I Have Cancer, Myelodysplastic Syndrome, MDS, Neutropenia, Severe Osteoporosis, Heart Failure

[@AC3HT]

Jim, thanks for sharing your health issues with everyone. Will be praying for you and am asking others to do the same. Always enjoyed your ham radio videos, which were all filled with class and style; this current presentation is certainly no exception, especially when discussing such a difficult matter. Be well. 🙏 73, AC3HT

[@bobrunge7594]

You’re a special kind of man to be able to look into a camera and say what you needed to say for all of those who watch. God guide your way, Jim Bob Runge W1LSZ

[@86jekstrom]

I feel I can speak for many in the radio community when I say we wish you well. I'm just a CBer but love your videos and your ability to share knowledge in a way each and everyone of us can understand.

[@Homer19521]

...just a CB'r" ... but someone who values the work Jim has done. The latter is more important. I was a CB'r at one time & went on to Ham radio. You can be what you want to be. Don't pigeon hole yourself. Lastly, thank you W6LG, for all you've done for our hobby. 73

[@86jekstrom]

@@Homer19521 thanks for the kind words. I'm capable to do so but enjoy where I'm at currently. I may move on one day👍

[@86jekstrom]

@@Homer19521 I have a HQ-180 too 👍 cool to see these old 16 tubers still around

[@albert7ii]

Jason... your support for Jim is what counts, like Mr. Ograv has said. Many Hams started on that road. YOU Jason can walk in Jim's footsteps, if and when you feel you wish to do so. Until then, enjoy the 11 meter band and every time you hit that PTT button say a short prayer for Jim. His courage in making this video is exceptional. Albert

[@viralsheddingzombie5324]

Despite the list of serious medical issues, you are amazingly resilient.

[@tedrurbach5331]

I watched this video just last evening and want to tell you that It takes a special kind of person to face a camera and tell a story such as this in the hopes of helping others. I am sorry that you have had to suffer through so much throughout your lifetime , but you willingness to share is beyond admirable. I am 72 years old and have been a Ham for less than 2 years. I have viewed more than several of your videos. I am assured that they are always factual, informative and easy to understand. Thank you for sharing your knowledge, experiences and your health history. I look forward to viewing more of your videos in the future. I am praying for positive results to you health issues.

[@aelaan12]

Thanks for sharing your experience. Two years ago I walked into our local hospital because I did not feel so well. I am in Canada, we have basic healthcare in my province (OHIP). I have been seeing a cardiac doctor in the same facility where my family doctor is. In 2013 I was diagnosed, by a friend, that I could have possible AFIB. This is how I ended up at my family doctor and later that same week at the cardiac "specialist". It was confirmed, I had one of those silly things strapped to me to detect the situation. It records it locally and you can see how full it is, almost like a cassette tape. This was done on the Friday afternoon. That same Friday evening the device was full, could record no more. So I reached out to the "specialist" on Monday, because heaven forbid I interrupt their weekend - I could sit here at home panicking because I did not know what to do. I took that darn device off, because sleep was nowhere to be found. I went to a walk-in clinic in the same building as my family doctor. I was send home, yes the device could be taken off and the sticky things removed. I am from '61 so I am going to be 61 this year (odd that I just realized this now). So at the age of 53 I was diagnosed. I was put on "rat poison" also known as warfarin to make my blood thin because my dad died from a stroke (blood clot). I put the word cardiac "specialist" down because I am highly doubting this doctor has any time for anyone. First thing he said: You need to lose weight. I am a beefy boy, always been. I asked what the hell that had to do with my diagnosis. AFIB is hereditary in my family, both my brothers have it as well. So by being thin and fit I would not have gotten this, I asked him. I am also a specialist, at least all my degrees and certificates and god knows what is saying that. But I am also a specialist in reading people, and this doctor was an arrogant little man. I figured out why, but that is for another time. 7 years!!! SEVEN long years he let me come back every 12 months for a visit so he could earn his pay. In the meantime my family doctor was aware of the lack of care and she had a couple of words with him. She is a firecracker. All this time I was starting to feel weaker and more tired and by golly there was something wrong, I knew it, I felt it. Two years ago, we all know what time that was, I admitted myself. It was the start of a 4 week journey that I will never forget, oh I just have to look at my arm and my chest... After a quad bypass I came home, weak and tired. I am 61, but I feel 94 (like my gramps told me two weeks before his passing: I am so tired). So Jim: That is my story. I fully subscribe to what you are mentioning to raise hell with the doctors. By the way, the surgeons, doctors and nurses in St. Marys in Kitchener, Ontairo gave me the best care I have ever received, plus a working ticker. I have since met with the "specialist" who told me, get this, that everything was fine. I asked him if he knew I had open heart surgery..... I could see the panic in his eyes! I tried to fire him, but nobody wants to take me - because this "specialist" has his greedy little hands everywhere. Oh, don't you dare cross him!! So, I had to send him my regards and a lawyer. At the end of this TLDR: Here is to life and to firecrackers!! Nobody knows how long we have, so let's make the best of it while we can. 73's from the big white north.

[@chrisvig123]

Be thankful…so many in the US have no medical care at all…we are very fortunate

[@n2rj]

Jim, you are truly a treasure and best wishes to you. I lost two elmers (9Y4AL and W2ML) and a dear friend (K2TTT) to Cancer. Thank you for sharing your story.

[@PT9KK]

You're a brave man. It takes courage to disclosure what you have been going on. That desease is tough on us, on our families and on our friends. The most important advice you gave us is "We have to get together and help each other." You're a winner!!!

[@jochemssse]

💯 😇

[@ordoleonum6932]

Jim, I am an unlicensed individual who has been very interested in HAM radio and becoming licensed for the last few years. I never "had the time" to go take the test (baby, new home, new job, etc) but I have always found the time to learn more about the hobby. Over the years I've learned lots in attempt to retain the knowledge for when I eventually did take the test, but a staple of my learning has been your videos! I find your explanations and advice easy to follow and understand. Thank you for sharing your knowledge with me. After watching this I have made it a goal to take my test within the next two weeks or the earliest available timeslot. I hope to ace my exam and queue you up in the very near future. So, thank you again for providing what I needed to continue pursuing this dream of mine. Talk soon.

