Jennifer Brea | Unrest Film | Media Impact Award | Invisible Disabilities Association

[@katewalker3094]

I just found this on Netflix. I've sent the link to everyone in my life. You gave me the words to show them that it's not just me. I was told by a doctor that if I dealt with my latent lesbian tendencies I'd find myself cured. I walked out of his office and thought about killing myself. A nurse grabbed my arm and walked me into a room and set up an appt with a new doctor. He couldn't do much but he told me I was sick, it wasn't in my head, and he helped me find a doctor that diagnosed me with CFS. No one in my family understands. My husband really tries and I love him for it. Your film, as painful as it was for you to put out has been a life line for me. Thank you.

[@ldar630]

I’ve been invisible (suffering from ME/CFS)for over 37 years. It took well over a decade to get diagnosed and most people still question whether I’m really sick & never wonder why I drop out of sight for weeks & months at a time. We have too little energy to waste attempting to convince skeptics, so we’re thankful for advocates. I deeply appreciate all the efforts here to shine a light on our illness and to all those who Believe us. It isn’t in our heads, but being gaslit for decades has left some of us, at times, questioning our validity & sanity. If people don’t want to help, they should get out of the way of those who do. Thanks to all of you for helping!

[@InvisibleDisabilities]

We are so sorry for all you are going through! People don't realize how hurtful their comments can be! Thank you for your kind words! We are determined to make a difference in this world! 💖

[@InvisibleDisabilities]

Thank you, Jennifer, for making a difference in the lives of millions living with invisible disabilities!

[@gretchengardner4678]

You are an amazing inspiration, Jennifer. ❤️

[@SillySherriProductions]

Wow! Wow! Wow! One woman on a mission to speak out and get help for others living with M.E. Her film is not only impacting people with M.E. but is lending support and a voice to millions living with invisible disabilities! Thank you, Jen!

[@karlieneporter4939]

I just watched your film , I suffer from Myasthenia Gravis it took 2 years to receive a diagnosis and in that time I was told it was in my head , I was depressed or I was lazy and needed to exercise. Doctors attitudes towards women especially need to change . I believe you are pathing the way not only for CFS but for all those rare autoimmune diseases out there . For this I thank you from the bottom of my heart. I wish you nothing but happiness and success in all life’s adventures.

[@cyndiyoung-miller989]

Incredible! Congratulations! Those of us living with ME and having our ‘old lives’ ripped from us, thank you. You and your husband are an inspiration and my wife and I thank you. 🙏🏻

[@StartFromScratch1]

I wish here in Europe the Film would have made it to a TV channel. I dont see changes here,sometimes I think doctors dont WANT to know about this ilness.I really hope there will be a soon breakthrough in research that helps us all.

[@InvisibleDisabilities]

Thank you all for watching! Don't forget to SUBSCRIBE to our channel!

[@sharon1704]

I watched your Documentary on Netflix what a strong women you are! Praying for you and all that are experiencing your "Invisible Disabilities" which are apparently Very Visible. Crazy those have been institutionalized due not knowing how to treat your illness & shame those for who find it funny to make comedy of your conditions! Stay Strong Jennifer & God Bless You & Omar

[@heretoday788]

Congratulations, Jen!

[@wyxyx6712]

I'm so happy for you. Hi from Italy

[@maryellent6229]

Watching this from my bed, in total relapse right now. Have been this way for months on end with no relief in sight. Feels like death, doesn’t it! Thank you for filming this disease. Far too many think this is a fake, and I can completely tell you it’s not. My doctors just don’t know what to do with me anymore.

[@luvsilly60]

Checking in on Jennifer. This is several years old.

[@doriannecaruana2402]

I have just seen the movie,it's amazing,don't know what to say except that you are an inspiration,i heard a bit about M.E but you showed it really well,so can people like me could understand.thank you for educating people and being the voice of other M.E sufferers like you🙏hope someone will find a cure so patients don't suffer anymore🙏. I was feeling very low and you maked me feel better after watching the movie,i wish you all the best in life,and Congratulations with the movie.much Love from Malta❤❤

[@Mario-kp8mj]

✨👏❤️ Thank you from Slovakia 🇸🇰❤️✨👏

[@angiemacslilmitesanmore]

I'm still invisible to the outside world

[@k1ghz960]

I agree completely.

