Live Your Life, Don't Just Survive It

[@koopakate8842]

Your tribute to Jaquie was wonderful ❤️ thank you for sharing about your experiences, we’re with you!

[@davemcdaniel33]

I've been watching your journey for a long while now, and blessed to be distantly along with you on it. It great advice, as usual. You have such a great soul, and your passion for life and our endless pursuits of happiness is refreshing. It should stand as a model for others. I look forward to the next video, no matter the content. I think that the "life besides illness" is a great idea. In fact, I think if people are comfortable enough that we too should step out of the shadows. Take a large, unified step into the sunlight and let everybody know that we are not just the illness but that we are so much more. I'm writing this with small tears in my eyes. You are an inspiration. I'm glad that you finally allowed yourself real time to live life. God bless you, and God bless us all.

[@sophiasideris9082]

I'm happy your doing better. I on the other hand am up and down with NCS. I saw a medicine bag on your last video. What meds do you take? I am desperate and need to know, cause the doctors that I have gone to have no clue. Please message me when you get the chance.

[@Dreamer5211]

Hi Diz , thank for the video , it was so nice to see you happy. I first corresponded with you vis You Tube comment for the tribute you did for Jaquie , still sad. You had mentioned a Q/A , that would be GR8 !! I am curious does your dysautonomia , ever cause you to be overly anxious about simple happenings in life or do you find yourself getting depressed for reason other than your illness and one last Q , do you suffer from times of simple tachycardia as well ? I need to add , please do not feel you must answer any of these intrusive questions , you would not lose a new fan !! I was looking at who you follow and you are a "Frey Life" fan as well , :) Anyway , thanks again for the uplifting video , take care , Gary. 

[@DizzyDazeofLynnea]

I am defintely a Frey Life fan! She is always brings a smile to my face and her resistance and optimism are something I resonate with. Just to clarify, when you are asking about getting depressed for reasons other than my illness, can you elaborate? Like depressed about my future because of the result of my illness or depressed for reasons completely unrelated to my illness? I want to answer your questions as thoroughly as I can !😄

[@Dreamer5211]

Hi@@DizzyDazeofLynnea, Yes of course , sorry about that . I had read on wikipedia that dysautonomia can cause bouts of depression / anxiety and tachycardia , and was wondering if you sadly suffered from any of these. I have autoimmune disease , and have to deal with arthritis and psoriasis , as well as seasonal allergies , all autoimmune aliments and lately I have had bouts of tachycardia , EKG says nothing , but when may heart goes pitter / patter , I say otherwise !! LOL , never any discomfort just the annoying high heart rate . I might add it is ( at least for me ) so hard to find a doctor that can help , they all want to discount everything has if to sweep it under the rug so to speak. I have dealt with anxiety and depression for a number of years ( or decades :) ) , only to be exacerbated by complicated grief syndrome over the passing of my parents not recently passed. Thanks again , and to bad about Mary , I sure hope there trip to Duke will be able to help , thanks again , take care , Gary 