[@ham-radio]

Sorry for the delay. I have in and out of the hospital a few times recently. This week I start the second round of Chemo to try to stop my disease going from MDS to AML. I had a recent episode where I had to be taken by ambulance to the ER and ultimately had to have transfusions. In any case, thanks for the kind words. It helps me feel better. I hope to make some videos as my energy permits. If you have some questions that might help others with taking the exam for a license, please let me know here. Thanks again and best of luck on the tests. 73, Jim

[@stevehanson5556]

God-bless you Jim, 73 WQ6T

[@zing913945]

Jim I really want to thank you for your great videos. I've learned a lot by watching your older videos on you tube. I believe our family may have been affected by the Santa Susana nuclear accidents as our family was in the path too. My younger brother went silent key due to a neuroblastoma . I saw one map that showed the areas affected, extended all the way to Long Beach ! That makes sense because of the mountains!. I found out I had cancer and several other malfunctions about the same time I got my technicians lic and I got busy. I'm going to take the time now to get started in radio. Cancer sucks worse than politics ! Jim I will continue to pray for you and please consider alternative treatments in conjunction with what the medical doctors can do for you. All the best, Bill

[@ham-radio]

Thanks Bill for watching my videos. Where were you living from about 1958 to 1964? I did live in Burbank. Years later, I moved to Long Beach and worked for Sears as a Division Manager at 500 Long Beach Blvd. 73, Jim

[@zing913945]

@@ham-radio HI Jim I am speculating a lot. My youngest sister was born in Monrovia in 1959. She has so many rare medical issues, I can't keep it all straight. I've had some pretty weird "stuff" happen to my bones.along with malfunctions and my cancer. I have 4 adult children with a blinding eye disease. They have been studied and studied. That's just not normal anywhere in one family.. We got our milk from a dairy not all that far away from Santa Susana as the wind blows or crow flies.while we were living in the San Gabriel area. My father worked in Pasadena but made visits to JPL and Vandenberg on a regular basis.and attended missile tests at several sites as he worked on some missile programs. What concerns me most about Santa Susana, is how the site has the Susana mnts behind it and the Santa Monica mnts to the west and the San Gabriel mnts to the east creating the basin that could have easily funneled the contaminants.across much of L A.. I ask, rhetorically, Why wouldn't the contaminants have been trapped in the L A basin along with the smog ? I think the actual number of people medically affected could be huge in a basin where millions of unsuspecting souls were living. On that happy note, I'll sign off. You're a great guy Jim ! All the best to you !

[@ellisbaird3830]

Jim, along with everything else, you have COURAGE. I’ve always admired your radio knowledge but now, also, your strength of character.

[@justsayingforafriend7010]

Hate to hear that Jim I had the stage 3 + 4 prostate cancer. Went through all the surgeries two and a half months of radiation every day. Cancer free today!!! You will get through it!!!

[@springercourtney1907]

Im so dam happy for you. You have no idea.. Your our example..

[@Gideon7369]

Jim, Thanks for your teachings on ham radio. I will be praying for your needs. And praying also for trusting in the LORD JESUS in all things.

[@stevem5066]

Jim, prayers and blessings to you for sharing your story. You are clearly a man of compassion and integrity. We can all learn from you. Wishing you peace and happiness. Fight the good fight brother!

[@bblair502]

Jim, I'm your age and pray for your recovery. Thanks so much for your very important and sound advice. Most people never think to chanllenge their doctor, find another, and do some research on their own. I've always enjoyed your videos and have learned so much from them. You've always been professonal yet down to earth. Continue the good fight and be well.

[@davidalbright7335]

Jim, your strength has been that steely voice of reason. As your body refuses to match the intensity of your speech, you can always blast your way through with your voice. Here is wishing you unexpected energy to meet each day's demands and the relaxation needed to accept that some days are just rest days. Extra prayers for you and your doctors, as you walk this thing out. As a senior, myself, this getting older thing sure ain't for sissies. Take care, Jim. KO4ZIV

[@N7ECVQRPLIFE]

None of us get out alive in the end. It is very cool to know you have spent the last few years doing as much of what you love as your life will allow. Some of us never leave the couch. You're my ELmer and always will be . 73 N7ECV

[@LIM_Khuan]

I will pray for your speedy recovery..be well soon...fr Singapore...

[@JungleJen]

Jim, I have been diagnosed with MDS, osteoarthritis, and a number of other problems. We are still working on a diagnosis for another rare disease I have. I came across your video while doing research. Thank you so much for sharing your medical journey. You are an inspiration. I wish you nothing but the best.

[@11UncleBooker22]

Thanks, Jim, best wishes.

[@LoganCarmichael]

Prayers are with you Jim! You're an inspiration to us all! Thanks for being an e-Elmer to so many of us younger hams out here! Wishing you all the best...and thank you for all you do for the love of Amateur Radio!

[@sincerelyyours7538]

Jim, as a former cancer patient myself I send you my deepest most sincere wishes for a speedy, accurate and complete recovery. I had a rare form of NHL, a cancer of the white blood cells, about 18 years ago. Docs gave me 12 years at most before it would recur but I've now gone 18 years without a recurrence and I am still cancer free. I now have numerous other problems to worry about but thankfully they are not so serious. All are manageable with drug therapy, though I take your point about finding the right doctor. I was a civilian working on an American military base in Japan at the time of my diagnosis. The docs there had never seen a white blood cell count so high and immediately referred me to a local Japanese doctor, who turned out to be too young for his britches and had never seen my peculiar brand of cancer before. Fearing his lack of experience would do more harm than good he begged me to return to the US for treatment. That, however, turned out to be the best move I could have possibly made. As a civilian I was not tied to the military Tri-Care system which was fortunate because if I were I'm sure I wouldn't be writing this today. Instead, purely by luck, I had chosen to take out the most comprehensive expatriate healthcare package my company offered that year. That allowed me to literally choose where I wanted to go. No HMOs for me, and no dodgy hospital networks either! I chose the best I could find, and that turned out to be Memorial Sloan Kettering Cancer Center in midtown Manhattan. Getting in required a bit of long-distance coordination as they only accept referrals, but my parents were able to get their doctors to review my Japanese medical records and make the referral for me. The hard part was how to get on board a 14-hr flight to New York with a near permanent fever. This was before Covid but they were already screening people at airport security mostly to keep them from dying on long distance flights (bad for business, you know). Fortunately, I had my military doctor write a letter in advance stating that I was fit enough to travel. I thought I might have to present it to airport staff at NYC-JFK if they wouldn't let me in, but it was Japan who wouldn't let me out! Fortunately, the letter worked and we made it to NY without further difficulty. Now retired and living in Japan, I can no longer go to NY because of today's more stringent Covid travel restrictions, and since I left the workforce I no longer have company health insurance. It's either Medicare and a stay at a relative's house or use the Japanese single-payer system for all my medical needs. The latter is actually quite good once you find the right doctor, and it's far cheaper than anything America can offer. Americans have no idea what they're doing to themselves by sticking to their way too expensive for-profit healthcare system, but that's an argument for another day. Good luck with your recovery! 73, KD2ORG

