Liam's Story Chronicling Treacher Collins Syndrome

  Рет қаралды 80,303

Mass Eye and Ear

Mass Eye and Ear

Күн бұрын

Пікірлер: 80
@djdonald243
@djdonald243 7 жыл бұрын
My wife has Treacher Collins, and it is so cool seeing people who look like her.
@OMBWarrior47
@OMBWarrior47 3 жыл бұрын
Beauty is in the eye of the beholder
@Stanley.77
@Stanley.77 3 жыл бұрын
I have seen several women with T.C, both in person, and in pictures, who are extremely attractive -and by attractive, I don't mean "looks good *for* someone with Treacher-Collins," I mean *looks very attractive, and also has Treacher-Collins.* Blessings and kind regards to both you and your wife.
@AFC15Edits
@AFC15Edits 4 ай бұрын
demon worshipper
@theresaleduc9337
@theresaleduc9337 11 жыл бұрын
Awesome job, Awesome kid.. I worked with Liam for 5 years.. He really is a wonderful boy and very smart. Congratulations Liam..
@tomascarp912
@tomascarp912 3 жыл бұрын
I just recognize him after his "Special Books for Special Kids" interview
@jencameron8124
@jencameron8124 3 жыл бұрын
Same here!😊
@supahspyrosonicfan98
@supahspyrosonicfan98 3 жыл бұрын
For me, it was the other way round lol
@dinellewatson1507
@dinellewatson1507 Жыл бұрын
Is there a link to that?
@teariet.tekken-wolffenn5881
@teariet.tekken-wolffenn5881 7 жыл бұрын
I was just smiling during the whole video. He is just adorable and looks like he is so much fun to be around. Congrats Liam, you are an inspiration kiddo.
@carynmartin6053
@carynmartin6053 7 жыл бұрын
God bless those doctors that worked so hard to help Liam and others like him!
@infelicitas
@infelicitas 5 жыл бұрын
I can't believe it, I am friends with this guy! he is absolutely amazing and a awesome friend.
@awall422
@awall422 11 жыл бұрын
Would love to know the insurance company that refused to cover the ear surgery. They deserve some feedback.
@carynmartin6053
@carynmartin6053 7 жыл бұрын
ARLO Acre probably state insurance
@unicornmadness6286
@unicornmadness6286 3 жыл бұрын
@@carynmartin6053 no we cover that.
@MimiiSarry
@MimiiSarry 11 жыл бұрын
I love you LIAM.....
@Msbuddy08sej
@Msbuddy08sej 3 жыл бұрын
Oh that's amazing. Grace. Best wishes young man.
@skeshavarz60
@skeshavarz60 2 жыл бұрын
He is an awesome kid! God bless him!
@lynn_xo7616
@lynn_xo7616 9 жыл бұрын
Liam is actually quite cute
@tiffypaigexx
@tiffypaigexx 10 жыл бұрын
Liam is awesome :-)
@tiffypaigexx
@tiffypaigexx 10 жыл бұрын
That's ok :-)
@grubinator5237
@grubinator5237 7 жыл бұрын
Tiffany Paige Hawkings yeah he is
@IwasBlueb4
@IwasBlueb4 7 жыл бұрын
I agree
@brendaseager7371
@brendaseager7371 5 жыл бұрын
Wonderful that there is a facility that is so dedicated to helping people, especially children.
@BigMamou367
@BigMamou367 9 жыл бұрын
Sweet boy!!!! The world must have opened up for him. I just hate the fact he may hear people's rude comments.
@isaacj302
@isaacj302 4 жыл бұрын
i can say without any hesitation that this guy is super nice
@gddylchill616
@gddylchill616 10 жыл бұрын
Liam is awesome!!!!!!!!!!
@auti34
@auti34 7 жыл бұрын
I can't understand why something like this isn't cover by insurance .crazy
@Lava_Girl-
@Lava_Girl- 5 жыл бұрын
Great job guys😃
@lorireece1970
@lorireece1970 4 ай бұрын
Everyone should see the movie Wonder starring Jacob Tremblay. This fantastic movie features a young character named Auggie Pullman who has this condition. I absolutely LOVE this movie!
@praisekek
@praisekek 6 жыл бұрын
He said something about his ear drums working normal. I wonder if they create ears for him somehow through surgery with a hole from the outside to the ear drum? not just cosmetic.
@cbruben
@cbruben 3 жыл бұрын
Beautiful video
@chirpycrow2061
@chirpycrow2061 5 жыл бұрын
Check Liam out in them shades! Git R Done lil man! You are a bright light in the world! I know one day your gonna blossom into a fine young man!
@BigMamou367
@BigMamou367 9 жыл бұрын
Love how medical insurance dictates people's life. That's what they call pre existing condition
@ReineDeLaSeine14
@ReineDeLaSeine14 9 жыл бұрын
Agreed. It's so hard for me to get treatment for my rare diseases
@BigMamou367
@BigMamou367 9 жыл бұрын
+ReineDeLaSeine14 they are not supposed to do that to us any more. My X husband signed us up for Aetna. The RX part is great. It's been a nightmare for everything else.
@solarsalami4158
@solarsalami4158 4 жыл бұрын
If you guys wanna meat Liam, join our discord server! "Lunarios Secret hideout" is the name with some heart emojis. Look for it ;)
@supahspyrosonicfan98
@supahspyrosonicfan98 3 жыл бұрын
Lol I loved how the guy mentioned cochlear implants amplify sound. This is not the case, as you're likely getting a CI when amplification doesn't work. I just had to correct that, incase anyone didn't know. It sends electrical pulses to the hair cells. An entirely different way of hearing altogether. Did heavy research into this before discovering I was a BAHA candidate.
@nicolelee2329
@nicolelee2329 6 жыл бұрын
I hope mean ppl that make fun of others..watch this video and put themselves in his shoes! Being born different..n not being able to control how u look
@auti34
