Labyrinthitis and Vertigo (BPPV): Hazel's story | NHS

[@NHS]

For more information from the NHS about Labyrinthitis visit: www.nhs.uk/conditions/labyrinthitis/

[@andrewmiller6754]

My right ear feels like it is on and airplane pressurising but really badly

[@gloriasaliba3395]

Thank you for sharing - I’m into day 5 of my very first terrifying episode - praying that medication and therapy improves my condition - I can’t imagine living my life like this until the end of my days- the anxiety and fear that emanates from the constant waves of nausea and dizziness is utterly debilitating- I wouldn’t wish this abhorrent feeling on anyone - last couple of days I’ve had so much pressure in both my ears and back front of head. Am taking high levels of prednisone serc and stemetil- thankful they a brain CT scan did not determine any nasties - I keep repeating this too shall pass. Am wondering if my case of shingles a couple of months ago would have brought this on? Cannot wait to see a vestibular physiotherapist in 2 days time for a proper diagnosis and treatment. Visiting a local chiropractor who performed the Epley manoeuvre twice only worsened my symptoms

[@LeeDavies-kj8sc]

Did it get better as in in same position

[@Sarah-ve6hr]

Hi Did you suffer from hearing loss during the attack?? I am in day 14 now but still having hearing loss

[@tectorama]

Oh how I can (like so many others) relate to this. Vertigo is an awful problem to have. Exercises can and do help. Even when you feel better, you must keep doing them.

[@As-ht5rw]

Thank you for sharing. It is very helpful. You are right, "what doesn't kill you, makes you stronger"

[@jimmyofwiltshire]

Thank you so much for sharing this story,been suffering for last few days and I'm not gonna lie,its terrified I. I was thinking all sorts like is this permanent and about my job amongst lots of other things. Seeing this has gave I such a boost

[@gingergin8877]

Had this God damn illness out of nowhere At October 2017 No symptoms at prior days no nothing The only thing I can remember after this is some days before it strikes I had constantly headaches And slightly ear echo from time to time But nothing really disturbing Woke up one morning and BOOM A lot of dizziness deteriorates fast to vertigo Legs start shaking Heart rate increases I fell down at the floor holding it Cause of the uncontrollable spinning Never experienced anything like this before in my life Thought it was stroke or heart failure? My Husband was terrified call 911 And then I start vomiting Omg Can't describe all this continued vomit Unstoppable and inside the ambulance Inside the hospital It was a living nightmare Hearing loss 40% in one ear Which luckily it came back after treatment In about one and half month I recovered in 3-4 months But indeed it took a year I feel for people has passing through this torture It,s not a lethal disease But I,d prefer to have both of my legs broken Instead of have half of this terrible thing again

[@harjboparai1340]

So true ur story is same like me u have ringing in ur ears

[@travisn92]

What was your treatment?

[@gingergin8877]

Treatment was injected cortisone Worked very fast at my case

[@christieswinnerton7518]

i have felt the same way not been myself for a year i get emotionally out of balance and then panic attacks and i pass out

[@NinjaSeb123]

Worst non life threatening disease ever.

[@kelbee8974]

Thank you for this video. It's exactly my situation. The video is easy to understand & is very helpful 👍👍👍 Hopefully the lady in the video is much better now.

[@kent1k13]

thank you for your story it is light in the end of night

[@mjseg3616]

I feel like im in a ship at sea all the time and my head gets so heavy the first few days. I’m not diagnosed, its just been a week and altho i still have vertigo its not as bad. My teeth hurt sometimes too so maaaaaybe they’re connected idk.

[@ovelesha]

I've had dizziness and off balance severely for 39 weeks solid and my pathetic joke of a GP has completely failed to help me in any way shape or form! I've begged for help, i can't go to work, drive and become pretty much housebound at 45 years old! My GP is not fit for purpose and i'm going to make it my mission to get him struck off!

[@brent1011]

they wont refer you because it costs them a packet. they actually get paid more to deny you treatment. so what you need to do is go to a private consultancy firm, get diagnosed and the bill will be filled to your Clinical Commissioning Group. the quick fix for them is put you on a load of anti anxiety drugs which are cheap.

[@patchadventures9247]

Did you get it sorted out in the end?

[@darrenbeattie4448]

Curious to know if you got it sorted as well

[@jesusistheway3336]

Brent Cooper your GP should an can refer you to Ear specialist go to another GP

[@eskertoo]

I had some really bad bouts of vertigo lasting up to 12 hours,sometimes with vomiting.Then I am unsteady for a few weeks.It seemed to go away and I thought if it ever recurred I could not cope with it.Basically contemplating suicide,that's how bad it was.During the attacks I have to lie absolutely still with closed eyes,but I can't stop my eyes desperately trying to regain focus.Anyway it has returned but not as bad as previously.It has taken everything from me.

[@NHS]

Hi Tony, thanks for the comment - we hope you're doing ok, and sorry to hear you've had such a hard time. Are you getting help? If things still causing you problems, please do speak to your GP or call 111 who will be able to find help. Thank you.

