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@dparker3185
@dparker3185 7 сағат бұрын
Having observed him for a number of years I believe John Pepper did not have Parkinsons. He had essential tremor; he did not have a resting tremor but an action tremor. He became so convinced of his own story that he did two world tours telling people that drugs are not necessary, fast walking is the answer. He has never been able to produce the study he quotes. I don't think he has seen a paper on it; he attended a presentation at the first Parkinson's congress and the review of that presentation is what he quotes as evidence. His story has changed and evolved over the years. What is true is that he was removed from his position as chair of Parkinsons South Africa because the neurologists did not believe him, instead thought he was using his position to promote his book. He did not take levadopa for any length of time because it did not help. The drug he took the longest was selegiline which I think for him worked as an anti-depression med more than a PD med. He had been going to the gym for an hour a day for many years and increased it to 90 mins a day but stopped because he was not getting any better. On the insistence of his wife he joined her weight loss, walking group. At the time this all happened he was depressed. His business was not doing well. He resigned. With the absence of stress and the addition of an anti depressant and regular exercise (walking) he got better. When he asked the last neurologist he saw whether he had PD the specialist said you don't have idiopathic Parkinsons. John decided he had another type of Parkinsons though he didn't know what it was. He was so invested in his story that he made it real for himself and his many followers. You did well to be wary.
@patriciadooling6771
@patriciadooling6771 14 сағат бұрын
Perhaps vit b 1 and l glutamine also magnesium glycinate helps for restless legs all muscle needs that are robbed by this disease 😊
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 14 сағат бұрын
Yes those are good suggestions.
@michellegrovak
@michellegrovak 21 сағат бұрын
I did not respond to levidopa so I doubt I have PD. But what difference does it make what the disease is or is not, if there is no cure?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 19 сағат бұрын
You’re probably right regarding the response to medication. I’d argue that the difference is that management of these conditions varies quite a bit and the progression/prognosis varies quite a bit. For example, mortality for a person with MSA is typically in 5-10 years max, where a person with PD will likely live for decades. Also, it makes a difference if it’s Parkinsonism resulting from otherwise treatable conditions. For example, drug induced Parkinsonism or vascular Parkinsonism.
@rascalraccoon9529
@rascalraccoon9529 Күн бұрын
Thanks for this great video! A few months ago a neurologist diagnosed me with early onset dementia - I had just turned 55, but I've had some symptoms for awhile now, mostly what my husband has noticed. Recently the neurologist is talking about it possibly being LBD because other tests came back negative. Instead of visual hallucinations, I have olfactory hallucinations, which we told her in the beginning, but she's not discovering. Also I have Rem sleep disorder, but again, I've had that a couple of years. They've scheduled a neuropsych test for me in February. How does a neuropsych test diagnose LBD?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 18 сағат бұрын
First of all, I’m very sorry to hear that you received this diagnosis regardless of whether it’s LBD or other form of dementia. I’m glad you found this video helpful. In answer to your question, the neuropsych test will look at multiple parameters of cognition, including abstract thought, executive functioning, and much more. Put together with EEG studies this can form a diagnosis of LBD. I would argue that tests such as alpha-synuclein tests and DAT scan may also help to rule in LBD since it is a synucleinopathy.
@rascalraccoon9529
@rascalraccoon9529 12 сағат бұрын
@@parkinsonsdiseaseeducation Thank you! I truly appreciate your feedback and help in understanding the neuropsych testing. My neurologist originally suggested an EEG (in the visit notes) but never ordered them. I have had a spinal tap (actually they had to try 5 times because of extensive scar tissue) but she said the results were 'inconclusive.' Thank you again - I will email my neurologist and ask about the proposed EEG.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 12 сағат бұрын
I wish you the best. In my experience it’s usually a combination of tests like the neuropsychology examination, EEG, and MRI
@rascalraccoon9529
@rascalraccoon9529 12 сағат бұрын
@@parkinsonsdiseaseeducation Thank you! I truly appreciate your feedback - I'll gently remind my neurologist about the EEG (since I'm scheduled for the neuropsychological). This is her first year practicing and she did say she's not very familiar with early onset dementia. Thank you again - truly.
