Life as a Blind Autistic Adult with Hydrocephalus

Jess is diagnosed with autism and hydrocephalus. She is also blind. Jess lives with her Mom while often having the assistance of a caregiver. Together the three have a world of inside jokes and enjoy life in the present moment.
Follow Jess at: / @autisticinterpretations
/ autistic_interpretations
SBSK Patreon: / sbsk
SBSK's Socials:
/ specialbooksbyspecialkids
/ chrisulmer
/ specialbooksbyspecialkids
/ sbsk

[@Leo_ness]

You took her seriously when she said not to joke about the chocolate cake. That's important, even though it seems like a small thing and a lot of people would ignore it because it doesn't make sense to them. You set a great example for effective and empathetic communication in your interviews, and that's a big factor in allowing your friends to be themselves in these videos.

[@bribri4462]

this really stood out to me too, im so grateful for his channel :)

[@krystalharwood6359]

i love her eye roll when her mom says i treat her like an adult but at the same time shes just like my little girl

[@AndromedaApokalipsy]

yes! that was awesome

[@mimo_7174]

I looove her voice 🥰 it's so calming and comforting. When she says 'weeell, we'll just have to wait and see!' LOL I just loved that

[@abzd6535]

Jess’s mom is a really youthful looking woman, they look like sisters!

[@abzd6535]

And Jess seems so funny and like a joy to be around!

[@soul7530]

I think Val was only around 20 when she had Jess or maybe a little younger so she is quite young still anyway and Jess looks older than she is because of her premature greying of her hair. So they do look a lot like sisters

[@krystalharwood6359]

so does marlow and hannah

[@doctorgothicc]

Omg! I've been watching Jess on her KZbin for a while now! And I love SBSK!! So excited to see two of my favorite people online are already good friends!

[@Jesus.is.LordSavior4]

She’s is adorable every time I’m feeling very depressed I watch these videos and I realize how blessed I am. While coming to the realization that my life isn’t that bad at all. Love you guys.

[@thecolddeath92]

Hahaha

[@faustianalchemist2312]

- Bad one! - Chocolate cake. - I'm just joking. very funny moment!

[@angelreilly8312]

Aww I love this lady! I think she's great and that was an awesome fact about service dogs being allowed at Disney land!

[@krystalharwood6359]

i just hope no one made fun of jess cause she is older and goes to disney with mom. some kid might say ''you're too old for this ride, lady!''

[@septixskeptix1107]

I knew an autistic lady who was also obsessed with Disney. That was literally all she ever wanted to talk about and could list off just about every animated Disney movie ever made. I'm also on the spectrum but am high functioning and have my own quirks when it comes to obsessive behaviors. When I find an interest, I go all in and go hard. I think it's pretty normal for people on the spectrum to hold obsessions. I actually have two storage units and a house full of comic books, action figures, and warhammer miniatures.

[@maisygraham3181]

@@krystalharwood6359 No we make fun of all the scamming and lies. Val is the biggest con artist on KZbin.

[@user-mq5dr1jh5t]

@@maisygraham3181 no she is not!

[@marypupstoychannel1181]

I have autism and I get embarrassed when I get stuck on the same topic or thing for to long and when I repeat things to much

[@auntemmyd1604]

I belong to Jess’s Fanclub Club Crispies!!! I love her and her family so much and I’m so excited to discover that she’s on another one of my favourite channels!❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@rosejr2614]

Where is this at?

[@auntemmyd1604]

@@rosejr2614 Autistic Interpretations

[@maisygraham3181]

Yes every Thursday they have Greedy where they beg fior money and gifts. Lazy greedy family.

[@candacevandeventer2456]

What a wonderful interview, I’m always impressed by Jess and her ability to communicate and the great relationship with her beautiful Mom. Marlow’s a good one too……

[@nickia726]

I am an adult with Hydrocephalus 💜 this just made my day💜 I love this

[@jeanakatherine9369]

What is Hydrocephalus?

