Life With a Fused Ankle - My Journey Before Amputation 🦶🏻

[@katiekirsch8946]

Your story is so similar to mine, I had my first ankle fusion at 15 in 2010 but Berber healed correctly so had to go in for two more fusions of my right ankle. The pain I felt every day walking on the fused ankle was awful and I developed a chronic nerve pain disorder from the first surgery cutting a nerve. I was on so much pain medication just so I could walk, that’s when I decided at 24 to have a right below the knee amputation. I had mine done June 28,2018 it was the best decision I made. I am completely off pain medication and am doing very well. Thank you for sharing your story!!

[@mikeysbae7]

Your story is touching and sad but you did it good job 😭😌😢😇

[@maxhammer4067]

Why did they fuse your ankle in the first place

[@DougGann]

Thank you for recording this. I'm on my third year of a fused ankle and can provide one positive update for people considering the treatment. Two hours before my surgery, my anesthesiologist did the usual pre-op procedures and then sat down and told me, "This is going to really hurt. There is no way around it." Then he handed me a simplified business card with a phone number and told me it was his private phone and to contact him by text if anything got overwhelming. But before the overwhelming sense of dread could kick in, he told me we were going to use a new pain management device, which was a bladder-ball connected to a catheter inserted into my thigh that would provide a slow drip of novocaine directly to the femoral nerve. The bladder was a bit bigger than a softball, which I could wear in something that looked like a purse. It was made of a new type of meta-material that would shrink on exposure to oxygen, and this shrinking is what pumped the novocaine directly onto the nerve. Upon waking from the surgery, the pain level was about the same as the recovery from the previous year of multiple surgeries you described so well, but it was just a normal level of pain. Over the next three days, as the bladder shrank down to the size of a tennis ball, the pain level was much less than any of the surgeries I had had before. I used Codine on the day of the surgery, but I did not need it again. It seems to me that this technology will go a long way to reducing new cases of opioid addiction. And thanks for explaining the "little joints" issue. Now I know what I'm experiencing when I get painful "flare-ups" in parts of my foot that are nowhere near the titanium rods drilled through my tibia and calcaneus. And yeah, the scars are still enormous.

[@BustinBenny]

My dad went about 20 years with a fused ankle, until he blew out his hip on that side from favoring that leg. The hip replacement ultimately led to his death. I think you made the right decision to have it amputated. Modern prosthetics could save you a lot of headaches in the future. And prosthetics will only improve over time.

[@Watchoutforsnakez]

This makes me really grateful my ankle fusion 10 yrs ago worked. I obviously limp, can’t wear heels, can’t run great, trip easy, I have never heard a story so much like mine. So your videos make me grateful for my foot. Im sure videos about accidents leaving one paralyzed make you grateful for your healthy femur and alive body that can live a full life. Me too😍

[@ExpressATrain]

Thank you for making this video. Your positive attitude is very inspiring. I had my ankle fused at 19 after a skateboarding injury. Now at 32 I'm running into complications because of the imbalances in my hip joints. The pain is excruciating when I lie down. So I'm looking to start physical therapy asap. It's so nice to see you voice your experience. It's so rare to hear anyone talk about it, you may be the first! Thank you again and I wish you all the best

[@robertbarminski6402]

Damn I had my ankle fused from a skateboarding accident in 2016...I actually had a Pilon fracture, my tibula and fibula broke and my ankle joint shattered into like 7 pieces. Unfortunately I also had a lot of extreme complications (when they set my tib/fib it didn't hold and the bones shifted almost burst through my skin, the doctors call it tenting) I had to go to Stanford for over 40 days Initially they tried to give me a skin graft of shark skin but the skin graft didn't stick and the hardware and my bone became infected. Stanford managed to give me a skin flap which is the next level above a skin graft(skin flaps have muscle tissue and blood in addition to skin) if it hadn't been for the bone infection I wouldn't have lost my right leg. long story longer I just had a bka of my right leg in September. The doctors wanted to amputate for a couple of years and I kept putting it off and it got to the point where i would have ended up going septic and probably dying if I didn't go through with the amputation. I apologize for rambling and I didn't say all that to spook you or anything. There's no way you would be in my situation...even if the fused ankle goes bad they can do ankle reconstructive surgery, you don't have to worry about amputation. They couldn't do the ankle reconstructive surgery for me because the skin flap I had wasn't something that allows them to cut into do surgeries and then I had a bunch hardware it was just a nightmare and what I went through won't be your experience. That being said it's still a lot to deal with...when you said your ankle hurts so bad when you lay down it made my heart wrench for you brother. I swear having the fused ankle caused me some of the most agonizing pain. It literally changed my personality and I became far less of a positive person. God bless you bro, I know you have a lot on your plate but I know you're a strong individual based off the fact you've lived with a fused ankle as long as you have

[@thedakotalogs]

Try Z Coil shoes. They are expensive, but they have coils that reduce the impact. I swim for cardio but these allow for everyday walking no problem for me.

[@karenthomas1158]

I’m so glad that you have told your story, it certainly has given me a more understanding view of what my 16 year old son is going through- he has been in chronic pain for the last three years and has decided that he will have his left ankle amputated when he turns 20. Thank you.

[@CEECEERIDER60]

There are new options now for ankle pain, for fusions. Amputation is the last resort and most doctors will refuse to do it on someone so young, and insurance won't pay for it.

[@ricanryker6441]

Smart kid ankle fusion can be very painful

[@michaelgreen7941]

Hi Jo I have been following you now for a good while. Sadly I too suffer the total ankle fusion including having joints disconnected so that I have zero movement whatsoever. Our stories are eerily similar. Your description of living with a fused ankle is absolutely spot on. Yes, I have thought about amputation however, I am not brave enough to face it. You articulate so well the difficulties. Yep, life & pain is a bugger.

[@jel20ica07]

Hello! I’m currently going through a similar situation. I just had my tenth ankle surgery two days ago. They fused my subtalar joint. Before this, my tib, fib, and talus were fused. It started with a softball injury and the original doctor got an infection in my ankle and it ate away at my cartilage. I was left with bone on bone arthritis. My new doctor tried several different surgeries to avoid a fusion but my body kept rejecting everything including all of the hardware. I have been watching a lot of your videos and find them very inspiring and genuine. Thank you for your honesty and strength through all of this. I truly appreciate it.

