@midnightmadness5307]

I went through some trying medical moments with my only child my daughter, she's now thirty six and my heart goes out to all of you. My daughter's traumas weren't anything such as yours. Her ailments were able to be resolved with medical care/operations. I feel for all of you and thank you for sharing this painful experience. The wee ones are always with you 'always'. xoxo

[@janettenichols9141]

So very sorry for the loss of both your babies. May God comfort you both and Murphy during this difficult time

[@rosestar8293]

Oh my gosh. That baby so beautiful

[@aijab5129]

Thank You for being so brave to share Your beautiful yet sad story with such a love...It's been three years since we lost our beautiful baby angel at 23 weeks-she is with us and in our thoughts as long as we are on earth,waiting to meet her in Heaven...Sending lots of peace and love to You ❤❤❤

[@williamcampbell3329]

My little Angel grandaughter had the same thing little Amber had . Her mummy and daddy decided to have another baby . They had another daughter born very healthy . I’m so very sorry for the loss of your two very beautiful Angels . ❤️

[@StillAPartofUs]

Thank you for sharing. We're so sorry for the loss of your granddaughter.

[@garyh5541]

RIP Little Angel! Prayers for all who love you 🙏🙏🙏

[@ardenpeters4386]

it's amazing their little bodies continue to develop.

[@lisajeter9511]

I’m so sorry for your loss! Both babies were so very picture perfect! I’m seeing so many more pics of Amber and she is such a beautiful little girl! Hearing the story of the story of the blanket sounds like such a precious lifeline gift to receive.

[@SharonJones-ql8oy]

What a heartbreaking and at the same time beautiful story. 💞

[@hannahwest2016]

That baby girl was beautiful. ♥️ My first pregnancy I delivered a beautiful, healthy baby boy. My second pregnancy, I got pregnant with fraternal twins, and my water in my baby boy’s sack broke at about 20 weeks, and he was born a day and a half later, and passed away. My baby girl twin’s water broke at 23 weeks, and she is now a happy and healthy almost two year old. 🥰 As for your beautiful precious babies, and my sweet precious baby boy, the first thing they are gonna know is Jesus. They lived perfect lives. I will always wonder what could’ve been and will miss him, but he’s in the arms of Jesus now with all of the other precious angel babies. 👼💕

[@mariesahota1478]

Such a brave mother TO TELL HER story

[@KNGFitness]

Thank you for sharing ❤️I’m currently going through this with my son … watching this is making things a little bit easier to digest.

[@StillAPartofUs]

We are so very sorry to hear that you are going through something like this, too. We hope that Bree's and Jeff's stories of both Little Jeff and Amber help you find a way to connect and love your own child. We're thinking and praying for you.

[@lisaedwards931]

This poor family went through two heartbreaks 😭🙏🏼❤️❤️

[@tamarawalls-sl8ie]

sooo sorry for your loss..she was beautiful ❤

[@jojozep7820]

It breaks my heart that money has to come into finding out about your baby’s devastating outcome in the USA. Here in Australia our healthcare is free, we get to say yes to testing even if we’re not ready to know. She is so precious and I can’t even begin to imagine the pain. Love to the family x

[@EmilyMineDesigns]

I was watching a documentary last night about PANDAS (not the animal lol) and the one parent said it's called the rich man's disease because insurance companies refuse to pay for any treatments because they're considered experimental. My husband and I were saying how it's sad you have to watch your kid suffer in the US if you aren't wealthy. It shouldn't be this way!

[@livinglife8333]

The United States is absolutely the worst for health care, if you have a lot of money you can have any tests you need and the very best treatment. If you are poor you get basically nothing.

[@amandaseigler7520]

I live in the USA and yes Money talks, Here money can get you just about anything you want regardless whatever it may be want.

[@Beirut27]

@@livinglife8333 Apparently there is no treatment for babys born without kidneys.

[@believeinjesus8862]

It's not free! You pay high taxes just as we do in Canada!

[@ruthlarkins2445]

Prayers sent to all families

[@cbkeno81]

Just awful to lose a baby may god bless there precious souls

[@ConnyNordlicht]

All my love goes out to you and to this beautiful baby and to you, her parents. Be blessed, you have to go through so much. I had this 2 times, but before birth, tht's a difference, all in all but so sad. Take your time to go through, noone can say when you have to be „over“ it. I never will be but it's part of me now and I wear my two babies deep in my heart and I wrote them letters to tell them how much I love them forever. I will love them and see them again in heaven. Knowing that our Lord cares for them makes me calm. I got a son years later. He's 21 now, studies, but his sister and brother are part of us both and it's good. I am the mother I am bc they passed away. They both are lights in heaven, don't suffer , in nothing, theey feel full of love and they're happy. Perhaps they care for your baby now. Yours there is happy. Be blessed! Call me here, I'll be there for you, whenever you might need someone. And if in 5 years and what reason ever. I'm here for you, day&night, sister.

