Invisible MS Symptoms | Here Is My Top Five!

[@Eddies186]

Thanks! I think its time someone hit your thanks Button for all your heart healing and information about MS ive been to several MS meetings i always left feeling worst than i did when i went in . I hate say that im not being negative it was like a pity party as bad as that sounds nothing hurts worst than the truth . I thank you for the Videos its awesome to listen to someone who knows what your feeling without making you feel worst . Im not slapping MS meetings by no means if only 5 of them had some of your insite and manner maybe they would be a good thing 🧡🧡🧡

[@LifeofSebMS]

Thank you so much for your recognition my friend 🤗 it really has been my intention all along to allow for ms patients to see themselves in a more positive light 🙏🏻🧡

[@ulftruffe8723]

with all the symptoms. Regarding vision, it's mostly that I can't keep my eyes focused. I wander with my eyes. My MS started with pain in my brain and then I went blind. The cerebellum was attacked. After months I saw in grayscale, then colors came after another long period. Now focus is the problem with the eyes. Of course, I'm brain-tired like most people. But another invisible problem for me is that I lose or forget words. Busy when I have to converse. All the best Ulf

[@LifeofSebMS]

That sounds very unpleasant, dear Ulf 😔 the gray vision is very scary. What we all have in common for sure is the brain tiredness! Take care 🤗🧡

[@craiggraham5847]

People don't really appreciate what they have, it frustrates me because people like you and I may appear normal to society, but they don't know the underlying struggles we face. Even before my diagnosis I took care of my body, healthy diet, exercise etc. Most people its chocolate and Netflix and they don't seem to value just how comfortable they have it.

[@LifeofSebMS]

I know what you mean… it’s a mystery, isn’t it? 😔🧡

[@LifeofSebMS]

You’re totally right, Dean… if I think about it it also makes me bitter, but then I try to look at it as the cards that I was dealt. Like why do I have green eyes? Because it’s what I was dealt 🤷🏼🧡

[@craiggraham5847]

@@deancollin7264 I can understand in so many ways, and whats worse, is we live in a society where people make excuses for their laziness. But I was the same as you, healthy diet, regular exercise, no alcohol, no drugs, no smoking then I get MS.

[@craiggraham5847]

@@LifeofSebMS I try not to get bitter about it, but I do have my moments. I just wish people could experience it for a period of time so they would be more understanding and empathetic. But hey, I'm still athletic =)

[@annettemccoy4046]

Dear God. I cared for my dad till he died in January. November I had a scan for my vision. Last week I'm so lost, and was told MS. I was looking forward to e joying a holiday with my children and living again. . Now I I'm in pieces and can't get past this. Have scans and lumber punch. The pain I have is killing.

[@Nutellochka]

It sounds so similar to fibromyalgia and autism sensory overload and also ADHD. It's interesting, maybe these syndromes have more in common than only symptoms.

[@LifeofSebMS]

Very interesting question 🤔🧡

[@RuthAnnnMorris]

Before I had all the tests for MS I was diagnosed with fibromyalgia, and treated for it. I finally asked to be tested for MS. I worked part time as an IEMTII and started my research. A spinal tap… A positive spinal tap (blood in the spinal fluid) is never wrong… then MRI’s will determine the lesions. ( where, and how many). If a doctor tells you that everyone has “gray matter” you need to change doctors… I went to the Cleveland Clinic! Mayo Clinic is a good one but find a Neurologist who specializes in MS!!!

[@Nutellochka]

@@RuthAnnnMorris I'm not in the US. But probably the procedure would be similar. I have been diagnosed with fibromyalgia.

[@vicenterocha8119]

Thank you so much for sharing! I can relate to all the symptoms you described. The noise sensitivity really gets me, I get mentally confused and cannot pay any attention to whats happening. My vision gets me when there’s too much light or heat, then I start to get tired. I feel less alone when you share those things! ❤

[@LifeofSebMS]

I am so glad to hear this has made you feel less alone!! That is exactly why I created this channel 🤗 cause as they say: you don’t get it until you get it 🤷🏼🧡

[@MM-sh7dk]

Totally relate to the noise sensitivity, Seb. I literally can't stand lots of clattering and banging. Can't really describe it but since diagnosed I have had to 'hide away' when there is a lot of noise, by covering my ears or putting my head in cushions or whatever. It is excruciating. Just one of the many strange and invisible symptoms of MS. 😂

[@LifeofSebMS]

I’m exactly the same! And often people don’t understand and think I’m being dramatic… 🤷🏼🧡

[@okorojichibuzo2835]

I do experience this too. It just makes me 'afraid' of being in a noisy environment. It makes me dizzy too plus my brain just kinda shuts down.

