Is He Sleeping?? *DID SURGERY HELP?* | Aussie Autism Family

[@missfelicity2]

I love how Jazz reminds you so sweetly that he doesn't talk. She is becoming a great advocate and doesn't mind simply stating something so that others can accommodate her brother. He may be getting a better quality of sleep. I heard that sleep apnea means that your body has to keep waking you up to take breaths so maybe that part is better. I agree with the safety bed. My son actually can jump around in there and there's nothing to get hurt. He has the Cubby Bed. You really should consider it especially since he loved the tent and you could make it a great safe place for him but not require you to be there with him. Maybe he would have his iPad and other items he can safely use without supervision for when he wakes up until he goes back to sleep.

[@amorg319]

He might need a medication that will reduce anxiety to improve sleep. I know people hate medicating kids but our kids brains function differently. Anxiety seems to be a huge source of sleep issues so i think trying medication might be beneficial for him and you. If a med is bad you wont keep him on it but you might find his mood improves and he sleeps better.

[@flyingturtle076]

I’m only 7 minutes in so far but the way you communicate with each other is so nice. You listen to what Jacob wants and the way jazz talks to and helps Jacob whilst painting is so sweet and when you were talking and then jazz said school is also a lot for her and you instantly acknowledged her and asked her how she felt. You seem like amazing parents.

[@aussieautismfamily]

Aw thank you so much! That’s so nice to hear 💛💛💛

[@Sam-mn4ed]

Hey guys I haven’t followed your entire story as I’ve just found you. Just wanted to start off with saying how wonderful you are and you’re doing so good! I have a son who is 19 with asd. Slightly lower in the spectrum but the peaks were rough and the random milestone achievements were amazing. Sleep was always a problem and it’s probably the only issue my Jack still has apart from some social delays. He just says whatever’s on his mind and sometimes that’s in front of a room full of people 😂 Anyway, the doctors here in the Uk suggested melatonin and it’s really does work. He just wouldn’t sleep and that made the meltdowns so much longer. I’m assuming you’ve probably already tried it but if not then give it a shot. Non typical kids don’t produce the right amount of melatonin to manage to drift off and we saw results instantly. He did become used to them and had to increase it to two on especially busy days where you could tell he was just overwhelmed with thoughts. He hardly takes them now but those growing spurts and melatonin helped a great deal. You’re doing an incredible job of looking after your kids and I just wanted to let you know, as they age, it really does get so much easier. My son is in his second year of college and I really didn’t think that would happen when we were in the thick of it and just learning about his diagnosis. ❤

[@Jen-zv7ri]

Jacob's new haircut looks very handsome. The video of Jacob and Jazz painting and your interactions with them was very precious . Thank you for sharing it. I think you are awesome parents. For sleep, I wonder if a "safety sleeper" of some kind would help? It provides a cozy, enclosed space for the the child that restricts him or her from getting out of bed and moving around the house at night. This helps parents rest because they know the child is safely in the sleeper. You can put a few toys and the tablet into the sleeper if needed, so that if he wakes up, he will be able to quietly play. (He is doing really well with his quiet play as you show in this video, so he might be able to do that on his own at night inside a sleeper.). Many kids fall back to sleep after awhile of being awake or playing in the sleeper. My son uses the "Abram's Nation Safety sleeper". It is an awesome product, very sturdy, and can even be packed to take with you if you want to travel with it. The safety sleeper has transformed our evenings and nighttimes, making them much more restful for everyone.

[@shanadang364]

Hey Jess! Love watching your videos like always I'm glad his surgery went well I hear you about the sleep I'm really sorry to hear I can fully empathise for you Have you tried to ask for respite on the NDIS? It might help you to get some sleep and take a break

[@aussieautismfamily]

We have but they refused, so we will be asking for a review

[@Java-D]

I am so sorry that sleep isn’t going well. That must be so hard on the entire family. I’ve enjoyed watching the podcasts! Even though I’m in the US, it’s nice to learn how things work in other places. I also really enjoy seeing your autism family meetups. We’ve tried joining a couple of support groups that do similar but I feel like we’re kind of outcasts in the local groups because my son is verbal with lower support needs yet we definitely don’t fit in with typical groups either because my son is nothing like his age mates. He doesn’t act the same, play the same, joke the same, roughhouse, communicate the same, etc. plus he has extreme anxiety and doesn’t like attention from strangers. It’s hard not to feel like outcasts everywhere. 🤷‍♀️

[@tendria7662]

Hi, Jess! My 6 year old also had the same surgery as Jacob along with tubes placed in his ears and tonsils shaved down. After the surgery his snoring stopped. When my son was little we struggled with sleep, for us his bed time is 10:30pm if he goes to sleep before that he will wake up during the night. Also no naps if he does have a nap it would have to be early in the day. A later bedtime is what works for us. I get him up at 6:15am to get ready for school and he doesn’t appear to be tired.