[@nickia726]

@@jeanakatherine9369 a clog of cerebrospinal fluid in the brain

[@IAmTheSorrow7]

same! dealing with hydrocephalus, you find it really great to hear that you're not going through it alone.

[@bangrojai4868]

I had a distance nephew with hydrocephalus + ADHD. She run here, run there non stop. I dont know about autism but surely there was some subject that attracted her so much. When i got married, suddenly she stopped run here run there, she desperately wanted to look as beauty as my wife. Maybe it was her natural instinct to look like a real woman, a woman in wedding dress. Sadly, an accident happened few months ago and she is no longer with us.

[@TheRojo387]

I never realised how often I take for granted, how lucky I truly am.

[@joebehr7379]

I have hydrocephalus as well.. I've had 7 surgeries. Keep strong..

[@user-mq5dr1jh5t]

i do too but it was taken care of. i am functioning normally with my shunt. have had headaches because of a chiari malformation which was first ASSUMED to be a shunt malfunction. later in life i had developed neuralgia

[@navyblue9355]

I love Jess and her mom's relationship!

[@krystalharwood6359]

she is the first autistic person ive seen that doesnt mind the physical contact. most of them shy away both giving and the receiving

[@krystalharwood6359]

a 32 year old woman with no shunt problems? god bless u. i had to get mine revises( replaced) twice as a little girl. i am now 37 and am doing great. i also have trigeminal neuralgia

[@Allplussomeminus]

1:19 (gently touches her face... says "ouchhhh")😆😆😆

[@user-mq5dr1jh5t]

jo-kiiing

[@toddburgess5056]

I would have a difficult time with the "good one/bad one" face touching thing. I don't like anyone being that close to my face.

[@krystalharwood7842]

jess has to be close so she can feel it. she is blind so she has to feel someone's face to recognize them, such as Helen Keller did

[@somerandomguy5977]

You don't have to let them do that you know.

[@toddburgess5056]

@@somerandomguy5977 it didn't look like the mother or personal care attendant had a choice 😄

[@somerandomguy5977]

Yeah but you said you. They are okay with it an expecting it. No reason you shouldn't say no if you aren't comfortable with that.

[@macminator3000]

i really liked this video, jess seems like a nice friend :)

[@nancyalmonte6334]

Love to re-watch this interview ♥️ Can you please do an update? ♥️

[@jennyjimenez5820]

There youtube channel is -Autistic Interpretation .

[@nancyalmonte6334]

@@jennyjimenez5820 I know, I follow them 🥰🥰 it’s just that I would like for Mr Chris to do an update interview. Sometimes, he does that. 💙💙

[@Munichismybaby]

Watch their channel Autistic Interpretations

[@nancyalmonte6334]

@@Munichismybaby I do. I follow them. Thanks

[@CrystalCat24]

@autistic interpretations I had no idea that Jess was on SBSK!!!!! 😍😍😍😍

[@kourtneyy]

Samee!!!

[@wleedhero1864]

Yes the comments are back

[@Munichismybaby]

Omgosh I just noticed. This is great!

[@auntemmyd1604]

Val is so stunningly beautiful both inside and out I love her so much! Her and Bad(LoL) Daddy are the ultimate good ones along with Marlow, Hannah ,and her brother! And of course all the Good Pooches!!!❤️🥰🥰❤️

[@auntemmyd1604]

And let’s not forget Nonnie and Grandad 😻They are also Good Ones❤️🥰❤️🥰

[@krystalharwood6359]

@@auntemmyd1604 how do you know them all? just curious

[@CrystalCat24]

@@krystalharwood6359 They are very open with their family and daily life in their vlogs! Check out Autistic Interpretations (link is in the description of this video or you can search for it). They are so fun!!

[@cbgbstew4072]

I have to agree that chocolate cake is no joke!