[@LifeofSebMS]

Exactly! 🙏🏻🧡

[@kerriwilson7508]

Wow. You pretty much described all of what is going on with me. Very good description of the little blips that happen when trying to concentrate on things like movies - also - the overstimulation in public places and the sound sensitivity. I also have invisible plain, pain associated with weather changes and processes like digestion. Honestly - there is so much that is invisible - it’s inspired me to do an art exhibit in the future. ( however it’s taking me a lot longer than I had planned to get this started ironically due to the invisible symptoms we cope with every day) Thanks for sharing. I feel less alone in this …

[@LifeofSebMS]

We’re all in this together 💪🏻🧡

[@justinkredible9628]

Thanks for sharing Seb! Sensory overload can be really difficult for me. The laundry detergent aisle has been problematic, the intense various scents and colorful containers everywhere seem to trigger something for me fast and strong. Most of the time I'm fine in that aisle, but when it triggers it's bad. Bars and busy areas are also a triggers as you mentioned. I hope you're feeling better soon.

[@LifeofSebMS]

Thanks for your understanding, Bill! Be well 💪🏻🧡

[@okorojichibuzo2835]

The sensory overload is a thing for me too. Going to supermarket or shopping malls, I dread it most times. Kinda seems like my eyes is taking in a of visual informations but my brain is slow to process all of them. Sometimes I can't even make out what I see. It's really can be frustrating.

[@LifeofSebMS]

I totally get you 😔🧡

[@ΛεναΣυρου]

Oh my god the second one is soooooo familiar.. Hey again from Greece seb Wish you all the best 💞

[@LifeofSebMS]

Hello there! 🤗🧡

[@EvenSoItIsWell]

Thanks Seb. I have the noise sensitivity and sensory overload too! When there is a sharp or loud noise like my dear hubby sneezes, I about jump out of my skin. It is almost painful. Like every nerve in my body gets jolted. The sensory overload in crowds with background noise is very frustrating. For example we were at a party at a friend’s house and there weee lots of conversation, music, and the fan in kitchen was on, so I could not focus on conversations. It is so interesting how MS can affect us.

[@LifeofSebMS]

Ugh, it sucks doesn’t it… 🙏🏻🧡

[@andredemers69]

This "startled" symptom is the one you said that convinced me I must have MS; I've watched many of your videos ( all very interesting) and many of your symptoms I have as well. The more I watch your videos the more I find symptoms that I have; I know that every person is different but sooo many of yours I have. :-( The eyes dancing under my eye lids, the spot I see all the time, difficulty to pronounce words, vibration inside my whole body, etc. This startled one is the cherry on top! I feel very bad now! 😢Thank you for your videos, it helps quite a bit to figure out what my problem is. Dominque

[@LifeofSebMS]

Sorry to hear that! Try relaxation and meditation to control your reactions 🙏🏻🧡

[@vickypiushorts2591]

❤... God bless you. Praying for your fast recovery.

[@LifeofSebMS]

Thank you Vicky 🥰🧡

[@consucamp-guada-nyusa5493]

I don’t have these. Mine are primarily what my neurologo referred to as “medular sensitivo”. Weird Sensations in the body. The MS hug, like a tight girdle Around my chest. Burning arms if sun over 26C hits my bare arms, numbness from elbows to fingertips etc. 2 miracles have helped with these. First they gave me gabapentin and that was wonderful tp reduce the intensities and then about a yearvlater cymbalta which was miraculous and the numbness in my arms went all the way down from elbows to just the wrist and chest pain barely noticeable. Then a year after the first cymbalya they upped my dose by 50 percent and even more improvement, the wrist to fingertip numbness became only fingertips. Sun no longer affects my bear arms. Im so grateful.

