Kidney Disease: Comparing the two methods of Peritoneal Dialysis (PD)

[@darlashannon1202]

Idk how you popped up on my feed, but you're the channel I didn't know I needed. I lost 1 kidney a year ago and the chances if losing the 2nd is just a matter of when, not if. I had no idea this was possible. I'll be running through all your videos this weekend.

[@skeeze1]

Thank you for your videos. My wife has just made the decision to go with peritoneal dialysis, so we are trying to learn everything we can. your videos cover many important details that we never thought about. She does not have her abdominal port installed yet, so we are several weeks away from her first at=home treatment, but watching your videos really helps us understand what to expect. MANY THANKS TO YOU!!!!!

[@dheyes803]

Thank you so very much for this video. People who do not have CKD will never know just how much it takes to have a bit of ‘normal’ when getting up in the morning being able to do what is planned for your day. People who are chronically ill have so many challenges but we have got to stay on top of things just to stay somewhat alive. Things get even a more difficult when your own body was born fighting you (autoimmune diseases). How do the chronically ill manage, you have got to find that certain thing/hobby that takes your mind away from what is going on. For me, I started to study the violin which has made me feel that I have accomplished more than just focusing on my health tasks. Life is fleeting so do all that you can to maintain your health.

[@kathy9172]

Hi! Your video popped up on my feed and I was surprised. I'm 52 and have done PD continuously for 19 years. My story is a lot like yours, I have Ig A nephropathy, a type of glomerulonephritis. I took high doses of prednisone also and had many side effects. Have far too many stories of trying to navigate the healthcare system and some frustrating hospital stories 🤯 At one point I was my dad's caregiver when he was on hospice with cancer, I was my mom's caregiver while she had Lewy body dementia, and I was doing PD on the cycler all at the same time. I have been blessed to have PD work so well for me for this long so that I could do all these things I have needed to do. I think everyone on dialysis has different challenges healthwise, my worst has been Anemia. I get Epo shots, but it doesn't help much. My pet peeve is when some people assume because your kidneys failed and you're on dialysis that it is something you did to yourself to cause it, sometimes it's just bad luck...or genetics! I think it's great of you to make these videos to help people! When I started 19 years ago my nephrologist didn't even bring PD up to me as an option, thank goodness a law had recently been passed to make it mandatory for patients to get dialysis education. There I learned about PD. I later learned that was common for nephrologists not to bring up PD, either because they were not as comfortable with it as hemo, or also because they made more money on hemo patients(at least at that time). Sad but true. When I told my neph that I wanted to do PD he said he didn't bring it up to me as an option because he thought I would cut corners. To this day I don't even know what he meant by that...he didn't even know me. I have never "cut corners" never had peritonitis, never skipped dialysis, take all my meds, know all of my levels. I thank him for his motivation😝 Sorry for such a long comment, keep sharing your story and educating about kidney disease and PD, more people should give it a try.

[@kidneykeeping]

I'm so sorry! Life has been been hard for you. Thank you so much for your comment and sharing what you have experiences. I too didn't know about PD at first. I thought Hemo was the only option. I found out about PD from watching video's from Singapore! And the doctor saying he thought you'd cut corners is so inappropriate!!

[@michelleheadley2911]

Never had any pain? If you did have any drain pain how did it resolve?

[@kathy9172]

Lots of different kinds of pain over the years lol. In the first month after I started PD I had some drain pain, but it subsided pretty quick. I was lucky to have a VERY experienced surgeon place my catheter, he had been placing catheters for decades. He had a heart attack and retired soon after he did my surgery. My nurse said I was lucky he was able to place my catheter, I still have the same catheter today. I guess what I'm saying is placement technique makes all the difference in how the catheter functions, at least that's my belief. I hope everything works out ok for you and your drain pain goes away soon, keep pestering your nurse and doctors if it doesn't, good luck!!@@michelleheadley2911

[@pa131]