[@ExpressATrain]

Similar experience when it comes to infection. I was 19 when mrsa took my cartilage. I hope you're doing well

[@cjluddeni4662]

First. You are a very strong person. I know because I am in a situation not exactly the same as you, but with similarities. Brief history-I was a runner building my endurance to run a full marathon, I did 5ks ran every third day, made my way to eight miles, then I ran a 9 mile race. Seven miles were good, somewhere in mile 8 I couldn't run anymore and slow limped the finish line. After a misdiagnosis, and physical therapy that I am 100% certain completed the damage to my tendon, I was told in order to stop the pain and run again I would need surgery. I wanted to run again and be out of constant pain. The Surgery involved- the removal of my torn post. tibial tendon, (replaced that with a flexor tendon) and removed an accessory navicular bone. Six week without any weight on my ankle. (Of course I developed blood clots in my leg). With that said, It is today Four years and 8 months since the injury, four years and one month since the surgery. I cannot run, I can barley walk and am always in pain. I walk (limp) with a cane, and need to wear an Arizona Style brace in order to "walk". I have been told the next step would be the triple fusion surgery to alleviate the pain. I have refused that surgery for two years now, and after seeing your video I know I am making the correct decision (At this point) That may change down the road, but for now I'll struggle with the pain. Thank you for sharing your stories.

[@emmawb9719]

Hey Jo! I was wondering if you’d be willing to talk a little more about your horseback riding accident if you’re comfortable. I’ve ridden horses for over 10 years and I know that though injuries as severe as yours aren’t terribly common, they do sometimes happen. Was just curious about your experience, your thoughts on horses now, etc. Love your videos and thanks for your positivity and transparency through all of this!

[@Uhohohno319]

I think she actually landed on her neck.

[@emilykirk2360]

Same here!

[@baiwatson911]

I fell off a horse and broke two vertebrae. After a lot of pain and a few major surgeries I have a fused spine covering 90% of my spine. I’m not supposed to ride horses but 🤷🏼‍♀️ after a decade of spinal issues I’m doing almost everything I shouldn’t lol it just amps up the chronic pain but I’m loving my life. I also ride horses about once a week when I’m not supposed to

[@tourene1306]

@@baiwatson911 The chronic pain and pain killers you take will reduce your lifespan. Is it worth it just to ride a horse? Can't you find another hobby?

[@tyreekmurillo4524]

she made a whole video on it

[@yrisengraem1721]

Just stopping by the comment section to thank you for taking the initiative to fill information gaps. There are more people than we realise that need to hear these kind of things!

[@avicsubfusca9538]

It's so true!

[@BriLliant-gb9xd]

6:56 Dear Jo, thank you for this video. I fell 11/27/22 and had three ankle surgeries with the final being a complete fusion and already know an eventual amputation. There is a part of me that wishes they would go ahead and amputate it. I have also had a spinal fusion and I thought that was painful but it doesn’t hold a candle to my ankle fusion pain. It has greatly affected my mental health. I have never had social media and your channel is my first grasp that perhaps an online community could help with the depression that rides the back of chronic pain. I am still in the phase of learning to walk on it correctly but I stand 5’10” and am addressing a weight issue as well. These two issues have caused the chronic pain to be much worse and though I am aware that I only have myself to blame, it certainly doesn’t make surmounting them any easier. But your video and positivity give me strength to draw on and I am grateful and humbled by your story.

[@max7420]

This is kind of a random thought, but I really think you’d enjoy watching Molly Burke. She is a blind KZbinr and her channel is all about educating people about blindness and disability in general. I just think you’d enjoy watching her videos 🤗❤️❤️❤️

[@lillykent8229]

Thank you I will have a look

[@trixiesparkles6572]

Molly is amazing!

[@ettakuns4205]

Molly is so great!!!💜

[@allisonclaire5765]

Kristie Sita is great for amputation as well! She lost her hand

[@max7420]

Allison Claire, I think she already watches her 😂

[@jodeedankert1263]

Hi Jo. I was in a car accident almost a year ago. I shattered my heel bone. I learned not to break when you're about to hit something, but I digress. Dr said it's the worst shatter she has ever seen, not words you really want to hear from a doctor. I have had three surgeries, two sets of hardware and a bad infection. Now I am left with no hardware (it had gotten infected) and no heel bone and a lot of pain! The only thing my doctor here is offering me is an amputation and has cut me off of all pain meds, so I feel like I'm being forced into this life-altering decision. I live in a very rural area and options are very limited. That's just a little bit of how I ended up watching your videos. I have watched you for many months now and wanted to thank you for your willingness to be so transparent. You have given me, and I'm sure many others, hope that there is life after amputation. You help me to be a little less scared. Thank you!

[@nr24130]

Hi, how are you getting on now? I hope things are going ok for you 🙏

[@RebeccaMoreland98]

I have no heel bone due to an Achilles injury followed by severe osteomyelitis. I have not walked in 4 years. I am looking into below the knee amputation due to the pain and not being able to walk. I wanted to speak to you about your decision to amputate and whether you are happy with it and doing okay. Please reply if you can. I can't decide whether to amputate or not. I desperately need to speak to someone in a similar situation to mine.

[@moomoomoo33ass]

You are such an inspiration ! I hope your leg loses that divot , for you! I don’t think it’s a big deal , but I hope it heals to a point where you are pleased and happy!!!! Either way, you are beautiful and such an awesome woman who has so much to offer !!!!! 🤗

[@debbieoverby243]

Hi Joe I am a 6 week fresh amputee and been watching your videos i find you so refreshing and funny and a very courageous sharing alot that has gone in your life. I am going in this Friday for a small revision of a small spot that keeps leaking all staples out but these 4 staples a downer but I think back on your videos of your set backs and how you worked on healing and getting to your goal which was your prosthetic. So yes 2 more weeks set back but hey after that am getting closer to my prosthetic. Again thank you for your videos.

[@il0stthegam3]

I really appreciate the thought process of "I couldn't find anything about possible experiences, so I'll tell you aboit mine!". It is really very helpful, thank you!

[@nalditwisterron]

You are very consistent with the upload. I love it...gives me something to watch every time I venture into KZbin.

