LIVING WITH LEWY BODY DEMENTIA Q&A PART 1

[@ACharmingAbode]

We tried our hardest to answer most questions! Part 2 will be out later this week!!

[@cindypyper7052]

You both are adorable and I've been following your journey. This video has no CC and I'm deaf. I would be very grateful if you could fix that. Wishing you the very best. Hugs

[@ACharmingAbode]

@Cindy Pyper Thank you!! KZbin is being kind of slow with captions today! Check back in just a bit to see if they got added! Hopefully they will be loaded soon!

[@ACharmingAbode]

@Carolyn Thompson He's ornery! HAHA

[@TOCAwesome]

I’m so impressed with you guys! Even the hardest questions you guys knowledge at least. You are amazing, so happy to have found your channel! I’m here trying to understand more and more of this world because I want to help my mom, she’s having the hardest time being the full time care person for my dad, who was diagnosed 2 years ago with Alzheimer and has been struggling a lot with, sleep, medication and hallucinations 😞 Love your family! Thank you! ⭐️🙏🏼♥️

[@nancywoods2737]

I love watching your videos especially with Jason. You two are so inspiring and have amazing attitudes. God bless you both!

[@barbaraanderson3532]

Jason has such a wonderful sense of humor. He is adorable!

[@southernsass2937]

Agreed!

[@SB-kg2is]

I completely agree! He is a sweetheart and blessed with a beautiful, caring wife. ♥️

[@janellmartin7066]

The happiest point of this video is that you are both born again. No matter how much time you may have left on earth together, you know that you have eternity to be with each other. This world is just the beginning. Blessings ❤️

[@shannonscheffel7366]

"How do we stay cheerful? Jesus." What a testimony!!!

[@mandiesmaison458]

I am in awe of you, I know people have questions, I wouldn’t answer them, and you did, good for you, please only do what you feel comfortable with, and to the people out there that asked about Jason’s libido, too personal, too too personal! Look it up in a medical journal, if it is that important to you! These lovely people are not our personal friends, be sensitive, some thing are private between man and wife, and they have daughters. Looking forward to part 2, I think! 💚

[@ACharmingAbode]

Thank you! Yes some of the questions were a bit much! We tried to just laugh those off and move on! LOL Thank you for your kind words! We appreciate them! 💜

[@herewego1115]

Perfect post.

[@Debbie10222]

I have to agree with you, that is just too personal to be putting out there to the world and I don't care how old your "kids" are, this isn't even a topic to be discussed with them (unless of course parents and children feel differently). That question just over-stepped all boundaries. Would they be comfortable discussing their private life with thousands of strangers on KZbin? I really doubt it. Thank you Jason for standing your ground and making that topic off limits, great job!

[@rfh7096]

Don't take a prognosis timeline to heart. They don't know. My mother lived ten years after diagnosis and she had had symptoms for probably 10 years prior. She was a joy to be around and kept us laughing and singing all the way. If there comes a time where he is unable to come up with your name, don't worry. He will still recognize the love. I learned that.

[@bettymorris8841]

I'm so glad you don't bother to focus on "time"! Only God knows that answer. My late BIL when diagnosed with cancer asked the oncologist how long he had. The doctor said, "You know, I've treated a lot of patients and I've yet to see an expiration date stamped on a foot. If you want to know what the statistics say, I'll tell you. Truth is, my patients who don't worry about that seem to live longer!" Staying positive and not worrying about an uncertain date is the best way to maintain joy I think. Thank you two so very much for sharing your lives with us.

[@jmargarita50]

My gosh!! people has no business to know about the house and all the other things. I'm so appreciative that you guys have the courage to share this hard journey to help others like me.

[@cindysemblante4411]

Jason was cracking me up! You guys are literally childhood Sweethearts... it’s amazing you were able to make a marriage work being so young and having children so early. Congratulations on building such a beautiful life. Your daughters are adorable by the way

[@ACharmingAbode]

Thank you so much!! They are my pride and joy 💖😊

[@marlenebeck1739]

This was so enjoyable. I love people’s stories . (Love the pink vest, Leslie!). Even more wonderful is that you are Christians. Thank you for sharing your journey.