[@rseales]

Jim. I’m Rich K2LK in NY. I rarely post comments, but I feel compelled to respond to your video. I completely agree with your advice. It’s advice that I learned the hard way a little too late. You are spot on. I am sure that folks will benefit from your strength, courage, and humility. I’ve enjoyed your ham radio posts, but this one is special. I hope you have good luck on your journey through this. Stay strong and kind. God bless and 73’s.

[@ronchampagneve7bfm906]

HI Jim, your strength is something to behold. I am now six years cancer free and look at life as a gift everyday! I was fortunate with my doctor and am very thankful. I wish you all the best in overcoming your struggles. Take care. Ron Champagne VE7BFM

[@DavidCampbell-yq3qh]

Thank you for sharing your journey with us. I agree with everything you said. You are absolutely right that we must question everything our doctors tell us and we must find a doctor that we think, and feel is going to help us. Again, thank you for sharing your experience. I will remember your advice always.

[@gacputech7719]

Jim, I just discovered and subscribed to your channel recently while trying to learn how to become a Ham. You have so much knowledge and wisdom to share and I have learned a lot. Thank you for sharing what you have learned to help others, as well as this update. I appreciate you so very much and I am praying for you! Sam Selph in Brunswick Ga.

[@MikeW2TB]

I had no idea you were having health issues when we worked on 20 SSB the other day Jim. I appreciate you and all your work Elmering for the Ham community. I’ll be praying for you now and wish you all the best. God save Jim Heath! W2TB

[@krisraps]

WOW ! What A Story, My Prays Go Out For You Man ! Im A Disabled Myself, I Have Had Two Open Heart Surgeries And I Need The Third One, I have SO MANY Diagnoses For My Bad Health, I Can`t Do Any Work, I Can`t Provide For My Family And Its Hard, Its So Hard On My Soul That I Might Do Something That Will Bring Me To Peace Forever, I Live In Conditions Where No Human Should Live, Hardest Thing Is, I Can`t Make It better, As I Work For 5 Minutes, My Heart Starts To Hurt And That Pain Is Like Elephant Is Jumping On My Chest. Ehh, Sorry For Spamming Your Comment Section, Your Story Resonated With Me, Only You have A Family And Friends.. I Have Nothinng.

[@barbaramcintosh8581]

🙏💖💋

[@tomw5vlt119]

Good info. I've been through losing 3 parents in their 70's in the last 3 years (parents, and father in law), and it's been a shocking view of health care. Some things I'd share to add to Jim's story. - the system seems to be run by Insurance now. You have to challenge it and stay on it. - They have # of days you can stay in Hospital, and then they transfer back and forth between official levels of care such as Acute Care, or Rehab Care, or Skilled Nursing Care, or to home or hospice. Doctors have little control. A number of times a parent was being discharged or transfered to a lower level facility for recovery when they were "on the mend" and another week of care would have seen them back to mobility (and saved their life) and able to do fundamental self care (like going to the bathroom on their own), but Insurance would say otherwise with the clock running out on prescribed # of days allowed. In one case recently, I said to the doctor, "she needs another week, not strong enough", to which doctor replied, "I know, I think she'll be back in the hospital next Friday with being released today, but my hands are tied." - came to find that my father who complained of (diabetic, it turned out) foot pain, was being bounced around from referral to referral and given appointments for follow up to vascular, scans, etc. 30-60 days out, then another 30-60 days out, and meanwhile came to find that he was losing sleep and weight (from 175 to 135), was sleeping when he could in a recliner because he couldn't sleep in the bed for pain, and ended up losing his leg and then his life due to this being let go so long... I finally became clued in to what was going on and insisted they get people on the phone and not be put off 30 days for appointments, or go straight to the hospital. His care was a nightmare of the "transfer between level of care facilities". - the hospitals play games with what insurance allows, based on how they "received you" at the hospital between two choices of status. They choose between two types of entry, forget the terminology, but if they designate you some kind of outpatient when you come in the door, it prevents you from getting next level care or the type of facility they can transfer you to, all from a choice of checkboxes when they intake the patient. Serious consequences. - in each case, parents strength and health went into serious decline and faster than I could imagine. The body needs to keep active, healthy, and strong. Immobility has deadly consequences. All parents in these three cases went from fully mobile, to walker, to wheelchair bound faster than you could imagine. Then to add to that, the deadly part, the medical professionals don't tell you that, don't do anything about it, don't warn you, and before you know it, you're down the shaft. They will check a box about "physical therapy" or a physical therapist, even send one to your home twice a week, but (can't emphasize this enough) without the warning and consequences being on your radar, what seems like a nice therapeutic visit is actually a lifeline that you not only need to fully fight for, and fully engage to get back to mobility (" *pain* is weakness leaving the body" mentality), be a great patient, but nobody tells you that this is probably the most important factor in whether you survive or not, or slide away. Then if you are a "bad patient" and don't fully do what the under-effective sheet of paper tells you that you should do, they cut you off from the already meager physical therapy because it's a waste of their money, without you knowing you just killed your chance of recover, such as it was offered. What they do offer is not enough to get you back to mobility anyway... you have to fight for such a program, and fight to achieve it. Just some highlights. The system, it seems, is rigged to shuffle off senior citizens. I'm not cynical by nature, but feel my folks should still be here today, and what I've seen paints a story.