[@yem2go]

My son is 6 and on the spectrum. He used to have so much sleeping problems then he had surgery for ear tubes and android. It help a little but not much then too away most sugar from his diet and this really really worked now he sleeps the whole night . Any time we have candy or soda he will not sleep at night at all

[@natalyblue6505]

It’s seems they don’t believe in dieting.

[@KateRotsides]

Sleep deprivation is so awful. You actually feel like you could lose your sanity. I wish I had answers for you. Hang in there and I am sending positive vibes to the universe that you all can find a answer or a solution that works for your family and that handsome guy of yours

[@LuchoPiastri]

Yes after I went 48 hours without sleep I started to get hallucinations and it was awful

[@Fretube]

Awww. His sister "he doesnt know how to talk. Remeber mama! ". Just like my daughter lol. And when my son started requesting at the age of 6 ,she was over the moon.

[@jennycraig457]

Hey!!! Emme puts her hand over her face when she watches her iPad too… and does the squinty thing with her eyes….

[@aussieautismfamily]

Ohh they are similar in this way!! Happy Easter Jenny!

[@HOPE-GRIFFITHS]

Well done Jacob on talking ❤

[@serenast.germain3469]

Oh my, look how big they are. Him and his sister r absolutely adorable

[@aussieautismfamily]

Thank you! Growing fast

[@tyreesetjjoyner1995]

It’s good to see you again. I haven’t seen you for awhile

[@aussieautismfamily]

Yes it’s been a while!!

[@tyreesetjjoyner1995]

@@aussieautismfamily welcome back to KZbin. I miss you so much

[@gracegoldson]

Hi, I just found your channel and have been watching a lot of your videos. Did Jazz end up getting diagnosed with anything? I have a masking daughter and my son is in the midst of diagnosis

[@Healthy-sy3ty]

👋 hi, not sleeping is sooo hard. My hart goes out to you guys. A couple of tips from a autism mom: a weighted blanket or a sleep tunnel ❤️❤️❤️

[@aussieautismfamily]

We’ve tried those!!! But thank you!!! 💛💛

[@ColleenTempleart]

We put my son on clonidine for sleep. Helps ALOT!

[@aussieautismfamily]

Jacob takes that :)

[@whitneymason406]

Did they do tonsils too or just the adenoids? Both kids are getting so big! My son starts his new school on Tuesday! Hope you have a Happy Easter! 💞

[@aussieautismfamily]

Just adenoids!

[@LuchoPiastri]

Where does Jacob sleep? There are special needs beds that keeps the kid safe and secured with also items for sensory regulation and a camera they’re called cubby beds

[@aussieautismfamily]

we'd love one but they are over $10,000

[@ColleenTempleart]

Also-What is that on Jacob’s bedroom walls? Looks nice

[@aussieautismfamily]

Sensory materials :)

[@lucyshepherd6040]

Thats a shame the surgery didnt help with sleep that would be dissapointing, I feel like with sleep i always think iv found something that helps but then it goes downhill again! But atleast these days i do have some good weeks of sleep in between the rough ones haha so iv been able to do alot more on thoae good weeks . Nice to see another video :)

[@aussieautismfamily]

Yep! I don’t think there is a one stop solution. Hopefully we all get some rest soon

[@miaadam1574]

Sorry the sleep has not got better. Wondering if there’s a sleep trainer out there that can help you with a sleep routine and strategies

[@simonbenjeloul7829]

Bonjour J’ai mon fils qui avait tout les stéréotypes que ton fils car il a était exposé au écrans depuis sa naissance ensuite nous avons arrêter les écrans a l’âge de 2ans et demi maintenant il a 4.3 mois depuis il a beaucoup progresser il a arrêter beaucoup de stéréotypes il comprend les consignes le seul conseil que je peux donner c’est arrêter les écrans car beaucoup d’enfant autisme vitrail suite à une sûre exposition des écrans à l’arrêt après quelque mois il répond à son prénom et commence le sevrage …. Alors réveiller vous c’est jamais trop tard de la part d’un français 🇫🇷🇫🇷

[@sindyspeechley8165]

It is fantastic that Jacob is trying new foods. My boy is about to turn 12 and it is still a struggle to try other foods. I have 2 others on the spectrum and eats almost everything I also work in disability and nothing I try works 🤷‍♀️ Maybe one day. We did the tonsil and adenoids surgery. We had the same experience with sleep.

[@aussieautismfamily]

Food is so hard hey! Once we released pressure on ourselves and him, we started seeing changes

[@sindyspeechley8165]

@@aussieautismfamily I’m hearing you. I let him eat whatever he wants now. I’ve learnt not to listen to the pressure from others about his eating

[@doreenstallard3265]

Can they write their names?

[@doreenstallard3265]

Jazz and Jacob

[@aussieautismfamily]

Jazz can :)

[@doreenstallard3265]

Can Jacob do it as well?