[@ACharmingAbode]

Thank you very much! 💖💖

[@carolyngarrison10]

I am glad to hear that Jason is a veteran, and can therefore receive care from the VA. As a VA nurse who has taken care of many cases of all types of dementia, I have seen the positive side of caregiver support. The VA I worked at in Illinois, provided excellent care to our veterans. My late husband died of cancer, and when I could no longer control his pain at home, he went to inpatient hospice care. They provided phenomenal care for him and myself. I am most happy to hear that you have Jesus in your hearts.☺️

[@ACharmingAbode]

Thank you so much 💜 I am so sorry to hear about your husband. It's nice to hear you had wonderful support and care when you needed it the most. 😊🙏

[@pennasylvania]

Put on the, “ Armor of Christ.” 🙏✝️JESUS IS THE ANSWER♥️🙏 Abundant Blessings to both of you 🎚💕

[@ACharmingAbode]

He definitely is! 💙

[@davidsonm1981]

Why is it ok to ask someone “how can they afford their house?” That’s not anyone’s business!!! Who’s asking these questions, kids?! Don’t feel compelled to divulge everything, your true supporters just appreciate the relationship and love you guys have for one another ❤️

[@lesleywalker2845]

Well said inagree

[@lesleywalker2845]

Oops..should be I agree

[@adriennesosa1441]

👏

[@bonkers5016]

That is so true girl! I NEVER ask anyone about their finances. Very rude.

[@chiczilla]

I know, right?? Some people.... There are ways to word these questions which could be a little more sensitive. My husband was just diagnosed (LBD), and we are Jason and Leslie's ages, so I was going to ask her privately somehow about ways she may have discovered to supplement income (from a VA standpoint or SSI), allowing her to be home with Jason more. I am also in healthcare, so I didn't plan on losing that income, but I will do what I need to when the time comes. I would never have asked publicly or even expected a public response. I guess it didn't seem out of line to some people 😕

[@marynielson1527]

Wow, I could listen to you 2 all day - so interesting & honest. While you both inspire me I have to say ‘Jason, you are one INCREDIBLE guy. What you have achieved and accomplished ... I’m in awe! Can’t wait for Part 2 (and thank you).👍🥰💕

[@ACharmingAbode]

Our pleasure! Thank you so very much! 💙

[@RockyRoadJY]

Love you guys. You are not obligated to answer all questions. Your finances and intimacy are always, regardless of illness or no illness, personal and no ones business. Don’t ever feel obligated or forced into divulging information you don’t wish to share. You are already putting yourselves out there and that ought to be enough. Thank you and take care. ❤️

[@linnilucidiamondpainttiluf2073]

Yall are precious. I love how you gave Jesus the glory for helping you guys through and keeping you positive. My husband is a jokster like Jason and if you are like me, I can tell how Andy is feeling by how much he kids around. So for him to be teasing me is a good thing and it makes me laugh and it looks like yall are that way too. I can relate with so much you say, like the question about resenting each other. When you have been married 30+ years, that doesn't happen when you have grown together and love each other. There is a funny thing I say to Andy, I will say "you're the other half of me, well you might be three quarters". We laugh. And when we say the same thing at the same time, we will look at each other and I say, "get out of my head". Lol. I have empathy for you as caregiver. I am going to put you guys on my prayer list and ask Jesus for complete healing of Jason. He deserves it. Great video!

[@pamelagipson8488]

Believing with Jason!! He gets better! And I love “don’t compare yourself with others”.

[@cmc7780]

It's encouraging to see a couple who married so young and still together after so many years! I married shortly after high school and this year will be 20 years

[@janiceeno7039]

Thank you!. We so appreciate the information and insight that you share, but you are not obligated to tell us more than you are comfortable with - part of your "charm" is how you protect each other; no apologies required. We love you both and your relationship together, there is so much we can learn from you both! And thank you for your service to our country ... both of you! You both made sacrifices on our behalf and we are forever grateful.