[@boballison123123]

Thank you for sharing! I'm planning on have my ankle fused (I'm 64 and very healthy and active) and your story was really helpful. I was reassured that you mentioned that it is rare to have your foot amputated after ankle fusion. I hope you are well.

[@karenlewkowitz5858]

Your calmer conversation -style voice and calmer gestures made this video watchable- blessings

[@stephendanowskijr.1810]

You are an amazing woman Jo!!! I love watching your videos because after all you've been through you still come out as a true RockStar!!! Always Remember: POSITIVE THOUGHTS + POSITIVE ACTIONS = POSITIVE RESULTS!!!

[@janzen77]

That's pretty much what I went through as well. Although I haven't had the number of surgeries you've had, I've had failures in the ones I have had. May 2nd I will be starting my amputation journey. Thank you for your videos, they have shown me a little of what to expect. Good luck next week with your prosthetic appointments.

[@MBoioi]

D.D. Freighter good luck in your amputation! You are brave to make the decision.

[@robertbarminski6402]

I also dealt with a fused ankle that led to a bka...there were further complications (bone infection, skin flap) that limited the orthopedic surgeons options. Anyways I had the amputation this past September. I received my first prosthesis last week...I'm putting it on and going through the motions but it's been hard to stay positive. Anyways I know your comment was from a few years ago but I hope you are doing well. God bless you

[@hfkura]

Jo, I can’t imagine how you can stay so upbeat after everything you’ve been through ❤️

[@childofcascadia]

Its life. You cant get upset over something you cant change. Or youll be miserable and upset and the thing will still be there.

[@cristyknight645]

I actually just came across this doing research on amputation. I have had 7 foot surgeries in 6 years on the same spot. They have tried so many different things to make it better but it isn't working. Now it is not only not better once again but it is majorly affecting my mental health. Due to being in pain all the time I have a hard time. So thank you for showing me that I am not the only one who has had to go through this and there is hope.

[@altasmit6670]

I can so relate it. I had my right tubtalar joints fused after botched a botched spinal fusion at age 10 fusion to stabilize my foot. 16 years later my ankle joint was busted and it was way before the days of ankle joint replacements. So I opted for an ankle fusion. Septic non-union of ankle, followed by clearance of sepsis. Another non union and finaly union but still pain due to ongoing infection which only revealed itself after several shouting matches with surgeon who said there shouldn't be pain. Sepsis cleared once again and every thing was fine. Then I had to go through the same motions by having the subtalar joints of the left foot fused due arthritis. When I went to have the dislodged hardware removed from the left foot the surgeon made an incision on right! Foot and then proceeded to the left foot and while busy on it, he discovered that the joints were not fused and so he repeated the procedure. 6 weeks later sepsis became evident again! On right foot which was cleared but foot/ankle still painful. Left foot is also still painful because I am probably straining the ankle joint. During the period when both feet were supposedly healing, I used a wheelchair and one day the wheelchair flipped backward, resulting in compression fractures of my spine. Spines become rather osteoporotic after a fusion due to the hardware they leave in there. So they removed the hardware from my spine and revised the fusion for the 2nd time. Now I have pain in my back due to degeneration at the top and bottom ends of the fusion and the sacro-ileac joint plus 2 feet/ankles.

[@debihendricks7592]

thank you for sharing your story, I am getting ready to have a revision of my subtalar joint, this will make my 10th surgery on my ankle. At this point, my entire ankle will be fused, due to the fact they will be fusing the pantalar joint. The pain is mostly out of control. This has been going on for 15 years. I believe amputation is my best option. Due to insurance the doctor says we have to try this first. I am so happy for you that you have been able to have a more normal life. I am so excited to get mine back!

[@vickiwaatti1076]

I had my fusion 5 years ago and it is the worst thing that I could have done. I totally regret having it done. I am now begging doctors to amputate from all the pain that I have.

[@nemonemo6285]

Wow!!! No sugar coating and straight to the point. Sometimes being direct is best. Great video and thank you for sharing.

[@nat-815]

I understand the 'I did it because I wanted to live, not because it didn't hurt' thing. I had my foot fused (subtalar joint, navicular joint and cubiod joint so fused together) in November of 2015 at age 20, why, is a bit of a mess but despite the fusion I still wanted to dance and still do (tap, jazz, hiphop, contemporary) and it does hurt and there are some things I can't do like everyone else, (which I'm still trying to convince myself is okay) but I do it because I love it and while I'm destroying my ankle joint and what remains of the tiny joints in my left foot I would so much rather take everything I can from it and do what I want now at 24 then get to 40 and have regrets, at the end of the day I know I'm looking at years of more severe pain ahead but for now I want to do everything.

[@avicsubfusca9538]

That's exactly what I did... I lived life at 1000 miles an hour till it all caught up with me in my late 30s. Last few years have been hell, but no regrets, I travelled the world and did amazing stuff I always dreamed of. Was it worth it? Definitely... Keep dancing while you still can!

[@jjj31iii31jjj]

Hi, thanks for sharing your story. I do not have a fused ankle, but I have a few ligaments torn in my right ankle. It used to hurt to walk, let alone run even after the swelling went down. My ankle was also extremely stiff in the morning, so I can relate with you not being able to properly angle your toes when putting skinny jeans. I went to a very good surgeon and the deal was this: my angle ligaments are a mush, due to multiple Handball injuries and other sports over the years. If I want to become an anthlete, I need surgery, may be even in multiple stages, and the surgeon cannot guarantee good results… but I was finishing dental school at that time, and becoming an athlete was not my goal, I just wanted to be able to walk without pain. I went to a physiotherapist that managed to massage my ankle out so it was loose, and showed me excercises to teach my muscles to take over the job of the ligaments. Is the pain better? Yes! I can do long hikes again and go to the gym. Can I do impact sports or gym exercises? No! I’ll be inviting trouble. Is my ankle actually ok? No - the lateral ligaments in my ankle are gone so it is not stable and never will be again. I loose balance occasionally if the floor is uneven and trip very easily. I tripped yesterday actually due to an uneven floor 😂😅 but I made peace with that. My ankle no longer hurts. Your body can only take so much stress during your life. Unfortunately, medicine is not about fixing you up 100% so you can do whatever you did before your accident. Medicine is about raising your quality of life after the accident/disease. It’s a sad truth, but patients need to adjust their expectations. Aim for better health post accident/disease, do not aim for what it used to be prior to that.

