I was in really bad shape and no hope. Kesimpta is very important in keeping me from going back to the nightmare at the beginning of my version of this disease. Half a year on this stuff.. I feel better than I have in years
@aluna_m88822 күн бұрын
Do you suffer with fatigue? And Has it improved while on Kesimpta?
@Harleyandme_162 жыл бұрын
I found out on my birthday that I have MS...It was a shock. I think I went through the same emotions as grief. I allowed ebb and flow of my feelings but it was and still is hard for me to say the word MS. Sometimes I call it "the thing" because I don't want to claim it. Starting Kesimpta a week before my wedding. This video gave me some comfort and confidence in my medication choice and my wellness journey. Thank you.
@caimee322 жыл бұрын
Many blessings to you in your journey and your wedding 🙏🏾
@dermlover1 Жыл бұрын
What symptoms did you have that lead to diagnosis?
@diamondsngunns88 Жыл бұрын
Victoria, you’re not alone. You’re absolutely right about it being a grief process. Alllllll the emotions. Sending you so much love. We’ve got this!! ❤❤❤
@stephanies14745 ай бұрын
Just found out a few days ago and yeah not dealing well with saying it. :(
@DrBrandonBeaber3 жыл бұрын
Great interview Damien. Dr. Hauser is largely responsible for modern b-cell therapies due to his work with rituximab in the OLYMPUS and HERMES trials at USCF. He is also famous for a Genome Wide Association Study (GWAS) in MS (maybe the only MS specialist with a wikipedia page). He interviewed me once in 2012 when I was looking for a fellowship, and I have met him several times a conferences. He is very friendly and approachable.
@NoStressMS3 жыл бұрын
Dr. Brandon Beaber I totally got the super OG vibe from him so it’s great to learn about some of the notches on his belt!
@alexzandercolten96283 жыл бұрын
I know Im pretty off topic but does anybody know a good site to watch newly released movies online?
@terrencebarrett43433 жыл бұрын
@Alexzander Colten i use Flixzone. Just search on google for it :)
@urielbrayan59633 жыл бұрын
@Terrence Barrett definitely, I've been watching on FlixZone for since march myself :D
@coledalton55813 жыл бұрын
@Terrence Barrett Yea, been using Flixzone for years myself =)
@dienaturvordertur87943 жыл бұрын
Thank you professor I have MS since September 2020 . I could not see anything more with my eyes. I am 33 years old. They washed my blood 7x.. At the moment I got every 4 weeks Tsysabri( Natalizumab) in 3 weeks I am one of the first patient in Germany to get the Kesimpta. I hope everything will be fine . Thanks for everything !!!! Best regards from Germany !!
@martinschultz2631 Жыл бұрын
How did it went?
@aluna_m88822 күн бұрын
How are you feeling now? And is the proces of washing your blood called Plasmaferesis ?
@dienaturvordertur879421 күн бұрын
@@aluna_m888 yes . I feel super with kesimpta
@pedrodacostapinto3 жыл бұрын
Always moving forward!! The future will be bright!! Treat early, be hard with MS.
@NoStressMS3 жыл бұрын
Pedro da Costa Pinto Yeah, man, smash it in the face as hard as possible as soon as possible!
@eatsquawk Жыл бұрын
I was misdiagnosed about 8 years ago. Getting started on kisempta now. Nervous about it but am glad to get info.
@NoStressMS Жыл бұрын
Glad it was a helpful video! Also, one foot in front of the other, Big Fella!!
@thesocamuse2 жыл бұрын
Thanks so much for sharing this, having a conversation with my MS Team tomorrow about Kesimpta and also Ocrevus , this has really helped to give me the understanding on how Kesimpta works with MS. Not feeling so scared to come off my Tecfidera now.
@jleemassage7 ай бұрын
Thank you for the information ℹ️
@NoStressMS7 ай бұрын
Glad it was useful!!🙌🏾🙌🏾
@CiaraMathias3 жыл бұрын
Thanks for this video, lots of great info! I am on my second loading dose of Kesimpta and so far so good!
@NoStressMS2 жыл бұрын
Great!! Glad the vid is helpful!!! 🙌🏾🙌🏾
@stephanies14745 ай бұрын
How are you now?
@kristenlynnoliver3 жыл бұрын
Damien thank you for this video! Yesterday at my neurologist I was able to get the approval to switch from Aubagio! Who knew I would be so excited about giving myself a shot! Without your video I don’t think I would have asked to switch so thank you so much for putting this out there to educate us msers! ☺️
@abduljama9621 Жыл бұрын
What a time, to be alive.
@NoStressMS Жыл бұрын
Funny, I say the same thing all the time. 😂😂🙌🏾🙌🏾
@esty63743 жыл бұрын
I’m on Kesimpta now after failing with Copaxone, Gilenya, and Tysabri. Praying that this works!
@donnabolt58473 жыл бұрын
Oh im praying for you. I was just diagnosed in July. Put on tecfidera, relapsed several times and now on 2nd infusion of tysabri. I pray this works for you. So scary :(
@karma_kush3 жыл бұрын
@@donnabolt5847 same with me. Relapsed twice on Tec and now on Tysabri- almost a year now.