[@H.pylori]

I watched several of your videos on "Ham Basics" when I was studying for my license. I always appreciated the manner in which you made difficult concepts easy to understand. Your calm voice was always soothing, like learning from grandpa. This video is well done and your case was made. We can all learn. As a retired MD, as I listened to your opinions on doctors today, let me tell you that I agree completely. When medicine was taken over by the corporations and managed care, Marcus Welby MD was put out to pasture, never to be seen again. You are so correct about the 15 minute visit that doctors are forced to do. They are no longer in control. They have a large number of patients to see each day and hope that the patient's problem is something simple like a cold, so that they can complete the exam and type the note into the computer, give you some antibiotics or arthritis pills and send you on your way. When the patient does have a significant complaint, the first response is to say, like one of your physicians, that it is all in your head (PTSD), give you some pills and send you on your way. Many physicians want to do more, but the managed care system does not allow them to do so. Some physicians want to order more sophisticated tests, but the administrators will deny the request. And like you said, the 10-15 minute appointment does not allow time for the doctor to really get to delve into your problem or to know you as a person. Like you stated, they don't even put hands on you to examine you properly anymore. They know that I am a physician and yet, they examine me in a chair fully clothed. I had a stomach problem and the gastroenterology doctor simply probed the abdomen for 5 seconds while I was fully clothed and sitting in a chair. There was no way that he could have detected any issues with this cursory exam. When I was in medical school we spent a large amount of time doing "physical diagnosis" which was how to properly examine the patient. Today, the doctors do only as much as an exam that will qualify them to bill medicare when they fill out the diagnosis sheet. Instead of all the emphasis on preventive care, they ignore symptoms (not enough time to spend with you) and this then causes you to miss an early diagnosis and you end up in the emergency room with a more severe problem. Also, since they do not have the time to really examine you, they depend on X-rays and CAT scans to do this for them. OF COURSE, THIS DOES NOT APPLY TO ALL DOCTORS, BUT WAY TOO MANY FALL INTO THIS TRAP! What do you hear on the phone when you have a problem and call for a doctor appointment...."If this is an emergency, hang up and call 911." So that you are faced with deciding what constitutes an emergency. Back in my day I would at least talk to you, assess the situation, and if indeed it appeared to be an emergency, I would direct you to the ER, but would then call ahead and alert the ER doctor that you were coming and to treat you right away. Now, if the clerk at the reception desk does not think you are sick enough, you are told to go sit in a chair until your turn, which might be hours later. Finally, you are correct that you, the patient, must be his own advocate. The internet allows access to a wealth of good medical information and specialty hospitals. I was always impressed when the patient came to the office with several pages of research on what they thought might be the problem. In other words, they were informed, even if they had the wrong diagnosis. As to testing, the best thing that QUEST DIAGNOSTICS has done is to send the report to the patient as well as the physician so that at the clinic visit you can ask questions about the results, like you did. Also, QUEST will allow you to order some of your own tests, although this is somewhat expensive. So, I like all the other commenters, wish you well and keep those videos coming. Take care, and God Bless you!

[@denniscolligan6541]

I have been the grateful beneficiary of your excellent advice on 40 meters. We talked one evening and you helped me tune my radio. You are and will continue to be an inspiration to ma and many new hams. Your KZbin videos will live on in perpetuity and your experience will be shared with many who are yet to come. Don't fear death. It's the day of entrance to Heaven, and those who have served many have nothing to fear for God will open wide the gates for the likes of you, my friend ! I'll always treasure our conversation on the air that night! Thanks Jim !

[@WB9DZS]

Thanks Jim. I feel like I know you having heard you on the air hundreds of times, looking at your KZbin videos and reading about you and your projects on Facebook. I think it is a great thing to share your health journey with others. I am still here today because of what others have shared with me. I hope that I also have helped others by sharing my health journey. Ten years ago, I contracted a disease call Transverse Myelitis (TM), similar to MS. From then until late 2018, I thought that was a terrible disease causing severe bilateral pain from my hips to my ankles. I got it from back to back bouts with Lyme Disease and Shingles. In order to walk, I’ve had to take pain and neurological drugs since. My worry about TM was superseded by a diagnoses of Stage 4 Lung and bone cancer adenocarcinoma in late 2018. My oncologists predicted that I had less than six months to live, and they were almost correct nearly not surviving a T9 vertebrae surgery in the summer of 2019. A few weeks after being told that I would never walk again and moments from being euthanized due two weeks of intractable pain, I was back home and able to walk unassisted. That lasted until the summer of 2021 when I developed another spinal tumor this time on my L2 that collapsed by 60 percent compressing a nerve again causing intractable pain. After a failed surgery in August 2021, I had a second surgery - a 13 hour process that removed my L2 and L3 vertebrae, fused several other vertebrae and placed a metal rod and cage around my spine. After several months of recovery, I was once again able to access my radio shack after an eight month absence. While I can no longer walk, confined to a wheelchair and sleep in a hospital bed at home, I am still able to make it up 16 stairs on most days holding the handrails to get to my radio shack on the second floor. I’ve found that Amateur Radio is the best medication that I have. My oncologists tell me that they have never seen anyone survive my type of cancer this long, especially considering that my lung tumor is encapsulating my pulmonary artery and I have many tumors spread through my body. Since my right lung fills with fluid, I survive on my left lung that had been torn and collapsed during my surgery last December. With all this said and having lost weight from 190 pounds to 142 pounds over the past few years, my spirit is as high as ever and I enjoy life much including your videos and getting on the air. While at times my voice is weak due to the tumor pressing again my vocal cords, I’ve discovered Slow Scan TV SSTV and operate on 14.230 nearly daily. That has put me in contact with a host of wonderful ham operators who often call me, email me and message me to check in on my progress. I have gotten very close to several hams from places like, Venezuela, England, The Netherlands, South Africa and coast to coast. I never feel alone having so many hams, as well as their spouses, having shown a genuine care for me. Additional support seems to keep coming in at an unbelievable fashion. I’m just a regular, little known ham, so I suspect you must have an untold number of hams that provide best wishes to you. I guess that I better pick up the microphone next time I hear you on the air, and not just listen in as in the past. Best wishes to you and your family, Tom WB9DZS Chesterfield, VA

[@StrikeEagle15E]

This makes me so very sad. Thank you for sharing, Jim. And, thank you for fighting the good fight. My prayers go out to you and your family.

