Living With Harlequin Skin - One Of The Rarest Skin Conditions In The World | Body Bizarre

[@ReallyTVuk]

Subscribe to REALLY for more great clips: bit.ly/3kuIVkV

[@EDGARG-u2i]

Tf yo

[@learnglobalmapper]

the real snake man

[@sarahusrey-ld4zu]

no one can make fun of her, cuz shes got a thick skin!

[@lolmmm7150]

Clickbait, dislike

[@rock-bottom2023]

I'm so glad she was able to get married and raise a family. And I am incredibly impressed by her resilience and hopeful attitude. An Absolutely Amazing Woman.

[@KalashDaCat]

Im just wondering, how do they... you know?

[@mh-tb9lu]

She had a 50% survival rate!! Insanely incredibly. I’m 25 years old, her age at the time of filming.. I struggle with other health issues I can barely overcome to the level she has. She’s amazing. I hope she’s well now

[@mh-tb9lu]

@@KalashDaCatreally none of our business. We know all the ways it’s possible. That’s all we need to know. People probably wouldn’t ask you how you and your partner had your children.

[@spunkysparks1779]

Why does a scene like every woman's goal? Is define love get married and have children. Can't women find a career travel the world and live a full life, That way too?

[@stacysmith7387]

@@spunkysparks1779family is more important than you know.

[@margaesperanza]

Stephanie unfortunately passed in 2017. As sad as it may be I’m glad she got to experience love and motherhood with her short time on earth.

[@20PINKluvr]

How? Bacterial infection?

[@margaesperanza]

@@20PINKluvr was never elaborated by her family aside from her passing being too “sudden”

[@M8tallicJi8ngshi]

Oh come on, you serious? I was hoping she be alive and live happily.

[@alliezimmerman1287]

How do u know??

[@jaysmith9933]

​​@@alliezimmerman1287google "stephanie turner harlequin ichthyosis" and articles about her death will come up. Sad part is she died at age 23, same age she was in this clip, so she died very shortly after this.

[@maidinulster]

The look in Stephanie’s husbands eyes tells the story that she’s the wonderful beautiful girl we can all see. Blessings to your lovely little family ❤️💙

[@Ausgar-yc1yl]

She passed away a few years ago.

[@mary-annesade]

@@Ausgar-yc1ylthat’s awful :( may she rest in eternal peace

[@Ausgar-yc1yl]

@@mary-annesade She seamed like such a nice girl, such a warrior.

[@donalddonney1595]

Little family?

[@Ausgar-yc1yl]

@@donalddonney1595 DO you not know what a little family means?

[@АндрейП-у1ю]

This is really an old video. Unfortunatelly, Stephanie passed away unexpectedly in 2017. Bless her soul❤

[@mitocondri-nah]

So sad... 💔She was an amazing person

[@mamc1986]

That’s sad, but at least she got to get married and have children.

[@trying3841]

She died at the age of 23. So sad! I hope her husband and kids are ok.

[@jordansawolf8091]

⁠@@trying3841she was actually 30, here she was 23. 13 years ago is when this was posted

[@danieljung785]

With what time she had, she got to experience love and motherhood ❤

[@bones1568]

Stephanie seems like such a sweet,courageous and loving woman I love that she makes the most of her condition it’s really inspiring

[@LegitimateW]

yeah, can we make it together?

[@cannibalbunny]

She’s dead

[@pe9ch3d]

@@cannibalbunnythanks man

[@eloyceforrest1026]

As a medical professional this video was very informative. I see the comments of her passing in 2017. She was an incredibly resilient person. Glad she got some happiness with being a wife, mother, and a person who beat the odds on this side of heaven. I hope others will comment to keep Stephanie's story available on the KZbin timeline. Rest in power and peace Stephanie!!❤❤

[@chelseataylor5244]

Editing the thumbnail to make her skin look bright red was a really tacky choice. Shame on whoever did that.

[@lurvlay]

I KNEW IT. Yeah that’s sad.

[@goodboi1725]

Thumbnail: Kool-aid woman Video: Girlboss makes history because of her resilience to adversity Really, shame on whoever created that thumbnail.