@kathy9172 Hi Kathy, Your story has given me a lot of hope since I'm going to start PD soon. I'm 36 years old, and my youngest daughter is 5 years old. I'm not scared to die because I know that God is with me, but I am scared of missing the opportunity to see my kids grow up. You have been in PD for 19 years, and it has given me the hope that I might be able to see my kids grow up. I just have a question: If you have been in PD for that long, why haven't you had a kidney transplant yet? Hopefully, my question is not inappropriate that is not my intention. Take care ❤️

[@kathy9172]

I had a hard time with Prednisone which was used to treat my kidney disease and I would have to be on it again if I had a transplant. I have also had many hypersensitivity reactions to drugs over the years. I never rule it out, but in my case I have felt very well on PD and was able to adjust it to fit my life. Thank goodness there are choices to treat kidney failure, if one treatment doesn't work, try another. Good luck and if you think transplant will fit you best then go for it!!

[@heidimckie274]

Thank you!!! I have been avoiding dialysis forever but now GFR is way below 10 it is just scary. I keep thinking ignore it will change😂😂. You videos are really helpful. I want to keep working it keeps me feeling most normal. I am planning my cath surgery now with my nephrologist…..

[@MaryGatdula]

Your videos are very helpful. I'm only at stage 3, but I'm trying to learn as much as I can about KD, diet, etc. Thank you for sharing your experience!

[@kidneykeeping]

You got this! It's going to help you so much learning as much as you can.

[@MilestoneMarcy]

I had labs done today (done monthly at this point) and my GFR fell from 18 to 14 since last month. I'm very upset and scared and I did make the decision to have peritioneal. I'm literally suppose to go on vacation this Wednesday, so I have to see what my nephro suggests. This sucks, but thank you for your videos. I esp. liked that you put up the time charts for exchanges. This helps so much!

[@kidneykeeping]

I hope you were able to go on vacation and take a break from all this stress. It is discouraging to work hard and still have your health decline. Thinking of you.

[@kilpel2]

Prayers

[@heidimckie274]

I don’t eat much so thinking ensure or something will be helpful. I can’t do Nepro . All you videos so far has made me feel better.

[@merlecausey5921]

I’ll be starting PD soon and your videos have been very helpful. You’re an exceptionally beautiful woman so I never miss a video. Thank you.

[@annahoffman-edwards3702]

I am so glad I have found you Bethanie!!!! Thank you very much for detailed explanation about PD - I will start it very soon.

[@coffeeandhorses7991]

Another great video!.

[@richardstahel9550]

Your information is very helpful as I've not seen this presented so concisely anywhere else. As I'm in advanced stage IV, I was advised to familiarize myself with the options and process of dialysis in advance. To prepare for this, I've been assembling useful information into a binder. I've carefully transcribed the information from several of your KZbins, including this one, and added. Thank you.

[@cherylbowens680]

Thank you for this info! I start my training for pd dialysis next week!

[@anilrnc]

Thank you for the 3 questions at the end to help make the choice. Very informative and helpful videos. God bless!

[@TheKathybarth]

Excellent video. Informative and concise. Very appreciative

[@Ben-Bella23]

Thank you for all the information you’ve putted here , unfortunately I’ve started dialysis this week as the moment I’m still at the hospital, tomorrow I’ll be having my surgery to get the catheter placed , I haven’t thought i would start this early but my health went down very quickly in a year I went from stag 3 to renal failure. Thanks to god anyways . So I’m starting my PD I guess in two weeks , yet I can’t do it with the machine as I couldn’t find one here in Romania but only manual , I even was thinking to buy used one cuz it’s too expensive a new one , but your video made just stop cuz I’m slim person and that could be uncomfortable as you said , plus I won’t be able to find the Cassettes and the tubing , for they don’t offer such tubing for automatic machines but only for manual . Thank you so much for all the information and I pray for everyone to gel well soon . ❤

[@anilrnc]

How are you going on with PD?