[@BA-ti6ne]

Jim, I an brand new to amateur radio. I am doing this to teach my 8 year old grandson. You have become my go to guy on KZbin. Sorry to hear of your health troubles, I will pray for you. But, your legacy will be around a long time after we are all gone. Thank you for your time and for sharing your knowledge with the world.

[@rickmerritt1834]

I have watched your videos and learned so much over the years, so this is sad. My thoughts and prayers are with you. God bless you Jim.

[@thorarthur66ddz]

Thank you for the thoughtful video. My father had Myelodysplastic Syndrome.

[@basshorseman998]

Jim, you have helped me do many things within radio but, the best thing you have ever done for me is made me THINK much further on whatever the situation is...for this, words are never enough. God richly Bless you, Thank you so much for all you have done.

[@marklowe7431]

You're a kind generous man Jim. I've been watching and learning from you for years now. Only best wishes. 73's. P.S. Could not agree more about holding doctor to account. I've been there also. No wiser words spoken.

[@minusj6657]

Jim Heath - thank you for being open and sharing your situation. I am new to ham radio and found your channel. Prayers are coming your way. I LOVE your call to question your physician, and not take their diagnosis for granted without investigating on your own. You have my prayers for a complete recovery from your illnesses, and 73, Parish

[@brentcarlson3652]

*THANK YOU * Jim for sharing! Your experience with the medical system parallels what my brother-in-law's wife is currently struggling with.... No one seems to care or be willing to dig in to root-cause the issue... A more aggressive posture with her doctors is needed as you kindly describe... God bless you Jim!! 73 Brent, N0ATR

[@MervW2OE]

Jim, thank you for the video. I cannot comprehend the courage it took for you to get through this but I am so glad you do. I've always appreciated the class with which you represented ham radio but this exceeded the bounds of what could be expected. Thank you again, Merv, W2OE

[@doc2462]

Greatly moved by deep comments about your own serious illnesses. As a neophyte ham, i have enjoyed and learned much from your videos over the past few months. I am a retired academic physician/university professor from Boston and appreciate the uneven medical care you have received. Your informed approach to getting the best out of the medical system as your own advocate is a lesson for everyone. As you know, MDS is complex and approaches to treatment from watchful waiting to active treatment must be highly individualized by skilled specialized experts (far beyond my expertise). It sounds like you had hyperthyroidism as a boy and needed treatment. While drugs can be used, usually radioiodine or surgery are the main alternatives. Radioiodine may be a risk factor for MDS but that was likely unknown when you were treated at an excellent medical center with strong tradition in endocrinology. Nothing to regret or be angry about as untreated hyperthyroidism was not an alternative. I wish you well. I have found that watching multiple youtube videos of people teaching gives the impression of knowing them a bit. You are impressive as a thoughtful person with highly developed critical skills who thinks independently (eg, grounding ). I hope your strength will return so that you remain active teaching others.

[@warrenbaker4171]

Thanks, Jim. Really needed this. All the oncologist had to say about my bone marrow test was, "It's inconclusive." I'm going to push for more answers now.

[@BarefootBeekeeper]

Best wishes, Jim. I have enjoyed your videos and will miss your calm and patient approach. M7MUK

[@PercivalFakeman]

Just found your channel. Live close to you. Sorry to hear this. You have already been a good Elmer for me at 62. Will be watching more of your content. Thank you and 73s.

[@albert7ii]

Jim, Your Video and frank appraisal should be a MANDATORY item to read on every doctor in training. Your courage to make this video and share it with us cannot be praised high enough. Jim, when things get tough.. the tough get going. Your encouragement and Elmer wisdom have helped so very many of us who share your love for Amateur Radio. Whatever happens Jim, NO-ONE can take that away. It is not given to many of us to be able to say that we have shared over the many years what we learned. YOU DID. For that alone the gratitude of us, yr Ham Radio buddies will support you during the journey still ahead of you. Jim, allow me to share a short saying with you: May the Road rise to meet you, May the Sun be always on your back and May God hold you in the Palm of his Hand until we meet again. We admire you. Albert. EI7II.

[@garyrobinson8991]

Absolutely wish you the very best, Jim. You’ve been the best guide to everything Amateur Radio, & I will keep you in my prayers. May you find a way to keep moving forward. God bless……

[@peterhodgkins6985]

Wow - What a story. And you're spot on about questioning/challenging everything and especially "advocate for yourself". My dad (A long time ham operator - K1ZAU) died in 1988 of heart valve failure because doctors didn't take his symptoms seriously. Two older brothers suffered nearly the same fate, one was properly diagnosed and the other misdiagnosed again and again. Thanks to a very sharp ER doctor, the missed diagnosis was finally correctly identified and he was rushed into ER for a heart valve replacement. So yes - By all means do NOT rely upon doctors exclusively. Read, learn, study - Be your own advocate. It's too easy to take the quick answers - Especially if the quick answer seems to be optimistic. You never know you're wrong about something 'till you get it right and the pieces fall together. Thanks for the video... It will help people.

[@dlabyer]

Very good advice Jim. In a 15 minute Dr visit 10 minutes are him filling in the computer/ medicare/ insurance required crap. Nothing to do with patients needs. You have become an expert in the field of your body and thanks to videos like yours and many doctors who make videos we each can become more knowledgeable than most Doctors. I love your KZbin content, I'm 77, I have been a ham since 1962. I appreciate your true knowledge of the radio/ electronics field. I'll be pulling for you to overcome whatever lies ahead. K7DT Don.