[@vxrdrummer]

Welcome to the world that we live in. How to get the most clicks by being the most shocking or over the top. Who cares about the consequences. I hate how the world is going in that respect. Its always been like that I suppose, but now literally everyone can chase the dream by being scumbags and being underhanded because of social media. It used to be just the tabloids that we'd see doing it, but now anyone can say anything, anytime they want.

[@SaintVodou]

@@vxrdrummerTrouble is, social media doesn’t come with a warning: “CAUTION: nothing you are about to see is real…”

[@dr.frequency1716]

I thought the same thing!

[@calliejobe2919]

This video isn’t making me sad and I feel like it’s because you can feel how much she loves her life. She has a really good life despite her disease. ❤

[@decco9049]

What choice does she have? To me miserable more than she already is?

[@jayrose4748]

She passed away years ago

[@Mina_Nav]

I feel extremely sad for her babies, have to deal with this huge loss and trauma for the rest of their lives, something they didn’t get to choose.🖤 RIP Stephanie

[@levelintent]

Exactly. Her life is actually better than most people without a disability. There's no need to feel sorry for her at all. She has all this potential for infection but none of that stopped her from having sex with a man.

[@bren7067]

If the pregnancy helped, I wonder if hormone therapy can be a treatment option for this type of condition.

[@God_chose_us]

Probably but the government would just charge hundreds of thousands dollars just cause that’s what they do aadly

[@pancakepop680]

Pregnancy helped mentally - she wanted kids. And pregnancy does not work like that. You're grossly simplifying it to something completely different and unique .

[@danieljung785]

@@pancakepop680dont be mean, bren is a kind person who’s trying to think of new treatments from possibly untested fields. As a scientist I admire their curiosity.

[@dynamicentry6157]

Pregnancy is an amazing thing, it changes women physically in a good way.

[@ubahfly5409]

You're absolutely right. They should definitely investigate further. Good call.

[@kerrink6115]

I was so happy for the first woman who was able to have children, even better that they are healthy and won’t have to suffer what their mother is going through. Both women are very strong. I wish them both all the best.

[@kelllefae3026]

She passed away in 2017

[@touchedmepickles5744]

@@kelllefae3026😢

[@Johnaspwnz]

Her children have the genes.

[@user-yr5yl6zt5l]

they'll die out eventually@@Johnaspwnz

[@illyGalSloth]

@@user-yr5yl6zt5l I hope you mean the genes and not the children...

[@gabrieltirado6255]

Unfortunately she died in 2017 but her strength and mentality is impressive, rest in peace Stephanie, brave girl!

[@ericcarterofthehillpeople]

I hoped you were trolling but nope. RIP.

[@siradro]

Bless her. She made all her little 'miracles' with her resilience and personality.

[@missylou725]

I've seen something on Stephanie before. And now she's a wife and mother! That's amazing! I'm so glad she has been able to have this kind of happiness.

[@kelllefae3026]

Till she's died in 2017.. bless her..

[@lightninggaming016]

Ahhhhh she passed in 2017 😞

[@missylou725]

Oh, wow...I didn't know! So sad. Thanks for letting me know.

[@BigIndianBindi-jy1cz]

she has a family that loves her. she feels loved. that's how she's able to survive and smile. when you're loved, you have power. when you are neglected, you have depression.

[@Ausgar-yc1yl]

She passed away a few years ago.

[@KalashDaCat]

@@Ausgar-yc1yl Why? Was it because of an infection?

[@Ausgar-yc1yl]

@@KalashDaCat I really can't remember, sorry.

[@diannaperry8116]

Stephanie has a beautiful smile. She is a beautiful woman inside and out. I am so happy for her to have her healthy babies and I wish nothing but good things for her and her lovely family.

[@robosing225]

she passed in 2017. rip.