[@ACharmingAbode]

So nice of you 💙 Thank you!!!

[@suefreshwater2282]

I’m so impressed that you married so young but kept your dreams alive - getting your educations, following your career paths, etc. Blessings to you both. Sue

[@andreasomera3153]

You two are so sweet. Thank you for answering so many questions, it must be weird to tell your story to so many “strangers”. You two are a wonderful example of what a loving relationship looks like.

[@sharonjohnston4806]

Hearing Jason tell about your meeting, his education, military service, and work, one would never know there was anything wrong. God bless you both. My husband has Lewy Body Dementia and rarely talks, but he just turned 80, and that may make the difference. He’s only been diagnosed for three years, but has declined rapidly. Again, I think it’s an age-related thing. You’re in my prayers.

[@dino946]

Thank You For Your Service. Don’t hesitate to not answer some questions you don’t want to, some things are NONYABUS. ❤️❤️❤️❤️

[@ACharmingAbode]

Much appreciated💖

[@marymadsen8287]

You two are refreshing.....prayers for both of you.

[@ACharmingAbode]

Thank you! 😊

[@donnakearse2503]

I know you guys are very open about Jason. Please make sure you always treat him with dignity. I understand you have fun with each other but there is a fine line between fun and dignity. I am a nurse also for 43 yrs. I do enjoy your channel. I just found you guys.

[@dawnk2308]

I really enjoyed hearing about how you two met and went on to raise a family while Jason was active military. That’s a huge sacrifice for the whole family to endure especially during deployment. Thank you Jason for your service to our country and to the family that supported you! God bless you Leslie and Jason.

[@sharanlesmeister5548]

Jason and Leslie, thanks so much for sharing your incredible story! We are so blessed to be a part of your lives! You guys are such great role model of positivity! We love you!

[@ACharmingAbode]

Thank you Sharan! We love you guys! 💜😊

[@emilyduffy1410]

Your story and mine are so similar it’s scary. My husband was Navy. We married in 1989. He left active duty in 1992 and joined the reserves. We had three kids . While we were stationed in Newport, RI he got his masters at U of RI. Thank you for sharing your story. You are an amazing couple! ❤️

[@katiedoll1]

Yes! Don’t listen to statistics! When my daughter got diagnosed with kidney disease they gave me a statistic sheet. I said I don’t care what that paper says. That’s not my daughter. She’s her own person and we’ll take it day by day year by year. Love seeing your videos! Keep on keeping on guys!

[@Mumdownsouth]

Yessssss Exactly!!!! My family member was Not a statistic. What a go ladies!!!!!

[@cherylmclemore66]

Thank you for sharing your story...you guys are such a wonderful couple & have shared so much of your lives together. It’s so obvious that you love each other deeply, & that you’re good friends. That goes a long way to make the journey just a little bit smoother. I’m a retired nurse & I’m glad that Leslie can now stay home. Keep up the good vibes!

[@sherrybates5982]

Omg...Jason is a doll! I love the banter you two have. Having been married 44 years, I can relate. Btw...I follow your daughters channel...& I have grandkids! She’s so honest & sweet (like her mom!). Hugs~

[@pattiday431]

The neurologist diagnosed my husband in 2008 as a classic case, and yet it's true that no two cases are the same. We had another eight years together following the diagnosis. In 2014 he began to decline quickly and passed away in 2016. There are so many similarities to your story and ours. This is a wonderful service you're doing sharing your journey. God bless you both.

[@suesch5304]

"...or I just get better and everything's fine." Yes! I'll agree with that!