[@joeyvd9640]

Before I got diagnosed I had vertigo and vomiting for 3 days - I still get it a couple times a year. Its the worst , I got prescribed Serc and it seems to help whenever I get the attacks. Good luck mate

[@pattyclifton7905]

I had a violent vertigo attack 21 months ago and been VERY dizzy EVERYDAY since then. I'm 70 and with other health issues it's hard to do those vestibular exercises. Some days I just want to die because I feel life is not worth living anymore. There's nothing to look forward to. I can't go anywhere ever. Riding in the car makes me nauseated. I have doubts I will ever get better. I have seen 2 ENT's and two physical therapists that did the Epley menuver on me. It didn't help. No one has been able to help me.😞

[@NHS]

You are clearly going through a difficult time. If you feel that life isn’t worth living, you’re harming yourself or have thought about self-harm, it is important to tell someone. As part of the social media team for nhs.uk, we are unable to give individual health advice, but we can point you in the direction of resources and services that can hopefully help. If you can, speak to someone you trust about how to get support. You may find it helpful to speak to your GP, who may have further options for you. For more information on vertigo, visit our page here Vertigo - NHS (www.nhs.uk) If you do not feel safe, or feel that your life is in danger it is important you seek medical attention urgently. Please dial 999 for an ambulance or go straight to A&E. You can find your nearest A&E department by entering your postcode here: www.nhs.uk/service-search/Accident-and-emergency-services/LocationSearch/428 If you ever need to talk, Samaritans are also available to listen at any time of the day or night. You can talk to them about anything that’s troubling you, no matter how difficult. Call free on 116 123 or visit the Samaritans website - www.samaritans.org

[@barbl8801]

Don't have an ENT who can test, the best one is in his retirement years and no longer tests for this stuff......how do we drive ourselves, even walking, i've been falling as i'm mostly in my home, as the gentleman below, Matthew, Lord help us

[@thorpevic]

Thank you so much for sharing!. Ive been struggling with Labyrinthitis on and off for years. :( I'll certainly try these exercises and hopefully the'll help 🤞🤞

[@touche97]

there are alternatives. i buy cannibas oil based spray from switzlerland. it is safe and has natural ingredients that help clear sinuses. in my case it lowered the horrible tinnitus i had for over 20 years too. look around for alternatives that are both safe and effective.

[@golddiggerdave]

I ended up in hospital with this came out of nowhere, started being dizzy room spinning sick for 25-26 hours could not walk, ended up on the stroke ward at first, lasted 8-9 days constant. Now a few more weeks down the line walking okay still have a constantly cloudy feeling in my head. Been diagnose with this condition. It's horrid the closest feeling is like the first time you get seriously drunk and the world spins and you projectile vomit but last days not hours.

[@emilya6127]

Did you get better? If so, what did you do?

[@troyjbanks]

Yes, please share how you’re doing and how you got over it!

[@claro3240]

Really worried bout my older brother, he's already got depression and now this.

[@katiereed9106]

Claro Gromm me too! Don’t worry hun. Medication helps xxxx

[@michellefreeman1445]

Ive had this on and off for 10 years. Im 46 and this year has been horrific. I suffer every 4-6 weeks for about 7 days. I feel breathless dizzy and so poorly. Finally referred to a ENT which has a 10 month waiting list. I just cant go on anymore 😢

[@NHS]

So sorry to hear about your experience with these conditions. Other options for help and support are the Meniere’s Society (menieres.org.uk/) or The Brain Charity (www.thebraincharity.org.uk/) We hope you get the help you need soon.

[@JungianHeights]

I’ve had chronic vertigo for three years now, but I can’t find anyone with the same feeling as mine. I get the occasional spinning one, but mine feels like someone has grabbed my head and dropped me back on my feet. It will be a sudden feeling as if I’ve missed a step, or like that feeling when you wake up out of your sleep like you’re falling. If I need to lift myself up to get comfy, once I raise up, it feels like something is pulling me upwards. I’m to afraid of the doctors to go, and it had been fairly manageable until this year. This all began in November of 2020.

[@JungianHeights]

Oh, I also get the occasional feeling of being on one of those airport escalators.

[@Lovemy911]

An old post i know i do hope youve fully recovered fromnthis awful condition' but how long did it take to return to normality? Im 6 months in now ' Still struggling to walk etc Vertigo is near on constant 😮 🙏for recovery

[@jesusistheway3336]

I think I have this but waiting to see ear specialist because my GP can’t see anything so he referred me to ear specialist 🤷🏻‍♀️ does it feel like someone pushing you or your gonna fall I’ve had this past cuple months it’s stop me from doing stuff I normally do like going gym 🙏🏼🙏🏼

[@deanhughes4504]

Jesus is the way I feel the same

[@nancypineda5226]

Hi! Have you gotten any better better ? I hope you have ! Please let me know ! I have an appointment in two weeks to get check out !

[@violinstar5948]

My goodness. I’m a violin teacher and I’m experiencing a horrible ear infection, which makes me feel a bit dizzy.

[@pauldoe3434]

Thats just how I feel

[@ladystardust1869]

How long until you got healthy????

[@ladystardust1869]

I'm getting a lot better but it's been 2 months

[@steveharris4343]

I feel drunk when I walk around, feeling off balance for a year,can anyone help?

[@nasseralmoustafa5143]

Did you see a doctor yet

[@meyremkalkan9434]

I have it for 15 years but i was coping with it but this year in march and april i had two episodes .I still didnt get my balance back and cant walk 2 blocks .still dont have balance .I meditate and see a terapist to cope with it but it is soo hard .anyone any tips please help

[@nishajassal1476]

I’ve had it for over two years. It started from a cold. I feel the same when I walk. I can’t see properly and I constantly feel like I’m going to fall over. I’ve even walked into things due to losing balance. Has anyone recovered from this