@CraigRichards-d9k
@CraigRichards-d9k 2 күн бұрын
I have this condition, after about 2 years from diagnosis, especially when going outside in cold weather.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 18 сағат бұрын
Yes, certain environmental conditions can certainly provoke the watering to increase. Something I’ve noticed as well in one of my clients is that when his Parkinson’s symptoms seem worse and his cognition is worse, his nose is like a faucet.
@ccrowder3112
@ccrowder3112 2 күн бұрын
Is there anything you can do for burning mouth due to parkinson?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 19 сағат бұрын
That’s not a symptom I’ve dealt with often or hurt a lot of reports of. From what I researched online vitamin B can be helpful, and there are topical versions of captation that may help to alleviate symptoms. There are also mouth rinses of analgesic medications, such as benzocaine that may be helpful. According to Mayo Clinic, there are certain things that can irritate the mouth and cause even further issues such as alcohol and tobacco. Keeping the mouth from getting even more dry apparently as a important factor in alleviating symptoms so chewing, sugar-free gum, for example might be something that would keep your mouth from getting dry and also take your mind off of the pain.
@mariant2040
@mariant2040 4 күн бұрын
Which magnesium is best for PD tremors please?
@susanedghill9234
@susanedghill9234 5 күн бұрын
I’d love to hear. NPH and Parkinsonism compared. Dignosed w NPH because of falls incontinence memory and gait. Then Dr told me to also check into PD My MDS said not Parkinson’s but need genetic test ! I first started falling backwards about 10 years ago damaged my spine hit my head. I’m sure… but still can’t get a definite answer. I did have the surgery for NPH, but I’m still having all the symptoms and even worse my short-term memory has completely gone! I’m 77 and hope to stay with my grandchildren a little longer.. but this is not a good way to live ,,: Always fatigued, no energy apathy depressed. have major depressive disorder. Just so ready to give up
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 3 күн бұрын
NPH is a tough diagnosis. I treated a patient with this a couple of years ago. I’d be happy to cover this topic!
@niravvaidya9683
@niravvaidya9683 7 күн бұрын
Sir any treatment available Parkinson disease
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 6 күн бұрын
I’m not sure where to start with advice. There are a lot of options to treat PD, though it does depend on local resources. Some countries have very little support, which needs to change.
@steveh1460
@steveh1460 7 күн бұрын
Great topic as usual Dr. Hyland❤
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
I’m glad you think so! I appreciate the feedback Steve, I want these to be worth watching/listening to
@shameemhabib1974
@shameemhabib1974 7 күн бұрын
Dr M i just wish der was a cure for PD😢 like yesterday already..iam very tired of being sick tired etc.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
If I had a magic wand my friend…
@steveh1460
@steveh1460 7 күн бұрын
🙏
@steveh1460
@steveh1460 7 күн бұрын
I feel there is a natural silver bullet for complete healing and I pray that it is revealed to someone or by AI to get it out there like pronto!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
I hope you’re right. I also heard some really interesting results of using nanotechnology in mice brains and it repaired the cells in the substantia nigra. Pretty incredible. I also am really excited to hear what Dr. Bernstein has to say about
@johndutton3679
@johndutton3679 6 күн бұрын
There is no cure for Parkinson's but there IS a fix. It is called Focused Ultrasound Surgery and it uses painless sound waves and it completely knocked out my Tremors in less than 2 hours. If you don't believe me check out my film Tremor Documentary 2022. It's a miracle and I have been tremor free for 3 years now!
@videopourenfant3035-j5v
@videopourenfant3035-j5v 7 күн бұрын
I meant United States I want to visit United States
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
We would love to have you visit!
@videopourenfant3035-j5v
@videopourenfant3035-j5v 7 күн бұрын
I would like to have a visa its request for money you could accompany me
@steveh1460
@steveh1460 7 күн бұрын
Wait til after the 20th🇺🇲
@videopourenfant3035-j5v
@videopourenfant3035-j5v 7 күн бұрын
hi brother i am so happy to watch your video thank you i really wanted to come and visit england
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
Thank you so much! Actually I am in the US (Etats Unis)
@HelloImPamela
@HelloImPamela 7 күн бұрын
Thank you, Dr. Hyland. This is very beneficial information. I appreciate and thank you. I've shared it on my community page. I hope all are doing well. 🧡🦋✨
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
You’re most welcome Pamela and thank you for sharing!
