IVIG Therapy - A Beginner’s Guide

Welcome to "IVIG Therapy - A Beginner’s Guide"! 🌟 If you're new to IVIG treatment or curious about its benefits, this comprehensive guide is perfect for you. Learn the basics, potential benefits, and what to expect during Intravenous Immunoglobulin Therapy. Dive into the world of IVIG with expert insights and essential information. Subscribe for more medical insights and stay informed on your health journey! 💉📚 #IVIG #BeginnersGuide #Healthcare101
This is the 1st video in the IVIG (a beginners guide) series. Here we'll talk about what exactly intravenous immunoglobulin (IVIG) is, how it works in the body, how it's administered, and how much therapy typically costs.
Stay Healthy and Lucid 💡
Danielle
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Check out these other great lessons and series below!
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• IVIG - A Beginner’s Guide
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• Mastering IV Catheter Insertion: Prov...
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❗️❗️PLEASE NOTE: Lucid Med videos, medical lectures, medical illustrations, and medical animations are for medical education and exam preparation purposes, and not intended to replace recommendations by your doctor or health care provider. The information is present here to give you a starting place to further look in to the proper treatments and recommendations for the care of your patient
Timecodes
0:00 Intro
0:57 What is IVIG
1:25 Benefits of IVIG
1:50 When it should start to work
2:11 How it's administered
3:12 SCIG
3:42 How long infusions are
4:00 How long effects last
4:18 Dosing
7:27 Side effects
10:15 Anaphylaxis
12:00 Vaccines
13:28 Preparing for infusion
14:38 Cost
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[@aidenfrancis1223]

Great video!!! Thank you!

[@lucidmed3343]

Hi Aiden! You're welcome! Thanks for commenting and please let me know if I can go over anything specifically for you 💡

[@sandyhebert3613]

I'm complex Drs tell me dealing with chronic health issues thyroid storm immune disorders Benin brain tumor tumor blood cell counts always bad hormones have to play a part menstrual at 17 having sister's making sure I believed something was wrong with me MS Graves skin cancer vit deficiencies breast leaking at 12 I'm on 21 scripts a day recieving call Idig asap she's going to help me I'm 64 told 3 times to get paperwork in order addressing health issues pills for branches instead of getting to the root as you struggle through life just surviving vision teeth all of it plays part God's speed listening to my body even when no-one else wants 2

[@amosquito3050]

@lucidmed3343 hi, I was wondering if you have any advice about fluid around the heart. My daughter was recently diagnosed with another autoimmune, but this time, it's positive for half lupus and half not. I'm wondering if the air conditioner that's sitting in her bedroom she uses every day might be part of what's causing some issues? She has a cough etc. We've had it for several years and it comes from a home that had mold and asbestos in it. The last time which has been a couple months now that she had IVIG. They were only able to keep it in for about 5 minutes so they tried to switch veins and couldn't get another vein after that. I am also wondering if the IVIG could be part of what was causing the fluid around her heart they called it' pericarditis. They are now starting her on Benlysta.

[@lethrneck4]

I was given multiple doses of IVIG back in 1995 when I developed Polymyositis that wasn’t responding to any immune suppressive drugs…the next day after the infusion was the first time in 3 months all the swelling in my body went down…downside ..absolutely horrific migraines, vomiting, fever they called “clinical menengitis” for 72 hours so bad I wished I never gotten it..this side effect was reduced when they slowed the flow of the IVIG during my future infusions..

[@MackieJackCreations]

Thank you SO much for this video. I am about to start my initial IVIG infusion, and I’m an RN (35 yrs), and a bit nervous, but you answered many of my questions. Again, thanks!

[@lucidmed3343]

Hi Mackie Jack! Glad it was helpful! Please let me know how it went. Danielle

[@MackieJackCreations]

@@lucidmed3343 Hello, well it has not started yet, because my insurance has denied it. I have filed an appeal, but just found out about an hour ago that my appeal was changed from urgent to standard, so it has gone from a 72 hour decision, to a 14 day one. It’s hurry up & wait, all the while my symptoms are getting worse & worse.

[@leslielutz6028]

Almost my exact story except RN 40 years! Yes a bit nervous but great information well communicated! Thank you -

[@MackieJackCreations]

@@leslielutz6028Some advice … HYDRATE like crazy the day before & day of, and also ask your nurse to give you 500ml before starting first bottle. All I’ve dealt with was headache & fatigue. Best of luck to you, my sister nurse! ❤️

[@leslielutz6028]

@@MackieJackCreations Thank you - I’m the nurse but appreciate the tips!!