[@samar2741]

Maslow and the mother are so lovely with Jess. I love their relationship❤️ caregivers do such amazing work

[@StaelTek]

Finally the comments are back!!

[@xSuperNova]

It’s about time for a new update!

[@marleenninaka1303]

Hi everyone: It's so nice to see you all again on KZbin. I want to meet you all one day. Take care and stay safe.

[@hillyhills2787]

Aw so happy to see them on here. I started watching them a couple years ago.

[@mambrake]

I have a son that is blind and autistic and I cant even get the state of Texas to help with school.. We are in a sad situation.....

[@Bicth97]

Jess is funny and I like her voice. I'd like her to tell me about her special interests and I think she seems fun to talk with :)

[@dorna2325]

Jess is from my hometown!

[@morganplayz7134]

Omg! I have hydrocephalus too! So far I've only had 2 surgeries. The first one was to put my shunt in the and then the second one was to replace it

[@anjachan]

I had only a small 2nd. I was glad I didn't need a new shunt ^^

[@FullTimePatient37]

I had 10 so far and developed alot of other conditions along the way.. I'm completely DISABLED now..I have a KZbin channel if you want to connect 🪷↖️

[@macminator3000]

4:13 i loved this moment haha

[@chantelcuddemi7646]

Jess, you're so awesome! I'm totally blind too!

[@JackBlackwithadashofWeirdAl]

Instead of face pats my girly ( 6) does elbow grabs and kisses. If I wear a long sleeve I will feel her little hand creeping up it to get to my elbow 😂

[@angelmanuelsantanalantigua1601]

1:08 amazing ,that girls are amazing

[@lisaendress724]

It was so cool to Jess on here!!!!!

[@AnwesaChaudhury]

She looks really beautiful and sounds cute

[@BlackbirdProductions]

11:09 hits different

[@MackDaddyVic]

Usually blind people have grayed out eyes are sometimes completely whitened out. But her eyes are a bright blue and lively. Also, she is a very interesting person. So crazy to see how other people interact with different behaviors and having such unique dialog and responses to things because of a disorder they have. The human brain is quite a thing. I can tell she means well and has all good intentions and she has a pure soul.

[@vetlerradio]

I think you're mixing blind with cataracts.

[@allysonbruce554]

Blind people have color in their eyes, that has nothing to do with being blind.

[@undergrrownd]

Eye whiteness/graying is not a significant factor in blindness

[@peach0129]

What too much anime does to a guys brain

[@MCMoWhine]

She's blind from a malformation in her brain it's different than a regular blind person.

[@anacristinamotalopes2740]

Muito amor

[@kellytreolo6195]

Bless you for tucking your sweet girl in.

[@ms2507]

God bless you✨ 💛✨

[@8ossy87]

Love, love, love. 💖

[@krystalharwood6359]

did her mom always make the cake or did she get it at a restaurant?

[@annegleason8442]

I would love to be your friend Jess!!!!!

[@Grandma_CC]

Jessica is a good one. I love there KZbin channel such a great, funny and loving family.

[@ElizabethWest90]

Pleaaaaaaase do a follow up with Jess!!

[@Grandma_CC]

She has a KZbin channel called Autistic Interpretation.. Jessica has a awesome family who love her very much.

[@bigsarge2085]

❤️

[@mariareis9331]

You’re welcome Jess. It is a pleasure to know you’re in this world with us.

[@IsabellaFilian]

… great 👍

[@mpat100]

Blessings for you Jess

[@jehouse61]

Omg Bessie!!! I love her and I'm so excited you got to meet her!

[@jmomlive3566]

Jess you're such a good one! I hope you enjoyed your chocolate cake!

[@carriemorrison725]

I’d like to hear her sing 🎤

[@castermacdiarmid980]

She’s basically me

[@aronlelenora9572]

❤❤❤❤

[@sherrychurch1199]

Marlow doesn't like the face pats.

[@allysonbruce554]

She does. It's how Jess shows love.