@HelloImPamela
@HelloImPamela 7 күн бұрын
@@parkinsonsdiseaseeducation My pleasure,
@IntegrityMeansAll
@IntegrityMeansAll 7 күн бұрын
Wow, I did not know that all those symptoms are typical for Parkinson.. very crucial info
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
Actually, this was years ago and Joe was giving a testimonial for my website. He doesn’t have PD
@sandracora7788
@sandracora7788 8 күн бұрын
Glad I found you. My husband diagnosed with parkinsons about a year ago. Doctor currently has him on 2mg. of ropinirole twice daily. Had a bad reaction to levadopa! He is on about 3 anti-depressants a day for many years which I wonder if it causes parkinsons symptoms. Any help or suggestions would help me alot. Im under alot of stress. Thank you!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 7 күн бұрын
Hi Sandra. I’m so sorry you are both dealing with this. Depression can often be an early sign of PD, though clinical depression can be a completely separate condition from PD. I don’t know that antidepressants are linked in any way to PD symptoms, but I need to research that more to be sure. Are you going to any PD support groups?
@marlenerose5757
@marlenerose5757 8 күн бұрын
No
@shameemhabib1974
@shameemhabib1974 9 күн бұрын
Dr i have pain all 3 mention..but my family members are men dey dont have pain but.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
Why does it matter whether a man or woman. We all experience pain
@shameemhabib1974
@shameemhabib1974 9 күн бұрын
Dr iam very off tea n coffee makes me nauseas...i drink lot water during summer n warm water in winter...constipation i have to use suppositories or castor oil...its very difficult 😢
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
Yes it is often very difficult
@angelamadagan3406
@angelamadagan3406 9 күн бұрын
Hello! I’m learning more about Parkinson’s… my dad had stage 4 Parkinson’s dementia and I am taking care of my father. Thank you for sharing information
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 күн бұрын
It’s my pleasure Angela!
@angelamadagan3406
@angelamadagan3406 9 күн бұрын
@@parkinsonsdiseaseeducation what is your email again
@anithamichael5395
@anithamichael5395 9 күн бұрын
My husband has Parkinson’s and has a runny nose for the past 25days. How can we treat this?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
Did you hear the part where I discussed the nasal spray?
@anithamichael5395
@anithamichael5395 8 күн бұрын
Yes he did
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
The ipratroprium bromide spray is the most common treatment. I’ve also had others comment that they used Zicam which contains zinc and that this helped them
@anithamichael5395
@anithamichael5395 9 күн бұрын
Does rhinnorea affect your health in any way?
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
Not that I am aware of, but it can be very annoying and make one self conscious
@hatulaim1
@hatulaim1 9 күн бұрын
I have been taking vitamin B1 (Benfotiami) and B6 in the same tablet (Miligama) for almost half a year, both 100 mg each, and I have not noticed any problems. According to research by the famous Mayo Clinic, a harmful dose of vitamin B6 is more than 1000 mg per day for at least one year. P. S. In the meantime, my Reynold's syndrome has disappeared, which used to cause me serious problems every years. So my fingers are nice and healthy this winter
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 9 күн бұрын
1000mg was also what I had quoted in this video from Harvard University. But from what others have commented toxicity it possible ar much lower levels in some individuals.
@kevinayres9902
@kevinayres9902 9 күн бұрын
Yes I have PD and a constant runny nose that at times flows not drips. Doctors used to say it was because I was on Lisinapril but I've now been off it 3+ years and it hasn't stopped. Doctors now say "well yes most likely from PD".
@Abdulwaheed-t5v
@Abdulwaheed-t5v 9 күн бұрын
Doctor which vitamin is good for brain I mean main vitamin for brain vitamin that only works important for brain
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 8 күн бұрын
There are many. B12, B6, and B1 are all important for the brain. There are other supplements that can be helpful overall with Parkinson’s, but the B vitamins are very important.
@deborahsmouse368
@deborahsmouse368 10 күн бұрын
No
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 күн бұрын
I’m assuming you mean the question about feeling empowered when you were first diagnosed. I didn’t think so!