[@NovemberRain007]

Very informative, Seb… I experienced similar symptoms as a teenager but was never given a clear diagnosis even after several tests. I eventually started having seizures then came more testing and still no diagnosis. I was put and seizure medications and the seizures stopped and when I was weaned off the medications, thankfully, I never had another seizure. I have lingering bothersome numbness and tingling in my hands and fingers, but no diagnosis. I went through many years of cancer treatment as a child so I often wonder if the treatment is what caused all of this. My nana had MS but we are not blood related, she was my first foster mom and passed suddenly, I was only nine years old. Her death certificate claims her cause of death was “MS related” but she always seemed perfectly healthy to me… anyway, wishing you lots of symptom-free and happy days❤.

[@LifeofSebMS]

Thank you for sharing your struggles with us… I really hope you will get a clear answer soon 🙏🏻🧡

[@JordyRoy94]

Thank you for all the info you have put out! It’s helping me understand what is going on with my body and also what is to come.

[@LifeofSebMS]

I’m glad you find it useful 🙏🏻🧡

[@brunoamaraldeandrade]

It's very good to realize some of the things you go through are common to other people with what you have, even to understand somethings are not just a ... Quirk (altough it might still be). Sooo, nice video, thanks!

[@LifeofSebMS]

Thanks brother 🙏🏻🧡

[@ceedee2432]

Im also very jumpy/easily startled. Even with my natural reflexes sometimes lol but im used to it now🧡

[@LifeofSebMS]

😅🧡

[@kendregab7328]

Wow I always thought those symptoms were only related to my ADHD. I have all but the confused symptom you mentioned. I was diagnosed with ADHD in March. I still am experiencing what I believe is a MS attack/ flare-up since March with the same symptoms. I have an appointment with a neurologist on May 18th for a consultation and testing. One symptom that I recently discovered but I'm not sure if it's MS related, is that after I look at something ( For example blinds in my house) I close my eyes and I can still see the image in the mist of the darkness for up to 20 seconds. It's so bizarre! As always love your videos. Keep spreading your positive energy and awareness 🙏

[@LifeofSebMS]

Hey Kendre, please keep us posted on what your neurologist says! It sounds very much like it could be that, but then who knows 🤷🏼🧡

[@kendregab7328]

@@LifeofSebMS Hello! Here is an update about me and I'd like some advice. So I saw a neurologist and told her all my symptoms (including the walking issues with pins and needles, unbalanced feeling and the shock feeling I feel when I move my neck down and to the left and right) and she pointed my symptoms to neuropathy related and not MS. Also, she did not believe my temperature sensitivity ( cold and heat extremes can start up my symptoms or make existing symptoms worse). I did the neurological tests you do in the office. After my exam she said she didn't see anything that suggests I have any brain or spinal cord damage. She scheduled me for an EMG test in July and she said she'll do the neurological tests on me again after my EMG. I also did a lot of blood work and the results are pending. She is the one in charge of scheduling and doing the EMG. My question is if I do the EMG and neurological tests and they come back normal I guess that means I don't have MS? Should I still ask for a MRI no matter the results to rule out MS? Thanks again😄

[@LifeofSebMS]

I’m not sure what an EMG can confirm or rule out and unfortunately it is only an MRI that can show MS activity. If possible, do request an MRI… 🙏🏻🧡

[@okorojichibuzo2835]

I do relate to the 'confused vision', it seems like not able to focus the eye on any thing in particular. Happens almost always when I'm reading and starting to get tired. The vision or images or letters, whatever, kinda start to appear 'muddled'

[@LifeofSebMS]

Exactly! 🙏🏻🧡

[@MamaV6531]

Thank you! I couldn't put these symptoms into words! :) Nice to know others understand!

[@LifeofSebMS]

🤗🧡

[@337857]

The confused vision is called convergence insufficiency. It’s when your eyes focus differently

[@LifeofSebMS]

Oh wow, didn’t know that! Thanks 🙏🏻🧡

[@JoJo-xz5rb]

Very informative videos. Thankyou. Im going through the tests at moment. Just had the spinal tap.

