Just Keep Going

After relapse and setback and Covid-19 circumstances and things happening around the world, life is tough! Sometimes you just have to keep on going. You're not alone.
FND Information neurosymptoms.org/
Australia fndaus.org.au/
UK www.fndaction....

[@samvohra6992]

I wish and pray for you to achieve good health soon 🙏

[@terri-annbarnes8468]

Truely lovely message. Always think covid has made dealing with fnd harder. Everyone says we are all in the same boat ie missing seeing family, friends, cancelled doctor appointment, feeling isolated etc but when your trying to find a stable normal and these are taken away it's harder. I now say we are all in the same storm but all have different ships to sail it, but some of us are in just life jackets trying to stay afloat while waiting for coast guard rescue

[@amandafreebrey9192]

Good to see you looking so well and happy, congratulations on the wedding!! Xx It’s my 5 year FNDversary this year, I’ve come along way but the taking things slow is still frustrating x

[@Lentilboots]

Thanks Amanda! I'm still trying to learn about accepting my condition and not fighting it, at the same time I hope it will improve but there's so much outside our control.

[@kevinratley938]

Hi from me who also as had FND for 4 years and not getting any better, at least i got PIP in full

[@Lentilboots]

What's PIP? A payment you could receive?

[@slong6460]

I have FND fibromyalgia and autism and it came completely out of the blue four years in December and it is so hard. I live in the uk and support is very limited. I want to do things but body said no. I hate it I was a full time nurse prior to this and had to give up career and job I love yes I not had a relapse for a while but I seem to be worse and more anxiety when trying to walk outside house. I walk freely in house but need crutches or wheelchair for more distance and Uk been in three lockdowns and mentally it frustrating just feel like a fool and a fraud at times but it just comes on in a instant and then everyone stares what do I do for the best?

[@slong6460]

I have mainly left sided twitches but occasionally hole body ones sorry forgot to include that I am 35 and live alone

[@Lentilboots]

That's really difficult! I totally resonate with you about feeling like a fraud when symptoms are so changeable. One moment you can feel fine then the next a symptom comes on in public and you feel everyone looking at you. It must be especially tough in the UK at the moment with covid and wanting to keep safe, but feeling so lonely. I wish things were different for you!

[@karenlambert4973]

Hiya, I highly recommend The Fibro Guy. If you can't afford to see him, he has an excellent book with online video;s. This will treat the fibro and fnd.

[@Truerealism747]

​@@karenlambert4973has he helped you I have fybromyalgia CFS heds autism ADHD seams the causation is autism

[@Truerealism747]

Do you have heds

[@snowyskylar8821]

Is there a support group in Brisbane?

[@Lentilboots]

If you go the FND Australia Support Services website (see video description for link) or search Facebook for that group you can find other people in Brisbane. Occasionally there may be face to face meetups.

[@snowyskylar8821]

Any ideas on whether hypnosis can help FND? Left sided shaking, spasticity lower left leg. Left arm shakiness? Please tell me what will help ?

[@rockyndae7702]

Hi I was diagnosed at p.a hospital with fND. Will be speaking to my Neurologist on 12th feb and would realy like some info on hypnosis👍🏾

[@Lentilboots]

I haven't personally tried hypnosis. Some people have found it may help with pain, but other patients have said it made their symptoms worse or triggered symptoms (perhaps because you are induced into a relaxed brain state and often that is when symptoms can come on). There are some ideas for dealing with shaking and limb problems on the neurosymptoms.org website or some of my treatment videos. Tapping and distraction techniques are two common tricks that seem to help a lot of FND symptoms, but everyone is different!

[@snowyskylar8821]

@@Lentilboots thank you. This is a very lonely illness.

[@kimdunbar5841]

What is the name of your Facebook group?

[@Lentilboots]

I'm part of a couple of different ones but you can search for FND Australia Support Services on Facebook, there is also the official website in the video description above.