Lipedema Landmines: How MCAS, hEDS, and POTS Show Up and Affect Lipedema Treatment - Karen Ashforth

[@Theresiliantnorwegian]

This was probably one of the best videos yet.

[@lindsaynalley856]

Thank you for researching the connections. I have been officially diagnosed with Lipedema, hEDS, and Pots but I also think I have Mast Cell. I wish so badly that there was a cure!

[@sndygskylr]

Every one of you are wonderful to give us the information to help us understand. 74, 149 lbs, spider veins cover entire legs, hurts to push on and I can feel bumps or knotted all over my legs. I don’t know what king of specialists to look for in the Charlotte NC area. I appreciate all of you for putting so much information out here. Bless you all!

[@IndigoFalls1212]

Just watched this one--love it! Thanks to the awesome Karen Ashforth for this talk! 🙂I've sent this link to several of my doctors to remind them how everything is connected...

[@_Julie_Bee]

Wow, my mind is just blown away. I have lived with spider legs all my life. Even as I was a skinny teen , I started seeing blue spider veins. As I had kids my legs got bigger, even if I lost weight, I didn't have real ankles. I'm 46 now. I've gained regular weight since 2019. 60lbs. Most from the waist down. My legs are heavy and so painful. I've been diagnosed with tachycardia at 14, pots and dysothonomia last summer, have asthma, allergies (some that can kill me others not) ,I'm lactose intolerant, have crazy guy issues, am anemic, I'm hyper mobile, and yesterday got a diagnosis of idiopathic intracranial hypertension, following an eye dr appointment where she saw œdema on my optic nerves. My skin does not heal, especially on my legs, I can't even shave! I could go on and on, it's crazy , I have this whole list that I'm reading on your video. I even got a long covid diagnosis and I'm now considered fully disabled. I'm speaking with my family dr on the 30th and I'm gonna be sharing her your video. Thank you so much. (Oh btw I have C-ptsd. My stress level since 2018 has been way over a level that someone usually lives with. Also means that since childhood, my physical symptoms followed heavy stress. )

[@margaretworley1116]

So, the gene marker associated with Lipedema is also seen in other subtypes of EDS as well.

[@UnaLichtlein]

OMG, thank you for that!!!!! ❤❤❤

[@sarahobaka8354]

Yes my sensitivity I’m stage one Lipedema - and have increased sensitivity for years now with no Lipedema but now all makes sense. I originally had exzena, asthma and hayfever so have been used to monitoring my use and consumption of anything - plus the reactions I get. I’ve realised my sensitivities have doubled since 2020. I’ve been managing my symptoms through my own research and also finding amazing resources like yours to help keep me in good health until more can be done to support. There are very few doctors in the Uk in the know. Although I found a clinician who is studying this at St George’s Hospital London. I’m hoping to reach out shortly!! Thank you for all that you are Donna for this very under researched and supported condition.

[@janonthemtn]

And medical insurance does NOT want to pay for treatment in NY and most states.

[@Lympha_Press]

Thank you for the comment. We do find success obtaining coverage for Lympha Press and would be happy to work with you if you are interested.

[@sndygskylr]

Will you recommend someone in the Charlotte NC area for Lipedema? I really want to get checked out. Thank you Very much for your informative video!

[@shoshanachavab]

Thank you sooo much for this. I have all of them including fibromyalgia. But what to do with this. Oh dear. I use Velcro stockings as my skin tears. I fall get giddy and have all the gut issues.

[@Lympha_Press]

We are rooting for you, and if we can ever help with regard to Lympha Press, please reach out to us at [e-mail]

[@ijustchangedmyname7794]

Damnit! I have two of these; it never ends with EDS and POTs

[@cindyneri579]

I’m looking for information on lipedema and CIRS. I’ve got both but neither has been diagnosed by my MD’s. None of my specialists seem familiar with either. I’m a chiropractor and have only been able to self diagnose after extensive research. But finding treatment to improve my quality of life has been elusive and unaffordable 😕

[@shannongreenwell1278]

I have cEDS and Dysautonomia and I have been having trouble with swelling in my legs and my feet ( lymphedema) and I have been told by my Neurologist to wear compression socks and drink water and to drink electrolytes in moderation. I also deal with MCAS. I’m Allergic to Heparin , and many other medications. I COULD have hEDS as a crossover because my dad was hyper mobile as a child and he shows MANY symptoms of hEDS as a Adult. I have a bad reaction to heavy solutions and perfumes and CT contrast solution.

[@maryr7593]

Listen to vids with Dr Lawrence Afrin....as he says that the majority of the ppl who claim medicine intolerance....it's not the medicine, it is usually always the fillers. You need to talk to pharmacist to get different fillers in the rx meds...try different rx meds with different fillers and see which ones you don't respond to...and then get a month's worth of rx. Make sure pharmacy will always create your pills with the fillers you do not react to. Dr Lawrence Afrin explains this in the Chemical Sensitivity Podcast.

[@desiree3488]

I have my first appointment for lipedema on the 9 th of November. Do you have any questions I should be asking when I see the doctor?

[@vivianmeiers769]

Cryotoning - any research on this new technology

[@fnhc2023]

….just don’t eat….it’s only thing that works and gives relief…

[@simmiedavissimmiesings8185]

It actually is shown that fasting correctly helps dissolve lipomas, regulates hormonal management, and is a host of other incidences of relief

[@CovaRevival]

Most of these issues are from mold exposure, heavy metals, parasites, Lyme and fungal infections.

[@mgyulai1417]

Well there's a genetic component but all these will make the issue way more noticable. Anything inflammatory (such as all these toxins and pathogens) will cause flare ups and symptoms.

[@sweetcharlemaigne2335]

which is what is all behind POTS - makes complete sense

[@maryr7593]

Chlorine can be too strong for someone wit a chemical sensitivity....creating a reaction.

[@fnhc2023]

No doctors have this kind of time…..neither does functional medicine. Good luck to all!

[@girllittlemorbid]

When I was in my 20s I had severe chronic, idiopathic hives, I have IBS & GERD, I'm wondering if I have lipedema & I'm being tested for POTS 🤔