[@City_Lights.]

I understand. I had a subtalar fusion 7 years ago due to a horrible car accident and although the surgery was a success in terms of allowing me to walk without a noticeable limp, the pain I deal with now 7 years laters can be intolerable at times. As you said impact sports or exercises are out of the equation. Running is painful and walking on uneven terrain is treacherous. Nevertheless, I still maintain a healthy lifestyle and workout everyday although working out my legs can be a challenge due to my limited range of motion in the ankle. Physiotherapy is also a huge help. Take care of yourself and keep those spirits high.

[@luvsuncat]

I’m glad to meet you on KZbin. I had the matibala if I’m understanding right the little knot on the side of the ankle on my right foot removed due to a car jacking. I went under the car and the tire took out my ankle! I just finally finished Wound Care and hyperbaric chamber. I learned secrets from ligaments for pain. (Sit Dale Jow) that I’ve had to use because, I have other medical issues of pain. I am grateful to have watched your video and some insight because there like you said, are not enough information on how does this foot move or what’s its purpose? I can’t run anyway because of my Spina Bifida compounds my my back pain worser. I will always remember watching this video and I’m glad you posted this!

[@dellapurdin]

Thanks for sharing! I am looking at an ankle fusion this coming May. I was born with a clubbed foot and now, at almost 40, I have severe arthritis in that ankle. I'm basically bone on bone. I'm still really trying to wrap my head around what life will be like after I have the surgery. I'm pretty active as a Girl Scout leader and mom to twin girls. Again, thanks for sharing. It never really occurred to me that amputation could be a possible outcome until now. I am glad to go into this with all the information though.

[@thomasallen1734]

I have almost the same deal been in pain for over 30 years you are very brave and strong

[@jillcampbell3510]

Sounds similar to when my dad had to have his wrist fused. He had alot of pain and told me he wished they would just amputate the hand. The hospital would not do it. The whole reason he ended up having the wrist fused to begin with was that his hand got severed in a machine and they tried to reattach it. This happened in 1971 when surgery wasn't as advanced as it is today. He used to tell me he wished they had just left it off.

[@aaronhopkins6697]

Hi Jo, I've been watching you for a while now, I'm in hospital as now just had my second ankle surgery. Got a lot of stuff cleaned out and all the metal wear removed. Stay strong and keep positive.

[@jadewalker1276]

Another awesome video!! You have No idea how incredible you are and how much your journey is helping me x

[@hopelessly.hopeful]

I like to think that you "sacrificed" your leg, rather than "lost" it. I love watching your videos. I love your energy. I'm not n amputee, either. But working my way through your channel! ✌🏼

[@sunshineisfine2]

The more you share is absolutely twinning my foot journey. HUGS 💗✌️🌼🌺

[@hannahclark6099]

I love how open you are about your experiences

[@bitpixpr]

This hits home for me in a profound way, I have cerebral palsy, and my hip got replaced back in 2014 and back then my lowerback was fusing and the pain was a day by day thing, two years later my left ankle started fusing, and the Dr. said, that I needed at least 15 surgeries to make it work again, and now my right ankle is killing me lol its like wtf is going on, the main issue with me is having osteoarthritis, basically accelerate the deterioration, living with pain sucks I have thought to my self how would my life be without this pain hopefully I can get this figure out soon, because I already have 7 surgeries and really dont want more, keep being awesome love ur videos always cool to see you develop.

[@lanagrace2959]

Bitpix I hope you ankle gets better

[@domrules38790]

Hey Jo! Thanks so much for your videos, so informative and helpful! I had an ankle injury 5-6 years ago and is still causing pain today, unfortunately! Not bad enough for another surgery, but very frustrating that some days the pain comes back and I can't do the walking/exercising that I want! Love your videos, sending love from NZ :)

[@lillykent8229]

Love these types of videos, so infomative, so inspiring

[@Tony-bs1bv]

Hey Jo. I had a fusion about fifteen years ago. First I had my ankle scooped, then the sub talus fused and then a full fusion-I almost opted for an amputation. Sometimes I wish I had but other times I’m happy I didn’t. My fusion has done well and I hope not to have any further surgeries on it. I’m sixty-one and just got my second hip, which is also from that same trauma. I’m just happy they can put me back together. I’m tired of paying orthopedic surgeons mortgages though. :) God bless. Tony

[@ettakuns4205]

Have a great day Jo! Your "cheerfulness" is contagious 💜 thank you 😁

[@jzuffoletto]

I had my left ankle fused almost two years ago. For over a year and a half the pain in my ankle and foot was often unbearable, to the point where I, too, considered amputation. But then the pain lifted and in retrospect I think it was caused by extensive nerve damage caused by the original injury and the three subsequent surgeries to correct it, not the fusion itself. I'm more than 30 years older than you are so we'll see how it goes from here on out. BTW, they don't remove your ankle joint when they fuse your ankle. As your x-ray plainly shows, they just screw the bones that comprise the joint together. The idea is to have those bones grow together to restore integrity to the joint. Disclaimer: I'm not a doctor but this is how four different foot and ankle specialists explained it to me.

[@nicholaskelly1958]

This happened to me. Following breaking my lower right leg in July 1969 I had a total fusion in 1971 and things didn't go well. I was in hospital from September 1971 to November 1972. By 1978 I could no longer put my heal on the ground. The pain was unbelievable and in the end in October 1983 I had the leg amputated.

[@kenwillis8487]

On July 11th 2014 I fell 14 feet on a ladder resulting in SCI at L4 and required 3 level fusion. Leaving me with permanent nerve damage in spine and less than 40 percent nerve function in my left leg. Over the last 6.5 years I have spent the entire time in a cast, boot or AFO due to foot drop and partial paralysis in my leg ankle and foot. I have broken my left ankle 3 times and have wasted the ligaments and tendons from trying to keep using it with any assistive device I could surgery to repair ligaments and tendons has never been an option since essentially my leg is 60 percent paralyzed and it would just screw them up again in no time. So I just kept pushing myself and got to the point that I cannot manage the swelling enough to even wear my boot or my leg brace ( they won’t fit ) and after getting multiple cellulitis infections and weeks on I’ve antibiotics my orthopedic surgeon said enough is enough and gave me two options full fusion as a salvage procedure or amputation. He said that using external bracing and casts was not a long term option nor any quality of life and swelling and infections were dangerous and not worth the risk ! Having Tibio talo calcanien fusion ( probably misspelled that ) with hind foot approach and tibial rod! On Wednesday 12/2/20 I’m 41 and have 6 kids ranging from 7 months to 18, so I want to exhaust all options b4 going the amputation route!

