Limb Girdle Muscular Dystrophy

[@marshallgibson3928]

Thank you for sharing your story!

[@murattamer4488]

Hello Mr Brad. Thank you for sharing your story. The goodness of your heart is evident on your face. I'm Murat Tamer and I'm writing from İstanbul Turkey. Unfortunately, I have lgmd. Type 2J. It started when I was 27 and I'm 37 now. Until last February, I could walk without support, although I had difficulty. In February, I fell and broke my ankle and kneecap. Since I could not use my legs during the treatment, the progression of the disease accelerated. I can no longer walk without support. I can only walk short distances with support. I also use a wheelchair from time to time. What type of LGMD is yours? Nice to meet you. Ps: apologize for my English.

[@Poetry_Nature]

Very nicely explained brad... Loved your style. I am 31 and possibly have LGMD as i haven't been able to get a good doctor to fully diagnose me. But have enlarged calf muscles and my proximal muscles have lost quite a bit of mass. No running but fortunately can walk for quite some time. That's why i walk for about 5km daily.. Iqill be checking you channel regularly.

[@ArtByPRKR]

Great video on this topic! I also have LGMD - type 2A. I was diagnosed at 15, I’m 21 now. Still walking, but I want to get a cane soon as I think that will help greatly. Love your positivity. I actually just started a KZbin channel a few days ago. It’s all about art - specifically watercolors! :)

[@bradwilliams7198]

Thanks for your comment and for sharing your experiences! There's really a lot happening research-wise in this area. And thanks for the nice compliment. I'll definitely check out your channel!!

[@RebeccaPebble]

Thank you so much for sharing your story with us, Brad! You are very brave. 😊 Way to turn the lemons into lemonade!

[@bradwilliams7198]

Aw, thank you so much for your kind words, Rebecca!!! One of my coworkers has a lemon tree in her office and I put a picture of it in a presentation I gave to medical students about my experiences. So that metaphor is now stuck in my head!

[@justy1606]

I got diagnosed limb girdle. ANO5 type 2. everyone wants to help and i want to things myself. its hard to look back at the things you built and did.And cant do now.mine hit at 35 but looking back i think it was probably 25

[@maxwagor7886]

be thankful. mine hit and diagnosed at age 15, now 23 and barely capable of getting around.

[@Envygaming310]

I have diagnosed with LGMD . And i have the same symptoms . Is there any treatment for this now ....??

[@carolrozumalski4308]

Good job, Professor! :)

[@bradwilliams7198]

Thank you, Carol!

[@hemantaraul4221]

My name is hemantaraul my prablam is limb girdel mascular dystraphy please tritmant help

[@hemantaraul4221]

My name is hemantaraul my prablam is limb girdel mascular dystraphy please tritmant help