[@psyko9660]

So happy I discovered your channel. I'm diagnosed with PN/SFN and had ny first in fusion Friday which went well. No side effects til Sunday. Currently have a migraine that feels like a hangover and flu like symptoms, along with photophobia which is made worse due to the the snow reflecting the sun. So today was kinda tough, but trying to take it easy and suck it up. Also trying to add some turmeric and ginger supplements for inflammation too

[@lucidmed3343]

Hi psyko! (Writing that gave me pause for a sec lol) I'm really glad you're enjoying the channel. Everything you're experiencing is normal. The delayed side effects are absolutely a thing. I'll remind you to hydrate, hydrate, hydrate. Next infusion...start increasing your water intake 48 hours prior to visit. I'll also reassure you that normally side effects improve with each cycle so you shouldn't have this experience every time. Please continue to let me know how you're doing and how the infusions are going. Danielle

[@psyko9660]

@lucidmed3343 that's good to know that's normal...yes ive been really hydrating. Thanks for everything you do for every one we really appreciate it 🥰

[@paulcharon2622]

Helpful Video Thanks 🙏

[@lucidmed3343]

Hi Paul, I'm so glad you found the information useful!

[@kevinbaxter7390]

I did comment few months ago regarding ivig treatment saying myself had zero benefit. Well again starting a new Cycle over longer period and trying different make. So IVIG For 3 days approximately 5/6hr infusion. Five weeks break. Then repeat over six months,in between have assessments. Dosage! 5% Flebogammadif 2g per kg Total dose 170g UK weight’s obviously Thanks 🏴󠁧󠁢󠁥󠁮󠁧󠁿

[@tamidillon2502]

Great video. Very helpful who is new to this. My autoimmune disorders (3 and counting) are due to the Covid vaccine. I wonder about the recommendation to get the Covid vaccine prior/during one's IVIG therapy. I'm grateful for the content.

[@Snarkapotamus]

Pure speculation that it was from Covid...could be from allergies or a contraindication medication or herb.

[@amosquito3050]

I am so happy I found your videos 😊. Is it possible that when you're receiving IVIG you're not seeing results because of how ill you are when you start?

[@lucidmed3343]

Hi mosquito! That makes me very happy...I'm glad you found the channel. To answer your question...absolutely. Depending on the reason it was prescribed IVIG may take anywhere from a month to 6. I'll even go so far to say sometimes people will feel worse before they feel better. D

[@lizburgess4398]

I'm getting it next Tuesday. I'm having surgery in 10 days and my platelet count is 43. I've been given prednisone for this the last 2 surgeries with poor outcome. I had platelets given during my gallbladder removal and that worked well. I wonder why my hematologist decided to go IVIG route for me.

[@lucidmed3343]

Hi Liz!! My guess is that you have chronic immune thrombocytopenia purpura (ITP) where your body is attacking your platelet production. By giving IVIG prior to surgery it will help with this. I hope you do well and have a speedy recovery! Danielle

[@gmcmurry]

I would love to hear your opinion about being diagnosed with something that will require getting IV theorapy. I mean for the rest my life. -- damage to your veins, etc. I just started getting home home IVIG and though I don't mind getting IV, I fear the long term effects of IVIG on my body.

[@lucidmed3343]

Hi Greg! Hope you've been doing well. So with long term infusion there is always a point where veins will become less pliable and begin to show evidence of repeated use...when that exactly happens is reliant on multiple things such as various patient- and practitioner-related factors: age, obesity, history of chemotherapy, vein characteristics of the patient, and the clinical experience of the practitioners. One thing I will discuss with my patients is if I feel we're reaching that point where my ability to gain access is becoming increasingly challenging I'll call their MD to discuss possible port insertion. However I'll also take their duration of therapy and the specific product I'm infusing into consideration. Mediports have their own set of risks and benefits but in the grand scheme of things they're preferable to sclerotic veins if extended therapy is indicated. PICC lines are not a consideration here as they are high maintenance and can only stay in for about 6 weeks max. With IVIG we tend to run this via a regular small catheter but since this is normally done monthly it's not unusual to have a port placed either.. The other option is SCIG. Not sure if you've considered that? D

[@duermebaby]

For gbs should I take ivig again? Otherwise will reduce nerves communication? For example is a lifetime medication for gbs?

[@lucidmed3343]

Hi duermebaby! Thanks for your question. If you feel you're having a relapse then I'd absolutely seek medical advice. I've had many patients who remained on it for a few months, stopped it to see if they'd be OK, and then restarted it because they felt they were growing weak again. This isn't always the case of course but if you're feeling OK without signs of relapse then there's no reason for you to continue to infuse. Though I'll also point out that a have a few patients who came off IVIG, did well for an extended period and when it did resurface it was bad enough that their MD made the call to maintain them on IVIG. There are many variables involved. Danielle

[@lucidmed3343]

Here's the link for the video I did on GBS kzbin.info/www/bejne/g16pkIStlsionZY

[@7THxSIGN]

Does this help with burning feet from COVID-19?

[@lucidmed3343]

Good morning! Yes it typically does. IVIG works 2 ways. It quiets down the immune system from attacking it's own tissues and also has anti-inflammatory properties. Danielle

[@GraceTerrellforever99]

I discussed this with my immunologist, and hopefully, I will be able to do it I have lupus as well as ig deficiencies. I rarely feel good and I get sick a lot. It would be so nice not to catch ever cold I am exposed to.