[@LifeofSebMS]

Stay strong 💪🏻🧡

[@RuthAnnnMorris]

I missed this video but I need to comment… I haven’t been to a movie in a long while. I can’t handle loud noises but what sets me off and shuts me down is flashing or strobe lights… I can’t deal with bright lights at all … and a strobe light will take me to a full blown MS extrabation! I’ve been known to go into a fetal position with horrible muscle spasms, my brain and my mouth struggle and I stutter and can’t hold a thought in my head and I have no control over my bladder, thank God for the products today that handle this. I used to have to take steroids via IV… usually for 3 days at a time. So I don’t put myself in a situation where any triggers can happen. By the way, try to avoid a fetal position like the plague!!! If you get sick like this, get to an ER because you’re in need of medical attention right now! I wore a medical tag that a doctor or paramedic, EMT whatever could get access to my medical records and proper care could be given and my Neurologist could be notified. Remember, the response is dependent on where and how many lesions you have and where they are. Blessings…

[@LifeofSebMS]

😞🧡

[@jude4896]

Some times looking at my phone or reading pages on the computer screen my eyes kinda get lazy or tired and bounce or blury.... Nystagmus is more complicated than other MS-related vision problems. There are fewer treatment options to address the involuntary eye movements associated with nystagmus. Sometimes, eyeglasses or contact lenses can help slow the uncontrolled movements of the eyes and improve a person’s vision. Drugs like gabapentin (Neurontin) may be used to lessen eye movement or reduce twitching Thank you for sharing

[@C-commerce]

Hey sir, could you also be coping with MS and these are side effects or forms of PTSD, anxiety and confusion. I had an aortic dissection 8 years ago and still deal with a lot of the symptoms you shared. Mine are definitely PTSD related. They thought I had fibromyalgia as well and found pinched nerves in my back so all I'm saying is I'm not a doctor but allot of these symptoms I see in other people that are coping with life changes from auto immune diseases, trauma, And other things. Our minds have weird ways of coping and they feel so related to one another but might just be coping? Just food for thought, I love how much you shared of your journey through this amazing world.

[@LifeofSebMS]

Hey Craig, you might be right as these are symptoms that could have many possible causes… being diagnosed with MS, I automatically think that they’re caused by it 🙏🏻🧡

[@mychinapig]

Yes, I to suffer with not being g able to bring speech, words,ideas into focus. Double vision can be humorous. I'm easy to amuse I guess

[@justmejo9008]

All of your symptoms are the same as mine, but mine were caused by a concussion. The funny feeling in your brain when you said it’s like it’s on fire for me it feels like it’s flooding. My daughter has MS. The symptoms are so wacky and crazy. At 18 she diagnosed her self through Google. Her doctor tested her and she was right. It’s very shocking how different everybody symptoms have no rhyme or reason. She is going through a rough time right now with a flareup 😕 love and strength to you 🙏🏼

[@LifeofSebMS]

Hey Jo, funny that they are similar to those of a concussion. In the end it’s the brain that’s affected, so it makes sense. Also, considering the size of the brain and the amount of functions it fulfils, that explains why symptoms can be so different 🙏🏻🧡

[@jacquelineburns7598]

thanx Sebastian.. one of my worst things is I'm actually having a conversation, half way thru, I go blank and ask , what was I talking about?😮😮😮

[@LifeofSebMS]

Oh wow! I don’t recall having it so bad, but I do sometimes have to ask how we got to that point in the conversation 😅🧡

[@rosiecuevas1192]

Your content is so helpful. I don't have MS, but I have another progressive neurological disorder, cerebellar ataxia.

[@LifeofSebMS]

Thank you 🙏🏻🧡 take care!

[@thecontractor6700]

My vision does something I like to call shutter vision. It’s like my brain processing an image can’t keep up with the speed my eyes are moving.

[@LifeofSebMS]

That’s a very good description of how it feels 😞🧡

[@dharmacharinipasadanandi7110]

Hi seb, this was very interesting. I have the MS hug symptom for the last couple years, its a drag, but things could be worse. :) take care.

[@LifeofSebMS]

Thank you! Take care of yourself. 🙏🏻🧡

[@jasongherring]

Ditto on every one of those!!!

[@LifeofSebMS]

🙏🏻🧡

[@consucamp-guada-nyusa5493]

Sounds like ASD symptoms. Maybe its a part of your brain where there are lesions related to that type of sensitivity

[@Kaiwaza]

I don’t have the first four you mentioned, but definitely have some moments where my visual and mental just turn to mush for a minute or two. I work a couple days at an espresso bar and once in a while whatever a customer is ordering will make no sense to me and I look at the register and have no idea what I am looking at. It passes after a minute. In addition to my normal numbness I always have, whenever I get overheated, dehydrated, over stressed or coming out of a cold or flu, I develop a VERY intense HOT numbness all over the front of my legs. It will pass in a couple hours, but when it does I am completely exhausted and can barely stand up

[@LifeofSebMS]

Oh wow! That sounds very unpleasant 😔🧡

[@homagold69]

Hey Seb, hi all, one of my invisible symptoms is: I am on a path towards Buddhism, and I have noticed that when I am chanting, I have trouble keeping my eyes open. It feels like my vocal chords and my eyelids kind of use the same channel and I can only use one of them at the same time.