[@msbeaverhausen7226]

Thank you so much for sharing your experiences with us. I really am shocked that people ask such personal questions about your finances and intimate experiences. It really is vulgar. Love, positive thoughts and prayers for Jason's disease slowing down and strength and comfort to Leslie and your whole family xoxo

[@bermudabluez8403]

I just adore your energy! The way you two laugh all the time is so refreshing! Jason is always in my prayers and I wish you both the very best! Look forward to your videos💜💜

[@kathleenmurphy2379]

You can tell you both grew up together and you have such a wonderful wonderful outlook on your life! I'm so sure you're glad to have Jason close to you after all those years and days and weeks and weekends apart! It's like God's giving you back the time that was taken away even though it's a tough way to be giving it back! I became fascinated with orchids a few years ago and did some research on KZbin which is a wonderful place to find out information about most anything! I started to watch a man's Channel and it's called Rick's orchids... He has Parkinson's with Lewy Body so not just Louie body but Parkinson's. He started a KZbin channel and with the years he had left the ability to communicate his left a wonderful Legacy behind... You both are leaving a wonderful Legacy also... In fact his wife became a nurse so she would know how to take care of him and he shared some of her life as she fought breast cancer and stayed in nursing school and graduated... He's no longer able to make videos and I miss him keep up what you're doing you're so wonderful to listen to I'm see how you deal with what life is thrown at you... you are an inspiration to all of us God bless

[@bethwishitwereviolet5938]

Thank you Leslie and Jason for inviting us into your lives. I am in awe of you both. So very kind, joyful, positive, and strong. It was heartwarming to hear how you met one another and became a beautiful family. Jason made me giggle as always. You and your family are all in my and my husbands thoughts and prayers. When a cherished family member is coping with a chronic illness, it’s time to circle the wagons and be there for one another. I’m so thankful you are able to be home all the time now Leslie. Life is so very hard sometimes. We work on staying in the moment, and realizing that right now...everything is okay. We do not allow ourselves to think in what if terms. This is just how we cope. I’m thankful you both have a positive attitude. It is so very true, that every single person is different, so there is no need to attach labels and time limits. Sending love and hugs your way. So very proud of you guys. Love you! 💕

[@ACharmingAbode]

That is a perfect way to put it! We are staying in the moment! Right now is doable and we still have lots of happiness and good times! We don't let the future bring us down. Thank you Beth for helping me to see it that way. 💖 Hugs!!! 😊

[@bethwishitwereviolet5938]

@@ACharmingAbode Hugs back atcha! 💕

[@marthacouturier-coleman2872]

You both are amazing and inspirational, thank you both for your service to our country. My husband was dx with FTD when he was 49 I was 41. Mark was a Maine State Trooper and SF Medic...with multiple concussions...dx in 07. I too am a nurse, these videos are so selfless inspirational and are a testimonial to your live of each other and Christ. Cannot tell you how much I wish I had your grace. We have 3 sons,oldest is a USMA grad, second owns his own business realestate,etc. Youngest recd his Masters from Northeastern in law. I so look forward to your videos and widh you all peace, contentment,longevity,and health. God bless you.

[@lolly4821]

I love your channel and I love your relationship!! God is so good and we pray for your family!

[@ACharmingAbode]

Thank you so much!!

[@dottiedye7588]

Jason has a great sense of humor.

[@dorenenagy564]

The love and respect you all have between you two and God will see you through this. Love watching and hearing you all tell your stories. Thank you so much for sharing. Stay well, stay safe.

[@ACharmingAbode]

Thank you so much!

[@lanajackson3730]

You two sweet people are so adorable! Some of those questions were way too personal to answer. Thank the Lord that you do have Him to lean on! God bless you both!💕👍🏻

[@ginamoran6703]

Thank you for your willingness to put this content out there. I am caregiving for my mother currently with dementia, and I need this so much because I feel so isolated in this. You guys are delightful and precious people. Your willingness to share this journey is so amazing and I love that it gives me a sense of community in this very isolated place. Getting to see someone dealing with similar experiences is so helpful. Thank you again!