[@lucidmed3343]

Hi Grace! I hope so too because IVIG is a true lifesaver in the case of immunodeficiency and autoimmune disease. It can be an uphill battle to get it covered by insurance but typically with low Ig it's easily supported by lab work and testing. Hopefully your authorization gets pushed through quickly. If you have questions and would like to email me please do at [e-mail]. D

[@GraceTerrellforever99]

@@lucidmed3343 I am extremely low in IGa and low in one of the Igg subgroups, my immune system is pretty weak, if I am near someone sick I will likely get it and be sick for days or even weeks.

[@GraceTerrellforever99]

@@lucidmed3343 I saw an immunologist to discuss it and he ran a bunch of blood work, I have a follow up next week. Hoping for some positive news.

[@alykil6333]

If your IVIG is done for five days is it done inpatient at the hospital? And would they need to start a second iv about halfway through treatment because as I understand ivs shouldn’t stay longer than 3 days

[@lucidmed3343]

Not normally. We do 1st doses in the home. It depends on the history but many if in a flare or crisis will be admitted and inducted there but we start plenty of patients in home. IV’s can stay in 96 hrs

[@alykil6333]

@@lucidmed3343thank you! I just recently found your channel actually because my doc recommended IVIG and I’m loving your channel it’s entertaining and very informative🩷

[@angeminc]

Would a course of IVIG be helpful for me. I have long term vaccine injury and chronic nerve pain, and dysesthesia of the scalp (chronic itch, pain, burn). My conditions are considered idiopathic (cause can't be found)

[@lucidmed3343]

Hi Angeminc! When you say long term vaccine injury, which vaccine? Is this like a long haul Covid issue? We use Ivig for multiple neuropathies and I’ve had many wind up with various neurological conditions post Covid/post Covid vaccine. In certain cases such as myasthenia gravis and acute multiple sclerosis flares we’ll give a cycle or 2 of Ig with good results. Chronic conditions may necessitate continued therapy. Given you have nerve pain it could possibly help but it’s difficult for me to say with any certainty unfortunately. I’d say it’s worth asking your doc about it to see if appropriate. Ig is sometimes tough to get approved by insurance and with idiopathic designation it can be an uphill battle all the way but it can’t hurt to ask. Danielle

[@angeminc]

@@lucidmed3343 Yes I have nerve pain amongst other symptoms since my covid booster which was Dec 2021. It began from the Moderma Vaccine Booster. I do not necessarily need to go through insurance. I am looking for a competent MD to evaluate and determine if it may be of help and, if it may- prescribea(correctly). So, any physicians you can recommend please share rhe information thank you!

[@lucidmed3343]

@@angeminc where are you located?

[@angeminc]

@@lucidmed3343 I'm in California, but will travel if necessary.

[@angeminc]

​@@lucidmed3343 California but willl travel if necessary. Any recommendations greatly appreciated.

[@lynmamaril3237]

How much does it cost.

[@lucidmed3343]

Hi Lyn, I believe I had addressed this in the IVIG brand video but that question is nearly impossible to answer with any amount of accuracy because insurance coverage is different from provider to provider and policy to policy. It depends on where you are with deductible, copay, dose your doctor has ordered, and whether you're a Medicare recipient or are commercially insured. On average it can be very expensive (several thousands of dollars for a single dose) but again depending on insurance coverage you could have 0 copay as well. The best way to approach this is to speak with either your insurance provider or specialty pharmacy that's connected to your insurance company and ask them to provide a list of formulary brands and based on your policy if it's covered and what tier it's listed under. I had listed the cost per 10 gram vial in the video referenced above. Let me know what you find out :) Danielle

[@melissakoon2097]

I've been taking ivig since 1999 very pricey stuff every 3 weeks 70 grams i would rather just do it all in 1 day so i don't have a down day every week. So many side effects heartburn really bad,pain in legs,headache i take lots of meds before its mostly just heartburn if i take all my pre meds first.❤

[@lucidmed3343]

Hi Melissa! Thanks for commenting :). 25 years is a long time so I'm guessing it's working. Very happy to hear that. I'm guessing you're doing 3 days every month? I've had patient's do as much as 80 grams in 1 day and they did OK but that took a few years to work up to. Normally we do 10gm/hour but that's not a hard and fast rule. Judging by your side effects doing it all in 1 day would be quite rough for you. The time commitment sucks though. If you've been on it for that long I'm wondering whether a different brand might change your experience. Certain brands just cause more adverse events and there's a couple which pretty much everyone does well with. Danielle

[@melissakoon2097]

The cancer clinic I go to for ivig can only get 1 brand of it and this brand socks they just let me take my own premeds on my own so if I need anything extra I have it with me because they charge the insurance enough not letting them charge anything extra

[@lucidmed3343]

I bet I could guess which brand.....@@melissakoon2097

[@melissakoon2097]

Starts with a p

[@lucidmed3343]

Hmmm not the one I was thinking but Panz or Priv?

[@yajairapimentel8166]

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