Kayla's Chronic Fatigue Syndrome (ME) Story!

Here Kayla bravely shares a bit of her ME/CFS story, including what it was like becoming unwell at a young age, some specific challenges that this caused, and what's worked for her so far to begin to recover.
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Remember that we are not professionals - this is what worked for us, and it will not be suitable for everyone. Nothing we share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything we talk about here might be right for you.
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WHAT TO WATCH NEXT
How I Cured Chronic Fatigue Syndrome - The FULL story
• How I COMPLETELY Recov...
What I needed to know from DAY ONE (but no one told me) about ME/CFS RECOVERY
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[@rubybeard944]

I have had CF/Me for 10 years and then it develops into fibromyalgia. I am in recovery from both I am now living a active lifestyle I bike ,canoe ,swim etc I am so thankful to God that these videos are being put out there there is so little hope offered to the people that suffer with these conditions keep doing this awesome work we have lost so manyTo suicide and helplessness

[@RaelanAgle]

I'm so happy Ruby to hear about your recovery! Ten years is such a long time, I definitely empathize. I'm glad you're enjoying the videos, I too think it's very important to get these stories out 😊

[@Star5dg]

How did you manage to recover?

[@marisademore468]

Hello Ruby, could you come back on, please, and let us know how you recovered? :-)

[@rubybeard944]

@@marisademore468 My recovery was not easy by far and everyone is different It was truly a mind-body and spiritual journey, but I would have taken my life if things didn’t change and I had 3 children, so here’s what I did to save my life. I started an AIP paleo lifestyle there are lots of videos on this lifestyle change for healing on KZbin. I gave myself lots of grace, because there is not pill or magic to healing. I made myself very disciplined to getting up and going to bed at a good time. I did intermittent fasting 16 hours. I did a great deal of mindfulness and that can come in many forms KZbin also offers videos on mindfulness and grounding. I started an exercise program sitting in my recliner with 3 pound weights and yoga for movement. I would meal prep for the week for my AIP lifestyle it was very simple at first just chicken in a crockpot vegetables and a healthy fat with every meal. Cut out all sugar’s all grains all processed foods and my beloved dairy. It took about seven months for the pain to subside it tapered off as I went on with my lifestyle. I truly feel that it had a lot to do with my micro biome and mitochondria health basically the gut brain barrier. It truly is a complex multi faceted syndrome. I would say from the time I started it took about two years during those two years I kept healing I continue to up my game Increasing my weight lifting an exercise program during the journey. I pray for all who suffer. I now can sneak in a little cheat meal here and there without it affecting me, but I know for a fact if I went back to the lifestyle that I was living the symptoms would return it is a lifelong commitment to yourself. You are worth it ❤️

[@ElizabethCarlson]

Love Kayla's attitude about how she's stronger from this and how she learned to be her own advocate. Definitely resonate with how stress planning / putting pressure on myself for social events was a big trap and learning to take each day at a time. Also the importance of factoring the mental stress. You've got this Kayla and sending vibes for your continued upward trajectory!

[@RaelanAgle]

Absolutely - this all resonates for me as well! Kayla is such a wise young woman already, I'm so grateful to her for sharing her story with the rest of us.

[@sylviannadi1309]

Everyday is a different day. Take things one day at a time. Don’t dwell too much on plans

[@RaelanAgle]

Another great point highlighted 😊

[@sylviannadi1309]

Boundaries. Say I can’t. Say No. It’s ok

[@RaelanAgle]

So important, right Gabrielle? Kayla is a wise soul 😊

[@jadeysutcliffe]

I'm totally a worrier too! Gal, I can't imagine getting this in my teenaged years where you're already stuck with other worries. You're inspiring, keep on going! 💛💛

[@nolamayer2493]

Great job Kayla, starting out never even hearing about this disease to where you are now is brilliant! Well done🥳 I am sure you have learnt so much about life at such a young age that you will go forward with such strength and resilience now and have the most wonderful life 💃💃

[@janielightly1644]

Thank you so much Raelan and Kayla and wishing Kayla much love and best wishes with your recovery you doing great things 🥰💕

[@RaelanAgle]

You are so welcome!

[@anniephillips2623]

Thank you both for this amazing video ❤️

[@RaelanAgle]

Glad you enjoyed it, Annie!

[@sylviannadi1309]

Be your own advocate cos you know your body best🙌🏾

[@RaelanAgle]

I love this too!

[@kathystoner5239]

Great interview! I tried the Lightning Process as well. It didn't really resonate with me as well. I live with my family, and I like the interaction, but at the same time I like the times I'm by myself as well. I know you will get to a full recovery!

[@RaelanAgle]

Thanks for sharing, Kathy! That's interesting. And thanks as always for all the beautiful support and kindness you send out to others who are struggling.

[@factitiously]

Great video. I wish there had been a lot more about the specifics of what she used to recover. Would be helpful for others.

[@RaelanAgle]

Great suggestion! Thanks and I'm glad to hear you enjoyed it.

[@cheggs9]

1000 subscribers! Congrats 🤗

[@RaelanAgle]

Yay! Thank you, Cheggs!

[@paulajordan9418]

Great chat 👍 I have been fighting this since I was 14 years old 🤪

[@RaelanAgle]

Paula I'm so sorry to hear that you have been facing this for so long. Sending support and wishing you all the best with your own recovery journey 🌼

[@sylviannadi1309]

Sleep schedule...hmm...have to go to bed early... Thanks

[@RaelanAgle]

It definitely seems to help many people. :)

[@missdeenz]

Pacing helps, but certainly no recovery with both fibromyalgia and CFS. Here in New Zealand we are behind in the ME research.... we have thousands here suffering this illness...

[@RaelanAgle]

That's heartbreaking to hear, missdeenz. Seems to be a global issue with varying levels of support. Sending you hugs and support for your own healing journey 💛

[@SunnyBunney]

You feel better alone bc there’s nobody to “trigger” you…. In my experience

[@olgap3765]

Superactive=stress

[@CathyJennings-kw8ds]

Respiratory weakness episodes a

[@SunnyBunney]

Supplements and altering my diet were not helpful At all, In fact, maybe hurtful

[@dirkkatz172]

The cause for me was the microwave oven. This may sound unbelievable: the internet states that the use is harmless or that the danger is cancer or a reduction in vitamins. The first consequences were: pain in the neck, fatigue, sore throat, depression, ..... After 3 months without a microwave oven these symptoms disappeared. Consequences are greater the closer the microwave oven is to you: if the oven is right next to your dining table, for example. If you bring this to your members' attention, those who wish can give it a try and let you know about their experiences. Everyone can now participate in the study! People will not think much of CFS. Organs are not damaged. It looks more like an internal strangulation. I don't know if that can be found. The muscles tense under the influence of microwaves (microwave), Hence the pain and the intestines are too tense, which makes digestion poor and too few vitamins are absorbed. In the throat one has pain due to the tensioning of the muscles there. Be careful not to cure other diseases with fatigue for CFS.

[@paulajordan9418]

Glad you are sorted 👍 But had this long before Microwave 🤩

[@dirkkatz172]

it is 3 (max 4)months after you live without microwave you can cure from CVS=fatigue/bad digestion=shortage of vitamins/sore throat/depression/only being tired is not CFS.

[@lynnlasak4089]

Stick to salads and smoothies, anyone can adapt to this😊