[@LifeofSebMS]

Hey Thomas, how beautiful that you’re on a path towards Buddhism! It’s very interesting (though annoying) that you’re experiencing that. I can sort of relate to that, but more like the opposite 😆 I feel like my eyes open when I chant when I want them to stay closed! 🙏🏻🧡

[@drewmusicvideos]

I can relate to every single one of these symptoms. So my diagnosis of Fibromyalgia May be wrong 😮

[@LifeofSebMS]

Talk to a doctor! 🙏🏻🧡

[@golub1marko]

I had double vision before I am diagnosed (2011) and now with diagnoz and 12 years later when I am reading something I can clearly see what is there...at least with my eyes but my brain can't read that 🧐

[@LifeofSebMS]

That’s terrible 😓🧡

[@jude4896]

Thanks for sharing. One symptom I have been having is mood sometimes hr by hr. The mood may be a form of depression or a side-effects of my DMT and a crap gap.

[@LifeofSebMS]

Sorry to hear 😕🧡

[@mikeshanermusic]

Life is harder than it looks for us MSers. Waaaay harder!!

[@LifeofSebMS]

Haha it is! 🙈🧡

[@SandraMendezLuque-vx9yr]

Madre mía yo tengo todas las mismas que tú !! I thought maybe people would have some of them but not all. 😅

[@LifeofSebMS]

Jajaja it’s rare but some MSers do coincide on all their symptoms! Un abrazo 🤗🧡

[@moomoo9920]

Hello lovely creature. Just want to send you lots of positive energy and kindness becouse this kind of feelings you created in me. Wish you all the best❤

[@LifeofSebMS]

Back at you moo moo! And thank you for your comment, it makes my day! 🤗🧡

[@moomoo9920]

@@LifeofSebMS 😀♥️

[@lillyrocks2011]

I have ab autoimmune disease but I suspect I have too something neurological as well... I'm not sure but it's been extremely difficult to get right diagnosis. 😢 I hope someday probably soon can be found the cause of autoimmune conditions. And each of these diseases can have direct medications and hopefully a cure. Pharmaceuticals don't invest too much in autoinmune conditions because they think there aren't many people with these illnesses. So much money goes to study cancers but they shouldn't forget about autoinmune conditions and how difficult and strange are the symptoms and signs. 😢 Hope pharmaceuticals please support scientists to research more on autoimmune conditions. 🙏🏼

[@LifeofSebMS]

Pharmaceuticals do have autoimmune diseases at the top of their list 😉 just look at how many new treatments have been released in the past ten years 🙏🏻🧡

[@teresashomeschoolchannel227]

I do that when I'm helping my daughter w school work I get jolt.

[@LifeofSebMS]

🙈🧡

[@TheDesignEverything]

my double vision didnt go away... but.. at night when my eyes are tired, my balance is off also... when looking at many colors, feels like colors are dancing

[@LifeofSebMS]

How unpleasant! 🙏🏻🧡

[@Smithstar1976]

I have all them symptoms

[@delilahpeverell]

I‘m dealing with doublevision for 2 years now. Ophthalmologist told me its just dry eyes and it wasn‘t bad back then. Since january this year the doublevison got worse and I started to experience other symptoms as well. I‘m scared that it could be MS. Went to another Ophthalmologist and a neurologist and got a MRI done. Still waiting for the results though, wich drives me crazy.

[@LifeofSebMS]

Be very kind to yourself while you wait for an answer 🙏🏻🧡

[@delilahpeverell]

Thank you, I‘ll try. Won‘t be easy with exams for uni coming up, but I hope after that I‘ll have some answers.

[@adityalotankar4306]

​@@delilahpeverellwhat was the diagnosis

[@bojanbojic9230]

I've been practicing semen retention for 5 months. I have more bodily strength 4 years of ms I support you Seb 👍🙏

[@LifeofSebMS]

How interesting! Is this something you’ve read about? I don’t think I’d be able to do that though 🙈🧡

[@bojanbojic9230]

@@LifeofSebMS You can Google that. You tube is full of videos about semen retention. Semen is the only bodily fluid that can make a new life. If you don't spend it, it makes your body healthier and stronger

[@LifeofSebMS]

Fascinating!