[@mrsme4941]

It’s like God brought this video to me. I’m 41 and taking classes to prepare for Nursing school, which I’m terrified of, especially at my age. My mom has Alzheimer’s and I’m worried about how I’m going to focus on my studies and care for her. Will she even be alive or remember me when I graduate? She is my absolute best friend and the thought of existing in this universe without her seems impossible. You two are very comforting and motivating. You’ve accomplished so much in your lives through difficult situations and you continue to thrive and focus on the positive. I’m a new subscriber. God bless you both. ♥️

[@d.d.mac.3773]

You handled a very difficult session with grace and humour. I have to say that people sometimes ask questions that do not deserve your attention as they are way too personal. I'm glad you refused to answer them. Peace to you both.

[@emazey5044]

Loved learning about how you too met, you two were, and continue to be, adorable! Cow tipping or movies, love his sense of humor! Blessings to you both!

[@jakebr8ke]

My word is nothing sacred! I appreciate you wanting to educate and share with us, but please, never apologize for not answering such personal questions. Somethings are on a need to know basis and people just do not need to know. Love your videos and your loving upbeat spirit!

[@annachristeencirbo9168]

Thanks for sharing such an intimate part of your life. Wishing the best for you both. So funny you two together!

[@ACharmingAbode]

Thank you so much!

[@gwenvann7279]

You two are amazing! Married at a young age and have a baby right away...go on to get college degrees and build a beautiful life together as a family...WOW!!! Your lives prove that hard work and dedication/determination can win out over hard times! Praise God for your journey and your willingness to share it all on KZbin for us!

[@jenniferhaas1137]

Bless you both for being so humble as to share your story. I love that you are both sharing the reality of living with LBD. I am 48 years old and my mother was diagnosed with LBD this summer during quarantine. It was heartbreaking as her daughter to see her struggling and I can only imagine how hard it is to see your spouse go through this and to be living with it. I stayed with my mom this summer and I can empathize with the frustrations a caregiver can have. You can still love your family member and be frustrated with them yourself and the situation all at the same time! People need to realize that and I cannot thank you enough for the information you provide as well as your personal feelings. I would really like to join the online support group if that is possible. Have a wonderful day and stay strong (: -Jennifer

[@richardrodriguez9098]

You two are so amazing and beautiful people who have such a big ❤️!! Thank you for letting us in your home and life!! And thank you for all the wonderful information! Jason thank you for your service!! God bless!!🙏

[@markbeede1416]

Love you guys, beautiful couple. Love your story; I'm 76 years old, lost my love in 2012 to breast cancer. Keep the love alive; I miss it so very much. God's blessings on you both. Mark

[@mandyaldridge457]

Hi there you two. Glad to see you both smiling, happy and full of fun. My father had same condition and we lost him in November. We didn't lose him to the disease we lost him to grief. Because of his condition he couldn't process the loss of my brother in August.(age 50) I have been following you two since you started. Even now during my grief you bring a smile to my face and make me laugh, for that I thank you both. Stay strong you lovely people and keep bringing joy with your videos. Xx

[@thejrc561]

My husband was diagnosed with Alzheimer’s when I was 60, he was 67. He had always dealt with IRS, property taxes, managed the money, etc because he wanted to. I too am a nurse and I homeschooled my children through high school. 3 weeks after my husband’s diagnosis I had a neurological event-undiagnosed. I was a mess and had to take over everything! I wish I had done those things previously. I too have the fuzzy sensations in my brain and I get brain fog among other things. I saw on another video that Jason has myoclonic jerks as I do. Valproic Acid literally almost stopped it. They were threatening to take my license away. That drug has been a huge blessing. I do enjoy your videos. We rely on Jesus completely also.

[@eileencrandall]

Bless you both for sharing your story and positive view of life with all of us. You are inspirational in a time where the world needs more inspiration! Your response to questions is candid, honest, and VERY appropriate when you choose not to respond - again examples to live by.

[@ACharmingAbode]

Thank you so much 💖😊

[@juliegriffin684]

You guys are amazing, and I love the fact that you put your heart and life in Jesus hands! You're both so cute and positive, and uplifting! I think of you often,and you are in my prayers!

