Is Parkinson's Disease FATAL? - PD Myth Bust #3

#parkinson's #parkinsonsdisease #parkinsonseducation #podcast #movementdisorder #mythbusting
Welcome to episode three of the PD Myth Bust mini-series. In this episode Dr. Hyland debunks the myth that Parkinson's Disease is FATAL in and of itself. Watch to find out what four persons who live with PD every day think about this myth. I want to extend a special thanks to Chuck, Ian R. (AKA Ian of California), Ian R. (AKA Ian of Saskatchewan), and David Gebhart of ‪@LifewithParkinsons‬ for so generously donating their time to contribute to this video and support of the channel. Please be sure to support David's channel.
Be empowered! And in the words of Ian of California: "Never give up!"
Medical Disclaimer
All information, content, and material of this video is for informational purposes only and not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider.
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Keep in mind that links used for recommended products may earn me a commission when you make purchases. However, this does not impact what products I recommend. If I recommend a specific product it is because it has been vetted by myself or based on personal use

[@MLStanleyK]

Michael, I have watched many of your videos and I really like them better than some others out there as they get way too long and are verbally a 'Rabbit Hole' style, so thanks. This one helped a lot as I've just had a few bad days. I am 1 1/2 years into my diagnosis but have had symptoms for maybe 4 years and was in denial, so hesitated on getting the tests needed for a real diagnosis. Anyway, your vids are easy to follow and hopeful, so keep it up and thanks!

[@parkinsonsdiseaseeducation]

Marn, I love this comment! The reason I say that is because what you described on other channels has been my biggest pet peeve: namely, long and drawn out videos discussing a topic that could easily fit into 5-10 min. Also, this filled me with a warm feeling knowing that during a time when you needed to be lifted up that this channel was one of the reasons that you felt better about your situation. Keeping it up just got easier thanks to this great feedback. Thank you so much!

[@macristinacaluag6174]

Thanks for this video. Its very enlightening. I was diagnosed with PD last May 2022. I'm 59 years old. My right sids is the one affected with Parkinsons. I dont have resting tremors but i have problems with walking. I walk 30 to 45 minutes everyday.i do squat., lunge, knee drive. I also exsrcise my fingers, neck, ankle, toes, arms. Walking everyday really makes me feel better😊

[@parkinsonsdiseaseeducation]

Thank you for your comment Cristina! It’s encouraging that you exercise and make the best of the situation. You will do much better with this approach!

[@toryberch]

Michael, I loved your skit with the patient Dr dialogue. It is so true. When I received my diagnosis of Parkinson's and it took a good 9 months to receive. There wasn't any info there was only the "Well I believe it is Parkinson's". There needs to be a change for those diagnosed to be directed to P.T Physicians such as yourself. So as to learn how to move forward and find new ways of living. But until then I'm glad we have channels such as yours Michael 😊

[@parkinsonsdiseaseeducation]

Thank you Tory. I’m glad you liked the skit, I’m trying to have fun with this as much as possible

[@janetpage8285]

My husbands of 52 years has been stollen from me. He can hardly walk. sees things. forgets things to the point He can not be left alone. I have lived through 5 stages of this disease with him. i feel grateful and thank god daily he woke up. Yes fighting it an trying to make it a better day is important BUT IT IS a DEATH sentence

[@parkinsonsdiseaseeducation]

Hello Janet. I’m sorry for all of the suffering you both go through because of PD. I mean no disrespect or to downplay your situation, but not everybody’s journey with PD is the same. I have patients who have had PD for almost 2 decades and still live a full life. One of them is in this video. Others, like your husband, have cognitive and physical issues that are debilitating. Rates of progression vary, etc. Also, changes in quality of life don’t mean death or terminal prognosis. I do hope this channel can help to provide some insight and information for you as you care for your husband. Have you seen the video on Parkinson’s stages? It might be worth your time

[@janefranzen7051]

Good video, thank you! My diagnosis for PD was 6 years ago. . I went off most sugar and processed food. I think cacao is a food group,so I eat it with very low sugar. Also about 5 years ago, went off the meds and started to use herbs. My Neurologist says I’m doing fine with that. There are more symptoms from the autonomic nervous system than from the central nervous system.. I’m 81 and totally believe we are eternal beings having our mortal experiences. Good luck and God bless you all!