[@bojanbojic9230]

@@LifeofSebMS I am gay, just like you

[@LifeofSebMS]

😊🧡

[@asitpurohit_108]

How do u live ur life with all this problem , don’t get suicidal thought ??

[@teresashomeschoolchannel227]

HI SEb, i havent been diagnosed yet but i think i have ms like my cousins, each of my moms sisters has a child w ms. i did have a brain mri last month but only showed a pineal cyst. it \was unclusive. i was denied spinal mri by insurance not sure if i get to have it now . but i have had symptoms for a year. i feel like im walking on a sponge, right foot is gettin weaker, right arm gives up doing things and i drop stuff. hot showers and gettin to hot in sun, my face goes numb and hard to swallow. i have soreness, burning pain above left breast, and now i supposedly have asthma. my teeth are all dying and falling out too when i eat. so not sure if any of these are weird symptoms lol but i started wahls diet level 1 but vegan. but i really enjoy your videos , thank u for that i feel normal at times when i watch your videos.

[@LifeofSebMS]

That sounds very unpleasant… I hope you get an answer soon 🙏🏻🧡

[@MsDesiree39]

it's the barking too close to my ears for me. hurt like hell but so far onlly once. when temps are minus 12 or below my hands freeze up very quickly and painfully and i need to go indoors asap

[@LifeofSebMS]

Same here! 🙏🏻🧡

[@PantherZalayeta]

hi i recently discovered your channel, ive been diagnosed for 2.5 yrs and got the Memory and Vision symptoms you describe i call my confused vision "unprocessed" because its like yeah i see whats in front on me but i cant process it and figure out what it means

[@LifeofSebMS]

😕🧡

[@RY-oz7qh]

I am wondering if shaking fingers is one of the symptoms as well or is it the tysabri side effect?

[@LifeofSebMS]

It could certainly be a symptom of ms 🙏🏻🧡

[@stellasweden]

❤Have you problem to walk and dizzines?

[@LifeofSebMS]

Yes, very much 😵🧡

[@adnanzia9167]

Hi Bro, I just watched your previous video not knowing that your tremours were due to MS. I have good news, it is treatable and curable. Do you know about the Dr who cured her MS whos condition was more severe than yours, she was wheel chaired and now walking. Looking at this video, I can confidentally say that you can cure it.

[@nancystokes5383]

Ear plugs are a life saver

[@LifeofSebMS]

For sure! 🙏🏻🧡

[@hedgehogwildlifejunction9119]

Hi seb, question. do you find or anyone reading your story that when its going to thunder and lightning you feel weird odd? I know i am weird and odd at the best of times but we have had thundery weather fo r2 days now in the uk and i fell like hell. double vision is so bad, and i feel kind of out of sorts dizzy and weird. i was fine the day before. but a friend tells me she has same issues, so is it something else we have to put up with. i havent had this sort of weather for well probably a year now. hope this finds you well too.

[@LifeofSebMS]

Oh dear! I have not paid attention to this, but we have stormy weather coming to Spain this weekend, so I'll let you know!

[@carlarenk9422]

Do you have neuropathy?

[@LifeofSebMS]

Yes I do, but it comes and goes and it's not very frequent 🧡🙏🏻

[@Courtneyhorvath-i3n]

😮😮😮😢😢😢😢❤❤❤😂😂😂😢😢😢😮😮😮😮

[@LifeofSebMS]

🤗🧡

[@hedgehogwildlifejunction9119]