[@ryanburks2480]

I can’t imagine the bullying she went through at school. Very strong girl

[@Александр-ф9ц8д]

может их и не было

[@SinfulKitty]

i dont think kids would bully someone with a skin condition

[@ryanburks2480]

@@SinfulKitty you must be an alien then or just trolling

[@SinfulKitty]

@@ryanburks2480 In my school kids weren’t mean to disabled kids

[@midnight5592]

​@@SinfulKitty I was bullied over a tiny mole I can't imagine a whole skin condition

[@ElizabethHernandez-zj9oi]

Stephanie is so awesome!!! Her personality and resilience makes her even more beautiful!!! I hope they’re able to find a remedy or cure for her to feel better and suffer less pain or discomfort. She’s a beautiful miracle ❤️🙏❤️🙏 PS. My most sincere and deepest condolences for her husband and entire family and loved ones. 🤍🤍🤍 Rest in eternal peace, Stephanie 🤍🤍

[@Ausgar-yc1yl]

She passed away a few years ago.

[@Skatejock21]

she is resilient and a blessing is that she does not know any different. I have eczema thats pretty bad and when you dont know any different. There is a blessing in not being able to compare (meaning compare to not having a skin disease), when that is all you know. I dont know a life without cracked skin, itchy all the time, rashy. Sometimes it makes life miserable and every day it impacts my life but thats life. I would think she feels the same. Its just part of your life. I am like her to a different extent that I constantly lotion my body daily, I dont have a protective barrier like normal skin. So my skin soaks up lotion like a sponge. You are on a constant hunt to find lotions that are not thin. With my condition, I look at her and I feel for her. I may not have her condition but I have consequences that are like hers to a different extent. Open wounds, peeling skin, super dry skin is what other skin conditions share and its not fun. Its like my condition on steroids. There is no cure for eczema, so I dont see there being any cure for hers. When both are genetic. Even psorasis is a sibling condition to eczema and there is no cure for that. Pain is real with skin diseases and doctors do not understand the relationship between pain receptors and skin. I have spent months in terrible pain. Cant sleep and cant shower. Wearing clothing can be a hardship but I do it anyway for obvious reasons. You want the pain to go away but it doesn't work like that and not as fast as you want it too.

[@Ausgar-yc1yl]

@@Skatejock21 She passed away a few years ago.

[@America-ev4rk]

That guy is an angel. I love people like this. God bless you sir.

[@momof4kids735]

What incredible young women BOTH Stephanie AND Julie are! It goes to show how much the human will can accomplish, even with disabilities ♥️

[@Messier45_Pleiades]

All the best to this wonderful young woman, Stephanie.

[@ismewhat1234]

The first story blew me away I'm glad that she's living her life as normal as she can to be happy as possible❤God bless them in life 🙏

[@seinfarage9959]

Amen 😊

[@Ausgar-yc1yl]

She passed away a few years ago.

[@ahsaiiara]

​@@Ausgar-yc1ylbut this was uploaded 8 days ago 😢 are you fr

[@Ausgar-yc1yl]

@@ahsaiiara Grow up. This is OLD and the fact is she DID die in 2017. Get over it.

[@ahsaiiara]

@@Ausgar-yc1yl wtf dude. Who hurt you. I was just asking. Is there any of my words offended you? IM SORRY. GROW TF UP YOU

[@SaharaColeman]

Aquaphor should send her free Jars of the ointment and put her on commercials. 🤞🏽

[@sakurahirawa]

She passed away in 2017 unfortunately.

[@gisellebeas2384]

@@sakurahirawawhat whyyyyyy

[@christhomas2669]

Bless you young lady. You have a beautiful spirit , I love your sweet voice. You have a fantastic Mom ❤

[@cittiavaticano]

what a strong woman. this is what strength looks like

[@lennonhorbury]

She looks nothing like the thumbnail

[@SunflowerAna-g2j]

Yea the editor of the video made her skin bright red in the thumbnail

[@GG-sk3tw]

They should study what about pregnancy made her skin feel better. Maybe something with her hormones helped her. Maybe they can use findings from that research to help others with this disorder.

[@namesareboring2009]

Maybe the pregnancy stretched her stomach out to such a point that it made it easier to stretch and move. Like when you outstretch a spring and it remains stretched out.

[@zerokero3738]

@@namesareboring2009 pregnancy isnt in the stomach and babies dont grow in the stomach. babies grow in the womb. the stomach is a digestive organ. completely different.

[@Izzy-cp8yt]

​@zerokero3738 the stomach skin still stretches during pregnancy...