@donnabolt58473 жыл бұрын
@@karma_kush how are you feeling now after a year on Tysabri? My doctor says I have aggresive ms and im going to still feel really crummy until about June. That will be my 6th tysabri infusion. This has just been nothing but brutal since my diagnosis in June 2020.
@whoosh_angel Жыл бұрын
Are you able to give an update on how you’ve been doing with Kesimpta? I was just diagnosed and considering it since I am JCV+ and don’t want to do Tysabri.
@RewritingMS3 жыл бұрын
Great Interview!!! Very Insightful and Informative...the research on B cells is a game changer. A hundred different million families of B cells in the body who knew!!!! Love learning new things about MS and the body...it's empowering.
@klburke3 жыл бұрын
OMG, this is exciting!!!! Thanks for the great interview Damian! I'm tearing up with excitement! I'm also using a lot of exclamation points!! I hope this will be available in Canada!
@NoStressMS3 жыл бұрын
Karen Burke THANK YOU, KAREN!! Yeah, it should be available in Canada so hopefully you get it and it works out for you!
@sebastianfernandez5827 Жыл бұрын
@@NoStressMS It is now ! On it as we speak, on week 3.
@NoStressMS Жыл бұрын
@@sebastianfernandez5827 Nice! Let’s go let’s go!! 🙌🏾🙌🏾
@herbertfoelser38452 жыл бұрын
thank you so much Dr. Hauser and Damien. Greetings from Austria.
@NoStressMS2 жыл бұрын
Thank you!! Appreciate you, Herbert!! 🙌🏾🙌🏾
@naenersable3 жыл бұрын
Please I need a cure soon please!
@NoStressMS3 жыл бұрын
JuNae Sorenson-Jones That’d be nice!
@CathyChester3 жыл бұрын
Great interview, Damian and Dr. Hauser, as I try to decide what my next medication of choice will be. I learned some things I didn't know as I do my research and for that I am grateful. Damian, YOU OUT THERE, my friend! Dr, Hauser surely is a gift to our community as well.
@NoStressMS3 жыл бұрын
I’M OUT HERE, CATHY!!! 😂😂🙌🏾🙌🏾 Glad the vid was helpful and part of your research!! You the best best, tho!! 😆
@bkhollyr3 жыл бұрын
Thanks for this video! I have my biannual checkup next week. I definitely feel like I’m going to be armed with a ton of information thanks to you.
@NoStressMS3 жыл бұрын
BKHolly WE OUT HERE, HOLLY!! 🙌🏾🙌🏾 Glad this was a good vid and will be helpful in your next neuro visit!
@naenersable3 жыл бұрын
I have secondary progressive multiple sclerosis and I’m completely disabled I have had ms for 23 years.
@MsDesiree393 жыл бұрын
wow
@MSman773 жыл бұрын
Very interesting meeting but unfortunately no mention to remyelination issues. What about disabled patients?♿️♿️♿️ Thank you Damian & many thanks to Prof. Hauser✋😎
@NoStressMS3 жыл бұрын
Not sure how it goes for remyelination for disabled patients! If I get another chance to do an interview like this, i'll ask!!
@TheShirleyCurley Жыл бұрын
Thank you for this great interview. That helped me finally to decide if I take K or not.
@NoStressMS Жыл бұрын
Thank you for this comment! Glad the video was helpful!
@jasonmordecai82123 жыл бұрын
I’ve had my eye on Kesimpta for around a year now I knew about the trials going on and now it’s going to be available this is groundbreaking but the cost of it is extremely expensive I hope insurance will cover it 🤞🏼
@NoStressMS3 жыл бұрын
SERIOUSLY!! 🤞🏾🤞🏾
@jasonmordecai82123 жыл бұрын
@@NoStressMS yes at 9.5k a month per injection that’s 114k a year ouch 😣 insurance will have to play a real big role if anyone wants to take it 😣
@NoStressMS3 жыл бұрын
@@jasonmordecai8212 WOWWWW!! That's an incredible large (though not unfamiliar) price!!
@jasonmordecai82123 жыл бұрын
@@NoStressMS found out my insurance will pay for Kesimpta now. My neurologist has put it on my prescription now. I will receive my first pen in about 3-4 weeks 🙂
@victoriousms38183 жыл бұрын
Another great video. Thank you for the awesome work you have been doing🙋♀️
@NoStressMS3 жыл бұрын
THANK YOU!! And you've been a part of some of the 🙄 that goes down to keep the channel going. Thank YOU for your patience and the content you keep pumping out!! 🙌🏾🙌🏾
@Good-g9c3 жыл бұрын
Great information! How are you doing? Thanks for the updated information. Thanks
@NoStressMS3 жыл бұрын
Annette Lambert THANK YOU!! 🙌🏾🙌🏾
@tarafralick3 жыл бұрын
A cure is in sight....wow!
@NoStressMS3 жыл бұрын
RIGHT?!?! 🙌🏾🙌🏾
@mehmetibrahim8673 жыл бұрын
Let’s not be over optimistic, let’s learn to walk before we can run. 🏃♀️
@heathwade4686 Жыл бұрын
Why are all of dylimenting issues being diagnosed as MS so quickly now?