YEP you got my brain lol. sensory overload ugh. if i have vistors thankfully rarely i can barely function. ALL i hear is blah blah blah. I Just want to curl up and tell them to go away. I cant cope if someone SUDDENLY turns up. I dont deal with it well. OR if i have an appointment and the person is late, my anxiety levels hit the roof and i end up a wreck. gobbledegook comes out of my mouth. you have HYPERCUSIS a reaction to noise i do too i could SCREAM just shut the hell up. COG FOG. Literally i can watch the same series over and over again, like ground hog day, and dont remember things that happened. If i leave a series i enjoyed for a year its like i never watched it lol. FATIGUE. ugh HEAT. Uhthoff's phenomenon Turns me into a basket case. OVER EMOTIONAL. crying or laughing at the wrong thing or laughing stupidly over something sad. MAKING SOMETHING. Reading the instructions. its in a foreign language. i dont understand and get so frustrated. i have been known to throw something at the wall lol. VISION oops yep but i have optical neuritis episodes. choosing certain colours is a nightmare. i get dressed and my care lady always has to put my socks to together as i have been known to have odd colours on. i have worn odd colours for sweater and pants lol. i used to ring my daughter and send her a colour chart and say choose the red one or pink one lol. SPACE AND PERCEPTION. ok example i used to watch my dog go for a poop right, get my little bag and go to collect it, NOT THERE. what the hell. wheres it gone, then the person with me would point out it was in another position lol. i have also gone to STEP up on a level floor thats dangerous and have fallen. Oh another one, when did i get DYSLEXIC. writing words down which have no meaning to the subject or writing them down TWICE, so everything i write now i have to read and still miss mistakes. HELL IUSED TO BE A TEACHER, for I.T and check peoples typing i could spot a mistake a mile away, not anymore. INVISIBLE BEE STINGS. i have been known to suddenly scream and say i have been bitten. one time in garden hubby there i am frantically trying to take my trousers off as a been stung me. NOPE yep stupid ms AGAIN LOL. AH MS dont you just love it, the disease that just keeps on giving lol. xx YOU GOT HAY FEVER? NOW thats a new thing for me at 72 never had it now i have it lol. take care i love your channel its so calming.

[@hedgehogwildlifejunction9119]

another one. LACK OF CONCENTRATION. i can be watching a series on my laptop, and my mind wanders all over the place, so i go off looking at other things, then drift back to the story, then go off again. i cant read a book i use to love reading no chance. i pick it up, put it down no concentration span whatsoever.

[@LifeofSebMS]

Thank you for sharing your own invisible symptoms!! It’s so important that we have more people sharing their experiences so other MSers feel less alone 🙌🏻🧡

[@hedgehogwildlifejunction9119]

@@LifeofSebMS yes it makes us less alone. x non of my family understand my MS.

[@LifeofSebMS]

Show them my channel 😉🧡

[@hedgehogwildlifejunction9119]

@@LifeofSebMS i do hun. have you got a facebook page?

[@reigncitydame4077]

CONFUSED VISION: I experience a similar symptom in my vision, mainly in that I’ve also never figured out how to truly describe it. But I have as such: I can see through both eyes -even if slightly blurry-, no significant spots or floating in my vision. It is definitely not double vision. It is almost as if each eye has just a slightly to moderate completely different perception of debth and they are not communicating with each other… I have had some relief using an eye patch at times; but that also has it’s own drawbacks on its own. Does this sound like a remotely accurate or applicable description of something anyone else might be able to attest to? Unfortunately I’m having a bit harder of a time thoroughly… communicating with my current healthcare team in Seattle. But I’ve also never known or heard anyone else experience or describe anything even close… until this video. 🫡🙇🏼‍♀️

[@LifeofSebMS]

Wow, the eyes having “a slightly to moderate completely different perception of depth” is actually a very accurate way of describing it!! Thank you 🙌🏻🙏🏻

[@reigncitydame4077]

@@LifeofSebMS Is it really?! 🙌🏻 Ih my goodness THANK YOU SO MUCH. This could quite literally not have better timing!! I have an upcoming VNG Test and another Audible Extended EEG test coming up in June with my 3rd new neurologist in 3 years 🫠. But this has just made a (hopefully) huge difference in making progress with my providers. I’m a 36yr old broad but I has my first full blown RMS episode at 15 with symptoms starting at age 6… apparently I’m not supposed to happen lol 🙄😒🤦🏼‍♀️ and yet, here we are. I’ve just been looking over some of your other content and I must say I’ve never been so unsettlingly reassured(?) 😂 and for that, I THANK YOU. Still reeling a bit tho… I never did like The Twilight Zone lol

[@LifeofSebMS]

I am so happy to hear that my channel is helping you! It’s a bittersweet feeling because deep down I wish none of us had this, but now that we do I don’t want us to feel alone 🙏🏻🧡

[@reigncitydame4077]

@@LifeofSebMS everything is awful but at least it’s awful for us all together! 😂 #ThanosTakeTheWheel 😂