[@zerokero3738]

@@Izzy-cp8yt yeah but their wording made it seem like they thought thats where the baby grows, etc.

[@Izzy-cp8yt]

@@zerokero3738 it really didn't, actually. "The pregnancy stretched her stomach" is nearly exactly the same as what I said.

[@oeb3847]

This skin condition looks exactly like a severe burn. It also looks to me like it's very painful, it must be hard to deal with that everyday.

[@iTsEfFiNsTePhh]

For sure, i've heard of this condition before and heard that friction and touching can make the skin even worse so i'm surprised she was even able to have sex let alone actually wanting to can't imagine how uncomfortable that would be.

[@namesareboring2009]

@@iTsEfFiNsTePhhshe probably didn't have sex but rather went with alternative routes to pregnancy.

[@ptrco5]

I truly hope they will find a cure for this condition. Much love to Stephanie and family ❤

[@RS54321]

Diet would affect this condition immensely. I wonder if she's gone this route extensively?

[@benny1089]

​@@RS54321it wouldn't make a difference

[@trilikvlt]

@@RS54321Diet ? Affect this *genetic* condition *immensely* ? I feel that, it was that effective, we’d have known about that… Do you have a source for this ?

[@Anna.T.]

According to some comments, she apparently sadly passed away in 2017.

[@theenlightenedone5429]

they probably wont since not many people are suffering from it. Doesnt make sense to fund research for rare conditions when it will only benefit a very small population.

[@F4xP4s]

I went to school with a guy that had this condition. He was very misunderstood, and a good friend.

[@Fluffles15]

That looks really painful, I wish there was some sort of treatment to make it easier on her and she didn't have to worry about any problems. Truly brave woman, and yes she is very beautiful. I wish her a long healthy and happy life!! ❤❤❤❤❤

[@pealily28]

She died in 2017 😭

[@Fluffles15]

@@pealily28 oh no! Really? 😢

[@momof4kids735]

This is one of the best stories I have heard in awhile! God bless this family and please keep them ALL safe. Stephanie is such a motivator for the rest of us 🥹🙏♥️🥰

[@robosing225]

She passed in 2017. about a year after they got this footage. r.i.p

[@MaiCohWolf]

Stephanie is a delight! I can see how she captured her husband's heart. She's adorable.

[@BroTheDude]

What an inspiring woman. It's easy to get down on ourselves and think we have it bad but seeing someone like this living their life to the fullest really puts it in perspective

[@soonerredtx4896]

What a beautiful family. Stephanie is amazing. I wish her and her family wonderful things.

[@momokoblue8032]

She passed in 2017

[@janicedevereux2839]

As an eczema sufferer how dare I complain. My eczema is my hands and wrists, and then it stops. I know how painful cracking is, I could not imagine the pain of her skin condition…. However, what nobody can take from her is her gorgeous lips and smile. People pay a lot of money for lips like hers and they are beautiful… And just look at the children she made…they are gorgeous, especially that little girl… She is so so cute ❤️

[@RS54321]

I encourage you to change your diet to heal your eczema. The skin is the window to internal health.

[@jp8649]

@@RS54321 Ugh. This is such a gross comment. Stop. You have no idea wtf you're talking about. Anyone out there who sees things like this please do not get discouraged when changing your diet does not help, you aren't the problem. Ignorant people like this are. Listen to doctors who specialize in your illnesses and not youtube comments from random people who think they are armchair specialists. Doing so could cause you harm. Your diet is your and your doctor's business. No one else's.