@NoStressMS Жыл бұрын
Heck if I know, man?? 🤷🏾♂️😐
@samanthafoor15943 жыл бұрын
Very great interview! What’s your thoughts on ocrevus vs kimsepta?
@NoStressMS3 жыл бұрын
Samantha Foor Thank you!! I would rather do a needle once a month than to a trip to the infusion center twice a year, personally.
@sonjawalton29952 жыл бұрын
Wow! Very informative!
@NoStressMS2 жыл бұрын
THANK YOU, SONJA!! Glad this video was helpful and useful!! 🙌🏾🙌🏾
@LadyYoop2 жыл бұрын
THANK YOU!
@NoStressMS2 жыл бұрын
Thank YOU!! 😆✨❤️
@LeeMajors-3 жыл бұрын
Thanks bro very helpful!
@NoStressMS3 жыл бұрын
WE OUT HERE, E!! 🙌🏾🙌🏾 Thanks for this comment!!
@mellickg Жыл бұрын
Damien I like the video but your hand gestures and facial expressions are not professional and detract from an otherwise useful teaching video. Nothing personal intended.
@NoStressMS Жыл бұрын
Cool. Thx.
@user-yh3bl6bp3j3 ай бұрын
Yes dear Damien … it’s very distracting 🙈🙈🙈🙈
@user-yh3bl6bp3j3 ай бұрын
But very informative 🙂
@WhiteOpal10 ай бұрын
I started Kesimpta
@NoStressMS10 ай бұрын
Howl's it going so far?
@JoeyTV3 жыл бұрын
14:55
@NoStressMS3 жыл бұрын
JoeyTV REAL TALK!!
@TulsaGirlForever3 жыл бұрын
Exciting news about slowing progression, THAT'S WHAT I NEED! Is there anyone taking Kisempta that also has been diagnosed w/ Valley Fever (Cocci) fungal infection? That's the only thing that has kept me from jumping from the 3 times a wk Glatopa to this med or Ocrevus. I chg'd to Gilenya in 2013 & that's when I found out I had VF & got a bad UTI & a skin infection. Inquiring minds are wondering. Kisempta sounds easier & more managable than the other one. Thx if you have any input.....
@shakirbashir1323 жыл бұрын
Hi NoStressMS are still on Ocrevus? I started a bit later than you and was gret initially, but now, have been having a number of disconcerting sideeffects. Im considering changing.....you?
@DanielleRitchot3 жыл бұрын
I have PPMS. I’m going downhill fast. No relapses. Radiological findings do NOT coincide with clinical signs in many people, myself included. Why does the doc say Kesimpta is effective in progressive MS YET there has been no clinical trials for PPMS? Also, doc says Kesimpta is also effective for treating progression (not just relapses) - so is he only referring to progression in RRMS? Does progression differ for RR and PP patients? Why no trial for PPMS?
@DanielleRitchot3 жыл бұрын
Oh, and also. Thanks, Damien for the great interview. :)
@VisionsOfBulgaria3 жыл бұрын
Okay! "B-cells fight bacteria and viruses by making Y-shaped proteins called antibodies, which are specific to each pathogen and are able to lock onto the surface of an invading cell and mark it for destruction by other immune cells.". So the root cause of MS is bacteria or virus that is calling immune response leading to inflammation.
@NoStressMS3 жыл бұрын
Atlantic Breaking it down down!!
@opalsmith71753 жыл бұрын
Would you please explain human cloning in this drug? Meaning who? Thank you 🥰
@DrBrandonBeaber3 жыл бұрын
What he means is that the antibody is humanized and does not contain any mouse protein. This would in theory decrease the rate of injection reactions, though many reactions are related to b-cell depletion rather than a true allergy.
@opalsmith71753 жыл бұрын
Thank you for the explanation, I totally misunderstood the dr. You're awesome to watch, loads of info and bring a smile to those who watch you!🥰😊
@DrBrandonBeaber3 жыл бұрын
@@opalsmith7175 Thanks!
@NoStressMS3 жыл бұрын
Dr. Brandon Beaber FACTS!! Thank you!!
@celissagardner873 жыл бұрын
Is this a medicine that can be taken with Ocrevus or is this a stand alone medication? Also does this have any contradictions or alerts for people that are jcv positive, not positive it have whatever it is called that keeps people from taking certain MS medications?
@NoStressMS3 жыл бұрын
Celissa Gardner It’s a stand alone med, Celissa. That’s a good question! I don’t know!
@leeroyroy3 жыл бұрын
this sounds promising
@NoStressMS3 жыл бұрын
The drugs keep getting better and better!
@Khalidsvt10110 ай бұрын
4:13 one relapse every 10 year .. BS or true ?
@brucesummar44063 жыл бұрын
What good is it if you can't afford it..My wife will just continue to suffer and you'll continue to get rich
@stephanies14745 ай бұрын
Write to the manufacturer.
@michealgrg23413 жыл бұрын
Can this drug heal MS
@NoStressMS3 жыл бұрын
Not like how you're thinking but it seems like a great disease modifying drug!