[@aaronlynch139]

Good on you Jim. Very kind of you to share your experiences. I am also very sceptical of medical advice. Sounds like 2015 is a magic year. We had a flood through our home, and I worked really hard to get the place repaired with numerous fights with the insurance company. Later the same year, I developed a deep lethargy, a numbness and pins and needles in my hands and feet. This started after a bout of the flu. I ended up in hospital, with all the signs (including a positive lumbar puncture test) of a thing called Guillian Barre Syndrome (GBS). Thankfully, despite no one in emergency or on the ward being willing to commit to that diagnosis, I was commenced on intravenous Immunoglobulin treatment. This was five days of transfusion. If it was GBS, and the treatment did not help, there was a very big possibility of complete paralysis and potentially the need for life support. Despite subsequent consultations with neurologists etc, we still don't know if what I had was GBS, or whether the treatment headed it off. As someone coming through what might have been an autoimmune episode, I was very toey about vaccinations of any sort, and that became an issue at the beginning of the pandemic. I was reassured that I could proceed with immunisation, and had a slight return of the numbness (which scared the hell out of me). Thankfully, nothing further has come of these issues. I say all this for I think the same reason you posted your video. Like a mechanic, or a plumber, or an electrician or a builder....it is just as possible to get poor advice as it is to get good advice. These people are experts in their field, but it is not possible for any to be across everything...then add overall attitude and you end up with an imperfect picture. Scepticism is healthy, and self investigation is mandatory. I learned a great deal about GBS during this period. I completely agree with your summation here Jim. I also wish you all the best with the challenges.

[@arthurgoodall8466]

Hi Jim, just watched your video. My wife who is 89 was diagnosed with MDS last January. Her blood count was 3.4. The lady oncologist said the only treatment for her was transfusion, 2 units every two weeks which she did until 2 months ago. She is now in a memory care facility and hospice. We stopped the transfusions when she went into hospice. She is wheelchair bound and sleeps almost all the time. So sad to watch her go down hill so fast after 67 years together. Will keep you posted. 73.. Art, W0KG.

[@bobs.209]

Jim, I have autoimmune Hemolytic Anemia. I was lucky enough to get the correct diagnosis on my first trip to the emergency room. The on call doctor was a Hematologist. He looked at my blood work and saw my hemoglobin was 6 when it should be 14.. Your story is helpful and greatly appreciated. I also have osteoporosis with numerous compression fractures in my spine This was caused by long term use of prednisone. Many of the other symptoms you described, mirror mine. I have one doctor who will not take action due to fear of being sued. I am taking your advice and replacing him. Thank you again for helping me out and I wish you the best as you deal with this complex health issue.

[@ham-radio]

Please send email using qrz. 73,Jim

[@francescodoenz]

As a doctor I can say...theses problems are unfortunately worldwide....I have an immense respect for you not only as a radio operator, you guided me to my licence, but also for you as a great personality, an inspiration for everbody....thank you!

[@nvrumi]

God bless you, Jim. This was a hard watch, I can say. But I really appreciate what you have to say and can bring my own story to the discussion. I'll keep it brief. In a few days I will be a widow for ten years. I saw Wife through her struggle with cancer, which ultimately took her. You are absolutely right that a person with serious illness needs and advocate. I went with her to almost every visit and sat with her during her infusions. I read all the reports and spent days in Google scholar researching the medical journal on her disease, its treatment, and prognosis. I'm an engineer and understand statistics. I followed her treatment asked questions of her doctors. She got a remission but relapsed six months later. The local oncologist decided to repeat the treatment, which didn't make sense to me. So I made arrangements to take her to UCSF where they are one of the best places in the country for blood cancers. There we learned that there was another protocol that was appropriate, given the outcome of her original intake. There was a lot of testing and a trial run to determine whether the cancer would respond to the alternate mix. She went through that (not easy) and they successfully harvested her stem cells. But, she had residual disease, which then led to radiotherapy. In the end, the radiotherapy was unsuccessful and they encouraged her to go home, save her energy, and spend her remaining time with her family. So that's what she did. She died a month later. I will reinforce everything that you said. We have to ask questions of our doctors. We have to exercise judgment on whether or not the diagnosis and treatment makes sense. We have to do research. (Google scholar will provide lots of reading material. It can be difficult, but it is doable.) We have to seek other opinions from other doctors to confirm what we are hearing and reconcile what we think, feel, and observe with what we are told. Also, be observant. Make notes about everything you see and hear. Pay attention to how you or your loved feels, behaves, everything. Discuss these data points with the doctors. If they don't want to listen, find those who will. OK, that was a wall of text. My prayers are for you, sir, and for anyone who reads these words. I hope they benefit. 73 de AG7TX

[@thehilltopworkshop]

Genuinely saddened to hear this, Jim. While I'm not up to speed on meltdowns in the US and what has affected you, I think it would be awfully naive of us to ignore the threats that these matters pose to us. I hope you're able to push forward as far as you possibly through this, and look forward to seeing and hearing more from you. Take care mate. 👍🤠🇦🇺

[@Stelios.Posantzis]

I just happened across your youtube channel a few weeks back and I think you're posting some great stuff. I'm not a ham radio amateur but I do like electronics. I really enjoy listening to you. The only thing I'd like to add to what you said is this: tell your doctor every little detail, no matter how trivial you think it is or whether you think it is less than highly relevant to the condition you are experiencing. Every little bit of information you can impart to your doctor matters greatly. I've had doctors change their diagnosis/prescription/attitude instantly on a number of occasions by just saying something like "oh, one more detail that just came to me..". Remember, you are their top source of information - you trump everything else (most of the time).

[@Fred4hp]

Jim all the best wishes going forward. It is a very tough road that you are on but I hope that the doctors find a way to make it a better journey. I believe it may be a relief to know what is causing all this rather than never being sure and constantly on the merry go round with different doctors. Your advice to always challenge your doctor is spot on.

[@blugoose86]

I'm so sorry to hear this Jim. Great advice I hope people take to heart. I believe in the power of prayer, especially in numbers so I am encouraging all to say a prayer. Don't forget to also pray for the Dr.'s that are treating Jim.

