September 2014, I was immediately diagnosed with Progressive Relapsing Multiple Sclerosis. I lost 100% feeling in my lower extremities & 80% feeling in both arms. I was 34 years old!🥺 I spent nearly 2 months in Baptist Hospital in Little Rock getting plasma infusions, physical/occupational therapy...when I went home, I had about 80% feeling in my legs. Y'all..this had to be the scariest moment of my life
@shireenramnarain4005 Жыл бұрын
What is the cost of plasma infusions?
@ashleybonanno3043 Жыл бұрын
@shireenramnarain4005 I really don't have any idea how much it cost. It was covered by Medicaid
@goodluck-sx8zf5 жыл бұрын
Love this video. I show it to people that ask me and if they dont fully understand. I was diagnosed with primary progressive M.S when I was 16. I'm 26 now been wheelchair bound for almost 6 years. Went skydiving 4 years ago. Love life and your health, you never know what could happen.
@tammiea85524 жыл бұрын
I'm 48 and a have thought I've had MS for years but was given the fibromyalgia diagnosis instead. Now I'm experiencing every symptom of ms.
@goodluck-sx8zf4 жыл бұрын
@@tammiea8552 have you done the MRIs with contrast. It sucks but that was my red flag an then every 6 months till it calmed down. I got on a scary med. It has killed people with heart conditions an hi I have 2 lol but it was a gamble I am willing to take, cause the hell I was in. Pins an needles numb from toes all the way up to my neck at one point. The shots didnt do crap for me. Tried 3 different ones. I'm happy with just numb legs in a wheelchair with some vision problems. Get a MRI with contrast of your brain.
@NovaGoose22 жыл бұрын
Great explanation with easy to understand language. Thank you so much. I have just recently been diagnosed at age 44 with the my first symptom happening 13 yrs prior. Now for 3 yrs symptom after symptom after symptom with no let up. Still don’t know what type they will say I have but I’m certain I have the worst.
@lokthebest3 жыл бұрын
Thank you, I am newly diagnosed RRMS, your video was easy to follow and very informative.
@bensadeghipour22693 жыл бұрын
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@joshballesteros223 жыл бұрын
This is a great explanation of MS! Thank you!
@Kristinemay293 жыл бұрын
thank you so much! this helped me understand it
@norahbradley51388 жыл бұрын
Thank you for explaining this so clearly. My sister was just diagnosed.
@christianramirez99556 жыл бұрын
Julia Bradley go to ms hope.com
@melissarichardson58423 жыл бұрын
Terwwweewrweewrww
@melissarichardson58423 жыл бұрын
Terwwweewrwweewrww
@叶小帆9 жыл бұрын
Oh, I can't even stop to look at these! I thought it is only 7 minutes but actually they consume my half an hour. How attractive they are, amazing job!
@jezelaugosto8906 жыл бұрын
ey ,if anyone else wants to learn about best treatment for primary progressive ms try Loctavan Simple Sclerosis Strategy (do a search on google ) ? Ive heard some decent things about it and my neighbor got amazing success with it.
@zuzkit7625 жыл бұрын
Everybody who has MS has different problems maybe similar but anybody has RR MSfrom start and anybody has PP MS and is more types MR I have from 1999 RRMS and all the time I am whithout wheelchair all the time chemicals like Interferon, Avonex from 2007 - 2014 "just" kortikoides so withouth treatment like my doctor said, 2017 aubagio and from this time I cant move like before I lost 9,5 kg mainly muscles and after sciatica so I finished with this. Now I have again kortikoides 500mg one time every month.Sorry for my English. Every person is different. Now I eat by Swank and make exercises.
@darrelmorgan62664 жыл бұрын
I keep reading that MS is not fatal. That said, just in August of this year a close friend and coworker died in her sleep. It took until just afew weeks ago for the final coroners report and toxicology tests to come out and the primary cause of death listed was Multiple Sclerosis. She did not fall, did not have pneumonia or any of the other things I have seen listed as possibilities when someone actually dies from MS. She died in her sleep and her husband only realized something was wrong when she would not get up that morning and he turned her over and her lips were blue. The only thing that I do know for certain is that she never ever had treatment or took medication for her MS and I assume she likely had it for years. Just don't understand what actually physically took place within her body that killed her as relates to MS and I have yet to read anywhere that describes anyone dying from it other than from ancillary causes. Something about her MS very definitely caused her death but what(?)
@chumpess3 жыл бұрын
It’s impossible to know exactly what happened without seeing the results from the coroner. However, I believe it is extremely rare for MS to be the primary cause of death. The only thing I can think of, is interference with the nerve messages to her heart caused her to have heart failure, but I have only ever read about that in one piece of literature in all my (rather limited) research. I have MS, and am in need of treatment right now, but the holiday period means I have to wait until January. My MS nurse assured me it was completely safe, as sudden death from MS is just something that’s not really seen. But of course, anything is possible. I am very sorry for the loss of your friend. I lost my father suddenly, and it’s hard when you want answers, but things don’t seem to add up.I wish you lots of strength and comfort at this time, as I know the first Christmas without someone is difficult. Take care.