[@normacamposshute3134]

Shes so beautiful you will see your baby in heaven ❤❤

[@brilliantbutblue]

Happy Birth Day Amber Rae for 15th November 🌼🌻🍁 the moulds of her hand sound beautiful. I'm certain she is organising Little Jeff right now😇🤍 Thankyou for sharing your precious Daughter with us Bre🙏

[@a.life.reimagined]

Heartbreaking, she’s so beautiful❤❤❤❤❤

[@maryellenblount6376]

Thank you for sharing your story. So heartbreaking to lose two babies. God bless 🙏🏼

[@ruannebettnodiva9378]

Thank you for showing your story. So heartbreaking to lose two babies. God bless 🙏

[@SusanJones-jz9ny]

I cannot imagine what you and your family have gone through. My dearest friend lost a daughter at 37 weeks due to a cord accident. I had just given birth to my 1st child 6 weeks prior to her loss. I later lost a triplet ( delivered twins) a few years later. The baby I lost was pretty much gone at my first ultrasound. ( 18 weeks) but, to carry a child as long as you did knowing what the outcome will be must be simply agonizing. Your story, your strength, your faith is just so sad, but truly amazing too. God bless you.

[@tinabloomfield7228]

I have also lost a triplet ( boy) but delivered surviving twin girls. I had to spend 20 weeks in the hospital to keep them in as long as possible. I still wonder to this day 35 years later, what my son would look like ❤

[@nikkimier3617]

the story of your little Amber Rae was so very beautiful to listen to. The love with your family is incredible and pure. Thank you for sharing this part of your life experience with us.

[@Ski7440]

So so sorry for your loss. I cannot imagine your pain losing a baby. We had several medical problems with our third baby, but it turned out eventually ok. Sending you healing vibes and big hopes for a healthy baby in the future. Best wishes from England xxx

[@georgiemummaof6933]

Wow that is brutal Brea, I’m so sorry - so beautifully spoken about and the lasting memories you have of both your babies xx ❤ God will bless you again xxx

[@ox4920]

My son was born sleeping in August with problems with his kidneys. Praying for this family and all of you who have lost a baby/child. Stay strong 🙏🤍

[@one_ice_cold_chiq]

I'm so very sorry for your loss.

[@a.b.5590]

My second baby also had BRA. He was stillborn at 22.5 weeks back in February of 2018. And then I lost another baby in July of that year at 10.5 weeks. I finally had my rainbow son in June of 2019. 🖤 And now I'm 12 weeks with my 5th baby. The fear of being told that your baby has no kidneys or bladder never goes away. I'm always anxious right before ultrasounds... but I try to hold onto hope that everything will be okay. I now have 2 living babies, so I know my body is capable of growing healthy babies... it's just that once you go through getting that diagnosis once, it's hard to trust that it won't happen again.

[@abbymonroe929]

This video was posted 2 years ago and I have Amber in my heart today hearing her story from her mom ❤️ You are SO loved little Jeff and Amber 🩵💛

[@berky01]

Very sorry for your loss Hope you will find a strength to go forward and trying to get through such an enormous loss and get pregnant with your rainbow baby. We’ve had 3 losses snd we’ve made a decision not get pregnant naturally and went through 5 IVF cycles to test each embryo for genetic abnormalities. It was the best decision that we’ve made, we can’t go through another loss. Kim from Australia

[@StillAPartofUs]

Thank you for sharing your story of loss and your IVF journey.

[@MsRosiecat]

What amazingly loving parents to go thru the loss of both children to the same condition. I hope it’s a small comfort to know they’re both with God. Xxx

[@vickimartin3008]

This was so very heartbreaking. I cried and cried for the parents. I don't think I could have survived losing two babies in a row. The parents are the strongest man and lady I've ever read about. God bless and be with this family forever. I will never forget them.❤❤❤

[@glynisansara]

2 beautiful angel babies. Heartbreaking for all of you.