[@jackb3555]

Jess you are amazing and never forget it!

[@user-mq5dr1jh5t]

my grandma died as well. many memories

[@a.j.marcantonio153]

Jess’s mom looks younger than her.

[@krystalharwood6359]

i said that too

[@krystalharwood6359]

i said that too

[@lauren-8889]

But did you really need to?

[@krystalharwood6359]

@@lauren-8889 ok sorryyy

[@lapizza7175]

Bruh that comment is messed up

[@anjachan]

I have hydrocephalus and I wonder about If Im autistic too ... really not sure about that :D

[@krystalharwood7842]

its not always connected if thats what your wondering

[@anjachan]

@@krystalharwood7842 I know but it often can.

[@vmanuelacosta6007]

❤❤

[@Giovayo]

3:25 is it just me, or it sounds like Jess said "I lost my girlfriend"?

[@leoaranzaa]

Chocolate cake ☺️

[@jnieswartz4878]

Omg she’s to stinkin cute! Sweet women

[@rickyyamaga6527]

I wish I had jess and her mom for family instead of my dad and his sister im lonely and miserable her where i live. I believe i wouldn't be lonely with jess and her mom.

[@magical571]

That's how i feel in a way about so many families featured on this channel...they are blessed in a way we may never know.

[@rickyyamaga6527]

Crazy Mai I wish I could meet you and get to know you maybe? Just for a friend? Text me if you're interested.

[@millergriffin4214]

32yr old woman

[@rickyyamaga6527]

Can i say this if i lived where jess lives id be her best friend she could ever dream of having.

[@corinneweisbein6679]

Jess is absolutely gorgeous and beautiful 😍

[@kathrynoneill5862]

Pretty girl.

[@Cetrifuga1945]

Ciaooo se una donna ok ti mando in amicizia anche se nn ti conosco un 🌺per te e uno per la signora 🌺io sono così mi dispiace nn si può cambiare ok sie delle belle persone oggi nn c è sono tante ok ti saluto un grande 👍 pollicino

[@krystalharwood6359]

forgive me jess said she was 32 but first look i thought she was in her 50s

[@kaz-cj5oh]

why was that necessary mate -__-

[@krystalharwood6359]

@@kaz-cj5oh just a comment lol

[@kaz-cj5oh]

@@krystalharwood6359 mean for no reason

[@MantecadasPaulina]

Unnecesary comment, also not true at all🤷

[@MantecadasPaulina]

Maybe you're just not used to women over 25 with natural hair color. Just a reminder: women have gray hair too and they can look beautiful and attractive without having to dye them, just like men ;)

[@MCMoWhine]

Jess has changed so much in jiust 2 year.she has a thick head of grey hair and is very heavy..loves talkig about her dead dog obsessively. Sad. Unless she's eating, talking about dead people or dogs or getting thrown around on a roller coaster or picking her scabs shes usually unhappy. And yelling at the dogs. Looks anything but joyful.

[@melindaahmed1392]

Judgmental much?? What is actually wrong with you

[@MCMoWhine]

@@melindaahmed1392 I used to follow this family. It's a train wreck.

[@meganchristian7085]

people 01st language please

[@maisygraham3181]

Scammers

[@allysonbruce554]

Lol no they're not.

[@charleneaylward9639]

And we love hearing you Jess ❤

[@maisygraham3181]

@@allysonbruce554 Ok Valerie Brooks!

[@maisygraham3181]

Leo and LoraCross

[@Courthadork]

I cannot stand her Mom. Watch their channel and you'll understand why

[@dorna2325]

why? do you mind explaining?

[@allysonbruce554]

I do watch her channel and love her mom. She advocates for Jess 24/7 and helps her lead as normal as a life as anyone else.

[@karmaisawesome3300]

I feel the same way.

[@charleneaylward9639]

Omg the whole family is absolutely wonderful. 😮

[@MCMoWhine]

Marlow looks thinner and healthy here..😢