[@ichiban6004]

Going on carnivore diet cured my aweful eczema

[@RS54321]

@@ichiban6004 I believe you...I've heard many stories of people's disease/illnesses being fixed/cured by going Paleo, keto, or carnivore. That darn sugar does a number on the body. I had horrible eczema on my hands as a teen/young adult and my doc said I'd have to be on a steroid cream the rest of my life. When I told her 'No, I won't' she got defensive/angry. Lo and behold, my eczema cleared up when I went off sugar and dairy. Here is one of the worst cases of eczema I've ever seen, and it's sickening how the doc doesn't talk about diet at all...just pushes medication as though that's the only option. kzbin.info/www/bejne/Z4asnZSZrap7hMk

[@theiceyhawttstunna6631]

I also have eczema pretty bad and watching this made me realize how good I have it. I think Stephanie is a strong and positive woman

[@jazzew]

Ahhhh, blessings to both Stephanie and Giulia! I hope your days continue to be uplifting. ❤

[@xx133]

Imagine someone coming up to you and saying “you look so bad that I feel compelled to pray for you.” 💀

[@lisabaltzer4190]

The person who did that only meant it for good. His heart was in the right place, even though it could have been better if he just prayed for her without saying anything to her.

[@zerokero3738]

@@lisabaltzer4190 its just rude though. anyone with common sense knows that thats rude. and yet he still made the choice to do that.

[@thisdude9363]

​@@zerokero3738They were thoughtless but meant well. No excuse for being an idiot for sure. I would pray for her if I saw her too, but I'd do it quietly. There's no need to go up to someone and say something like that, it can only sound demeaning.

[@zerokero3738]

@@thisdude9363 exactly. like thats not just something you go up to a stranger and say, or anyone really. like i get that there were good intentions but they clearly werent using their critical thinking skills in that moment lol

[@usern0th1ng]

she got married and had kids thats amazing aww so happy for her and her healthy babies

[@nicole4659]

She passed away in 2017

[@frozengamer3030]

@@nicole4659really that’s sad

[@jojo_carmine91]

This gave me hope believe it or not and made me teary eyed. I almost had my left eye removed and doctors saved it. Essentially I lost vision and my left eye is very red and cloudy at the moment. Point is although she had this all her life she answered some questions of my own such as will anyone love me like this? It's realllllllllllllllly sad when you get thoughts like this because it shouldn't be this way. Just because of a condition or due to trauma your situation shouldn't define you yet those who have suffered tend to let it hold us back for however long. I've been hiding for two years because of my own trauma and we're both alive. I may not have kids or a man but it's alright because the man will come along. I wish her family love, luck, and support. Thank you for your story Stephanie.

[@SraTacoMal]

0:59: This is one of the cutest baby pics I've ever seen, I just wanna hug her~

[@deric4208]

She is beautiful no matter what her skin looks like it’s what’s on the inside she is beautiful just the way she is god bless❤

[@klonaya]

Before the social media etc. Stephanie had this small blog of hers that I used to follow her, she was the best person ever. Rest in peace, Stephanie.

[@asniffer6532]

Stephanie kids might have a great destiny to fullfill. Even with that really rare disease, she not only managed to find love since early but made two healthy kids. That is a miracle, a miracle of science or whatever you wanna call it. Truly amazing.

[@judgejase7583]

Wow, Stephanie is amazing, truly a shining example of what is best in human beings and of their resilience. You get a life and make the best of it, no matter the cards dealt, and she has done & continues to do amazing things. God Blesses this lady.

[@_mar1elle_edits]

She died :((

[@Delsey77]

I love how genuine giulia seemed when talking abt her life and happiness

[@Babygirlyouretheheart]

The thumbnail color change was unnecessary

[@willow7791]

Stephanies smile is so beautiful and heartwarming ❤

[@bobastu]

I wonder if the development of the child in her, as mother and fetus share so much, was the cause of her improvement. Was the fetus providing a biological component his mother was deficient in causing her condition??

[@elizabethforsyth3054]

I have heard that the baby can send stem cells (I think) to heal the mother, think this is pretty new research.

[@bobastu]

@@elizabethforsyth3054 time to check the journals

[@tashastarling6573]

Maybe sharing cells with her baby helped improve her condition while pregnant. Which is very interesting for finding a treatment someday.

[@StrangerThings_YT]

She is in heaven now😢, god bless her family❤

[@birdOfswords]

she has a wonderful attitude. we all know people who suffer far less and still dont have a good word to say.

[@melaniegonzalez9005]

Rest in peace Stephanie ❤

[@noah_am_i]

Both woman are incredibly strong. Amazing video. Love the positivity. ☮️

[@lg8365]

Really makes a person think how lucky they are! What an incredible mother, wife and person!!! ❤

[@seanblanchard3333]

Stephanie is a wonderful example of what you can do with sheer will and determination. Against all odds, she is living her best life and I am glad for her. This not what you can't do with what you don't have, this is what you can do with what you are given.