@mytravls Жыл бұрын
Can anyone share if they had similar experiences? I don’t feel an ant crawling and a fly sitting on my legs, I now realized that I don’t feel a fly sitting on my arms either. Gluten makes me twitch, gives me chills and joint pains along with double and blurry visions, I get a feeling of vibration from the bottom of my feet to upwards in my legs esp during summer months. Sugar is lethal, gives me gut anxiety and dairy gives heartburn and chills. I do yoga everyday, the days I stop and resume I have to start from 0. Has anyone experienced? As I’m typing away, I don’t feel the discomfort from the running heater, it’s only 5 inches away from me. I don’t feel the burn at all. I only feel some heat. Heater had been running for over 10 mins.
@myalyk4018 Жыл бұрын
I am the happiest person to hear that my brother completely revived and cured from Multiple Sclerosis with herbal medicine from Dr Madida on KZbin....
@livingAID4 жыл бұрын
Hmmm I believe with RRMS, disease progression is occurring without a replace and in secondary progressive, the damage that was done begins to show itself clinically
@livingAID4 жыл бұрын
Hence why taking a DMD is essential unless benign
@hunainfaheem91346 жыл бұрын
Thankyou sooo much
@athantas3 жыл бұрын
Do we know after what age does the Secondary Progressive MS usually kick off?
@terri49317 жыл бұрын
What about those that don't have lesions in the brain? According to the MS Society, MS can happen without lesions in the brain. Every video I've seen only talks about lesions. I'd like to see a video that talks about MS in people that DON'T have lesions in the brain.
@sekinatyusuf48256 жыл бұрын
Thanks
@HeartOfHippie7 жыл бұрын
I have the Secondary Progressive, I am 57 and had since 1988. Living is good, but Fatigue and Heat sensitity, and all the other crap that chipped away my brain.
@petertyson27 жыл бұрын
I've recently been diagnosed with Rapid Secondary Progressive non-remitting MS.... Skipped the Relapsing/Remitting stage for some reason.
@jenny88836 жыл бұрын
I highly recommend looking into low dose naltrexone. LDN. Talk with your Dr about it since it increases quality of life for MS
@ldjt61847 жыл бұрын
Can you please explain the pathophysiology of S PMS and what the difference going on in the body? Basically, why do people progress despite having no new lesions?
@raineynight2 жыл бұрын
Just had an MRI with these results: There are multiple areas of T2 signal in the white matter of both cerebral hemispheres. Some of the T2 lesions are perpendicular to the lateral ventricles within the periventricular white matter and distribution suggestive of demyelinating disease of multiple sclerosis. But, the doctor says she's not convinced that it's MS. I've had ever blood test in the world. Normal nerve and EPG results. Having Evoked potential test done next. What else, besides a spinal tap can be done?
@MSman778 жыл бұрын
many thanks for these important info..👍👍👍👍
@audilynn19937 жыл бұрын
I was diagnosed at 22 after 3 hospital visits and treatments for headaches with RRMS. I've taken a no med route and rely on topical cbd oil products.
@kaorinyuuki50996 жыл бұрын
How did it go?...recently diagnosed and sceptical abt the treatment...
@fab6boy2 жыл бұрын
2020 I was diagnosed with MS and it's not getting better I can see what my wife was saying
@myalyk4018 Жыл бұрын
I am the happiest person to hear that my brother completely revived and cured from Multiple Sclerosis with herbal medicine from Dr Madida on KZbin....
@Spencer_Thatcher4 жыл бұрын
This isn't totally accurate as the newer models for MS progression from the International Advisory Committee on Clinical Trials of MS now have Clinically Isolated Syndrome as the precursor to all other MS stages along with no longer acknowledging progressive relapse as a stage. The reason for this is under the old criteria, doctors waited until someone had another event with more clinical findings and more disability. The newer criteria include utilizing MRI with gadolinium (a contrast agent) to help make a diagnosis sooner and to recognize changes in established MS so that treatment changes can be considered.
@athantas3 жыл бұрын
reference?
@mariteswatts44542 жыл бұрын
This is the old ways.
@ldjt61847 жыл бұрын
What happens to the other 35-49% of RR MSers? They keep having relapses until they die?
@christianramirez99556 жыл бұрын
Kelly J go to mshope.com
@emilysgarden48612 жыл бұрын
Words are not enough to express how grateful I am to Dr Madida on KZbin for his assistant in resolving and treating my aunt's Parkinson Disease..
@andreawheatley55286 жыл бұрын
The Myelin repairs itself eh? I really beg to differ, as a MSer myself, hogwash.
@sumedhhhh3 жыл бұрын
.
@christinem52937 жыл бұрын
You said 4 types I thought you only described 3....