[@skyboy2410]

Jim God loves you; you are a special man. You have been the Greatest asset to the Amateur Radio Community. I will pray for you every day. Amen

[@ham-radio]

Wow, thank you! I get the results of the bone marrow aspiration next week and then more results in 4 weeks. That procedure was the most painful thing. I have had it done twice in 1 year. It is like being stabbed with many knives. Thanks for the very kind words. 73, Jim

[@dmichaelsmith7909]

Jim I can't thank you enough for sharing your journey through your illness(es). I so appreciate your courage and willingness to help others by your being open and frank about what you are up against. I offer my prayers of support and healing. I especially appreciated your going back to your childhood and bringing us all forward from the time of your initial hyperthyroidism and treatment. Everything you say about the nuclear meltdown and growing up where and when you did makes so much sense, in retrospect. In addition to what many others have said in their comments, I would offer this. If at all possible (and I realize that this is not doable for everyone) if there is a They may require a referral from your family physician. But medical school teaching faculty are preferred because of their levels of expertise. They generally are better-informed and trained than your family doctor. They are usually more up to date in their scholarship. Most have served post-residential fellowships in their field and in my experience in Dallas and Denver, are better communicators and form more workable relationships with their patients. Currently, I have several docs for various medical conditions at Anschutz Medical Center in Denver. They generally take whatever time they need with me when I see them. I am always impressed after each visit with their level of caring, expertise and willingness to listen to what I think may be going on medically with me. Also, their office staff are courteous and caring and do not seem as harried as many in other offices. As a relicensed ham considering getting back to the hobby after many years, I have found your videos to be enormously helpful. You are a master teacher. You have given so much to the Ham community over the years. God Bless and keep you and your wife. She sounds like a saint. And likely is. Mike K5MNS

[@rodgerbaseman107]

Damn Jim! Thanks for the update. Stay strong.

[@oobihdahboobeeboppah]

Thanks Jim for opening up about your health and the trials that got you to today. I had a step-brother who was diagnosed with "downwinders syndrome" due to exposure to the atomic testing fallout from Nevada, when the wind drifted over where he lived at the time in northern Arizona. Your story hits home. Best wishes and prayers on your behalf.

[@peter-vk3acz]

It was wonderful to speak to you in person on VK’s 20 metre ANZA net yesterday and express my appreciation directly for your great contribution to amateur radio. However, now that you’re in this personal battle, I want you to know that even from the other side of the world you have people right beside you! Big 73, Peter. VK3ACZ

[@danedickey6942]

Jim, my thoughts and prayers are with you, sir!

[@victorgalagan1151]

I have been a subscribed member for a long time. My friend, Keep your chin up and continue to face life with the dignity that you possess.

[@steinshaw2490]

Spot On! We have to be our own advocate! Thank You!!! I wasn’t born till 1965 lol. In 2016 3 months after getting my tech ticket I was diagnosed with prostate cancer at the age of 50. I didn’t have a clue but felt I had a good team so went with it. Because my cousin had PC a few years before I was diagnosed I’ve decided to be out spoken about it. I often wonder if he told all of us family if I would have gotten the PSA blood test sooner and possibly caught my cancer before it escaped the prostate. THANK YOU JIM FOR SHARING!!!! For people that know PC my PSA was 50 at 50, Gleason was 3+4 and 4+3, all core samples had cancer. I did 45 rounds of radiation and 6 treatments of Docetaxel (with dexamethasone and prednisone) as well as just over 3 years of androgen deprivation therapy ADT or chemical castration. In 2020 I realized my cancer was coming back at an alarming rate. My team ran scans but didn’t find anything. Because I had spent time researching I knew most of the scans were useless as prostate cancer is a hormone cancer and doesn’t suck up sugar/glucose the same. Scared I went back on adt and added a second generation ADT treatment I don’t think I had any testosterone. ADT worked well but it is not fun. I stopped in December so my cancer could grow. My doctors at Idaho urologic institute wanted me to stay on adt till it stopped working. I was frustrated because they didn’t help me get approved for an Axumin scan. I wanted that Axumin scan and it needed enough cancer to find. A year ago I got that scan and it found the cause of my PSA going up. Fortunately my PSA was not trying to double every month. From June of last year my PSA went from 2.5ish to 3.94, in April to May 2020 it went from 2.7 to 5.0… in one month. That’s why I was freaked out. I did 25 rounds of radiation in May and will be on adt for 2 years, if I can stand it. I went against my Idaho doctors recommendation and now have hope the cancer is not coming back and is gone. Thank you again for speaking out. de Stein ki7cia 73

[@jimzimmerman5288]

Thanks Jim. I'm 73 myself and was born in LA. Good luck with your health.

[@warplanner8852]

Jim, God's blessing and peace be with you. You are a wonderful man with your sharing and help and that will be appreciated.

[@tubbysailor]

Jim, you are so appreciated and respected not only for sharing your technical expertise but your love and concern for others. You are a wonderful example for anyone how to treat others. You have been one of the few content and entertainment providers on this platform I admire not just for the radio stuff, but the little life lessons that find their way into your presentations. Thank you for being you.

[@yoki9743]

Jim, .. I thank you... I am sure that God heard you.... and is proud of you... like I am... you are a very special man... God bless and keep well... Yoki

[@rowhope]

Jim, I am so sorry to hear about this. And I am wishing you all the best. Sounds like you have found some good medical care. I am grateful to you for your many excellent teaching videos. You're an excellent teacher. And you helped me to become a ham. I can't thank you enough for that. You have my heartfelt, hopeful thoughts of love and healing. God bless you, my friend.

[@mikequenzer9100]

Bless ya man and thanks for posting! Your persistence is inspiring!!

[@volunteercoordinator9840]

Jim, thank you for being the remarkable man you are. In our present world of conflict, complaint, selfishness, and egotism you and your work have exhibited insight, effectiveness, kindness, the willingness to help others and an ever-present dignified humility that is endearing to those of us who have watched you. Be strong, my friend. Rick Marotto, NS3P

[@scottminshall6420]

Sorry to hear this Jim, many prayers sent your way. Great comments and thank you for sharing your journey.

[@paulhathaway6292]

Your openness will help others to seek treatment. You are a true scientist. God bless you.

[@browntroy101]

Thanks, Jim for the honesty and my prayers are with you and your family!

[@bentherb4]

Hey Jim sorry to here of your health issues. I too have been dealing with many of the same issues. After 35+ years of going from doctor to doctor with neurological and unknown health issues and a 2 year intravenous treatment for misdiagnosed Lyme in 2006. In early 2020 I had prostrate cancer then followed by stomach, Non Hodgkin's lymphoma, MDS, Polycythemia Vera all thanks to my brief stay at Camp Lejeune NC USMC base. I'm just glad to finally have some answers to a very long health battle. Hang in there and keep up the good fight.