[@SillyLilJesterWithABowTie]

Rest in peace Stephanie❤

[@BlitheApathy]

I understand the fear. I have a rare chronic illness that requires a port topped with a crap immune system. So I live a life of the constant fear of infections. Ive gotten a part of my jaw rot away and has had sepsis FOUR times over my life of 33 years. My doctors say Im super lucky, Im only still alive because now we know what the small beginning signs of a growing blood infection. Thank goodness for modern medicine. But I'm not unscathed, my heart valve was eaten away and I have a liver of a 50 year old alcoholic from all the nuclear antibiotics an harsh meds that I needed to save me. Ultimately I learned you just got to cherish every day you got.

[@MassimoStorytellerGuide]

My most sincere congratulations to Stefanie. Amazing, inspiring,

[@ptrco5]

I wish Julia the best, she’s very courageous ❤

[@Dontmind8]

Sadly she died in 2017 :(

[@ptrco5]

@@Dontmind8 Very sad 😔 I recently found out ❤️ May she continue to rest in peace.

[@pappapomo696]

​@@Dontmind8stephanie died not giulia

[@Mia_Mar1a]

This is beautiful! Her babies are adorable, and her strength is amazing! But whoever made her look redder on the thumbnail like bro have so,e decency

[@cookncaleb]

Sadly, Stephanie passed away in 2017, it made the news in Arkansas ☹️

[@ahsaiiara]

Whattt so it is real 😢 the other comment said thay she passed away is real 😢

[@Ausgar-yc1yl]

@@ahsaiiara Gee, you came after me and YOU were wrong. Don't you ever come after me ever again. You have a real serious mental issue. Get help.

[@Angelo-pz7zp]

why they would release this video 11 days ago and omit that she died? :(

[@jaysmith9933]

​@@ahsaiiarayeah it is. Sad part us her obituary said she was 23 years old when she died, the same age she was in this video so she died very shortly after this.😢

[@F00tsie]

they even put it in the description that she "lives with..." like legit didnt want anyone knowing. @@Angelo-pz7zp

[@Hypnotix7]

This is so uplifting watching something positive. Too much negativity on social media and I just love hearing stories like this. God bless you Stephanie and your beautiful family! You got this beautiful! ❤

[@ConGamePro]

The man who married this woman is a real life angel. I wouldnt be worthy to be in the same room as someone that amazing.

[@AlexandarShmex]

What a special person, both her and her husband. The lord blessed them with two beautiful children, it brought tears to my eyes. I edited my comment after seeing that Stephanie passed away. It's sad, but she also did what nobody else did - she brought two beautiful children into the world as someone suffering from such a difficult disease. May she rest in peace, her family and children have every reason to be proud of her.

[@zeliacosta1988]

She's a beautiful young lady and happy God bless you and your family 💕🙏

[@Panthersee]

Seh is absolutly fantastic! God bless her!

[@chrisnewberry4646]

I'm glad you are doing as well as you are. You are a very strong woman. God bless you and your family even more in the days to come. Have a blessed weekend and I hope to hear from you soon please.

[@chrisnewberry4646]

Good evening ,thank you for responding to me. I was surprised!

[@michaelsurratt1864]

She dead

[@JamieBrandes-k6n]

This is so encouraging and awesome I am just so happy for her and her family. She doesn't let her disorder discourage her and it's really amazing.

[@itgetsworse4667]

Aww this warms my heart! im so happy shes living and happy! she deserves the whole world fr I hope her and her husband go off into the sunset like Disney characters!

[@mustbebrando8634]

God bless this girl. She has a beautiful soul. I wish her the best in life

[@SundayBlues555]

We need more people like this to comment good things because tired of some of the nasty comments. Unforuantely, Stephanie Marie Moore Turner has passed away in 2017. No longer here. Left behind two kids.

[@theenlightenedone5429]

im impressed by the dude who overlooked her illness.