[@LeilaDancer]

My doctor and I discussed fusion and replacement. Ultimately we didnt feel that would solve my issues. We opted to "reconstruct" it which was essentially 3 different procedures in one long surgery. Recovery has been challenging. 2.5 years later and still healing in ways. But it is still better than what I had before. My doctor and I had a lot of discussion on expectations. This was always going to be a long process. And it was never going to solve all my problems. Better was the end goal for me.

[@ttownfinest100]

Thanks for your insight. You make me feel better about why I am having my surgery.

[@lilysherbet]

No one: Me, a starbucks barista: 0:00

[@FootlessJo]

LS Hahahaha this is amazing 😆

[@xfgvjitdx46]

As a fellow Barista..... Same ha ha

[@icantdecideonaname2748]

Lol

[@lanagrace2959]

LS Lol

[@maxhammer4067]

Im learning alot from these vids ❤

[@lindamonrad2989]

You are an inspiring woman with a beautiful energy. Thank you 🙏

[@hec1552]

Hi im Hector Gomez i also had a ankle fusion in 1982 I had an work related accident i was 45’ in a crane basket i was in the sign business this in california the crane flipped With me in the basket what saved my life was a large motorhome i was thrown to the parking lot asphalt An I remember having the worst pain ever I looked at my left foot and my shoe Was pointing to the left my foot broke completely ripping the skin off and one of the veins since that day I lived a normal life and every thing you are tell Us it was exactly the same You are a super girl and You are the first person that can relate to what i went through hope the best in life to you

[@kateness24]

i had my ankle fused after living in pain for ten years.. When I had bacterial meningitis, and skin grafts covering mostly my legs and arms, my right calf lost some muscle and tissue which all left my ankle kind of "twisted". I was really close to considering amputation but after a sudden fracture out of nowhere, i pleaded with my doctor for help. I have bad days as well but i can definitely tolerate most activities that i wasn't able to enjoy prior to the surgery.

[@coopscolin3454]

I had an ankle fusion, and three operations there after, it has been 4 years since my last one, I am still in very bad pain, mostly of the outer side of the foot. Walking is terrible Walking my dog once in the day around the block actually makes my foot scream in pain. And when I get up in the morning and put the foot down I get a terrible shooting pain up my leg. I live on pain killers , and when I say that I mean like up to 6 a day. I have asked to have my foot removed. People think hard about a fusion talk to people who have had this, like your experience I'm living it now and it is hell. Sad to hear your story but I know exactly what u went threw. Colin

[@poppapips7493]

When u ask for removal whT did they say?

[@coopscolin3454]

@Poppa Pips Will know in June, what the next steps will be.

[@MrCraigblaze]

I had a ankle fusion last year..And it still hurts like heck..Due to the fact I have arthritis. Real bad. And going on my third Surgery..I am sorry for your loss !! Thanks for the Upload 👍 !!

[@spinaway]

i am 64 and awaiting a ankle fusion, thanks for this insight into this procedure.

[@scroungasworkshop4663]

jimmy s. Hey Jimmy, I’m 58 and had my ankle fused 2 years ago and I had a really good result. I had an MRI first and the surgeon said that although my ankle was buggered the other joints were in very good condition which is good because they are the ones you are going to rely on after the fusion. Once I was free of the boot and crutches and I could just wear shoes the first hurdle was going up and down stairs. This was awkward at first but once your brain adjusts it’s very normal and most people wouldn’t know, in fact I had to show people the difference in the movement between my ankles for them to understand. I also decided that because it was now up to the smaller joints to take the load I would try to preserve them as much as possible so I stopped any activities that would cause excessive wear. No more running or long walks with my wife which used to be a very regular thing for us. That doesn’t mean no exercise though as I still use the gym as it doesn’t effect using weights except squats. One thing you won’t adjust to is walking up a steep incline simply because you don’t have an ankle to give you the flex you need. So i hope like me you have a good result and find that having the fusion far outweighs the pain and suffering you are now feeling. Good luck and cheers 🍻 Stuart 🇦🇺

[@spinaway]

@@scroungasworkshop4663 Hi, well im 65 now i had my fusion in 2021, unfortunately it failed, only yesterday i had the subtalar joint fused, i do not know what lies ahead.

[@scroungasworkshop4663]

@@spinaway Hi Jimmy, I’m sorry to hear that. How does a fusion fail? It sounds like you’re in for trouble. My wife and I were in a car accident in April 21 when a couple of idiots on drugs hit us head on at 80km/h or 50mph. They were both killed and we suffered a lot of broken bones but at least we survived. My right leg, the one with the fused ankle didn’t fair so well with every bone in my right foot fractured and the tibia had the lobes on the top where it meets the knee sheared off and the bone split down the middle leaking bone marrow out into my leg. The surgeons were fantastic and managed to use plates and lots of screws to put it all back together. Because of the damage to my feet I have gone from a standard size 12 to a 13 xx wide so I get special shoes from the US. My right wrist was badly broken which has required having that fused like my ankle and that has been a real set back as I’m right handed. My left shoulder rotator cuff was torn off the bone so more surgery to stitch that back together. At least that made the broken ribs and other injuries seem mild😂. At this rate in ten years I’ll look like the terminator and I don’t think I’ll be getting through airport security next time I go to get on a plane. Any way it seems we both are looking forward to many months of rehab so I wish you the best of luck my friend. Cheers Stuart 🇦🇺

[@domelightspider6504]

Thanks for helping to bring light to a world that needs it. My story is similar to your story.