[@jillybear6007]

Thank you for sharing your life and story with us. I was caregiver for my Mom for her 5-1/2 year battle with Lewy bodies dementia except for the last year of her life, when it became too difficult for her to care for her at home without assistance. Mom, of course, was much, much older than your husband is. My Mom had had no head injury or anything. The only thing we think might have started the LBD was Mom had tripped over my brother's new puppy on its leash and fell onto the cement patio of her home and completely shattered her hip (she was 80 at the time, but in awesome physical and mental health. She walked 3-5 miles every single day, ate well, was in great physical shape, and her mind was 100% sharp), then had to undergo a total hip replacement. Within 3 months of surgery, the signs of dementia began. One neurologist thinks that LBD in the elderly can be brought on by a traumatic injury, then having to undergo a long surgical procedure, and the anesthesia used somehow triggers this disease to begin in the brain. Mom also never had Parkinson's disease and didn't develop any signs of Parkinson's during her 5-1/2 year battle with it. She passed in September of 2019. The last 2-1/2 years to 3 years of her disease were the worst and I wouldn't wish LBD on my worst enemy. Dad had passed 8 years before Mom got sick, then in November of 2019, my brother was very out of the blue diagnosed with Stage IV lung cancer which had spread to his brain, pancreas, and liver and he died 7 weeks after he was diagnosed. It's just me now out of what once was our family of four. I miss having my family so much. God bless you both. I pray that there is a cure for this disease someday very soon. (Also, on a previous video, you mentioned about your husband's sleep being disturbed a lot, which is very common with LBD because of the REM sleep disorder associated with it. One thing that the LBD Organization recommends is the time-released version of melatonin - it helped my Mom a lot for the first couple of years for sure - she was on the 10 mg time-released melatonin that we just purchased at a vitamin shop. Not sure if anyone has mentioned this to you before. )

[@shirleyvincent131]

You two are absolutely adorable! And it’s easy to see that you adore each other.

[@raelyn505]

I love how positive you and Jason are and that goes a long way. I just love your channel!!!

[@shirleysinger839]

Hey Kansas, love Kansas, we lived there for 9 years in Dwight, victorian home!! Loved it. It was due to Military and I owned a beauty Shoo, Loved it there!!! Love you both, blessings!!!

[@johnslanicky]

You two are the perfect couple, thank you for doing this. Your positive outlook and enthusiasm is great! Jason, you are the cutest! When you smile 🙂 your whole face lights up- it’s just great! Prayers for both of you.... and keep on smiling! 👍❤️🙂

[@thriftytowers7160]

Great vid and explanation re Alzheimer's/dementia differences. My mum had alzheimers and my dad had dementia, and I've never previously understood the differences between the 2. You are a wonderful couple, a great example of God bringing 2 people together for life - I wish you the best of the best in the future, gillian,

[@ionaphillips8500]

hello, you are amazing couple, I am a nurse also and my husband has failing kidneys,and so I am taking care of him ,37years of nursing and its hard to be a care giver, but we are doing it all,Jason you are a hoot to watch dancing and posing for the camera, sense of humor is needed,I will be waiting for the next one, love to you, god bless and take care

[@slporter722]

What a life!! Loved listening to how you met and growing a family along with growing up! You two are pretty remarkable.