[@parkinsonsdiseaseeducation]

Thank you Jane! God bless you and keep you

[@sheetals3026]

Hi Jane what herbs you are taking instead of meds?

[@laliarboleda711]

Please Jane what herbs tell us...😢

[@janefranzen7051]

Hi, I tried to reply and it disappeared. So I’ll do it again only shorter. But first, I highly recommend you work with a professional on this. Y PD is mostly with my autonomic nerveous system. I use Muccuna Pruriens, Ashwagandha and vitamins, especially B’s . The herbs are in bulk and I mix other herbs in with them for heart, liver, etc. Hope this helps and again please work with a Professional. Good luck!

[@janefranzen7051]

Oh, I’m also mostly off sugar and processed foods, maybe this info was what the reason eas to take down my previous reply. Again, good luck!

[@jimpawa5793]

I got a good chuckle out of the statement about birth being a death sentence. My Maternal grandfather a had Parkinson’s the last approximately 10 years of his life. He passed away when I was 17 in 1969. I really don’t remember him being depressed or bitter my memory of him was a smiling Grandpa. He had several other health problems mainly heart disease, however that didn’t stop him. Over the years I wondered if I was would have it. Neither of my brothers have it, I know that one of my male 1st cousins ( my mother’s oldest brother son) was diagnosed in his 40’s). I was diagnosed 3 months ago having displayed symptoms for several months prior. I am really more concerned about my Diabetes which I was diagnosed with about 14 years ago and my wife’s breast cancer which she discovered early and hopefully is under control. I’m hoping that I can live as positively as my Grampa.

[@parkinsonsdiseaseeducation]

Hi Jim, I laughed too when Ian said that! Keep up the good fight, there’s a lot of life left!

[@EarthMamaMsNatural]

Thank you for this encouraging video!

[@parkinsonsdiseaseeducation]

Absolutely my pleasure

[@LifewithParkinsons]

Hi Michael thank you for this fantastic mythbuster it is very well done and put together and I enjoyed it very much. It is nice to hear all the perspectives from others especially at different stages and different stages of development. Good broad perspective of opinions. Looking forward to the next mythbuster😊

[@parkinsonsdiseaseeducation]

Thank you so much David. I'm honored to have had your contribution to the video and I greatly look forward to more collaboration with you.

[@LifewithParkinsons]

@@parkinsonsdiseaseeducation No problem. Posted a link to the video on my community tab and FB.

[@parkinsonsdiseaseeducation]

Awesome! Thank you 🙏

[@Auggies1956]

My neighbor of seventeen years had it, we moved away thirty five years ago, and he passed five years ago, by an unknown cause.

[@parkinsonsdiseaseeducation]

Hard to pin it specifically on PD, but with enough progression there can be a lot of complications that could ultimately lead to death. The dementia aspect is more likely to lead to a downward spiral than any physical issue, though falls are a big potential cause of injury and death

[@Auggies1956]

@@parkinsonsdiseaseeducation Thank you.

[@clintonpowell1443]

Hey I saw an infomercial the other day and with some success they are using some type of light that reversos Dementia and shows promise for Parkinsons

[@parkinsonsdiseaseeducation]

Nice! Did this happen to be some kind of red light therapy?

[@clintonpowell1443]

@@parkinsonsdiseaseeducation NO it looked like a large table makeup mirror with a white light

[@parkinsonsdiseaseeducation]

Wow! That’s so new I don’t think I’ve even seen a news story on it yet

[@annebrittin1878]

He!lo Michael I have had PD for 5 years and Scoliosis the two can battle it out, I'm the boss and whatever is affecting me I allocate it too one of the other .It's a game I know. but that's how I deal with it. Yes friends say I'm madxxxxxx

[@parkinsonsdiseaseeducation]

You are right. You ARE the boss! 💪🏻

[@arvindjain2148]

Well very w ell taken the most difficult issue

[@LifewithParkinsons]

Looking forward to hearing the answer😀😀

[@parkinsonsdiseaseeducation]

I’ll bet you may have some inside information… 🤨

[@Cabmaker]

The good thing about pd is you don’t die from it the bad thing about pd is you don’t die from it

[@parkinsonsdiseaseeducation]

That is certainly one way to look at it. Be blessed

[@clintonpowell1443]

I found this one, it is not the one that I had seen :kzbin.info/www/bejne/bpCliXaQntCajJI