[@CharlieParker1959]

I had ankle fusion and sub talar fusion after crushing my ankle in permanent pain for25 years and in another routine appintment after25 years I had a LBK amputation had a nasty fall just after the operation and totslly destroyed and hip resulting in a permanent wheelchair as leg couldn't tolerate a prosthetic And like you after a couple of years got divorced unlike you my wife couldn't cope with the fact I had lost a leg and went very bitter but i am still around have a Happy New Year to you Jo...

[@kreatywnanazwa1913]

I love the outro music!

[@thomasbailey1265]

Thank you for sharing your story. I'm living with a failed ankle fusion now, similar to you, as I have pain everyday. It's just some days are less than others. I'm increasing looking at my next op being an amputation (I'd obviously prefer an op to work and take my pain away) but I'm expecting my first child and don't want me to hold them and their childhood experiences back. Unfortunately it's my right ankle and I drive for a living so I'm scared that will need to stop. Every night seems to be a research hole, in trying to find a solution. Videos like this give hope, thank you.

[@CailSoria]

I’m getting my ankle fused next month 😬 This video is super helpful! Thank you!

[@sonjab654]

May your ankle recover swiftly :)

[@CailSoria]

Sonja Barnard thank you!

[@jaydenmcgrath729]

Y

[@carmenalmonti6861]

I need an ankle fusion. I’m scared after seeing this video and the comments lol.

[@CailSoria]

Carmen Almonti I hope that you find peace in the procedure even though it’s incredibly difficult! I will be doing a series on it really soon in hopes that it will help people in a similar position 😊 Stay strong I hope that everything works out for you

[@SandraWeatherhead]

Had my fusion September 1 23 and I am still working on it going to PT going to my doctor some time I get so deppres I like the video keep up the good work on your self

[@darlenelovell1329]

Thanks for sharing your story. I have fibrosis dysplasia in my rt femur. My first surgery was when I was eighteen years old. They grafted bone from the fibula and hip to the upper part of the femur, they had to remove an inch from the femur, and they cut some nerves in the fibula, which resulted in foot drop. They keep wanting to fuse the right ankle, but it puts to much presser on the femur which could result in a broken femur. If that happened I would an amputee from the hip down. So hearing your story just confirmed that for me fusing the ankle is not a great idea. I'm 68 years old and a brace that allows the ankle to move up and down is my best solution. You sharing your story has been helpful to so many times.

[@hogaiakbari1596]

Thank you so much for this video, recently had my 2nd ankle fusion surgery. I’m still in a cast and hope that this time my joints will fuse together. My first couple of weeks of recovery were extremely painful. It’s not fun to be in bedrest but I’m ready to pay this price.

[@clintgruzalski1233]

Hi Jo, I just found your channel a few months ago, in April 2022 I fell from a ladder and severally fractured my right ankle as well,I suffered the worst break possible completely breaking my foot from my leg, I had surgery the following afternoon and unfortunately after a few months got on it to soon and it shifted,I have delt with it best I could dealing with the same issues you had, swelling, hard put jeans on, pain etc, last week it started getting very red and I found I had developed a very severe MRSA infection in my ankle that started spreading throughout my body, I am currently in the hospital fighting it, fortunately my doctors are treating the infection very aggressively and I am actually beating the infection , I have had as of now over 40 bags of IV antibiotics and will survive the infection, unfortunately they did have to remove my foot to get rid of the bulk of the infection out of my body ,I have a second surgery tomorrow 7/19/23 to finalize the amputation and to ensure infection is all removed and closing up my leg, they plan on starting to fit me for a prosthetic in about four weeks I will be definitely watch a more of your videos so I know what to expect in the coming months as I recover from this injury

[@stevejoseppygreaves7534]

Had 2 ankles fused, my right ankle hasn't gone well so looking to having it amputated. Hope my quality of life improves after that.

[@racheldesselle]

Omg I'm sorry hope it goes well for you

[@bladess1000]

Hi Steve, sorry to hear about that how did it go? I am looking to get my other ankle fused, what was life like with two fused ankles and how did it end in an amputation?

[@stevejoseppygreaves7534]

@@bladess1000 hi Sean, life definitely changed after having 2 ankles fused, simple things like bending down to pick something up becomes nia on impossible. Going up and down stairs, on and off the toilet lol, they all become a struggle but do-able. I think because I was born with clubfeet which I had corrected it has impacted me on how my ankle fusions healed. My left one went great but my right not so great. Had a couple serious infections which put me back in hospital, I nearly lost my foot just through that but pulled through it and now can't walk on that foot so great which is why I'm seeking amputation which will be better for me in the long run. It will give me a quality of life back, be able to go for walks with my family. Cant do any of that right now so when this whole corona virus pandemic is over that us what i shall be doing. I'm only 37. How old are you and what causes you to have your ankle fused?

[@NickSerritella]

Going for ankle replacement. They've made terrific advances last couple of years. With considering

[@chrisodom6085]

@@stevejoseppygreaves7534 im only 34 and i had a very bad motorcycle wreck which completely tore my talus up and there talking about fusing just my lower joints first but reading these comments i dont know if i should or just deal with the pain.

[@jayallen7368]

Such a amazing and informative video thank you for sharing

[@timothypeyton3041]

41 years ago broke my second vertebrae, crushed my heel ankle lower leg in the Marine Corps five surgeries the fourth one total ankle fusion the fifth one July 17 of this year ankle replacement. I’m not doing too good thinking of amputation. Do you have any regrets and I’ll pray for youthank you for your story. You’ve been an inspiration to many.

[@earlgreyci]

Getting Jo’s add by Levitate on this video 😂💕💕💕 you’ve grown so much!!

[@bestofnick2738]

You said a few times that they cut the joint out …. In my understanding there is no cutting out joints unless for a replacement.

[@cristobalroig]

pain free life nothing like it.! you are amazing

[@bronwynnorris6278]

I started having ankle surgeries in 1970 and have had modifications done countless times. I had rheumatoid arthritis from age 4. My mobility is very limited now. My toes were straightened in my teens but they kept fracturing so l decided to have 7 toes removed the pain us a lot better now.