[@ACharmingAbode]

Thank you! You are too kind 💖

[@harrietmullen936]

I want to thank you both for being so positive all the time, but more importantly letting people know that everyone’s case is different. Just because you may share the same name of a disease doesn’t mean you share all the same symptoms or even end result. That truly is what people need to realize. I have Lupus and although many people don’t see me when I’m really sick, they think because I’m always smiling that I have a mild case or don’t have it at all. They don’t see me when I can’t move from my couch to the upstairs where my bedroom is. I just choose to be positive and smile and to be grateful for each day I’m Blessed with. I live in the moment and have learned to appreciate each moment, I believe you are helping so many with Lewy Body Dementia. You are a Beautiful Couple who always bring a smile to my day, so I thank you for that. I wish you Good Health and continued success. Best Wishes- Harriet Mullen❤️🙏🏻

[@garlandfraley734]

Nice catching up..only God know ,we are not to boast of tomorrow. You guys are doing great one day at a time some days one minute at a time. God bless. You have a beautiful family

[@ACharmingAbode]

Thank you!!! 💖

[@pamrichards3847]

You are such a beautiful couple. As another sister in Christ I will be praying for you. 💕 My husband and I are also high school sweethearts married at 15 and 17. We just celebrated our 50th wedding anniversary. He also is disabled at the age of 42. Life takes us where the Lord wants us. We fully trust him and know his ways are best. We also are so blessed. I'm glad I found your channel. You are very encouraging.

[@dmlausen]

I'm going to continue to pray as I know a miracle will happen for you!!!

[@gaylemurphy240]

You are such a fun, beautiful and loving couple. Keep up that positive spirit! Jason may not ever be able to kick this but I believe he is going to live a long and very happy life with you by his side! You two are amazing!

[@JohnDoe-xi6xl]

No doctor should ever let their own feelings prevent them from telling their patient exactly what their diagnosis is and how it was determined. You shouldn’t be seeing it for the first time on a form. Anyway, you’re great and I’m sure you help people to feel more hopeful. My sister has Alzheimer’s, as did or grandma, and I dread most the day when she no longer knows who we are.

[@vickiecopeland7131]

Praying for you both. It is hard enough for him to answer some of these questions and you but just ignore the personal ones. Geez! In fact if this puts Jason on a spot do not make him feel uncomfortable in what he faces daily for our benefit. I am sure many love just enjoy seeing you guys interact & do projects like I do. Such an inspiration to me in what you guys are going through. Many prayers sent your way.

[@mandymorrow5473]

That is the sweetest story! "Well, it started when we tried to catch a goat together!" GOALS!!!

[@Billiard-cp1my]

Libido question, rude, rude, rude!

[@maryloumilardo3165]

Agree, so so terribly wrong. I admire you both. Please do not feel it is necessary to acknowledge these insensitive rude people. And may I add Thank you Jason for your service.

[@jennyhunter3010]

I don’t think it’s rude. From my understanding these videos are to inform and let caregivers/spouses know they aren’t alone and to be able to ask questions. She’s a nurse 🤷🏼‍♀️ if they aren’t comfortable answering thats ok, but I don’t see it as rude.

[@caramelfrappuccino234]

@@jennyhunter3010 I agree

[@taraschmidheini4674]

Hello, I found your channel tonight via the small bedroom video. Watching you for three minutes, I fell in love & knew you were my sister in Christ. Another video in, finding out about your darling husband's condition I instantly started praying for him. This video, I was just waiting to hear those words...."or I can just get better" I'm sitting alone right now & shouted AMEN‼️ I'm the same age as you guys, & have been having brain & health issues since my 20s. The three of us have SO much in common. I'm so blessed to have found you! The bad days can get scary & leave you depressed, don't ever let the enemy lie to either of you. You know God's truth, you got this. You've got Jesus, each other & another person praying for you both😇. Have a super blessed weekend ❤️Love from Connecticut

[@patgriffin1925]

You and Jason are an awesome couple! It is so obvious that your love is so strong. Being a Christian is a blessing to help you get through the days that can be difficult and painful. Praying the disease will slow down and you and Jason will have many great years. You have such a beautiful family. God Bless

[@janzoeteman9617]

Thank you! You are both a testament to love, respect, & the joy of the Lord! You are doing such a good work in your sharing with us all such personal answers to questions...albeit some so personal. Your girls are gorgeous & so happy to hear of the imminent arrival of a beautiful granddaughter. Prayers for your continued strength, joy & the grace to live out a beautiful life together. Miracles still happen! You are in my 🙏💞

[@judychristensen5689]

Such a sweet story, I was also married at 17, my husband and I have been married for 48 years.