[@dannyandrews6100]

Jim... Sending Prayers. Thanks for all the videos to help us with Ham Radio. And thanks for sharing your health status with us.

[@jfizzle525]

Love ya Mr. Jim. Thank you dearly for all the knowledge you have gifted us. My thoughts and those of many others are with you kind Sir.

[@boazjoe1]

Always challenge your doctor. I am a retired Family Physician and I agree. 100%. Thank you for sharing.

[@beekeeper8474]

Thanks for all the videos! Hate to hear this. I wouldn't be a extra class without your help. We will keep you in our prayers.

[@Mountainragged]

My thoughts and prayers are with you and your family Jim. We are all pulling for you

[@markbyfield7050]

That’s a very sad tale for sure, it takes bravery to talk about this stuff. Wishing you the very best of luck fighting off these cruel diseases.

[@YARNBARF]

Prayers lifted up for you, Jim! I just cannot imagine how badly you must feel!! Try to remain strong and keep on fighting the good fight!

[@michaelmcdowell5362]

As a mentor to us you are a legacy! Continuing to share, even under difficult circumstances, is admirable and we appreciate your humanity. Thank You and best wishes in your health and Life!

[@billpowell5931]

Very sad to hear of your situation. Your advice is invaluable and spot on. Wish you well. Thank you for all of your contributions to the betterment of Ham Radio.

[@catawba6]

Thank you for your candor and your advice. I always have had the utmost respect for you and your Elmer advice. This was possibly the most important advice you have thus far given. You are a great Ham Radio Elmer and now I have to admit you are now a great spokesman for being a strong self advocate when dealing with the medical field. THANK YOU!

[@km6yss-daveincaldwellid601]

Jim, I am sorry to hear my friend. As you know, my wife and I are praying for you.

[@ElPasoTubeAmps]

Jim, a person definitely has to look out for themselves or have a dear loved one do it for them in the medical system of today. Is that really any different from 50 years ago, or longer? You are a wonderful gentleman and survivor and I certainly respect that. In late February of this year, my wife was diagnosed with pancreatic cancer. She passed away on June 19th, just four months later. We were married 45 years and have two children, the oldest one lost in an auto accident in 1997 and my younger one of today with two wonderful grandchildren. You are a blessed man regardless of the medical diagnosis. I just felt like I needed to say it. David, WA4QGA 73

[@jimdegeorge5517]

Great advice Jim . Have listened to that golden voice of yours for a while now. My thoughts and prayers are with you and wife. We all must fight to survive.....

[@gusarocho2563]

Hi Jim, I've watched your amateur radio u tubes and I've always thought they were great for the time you took to explain them- my heart and prayers are with you- when I was younger I worked as a lab tech, and never got more afraid of doctors than after working with them ( not all)- you're 100 percent correct, we should chalenge then for our own protection. God bless & keep you. Gus K2VP

[@michaeltroxler2593]

Jim you must be a very strong man to look into the camera and share you life. I will pray for you to have courage even in the darkest time when no one is around. God will carry you through this I will also pray for your wife as she will need strength to walk along side you.

[@VE3NMW]

Thinking of you my friend! You are an awesome person and a great Elmer. Our prayers are with you!!

[@k5rmj]

Jim, Thanks for sharing with us. Were gonna be praying for you. Best 73

[@timgorczyca5941]

My thoughts and prayer's are with you Jim. I enjoy your videos immensely. Keep up the good fight. Take care-

[@ham-radio]

Thank you so much! February 6, I had an morning appointment to have a blood draw for multiple tests as part of my chemotherapy. The morning of the blood draw I had a nice QSO with VE6CQ and then DF2PY on 20 meters. All seemed okay but I was weak. Amir had asked a few times how I was doing and I had put him off with an answer that I would email. I basically had said the same thing to Rick and Wolf. After my quick hello with Wolf, Eileen drove us to Kaiser in Lincoln CA. From the handicap parking area, I walked from the car and got about 30 feet and was out of breath. So, I waited until I felt better and continued on using my walker. It was about 100 feet to the laboratory and I had to stop 3 times. After I checked in, and waited for a phlebotomist, the first of those told me to sit in a waiting area and wait for a nurse to come over to check on me. Pretty soon it was a crowd of nurses, firemen and ambulance personnel because they called 911. I was in distress, cyanotic and looked like I was dying. They called Eileen who was in the car and told her to come in right away. I was transported from that Kaiser facility to the Kaiser Hospital about 10 miles away. I was admitted to the ER in critical condition. My eyes were yellow and my skin was gray. Blood counts showed my Troponin and D-Dimer were elevated again. I was suffering from severe anemia, severe neutropenia and that I had very, very low platelets. In other words, my blood tests showed that I was ill. My oncologist was contacted and she set up 2 units of red blood cells. It was late yesterday when those were finished and I asked to go home. There were no ICU beds and I needed to be in isolation. Also, honestly, the nurses and the care was terrible. I never had my medications which were ordered on my arrival. Also, when Eileen was able to come into the room, it was many hours later. She asked about Saline and my meds. Saline was started only after she demanded it and my meds never got there. So, I had some in my pocket and I took them way too late. I was in terrible pain. I said I wanted to go home and the doctor agreed with some warnings. Eileen drove and helped me into the house as I could barely walk. I was just too weak. I had almost real time access to many of the tests that were run so I had an idea of what was going on with me. The cancer that I have is taking its toll and the chemo just made things worse. So, I am home. Still feeling very weak. I am not thinking clearly and I hope this makes some sense. 73, Jim

[@haldensickles3825]

God bless you Jim! Prayers for you. Thank you for all your help and guidance with ham radio. I really enjoy watching your videos. I have learned a lot. Best wishes for you! Keep up the fight. We are all rooting for you ! ❤️

[@mystifiedoni377]

I stopped what I was doing just to watch this in full. Thank you for sharing.

[@KO4TDA]

Thanks for being open Jim! We will be praying for you! It’s sad, but “a cured patient is a lost customer”. I’ve also dealt with “Drs” who do nothing.

[@zwarttijger1]

Thank you for your story and advise Jim. I wish you strenght and I hope you stay with us for many years to come. 🍀🍀🍀