[@laurenhawley4066]

Wondering if anyone else has faced something similar to me. Sprained my ankle when I was 12 (2012), and after that I would continually resprain it to the point where it wouldn’t heal. It got to a point where I couldn’t take a step without it giving out on me. In 2017 I fell and severely sprained it, and then fell again 6 months later and snapped what little was left of my CFL and ATFL. Had surgery May of 2018, and what was supposed to be a double ligament repair ended up being a partial reconstruction and I had an internal brace placed as well. Because of how bad my ligaments were before they completely tore, my fibula and talus (I believe was the second bone. It was the middle of my ankle) had shifted place. The end of my fibula was almost completely level with my heal bone, and there was a fairly decent sized gap between some other bones in the middle of my ankle that wasn’t supposed to be there. Flash forward to December of 2019 I had a revision surgery to remove internal sutures, and there was a ton of scar tissue that my surgeon cleaned out, and also did a tendon release as well, for the second time (did it during the first surgery as well). It’s now June of 2020 and I still have a ton of pain in my ankle, primarily in the spots where the bones were manipulated during my first surgery, and also don’t have any feeling around the incision (normal) and all down the side/top of my foot from the middle toe to my pinky toe due to a compressed nerve from scar tissue. My surgeon said the pain and numbness I’m having will likely never go away because of how bad the damage was and how much he had to manipulate my bones in the first surgery. I’m studying forensic science and am going into my senior year and have to be able to be on my feet, but the pain is so bad most days I walk with a cane (also have an autoimmune disease so I use it for stability as well). I’m at a loss for what to do. PT doesn’t work, scar tissue massage doesn’t work, acupuncture, pain meds (can’t take narcotics because I get terrible migraines on them), ice heat you name it, it doesn’t work. I’m 20 years old and have been dealing with issues with my ankle for 8 years now, and I’m really getting tired of it. My surgeon said with how much scar tissue was built up in only a year and a half there’s a possibility I’ll need more scar tissue removal surgeries in the future. I want to be able to run and play volleyball again, but some days I can barely walk because of it and I’m at a loss.

[@josephmayfield2556]

Sorry how are you

[@sarahh715]

Hey Jo! I’ve been recovering from a wreck for 2 yrs now. I’ve had 20 surgeries. I had a shattered ankle, tib fib open compound fracture, fractured kneecap, torn patellar tendon, torn bowels, perforated abdomen, punctured spleen, fractured ribs, fractured spine, neck injury, TBI, and PTSD. I’ve had multiple complications to include bone infections, dead bone, and malunion/non-union of my RLE. My ankle is self fused but it’s still very painful and it feels like someone is stabbing me even when I have it elevated, I also have a bone chip in my knee that’s floating around and hitting my patellar tendon, and my tibia still hasn’t healed. On Monday, I’m talking to a new dr about the complications and amputation (my dr is deployed). I’m really not sure what all to ask. It would be great if you could advise me since you’ve been through limb salvage and amputation

[@khushboogulati2130]

I'm so sorry you had to go through all of that! You're so strong and so amazing! ♥️

[@sarahh715]

Thank you!

[@gilbertmcquinn8765]

I'm very glad to watching you smiling. I hope aways be happy

[@LouiseFranksArt]

I'm sorry you had to resort to what I consider a drastic solution. However, despite the initial products that you have had, I do think you will have a good long term result. You seem very positive and I feel like you will make this work. I stumbled upon your channel and I love your positive attitude, it really rubs off on me :)

[@pauldriver581]

In formative as usual 👍

[@ginahammer6966]

I'm one year out on my fusion. You are right there are good days and bad.

[@astana524]

Looked this up cause i will need an ankle fusion soon cause of a work injury and wanted to see what life and how someone who got it went through and finding some support for things like this would be very useful.

[@leftymadrid]

Jo, are an incredible person girl! Sooo damn brave with all this! Amazing really... Your energy (the coffee?) your character, type I would love to sit and chat to over a nice large coffee lol. I know you have helped so many people, and inspired a ton as well :-) A very big huge hug from me to you :-)

[@Onomatopoeia4u]

Make sure you really get other opinions and thoroughly check out your doctor first. My wife and i were very young and niave and got her fusion done by someone who today we would never let around her foot and he completely bombed the surgery and she is now going to getting the amputation. I'm not saying to not trust doctor's, but just because someone's got a degree doesn't mean they automatically know what they're doing.

[@darrellbrown8547]

I'm dealing with a fused left ankle. Thanks for your story.

[@markfrost4785]

Your a very strong Lady may GOD bless you

[@rodyboy1263]

Hey you!! Yes you have a good day!

[@kristiehumphries1218]

Thank you so much for talking about your injury I hurt my ankle when I was 14 had 8 surgeries than when I was 18 had my ankle fused and they told me it would last 10 years and I could possibly lose it and this year is my 10 years and though it causes little pain after sitting on it for a bit and after having my second kid here a month ago and trying not to get frustrated from working out and not being able to bend it like I use to and not wanting to over use it and hurt myself again is where I'm struggling

[@Lollipop256]

I had 2 fusions done to my right ankle; (both joints are fused at the moment) I originally broke my right ankle in a car accident and it didn’t heal right which ended in severe foot drop and it sucks so bad! The pain is sometimes unbearable but I try and put on a brave face on everyday. I thought about below the knee amputation but my healthcare providers don’t think it’s a good route for me because it won’t necessarily guarantee me a less painful limb but might end up making it worse :(

[@michaelbayerl1683]

Thank you for sharing your fusion story and all the rest of your foot/ankle/amputation stories! It's too bad the fusion didn't work great for you, but you seem to have dealt with that. BTW, do you have any recommendations on other KZbin or social media creators that deal with foot/ankle issues? Personally, I'm dealing with severe osteoarthritis in my ankle and had my first surgery last summer to correct my foot and alignment, which had 12 week recovery so I too got to test out all sorts of mobility aids. +1 for the iWalk for long-term walking/standing, but it is pretty cumbersome to put on and off. So far, the surgery has helped me a lot, but there's not much cartilage left, so I'm heading for joint replacement sooner than later and probably eventual fusion. Again, thanks for all your insights. P.S. more Brian content please, if he's game.