@auti34 7 жыл бұрын
I no getting my hearing aids has made a world off diff .im glad it helping him
@goodmiller4786
@goodmiller4786 6 жыл бұрын
Be strong whole head high
@Jchristgirl4284
@Jchristgirl4284 6 жыл бұрын
Awesome kid
@ReineDeLaSeine14
@ReineDeLaSeine14 9 жыл бұрын
I noticed he has a G tube. I have a GJ for another condition but often can eat. I hope he can experience food fully after his palate reconstruction
@maxncheese5216
@maxncheese5216 7 жыл бұрын
I think it's there to help with having a trach as well.
@nathandomshy3090
@nathandomshy3090 3 жыл бұрын
Liams a great guy
@amitcohen3043
@amitcohen3043 9 жыл бұрын
I feel like august Pullman (from wonder) was based off of liam
@reeseexum365
@reeseexum365 8 жыл бұрын
omg so true I came down here to say I think wonder was based off him
@kennym5305
@kennym5305 8 жыл бұрын
actually August was based off the scene where Jack Will met August. they met a girl who was like August a lot like how Jack's brother responded her son started to cry and she left but that gave her inspiration for her book.
@danaepiccione2313
@danaepiccione2313 8 жыл бұрын
omg yes
@grubinator5237
@grubinator5237 7 жыл бұрын
Amit cohen love that book
@oliviapetrowski4553
@oliviapetrowski4553 7 жыл бұрын
Amit Cohen Yes!!!!
@steveo2xx
@steveo2xx 8 жыл бұрын
Omg that is so sad in the first port but in the end is so happy
@brendaseager7371
@brendaseager7371 5 жыл бұрын
The only difference is the looks, I don’t know why people have to hurt people that are different in looks, they all are the same on the inside. I would never sit back and allow for any child to be ridiculed, be caring of each other.
@danaepiccione2313
@danaepiccione2313 8 жыл бұрын
I think about him as Auggie Pullman
@rosewoods1664
@rosewoods1664 7 жыл бұрын
Danae Piccione u
@lorireece1970
@lorireece1970 4 ай бұрын
Yes! Me, too! I LOVE the movie Wonder! I have the dvd, and I’ve been watching it lately. I think it’s one of the best movies ever made! The book that inspired the movie is fantastic as well!
@IwasBlueb4
@IwasBlueb4 7 жыл бұрын
Adorable kid....but where's his mamma ??
@StarlessLilithVT
@StarlessLilithVT 5 жыл бұрын
My mother was not in this video. She came back into my life in 2011 after my Uncle Matthew passed at the age of 37. She was not invited to participate in it since she was not all that much in my life that early on.
@marilyntape508
@marilyntape508 3 жыл бұрын
Cool Liam😊👍❤️🇦🇺
@abbieprice3430
@abbieprice3430 5 жыл бұрын
I wonder what his twin sister Teagan thinks about having a brother with Treacher Collins! It would've been great to her being interviewed too! Also why couldn't their parents take care of them anymore?
@WarDeeGuy
@WarDeeGuy 3 жыл бұрын
Answers here... kzbin.info/www/bejne/bKusXqiPg7CkptU
@maryschwartz9096
@maryschwartz9096 8 жыл бұрын
sorry to hear that
@kittysfriends8458
@kittysfriends8458 6 жыл бұрын
It looks likes auggie from wonder right
@oliviapetrowski4553
@oliviapetrowski4553 7 жыл бұрын
Auggie Pullman IRL
@infelicitas
@infelicitas 5 жыл бұрын
"Liams story" Proceeds to talk about things that have nothing to do with Liam
@sarahdunn2459
@sarahdunn2459 6 жыл бұрын
the older brother seems like the fedora wearin' type
@StarlessLilithVT
@StarlessLilithVT 5 жыл бұрын
Well, I guess I'm the fedora wearing type! Haha
@yourguardianangel4714
@yourguardianangel4714 9 жыл бұрын
love this kids wish u and your family all the beat dreams can come true just fight hard and never give up ?...................
@patricklebeau4610
@patricklebeau4610 5 жыл бұрын
Yo i know that guy!
@monicamangondato4783
@monicamangondato4783 6 жыл бұрын
begyan mo siya tenga?
@amproductions5727
@amproductions5727 7 жыл бұрын
*Sometimes he can be a real pain in the butt*
@History909
@History909 7 жыл бұрын
اعيال من غير زواج عقاب من رب العالمين
@Erikkkolivarezzz1937
@Erikkkolivarezzz1937 2 жыл бұрын
alhamdulillah shaqiq ☪️✊🙌
@WhenLemonsGiveYouLife
@WhenLemonsGiveYouLife Ай бұрын
TW: GROOMING,PEDOPHILIA Since I've turned 18 I want to revise my old post here. He/she/they groomed me when I was only 13. They were 17 turning 18 in a month. I want to say the stuff I went through but it is so tough it makes me super anxious and angry. Starting along with my story..We played minecraft together for atleast a few months and at one point i had put on a pokemon lycanroc skin, they decided to say to me a 13 yr old minor that quote. "Your skin turned me on". Not only that but they would ask me to control them in a sexual manner by making me tell them when to j**k off and ejaculate. The first time we met they asked me if I did erp, I ended up doing that with them since i had no knowledge of this being a bad thing and it escalated. I believe that they used their disability to get sympathy so they could eventually groom me and as somebody now who has a disability it's awful as hell what they did. As of now they go by StarlessLilth aka use to go by Sphynxine,crypticchrono that I knew them as,Pheonixah and FazeCraftGaming (be aware these are older names but starlesslilith is their newest user.)
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