@HelloImPamela
@HelloImPamela 10 күн бұрын
Thank you for the generous discount offer. I sent you a dm. Plz, know how much we appreciate you. I wish you and all a good rest of your day.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 күн бұрын
Thank you so much and thanks for your DM earlier
@tmbushcraft
@tmbushcraft 10 күн бұрын
No!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 күн бұрын
I didn’t think so
@michaelkurtz1967
@michaelkurtz1967 11 күн бұрын
Running nose is usually just a histamine response from your body trying to eliminate a toxin. Clear mucus is most likely environmental and cloudy is something you consumed. May not be Parkinsons at all. Of course check with a doctor to verify.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 күн бұрын
Of course, did you miss the part where I said that other conditions cause runny nose and that some folks have this just from aging? Not saying everybody with chronic runny nose has PD, but it is absolutely found in persons with PD and is directly associated in those cases.
@drbettyschueler3235
@drbettyschueler3235 11 күн бұрын
I've had to do my housework with a tissue in one hand for years. It is so irritating. I always thought it was due to sinuses and wondered why antihistamines didn't help though they do help with my autoimmune diseases. I've been diagnosed with Parkinson's for 25 years but the runny nose only started about 6 years ago.
@GaryPack-l4u
@GaryPack-l4u 11 күн бұрын
My neurologist just recently prescribed magnesium glycinate. Haven’t started it yet. Will let you know. This is specifically for the treatment of dystonia in the feet.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 10 күн бұрын
Yes, actually I wasn’t thinking of dystonia when I recorded this. I could see why that may help.
@monicali2608
@monicali2608 12 күн бұрын
Homeopathic remedy for runny nose in people about 50: Spigelia.
@thugbuster
@thugbuster 12 күн бұрын
Good Info, but wouldn't MSA be included as an synucleinopathy and not a tauopathy? My wife was recently diagnosed with MSA and specifically had the skin biopsy which showed alpha-synuclein build-up. Thanks for the info!
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 12 күн бұрын
My goodness you are so right. I need to talk about that in a live video soon, but you are correct. MSA, LBD, and PD are synucleinopathies and PSP and CBD are tauopathies. Thanks for pointing this out, I misspoke
@thugbuster
@thugbuster 12 күн бұрын
@@parkinsonsdiseaseeducation Thanks! I just want folks to know what conditions could be detected by the skin biopsy. It takes way to long to get diagnosed and more skin biopsy testing may help shorten that time.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 12 күн бұрын
@thugbuster I agree, I plan to address that as part of one of the next episodes.
@gammayin3245
@gammayin3245 12 күн бұрын
I suffered from runny nose for as long as I can remember - well back into early childhood. I am 70 and my sense of smell works as well as ever, so I don't know if my case is the same as others with Parkinson's. Lately I have been excluding dairy, wheat and other gluten-containing grains from my diet, including oats. I simply eat either rice or potatoes for a starch or don't have any starch in my meals. My runny nose subsides after a few days but then if I eat out and have either wheat or dairy (hard to avoid) my runny nose comes back.
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 12 күн бұрын
I wasn’t sure by your comment, but do you have PD? You are spot on with your dietary management and how interesting that the runny nose returns with eating out where it’s harder to control the food. Doesn’t surprise me in the least!
@Phoenixhunter157
@Phoenixhunter157 11 күн бұрын
Could be vasomotor rhinitis. Harmless but annoying
@jimcoon
@jimcoon 13 күн бұрын
I have been dealing with Parkinson’s for over 15 years now. My original neurologist prescribed 25/100 levodop/carbidopa taken 1 pill three times a day. I did this for a while even though I had very light tremors. After much research, and attending a PD group, I noted that many PWPD take C/L to deal with lots of different symptoms, from fatigue to depression. And many neurologists are happy to up their dosage. After 15 years since an “official diagnosis” I only take levodopa about twice a week. One pill - 2-3 times per week. Exercise does much more for me and I don’t notice a great enough difference in symptoms after taking Levodopa to take it and risk dyskinesia. Great info and thank you so much. I have subscribed
@parkinsonsdiseaseeducation
@parkinsonsdiseaseeducation 13 күн бұрын
Appreciate you so much Jim! The more I learn the more I wonder why this drug is pushed to strongly, especially in the earliest days after diagnosis.