[@turklelove77]

I had my ankle fused last November. I'd been dealing with a fully arthritic, bone on bone ankle for over 6 years at that point because of a bad break from a head on collision with a drunk driver. The pain wound up getting bad enough I couldn't walk without a medical boot to hold everything together (my tibia at that point was being worn down by the bones grinding together). Since I already had lost the up and down motion in my foot due to the arthritis, the decision for fusion was made. We even did a surgery beforehand to remove the hardware from the original break to see if any motion returned, which it did not. Between that and the fusion surgery I was off my foot for many months. Now almost a year later, my foot is still in so much pain. Some days are better, but if I do pretty much any walking (like 1000 steps or more) I really pay for it. I'm not sure what the fusion did except I assume stop my tibia from being ground down and my leg essentially becoming shorter. I have additional pain that runs down the top of my foot (that honestly can wind up feeling like the bones of my foot are breaking or broken. Just sharp, awful pain). Plus, I still have ankle pain, and at night as I'm falling asleep a lot of nights, my foot will jerk so hard I wake up screaming out in excruciating pain. I'm super slow moving, walk with a cane to try and relieve some of the pressure on my foot, and just all around miserable. My ortho doc says pain management is the only other thing now, which is a big non-answer to me. I'm only 45, and have a family that I want to be able to go places and do things with. I'm reallllly considering amputation at this point, hence why I found myself here. 😢

[@brittanywoodman6559]

I was born with a fused ankle on my left side

[@FootlessJo]

Brittany Woodman oh wow, I didn’t know that could happen actually! Thank you for sharing that! 💜

[@jamespalmer4945]

Brittany Woodman then you never had to adjust . Silver lining

[@brittanywoodman6559]

james palmer very true it’s my normal

[@jamespalmer4945]

Brittany Woodman I only thought it was interesting and actually inspiring since people on here know they’ll probably refused make me interesting to know that there’s people that don’t know anything else except being fused that’s cool so again we should be grateful

[@Rightwinger1982]

Was told today I might need ankle fusion. Thanks for this, I'm 39

[@maxhammer4067]

Why do they want to fuse your ankle

[@robertbarminski6402]

Wow this is crazy... i dealt with a lot of the same factors as you (fused ankle, ridiculous number of surgeries, etc.) I also had a bone infection that kept coming back and because the inital break that caused my leg issues (Pilon fracture) the surgeons were limited in what they could do for the infection. Traditonally they would go scrape the bone where its infected and place abtibiotic beads but unfortunately i had a lot of hardware they couldn't take out and i had a skin flap that they couldnt cut into and on top of all that the orthopedic specialist said that i had the bone infection for so long (years) part of my bone was now dead so it made it nearly impossible to clear the infection. Anyways i broke my leg in 2016 hady ankle fused and i just had my right leg amputated below the knee this past september of 2023. I couldnt believe it when i heard you describing the fused ankle because i havent really met anyone who has had one. You described it perfectly....and i agree that the fused ankle for all of its setbacks was ultimately a blessing because it did allow to us to move around relatively normally. I really didnt have a choice with my amputation...i put if off for two years and ut got to the point where i saw my primary care provider, an orthopedic specialist in Monterey, another orthopedic specialist in santa cruz and my orthopedic specialist was from ucsf and they were all telling me they couldnt believe i was still alive and that i could be feeling fine on a friday and the infection could turn septic and i could be on my deathbed by Monday morning. I knew ut was serious when i went to ucsf and i hadnt seen my doctor for over a year and i could he was genuinely shocked i was still alive. He literally assumed i had passed away. Anyways sorry for rambling. Thank you gor you positive vibes. Youre a bad ass indivdual and i look up to you

[@annieroche22]

Radiographer here. I can only imagine the pain you were in. That looks like some serious surgery.

[@jasongustus8522]

I just wanted to say thank you for sharing.

[@barbhaines2357]

I've had a triple fusion on my left foot twice, an arch reconstruction, Achilles tendon lengthening procedure & a heel realignment. This has done nothing but cause me very severe pain. I have a birth defect called skew foot which has caused my bone structure in my feet to be twisted. It feels like someone took my foot & twisted it around & told me to walk on it. I live in severe pain every day. I was told I wouldn't qualify for a below the knee amputation because this has affected my knees & you need good needs to have a below the knee amputation. I live on a knee scooter & spend most of my day sitting as I can't stand any more than a minute. I was so active & used to walk several miles every day. Now I can barely walk to my car. I've been wearing braces for a few years now & even those are not helping any more. This keeps me awake at night not knowing what's going to become of me. Both my feet are filled with arthritis but only the left one has been fused. I'm too scared to get the right one done.It really sucks when your mobility has been taken away. I don't want to have to go into a wheelchair. That to me is not living.

[@shelbynicole7730]

U are so inspiring!!!

[@deweyjamikitten771]

Hi. I have a broken ankle that I break playing soccer then I got 2 casts each for 4-5 weeks then a boot for 3-4 months, after that I started to feel better but in November after a year long breaking it started to bother me again so I went back to the doctor and they wanted a mri and there’s torn cartilage and won’t heal and it’s been two years and I’m really tired of all of this. Thanks you sooooooooooooooooooo much for the story love you!😻

[@josephmayfield2556]

Surgery again for torn cartilage??

[@Psergiorivera]

I just had my ankle fusion surgery 2 weeks ago. This pain sucks so bad. The swelling is intense. And they took marrow out of my knee which HURTS. Kind of scary to hear you say it only lasted 12 years. I just hope I never have to get surgery again. Once is enough, I’m simply too old for this.

[@josephmayfield2556]

How are you doing

[@jenwilly7260]

I'm getting an anterior ankle fusion along with a big toe fusion in about 2 months. I have foot drop, and the back surgery I had last year didn't fix the issue. It is well over a year since it happened. Ironically, I'm already used to walking heel-first on that foot. The main difference will be that I won't have to wear a brace anymore (the anterior ankle fusion will act as kind of an internal brace).

[@gagebenson1791]

I shattered my talus in a car accident and they did a subtalar and ankle fusion. I have a rod that starts in the subtalar area goes through my talus and up the middle of my tibia and stops about 6 inches from my knee. Plus 5 screws going all different ways. I've been non-weight bearing for 2½ years and still have another surgery next month. I just hope I can get some normality back to my life.

[@borisbold3477]

Thanks. I have been given the fusion option, and I am very doubtful if it will work long term for me. I'm going to wait and see if other options are available in this the 21st century.

[@RS4B7BLACK]

Same here bro 3d printed bones the way forward but expensive