[@ammonite400]

She’s a beautiful soul. May she rest in peace

[@JustSomeGuyLV]

Oh God.. My life may be far from perfect but seeing this girl with her life that she has to live.. I'm so happy for her that she found the courage to enjoy life in spite of it all.

[@unsc60]

I always honor this kind of people, warriors. Bless you girl

[@keatonalameda260]

This gave me the hope for my future that I needed so badly. Thank you Stephanie for sharing your story and life

[@MalailaHarrison-cb6ki]

I’m super proud of her for pushing through everything.She deserves everything and she is super sweet.❤️❤️💕

[@krystalphillips5614]

Amazing story of perseverance and courage to live there best life 🥰 I admire Stephanie and attitude of gratitude for all her blessings. You go girl!! 💕

[@Ausgar-yc1yl]

She passed away a few years ago.

[@LeonardoR-y1k]

wonderful, very happy for her and her family, and respect to the husband, not caring about her condition, all the luck to this young family

[@yvonnejuneau3201]

❤ 🙏🏼 ❤ STEPHANIE, ❤ 🙏🏼 ❤ YOU ARE SUCH A HUGE INSPIRATION TO MANY!! THANK YOU FOR SHARING AND MAY GOD BLESS YOU AND YOUR FAMILY! 🙌🏼

[@gregman1715]

She's a amazing beautiful young lady God Bless her and her family

[@imabadmofosofux2348]

God bless her and her family ❤

[@RiverStyxIDV]

Ok. Who did the thumbnail. You're being sent to prison.

[@kitkat88816]

I’m so glad she experienced love and having her own children and getting married. What a kind and wonderful husband she had. I’m so sad to find out she passed away. But I’m so happy she was able to have so much love and support around her and share her story.

[@maiseyisthebest3119]

I just want to give her a hug. Poor girl.

[@Lulu-and-co]

lol

[@nathanmerritt1581]

There's nothing poor about her, she's thriving and happy with her family.

[@allypossallyposs2122]

@@nathanmerritt1581she sadly died in 2017, this video is very old

[@chidiogoikeh4550]

@@nathanmerritt1581she was not thriving with such a terrible condition and unfortunately now she’s passed away

[@Blueswedishbeauties]

what a sweet heart...we love you Stefani.

[@brickshithouse8780]

Whoever edited the thumbnail to make her skin look redder and sticky/glossy needs to be ashamed of themselves

[@kaleeevans2376]

Shes actually really pretty. And that smile is amazing!

[@robertperrine1212]

Im so happy she is just living life like nothing is wrong good for her

[@Ausgar-yc1yl]

She actually passed away a few years ago.

[@robertperrine1212]

@Ausgar-yc1yl dam that is truly sad thanks for the info

[@Ausgar-yc1yl]

@@robertperrine1212 She seemed so sweet.

[@MoneySavingMumma]

Bless her heart, she genuinely is beautiful ❤

[@jacoboliver9300]

I wonder how far I have to scroll down to find the negative comments?

[@giovannareyes2655]

Im over the moon that she was able to have a family. That makes my heart feel so good. Best of luck love

[@chameleon28]

I have eczema and it’s so painful. I cannot imagine her pain

[@07_.Iaaann]

She may have not lived enoughed but atleast she got her dream experiencing motherhood

[@childofgod269]

Did her mom just say, "I mean, I'm just glad he married ya."? 2:59

[@Trysaratop]

Awe she really did progress from the first day she was born. Bless her soul home she has a happy life and omg her babies are beautiful. I’m glad she found love.

[@icecub2468]

Her kids will need to have their future partner/partners tested before they try having kids (if they end up wanting any) so they can make sure they won't be born with the condition

[@Nokinokushi]

She is the most beautiful girl I’ve seen. Rest In Peace Stephanie! ❤

[@jz4057]

I would not want her to have a baby if she’s my wife. Just having sex must extremely painful for her.

[@lithunoisan]

To be fair, her skin seems like it needs constant lubrication.

[@karoonboomie2813]

To Stephanie ~ So happy & proud of your strengths, skills & will. Stay strong & positive wishing you a very happy life with your beautiful babies and commented husband. Keep us posted!!!