[@Radiant_Vesper]

❤

[@marijkedevos9829]

I'll adress your movy to the (Dis)ability Film Festival KULeuven, because you achieved making an unseen disability (which is also mine) visable for all people. Love & embrace, XM

[@yeyid4685]

Cómo estás? Me gustaría contactar contigo

[@ok2342]

chronic fatigue syndrome and myalgic encephalomyelitis // or immune dysfunction due to chronic fatigue syndrome is the new HIV-free AIDS pandemic that we are experiencing in 2022, an infectious syndrome ignored by the people who run the health system

[@yeyid4685]

Hola, Jennifer Brea

[@mellyrusso1358]

In italiano?

[@sandracanaspayton4322]

I have severe photo sensitivity

[@ibperson7765]

The carnivore diet, much to my surprise, is helping such people. I guess because it’s the ultimate elimination diet? Or because of the ketosis?

[@womenofgodunited]

It’s because there is little to no inflammation

[@andrinep.780]

Yes, that, too, but also because it is the proper nutrition that our body actually needs, it repairs the gut etc. Bone broth and fermented foods like sauer kraut, kefir etc too.

[@JuanHernandez-ry9dr]

Very sorry for your illness. You are a force to be reckon with. 😂

[@MrCarstennielsen]

Lack of activity in the cells does not stimulate the cells and then body, to set free the neurotransmitters produced by evolutionary relative making use of body as it is intended to be used, meaning, that when body is not being used, there is lack of neurotransmitteractivity, which is what makes excatly the symptomes the patients suffer from. I bet that none of the patients participate in any physical activity or sports, as this will cure them, AS LONG as they engage all cells in body in the activty and do not act like as if seeing exercise as a really painfull void or is involved in a kind of resisting manner. I do not claim sufferes lazy, but they are for sure not integrating adequately in life as such will prevent their symptomes to occur at all.

[@kayonnewebley7123]

While you likely didn't mean for it to be, this is a dangerous comment, rooted in ignorance of the disorder, and it could get people seriously hurt. I encourage you to educate yourself further on the disorder - perhaps by watching Jennifer's documentary "Unrest", which I believe is available on Netflix as well as on Vimeo - before giving further medical advice. I'm not saying this to be disrespectful to you at all, but I couldn't leave your comment unnadressed given that the advice that you shared re: exercise could seriously injure someone with ME/CFS should they try it.

[@nataliagonzalezp87]

You're quite mistaken.

[@portraitbyelise2309]

Hi, I was wondering if you had actually watched the movie ? I didn't know this condition before, just what random people knew about it, that the medical field is not convinced yet that it is even a thing and that it is at best seen as being all "in the head". I had no opinion about it because I don't know anynone suffering from it. The documentary really surprised me. It seemed to debunked the idea that it is some fatigue link to an underlying depressed state. I was very surprised to notice that in some patients it occured as sudden attacks, almost like paralysis attacks, when someone can not even go the the bathroom and has to crawnl on the floor, or can't even bring a fork to their mouth to eat. Never heard about such extreme symptoms when you have depression. I heard about people stuck to bed because of severe depression, unable to take care of themselves but not to the point they littarally collaped on the floor trying to make it to the bathroom or need someone else assistance to feed them as a baby in bed because they are unable to pick up food in their plate and bring it to their mouth. Actually when they try, it does look physicallly exhausting for them but it lalso looks like they don't lack the drive, it looks as if they are running a marathon actually and required a solid will power, not something you'd exhibit when you suffer from depression. Also in the documentary they said in Danemark it wasn't recognized as a true disease yet and believed to be a psychological issue and families where at fault and seen as enablers. One teen was then removed from her parents custody to be cured in a facility. The girl had to follow the doctors program there. What was very interesting is that after years following this program they were zero improvment and she remained the same. Another girl severly sick almost couldn't move, she had physical therapy in a pool and exhibited pure joy when doing it, she liked the sessions but it didn't help her to improve , it was like her life had suddenly stopped. All those symptomes reminded me of something I heard about in another documentary, it was this young woman who experienced extreme fatigue, to the point it ruined her life and her family was desperate to help her and was mad at her in the same time, as if she didn't try enough when it was finally discovered she was suffering from some damage to a gland in her brain (it was caused by a car accident she was in). It was curable, she received a treatment and she improved over night. When you see all those testimonies of sufferers in the documentary you can not not think there is something going on here which is not a mental health problem. I was wondering if it could be the same thing, some damage to this tiny gland in the brain (usually it appeared after a viral disease, could it be the virus has this unknow effect on the body and damage this gland ?? It can also appear after a physical trauma like a car accident, I think it could make sense...

[@maryellent6229]

I’m sorry, but that’s one of the things we need to avoid, PEM - Post Exertional malaise. Any kind of exercise puts us in bed for days or weeks or months. they discourage any kind of exercising. No, we are not lazy, just very ill with no cure.