[@tristannarsingh4224]

I won 't..do dialysis , I would rather die , Im 76yrs old with type 2 diabetes THANK U ...for for your info...

[@mariop.trujillo4667]

....you don't need to die...trust Jesus as your Lord and Saviour. Believe on Jesus and His death, burial and resurrection for your salvation. 1CORINTHIANS 15:3-4" ...put your faith in Jesus Christ alone for your salvation. Ephesians 2:8-9" ...for the Scriptures declares that " For whosoever shall call upon the name of the Lord shall be saved. " Romans 10:13 God promise in John 3:16 " For God so loved the world ,that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. "...God promise is true. Amen. ...pray now. Admit that you are a sinner and lost. Repent, ask Jesus for mercy, believe that Jesus died on the cross for your sin...and by faith received Jesus in your heart as your Lord and Saviour. Amen.🙏❤

[@pax9864]

Oh, dear one, please do reconsider! What if, on your last day without dialysis, as you die, you think of something you could still have done, that you always wanted to do? Do the dialysis. Find out what you still need to do, and get it done! You can only do that if you're alive. Please live, please. I don't know if you believe in God, or anything. But I do, so I'll be praying for you. In case you don't believe in God, know that you also have my very best wishes for an excellent decision and great joy!

[@cherylbowens680]

You need to at least give dialysis a try! Praying for you!!

[@c.m.o.logistics9215]

Because of your channel and presentation, I have prepared to go to urgent care! I have had the symptoms for over 6 months. I have taken care of family (palliative care for over 5 years) and didn’t consider my own personal health care. Oops!

[@antonioj1073]

Thank you for your videos. How long did it take to go from stage 3 to stage 4?. I am entering stage 3. Its been 19 years since diagnosis. Feels like my disease is worsening at faster pace now.

[@MilestoneMarcy]

I had the same thing. I was stage three two years ago, today I am GFR 14 and needing dialysis. Everything has seemingly gone downhill quickly.

[@saul.t.2.969]

Thank you for this video. I’m curious. What was your most important thing?

[@kidneykeeping]

That's a good question. I wanted to have freedom during the day. I needed to work and with children still at home, I wanted to able to attend and take them to their afterschool activities.

[@gustavorguevara]

I find it hard to do PD and it’s been very inconvenient. PD gives me bad breath, specifically breath that smells like medicine. Another thing is that this takes a lot of my time- I feel less motivated and consistently tired. I’m going to back to hemo as a result.

[@AltonMiller23]

Good advice.

[@ninclarke1357]

Thank you ❤️

[@heidimckie274]

As far as traveling can you swim? Can I go to the beach or it is not recommended ?

[@kidneykeeping]

My clinic nurse told me not to go swimming. I've been to the beach, waded in the water up to my knees, but no more then that.

[@YELLOW08Z06]

You can choose the 3rd option

[@EvitovResnoc]

How much do the supplies cost?

[@kidneykeeping]

I don't have an answer for that. Sorry! My insurance covers the cost, so I haven't seen a bill. Does anyone else know?

[@crusader_with_a_glock7941]

❤❤❤❤❤❤❤❤❤❤❤❤❤❤

[@jkiser5143]

You probably don’t want to experience hemo Just saying. Pd saved me Cycler. Did they give you a fistula even though you do PD ? I wouldn’t let them

[@kidneykeeping]

No I didn't get a fistula. Thank goodness! I heard that that is really painful and can make it hard to use that arm.

[@lisacarson6223]

I have been doing dialysis for 27 years. First, I did PD for 10 yrs but after my peritoneum thickened and didn't work effectively I switched to home hemo. I did that for 15 yrs, without a fistula bc I am deathly afraid of needles! In 2021 I became very ill after taking a muscle relaxant and am now doing in-centre dialysis but the doctors have asked if I'd like to go back to home dialysis. If I were to do it all again I think I'd skip PD. I feel much better on hemo.