[@heather2159]

My former husband and I planned a wedding for May 6 2006.In the process of planning we found out we were pregnant.My sister ended up rushing me to hospital on that day instead.Our daughter Cassandra Ann was still born that night at 27 weeks.Instead of a wedding we had her funeral.I threw my wedding bouquet on her casket before we buried her.buried her in doll clothes.I can relate to so much of your story but I also have a lot of bitterness when I hear about your elaborate funerals and burial plans and big head stones and photo shoots.I had very little of that.Sorry for your loss though.❤

[@carkrueger]

Amazing courage. Thank you for sharing your story.

[@wowtv101]

My words are so hollow , but i want you to know how sorries i am for your losses !!! I love the fact that your beautiful Angel babies will be on top of you when your time comes !!! Thank You so Much for sharing ❤️

[@janetwalker2897]

I. Could not imagine the heart break, but my love is with you and your family. Please stay strong, as she is allways in your hearts, be happy she gives you your strength.

[@ashaburtell9910]

Happy Birthday Amber! What a beautiful story and beautiful baby girl!!

[@StillAPartofUs]

Thank you so much.

[@michellestormmusic2063]

It's hard enough dealing with one. And it's been 28 years. I couldn't image 2. My heart goes out to this family. It takes a lot of strength to tell their stories. I never did. Hid my loss/ daughter until this year. I'm releasing my grief finally. In a song I wrote called "Willow". In hopes it will help remove some of the [quiet] taboo conversations concerning stillborn/infant loss. I can't speak for others. But acknowledging loss, and our babies not being forgotten. People shy away thinking it hurts moms to talk. We hurt whether our babies are remembered by others, or not. Moms (and Dads) grieve with or without support. The process helps WITH it. I never had it. And the grief followed me like an evil shadow for nearly 3 decades. A Mother's heart, never forgets. Christina Naomi. My Angel October 4, 1993.

[@2particlesinapodcast442]

God has her now and u will see your beautiful Christina Naomi again someday .. God bless you.

[@starshowers8312]

I'm so very sorry. Having lost a child I know the pain we went through and you've done this twice. I always feel very protective of parents who are trying to cope with this. I wish there was something that could be said to ease your pain.

[@mypaperdreamz]

Such a tragic story. I’m grieving your loss. You are very brave in sharing not only the loss of Amber but the loss of little Jeff as well. I had a miscarriage and I still morn the loss of my child. This story has helped me so much not because of that loss, it’s because of the loss that I’m going through. My husband has dementia. His life is slowly disappearing and I have to adjust as I go. This story was oddly comforting because it felt like the stages that I’m experiencing. God bless your family.

[@Kupkakes1224]

My heart hurts! I'm crying for you! I couldn't even imagine going through this! My heart goes to you! You are a strong mama!

[@joyful_tanya]

Thank you for sharing your story. I am so sorry for your losses. I got recommend this video out of the blue. Rest in Heaven Amber Rae.

[@candicew8674]

I'm so sorry for the loss of both your precious babies!! I pray blessings over your family. I pray for peace and comfort for you all!! God bless you!!

[@leemayhan4199]

Very informative, thanks for sharing your story. As a nurse i know often the patients know more about their conditions than the doctors.

[@shinyhunteralana2297]

Condolences I'm grateful that my nephew's baby was healthy & was born yesterday

[@StephAnie....]

Congratulations 🎊

[@adriennehone4902]

So sorry for your loss . She is absolutely beautiful……

[@StillAPartofUs]

Thank you.

[@jackiehollis9058]

My first grandchild was born without kidneys also, he lived for 30 minutes. There's not a day that goes by that I don't think of him. He would be 11 now if he had lived.

[@sonjajefferson23]

What a brave story. sending healing and love

[@claudiadresel4216]

What a beautiful family❣️Though all the heartache you can see the pure love shine through. Thank you for sharing your story and the precious pictures. Prayers and love.

[@TheRadtech2011]

My heart hurts so much for you and your family. I pray that God brings you peace and comfort when you need it. Amber Rae was absolutely beautiful .

[@michellefreeman3455]

I stumbled across this KZbin channel. I’m so glad that I did. Even though it has been 14 years ago that my husband and I lost our first son at 21 weeks due to having an incompetent crevices. I then had our second son one year and one week after the loss of our first son. Since then I have had multiple miscarriage’s. I’m so sorry for your loss sweetie and for the loss your family went through also.

[@debbieolivarez3322]

I'M so sorry for your loss of your dear sweet baby girl. I will be keeping you and your family in my prayers.

[@cleosingsgreat]

Our daughter was stillborn Nov 20 2021 from one bereaved mom to another; I'm so,so sorry for your loss. This is the worst and it sucks.

[@dianawardrip5171]

Such a beautiful little girl, so sorry for your losses. God bless you.❤❤❤

[@bethlovesdogs]

Oh my goodness! I'm so sorry for your back-to-back losses. 😢

[@Victoria-fw9xn]

This breaks my heart… R.I.P prince and princess… My heart goes out to this beautiful family….

[@kristagates825]

I lost my 4th baby, a little girl at 22 weeks due to Turner syndrome in September of 2017. We named her Aletheia Hope Arete.

[@judygagnon6676]

So sorry for your loss

[@alicjagodlewska1059]

How did you know she had a Turner Syndrome? I have a Turner Syndrome and I know I am lucky to be born ❤️

[@kristagates825]

@@alicjagodlewska1059 genetic testing. We had an ultrasound at 12 weeks which showed a cystic hygroma on the back of her neck and hydrops(fluid throughout her body).

[@sandyhill1392]

My heart breaks for you. I'm sending hugs..nothing more painful.

[@littlelion2544]

I had one stillborn little girl in 1986 and then 4 miscarriages. She had kidneys, but she did not produce fluid, so her lungs could not develop either. Thank the Lord I also have 5 children. Having a stillborn at that time was a very different experience. We received little care or support. The hospital put us in a room secluded from the rest of the hospital and barely interacted with us. I was knocked out right after the birth and when I came to in the middle of the night, an orderly wheeled her in naked lying on a steel table. It was a nightmare. A couple of years ago, I attended a still born funeral and saw how there were pictures of family bonding and all the little things like hand and feet molds to commemorate the child and I realized I never even held my baby. I was heartbroken. I stopped at a coffee shop on the way home to collect myself and God sent someone to meet my need! A lady that I knew casually came in and saw that I was upset and she sat with me. She worked in hospice care and spent a long time giving me the care I never had and explaining how far bereavement for infant loss had come and how many families had these kind of experiences years ago. I was thankful for that. So glad things are different now. On the pandemic thing. Many people did not have people in hospitals making sure they got considerations for circumstances and it was wrong! My aunt died alone and I will never, never get over that. Her two daughters got 2 small visits and then she was sent to the nursing home, where they called the girls when the end was near. She had an inoperable esophageal tumor that kept her from eating, so she basically starved to death. Things are better in many ways, but what was done during this virus were wrong.

[@pattidale7968]

What an awful experience with the genetic counselor!! I'm so sorry you had such a terrible experience from someone who was supposed to be a professional and HELP YOU!! I was diagnosed with a very aggressive breast cancer many years ago,grateful to be a long time survivor, but the only professional who really seemed to care about me was the surgeon. I simply chose the wrong group of providers. 2 little babies with no hope of survival but for people of faith, they both were immediately swept away into the bosom of our Savior Jesus Christ. I'm still haunted by the experience during cancer treatment. I felt so vulnerable and felt no concern from the Drs. and nurses, they were so non-chalant. I was crushed by their attitudes. Thank God healing comes with time, but oddly I have never been able to forget the experience.

[@nursehoney24]

I’m so sorry you had to go thru that void of support from that hospital, that’s so terrible. And I soooo agree with what you said about things done during the pandemic being so wrong. It was literally heartbreaking when I’d have a critical patient & death was very near, but still I wasn’t allowed to let their families come in, not even a spouse. It was so awful. Us nurses was cursed out on a daily basis, we had everything said to us over their loved one dying alone. But it wasn’t up to us, our license was on the line if we broke rules like that. But I absolutely understood those desperate families didn’t wanna hear that. There was times I’d stay over (way over), because the only comfort I could offer these distraught families, was I promised them that I’d be with their loved one, I promised they wouldn’t die alone, I even face timed the family’s during their loved one dying. I asked the families things like, what’s their favorite music? So I could have that music playing in their room. It was all I could do. That rule should’ve never been put into place, I wish these rule makers had to be there when families were desperately begging to be allowed in, I wish they had to see what us nurses had to see.

[@ratherboutside2]

That’s devastating. So sorry you had to see your sweet baby treated that way. 😢My stepmom had a baby in 1977 at 26 weeks. They never even let her see him, bury him or name him. Her family treated her the same. They didn’t talk about it. She passed in 2019 and I am always so happy for her that she got to reunite with him.