[@ACharmingAbode]

That is awesome!

[@beckydigilormo4261]

Me and my husband had the same start as y’all and we now have 4 married children , 8 grandchildren and have been married 45 years. He was diagnosed with cirrhosis of the liver 3 years ago and we deal with brain fog due to ammonia build up from the liver. So I know your struggles. Love your honesty and of course your sweet spirit and decorating talents. Love to you both.

[@KH-lt3he]

First time, I watched your channel. I love your faith, joy, and the way you honor each other

[@BabsLongfellow]

Loved hearing your story. I'm glad you drew boundaries on questions that were too personal to have been asked. You two are fun, authentic, genuine and inspiring. Not only does my house look better thanks to your innovative decorating ideas, but my soul feels better too.

[@hallymariah45]

You two, are a rare couple!!!! No matter how long each one of you live is in God's Hands...TRUST! TRUST! TRUST! NO WORRIES! I LOVE how you love and you are an inspiration!!!! God bless you both!

[@samehkhayat7695]

I can't believe some people ask how could you afford the house!! that's very personal and none of their business. Add to that the libido question, even though it's legitimate medical question, but most people not comfortable talking about it!! thank you guys for your courage anyway and sharing this with us!

[@debcar8024]

I absolutely love you two. I love to hear you have a relationship with Jesus, that's all that matters in the end!! God bless your entire family. ❤ By the way, thank you for sharing your lives with us!

[@jillhand1968]

Being a health care professional myself, I know we do and do and do...please make sure you take some me time❤ Thank you for documenting your journey. I love seeing how you both are doing! Take care!

[@TuckerSP2011]

Wow, so many questions. I would be bedraggled if I were you two by now. I have metastatic cancer and don't know how long I have. Let's all hope for the best and I hope to stay positive like you and Jason are.

[@michellehochstedler7809]

So proud of you two for starting your retirement so young in life.

[@GrandmaMarlayne]

You are a blessing to your husband and the time you have been a nurse and a gift to those patients. The both of you are amazing people. I am praying for Jason to have a healing of this disease or a stopping point to give hope to others suffering with this and other challenges. Through faith you can overcome fear, anger, frustration, and find joy, health, and healing.

[@gunther13101]

Don’t give up.....there are people out there working every day on a cure for this disease!!!!! I pray for this for you and Jason. Bless you both💕

[@shawnafairchild417]

Being in a military family is truly unlike any other. My dad was Air Force for 23 years, basically my whole childhood. And then I married a man in the Army. So military brat all the way! Thanks for your service! ❤️

[@katrinathompson9117]

Hi my brother had cancer twice and its a horrible decease the doctors said because he was fit and young got him through this..so keep doing what your being doing mate and stay positive...lov katrina from Australia.

[@bettywhite1705]

Thank you both for your service to our country.

[@debbieheim3694]

Yes, get better Jason!👏👏💜

[@candyhighsmith3415]

God bless you two!

[@gwenlaw4644]

You guys are such an inspiration.

[@melissafurr]

You both are a true testament of your faith, being positive and loving each other in good and difficult times. No one can control circumstances but we can diffidently control our attitudes and you both do that so eloquently. Thank you both for having the courage to share your journey. I think this is absolutely a blessing to others to see such strength and Love. Prayers and encouragement to continue your faith walk.

[@mercibeaucoup2486]

This is the very second video I’ve watched of yours. You are a remarkable !!!!!

[@Debbie10222]

This was very well presented, thank you both for sharing with us. Jason, thank you for your service, I have a son in the Air Force, he's stationed in Tucson, Arizona, this will be his 5th year serving. Leslie, thank you for your service as well, as a nurse, especially during the pandemic. Continue to stay positive, so much healthier than being a negative Nancy.

[@mmess8585]

You're very brave to share this! My Mom has Alzheimers, but there's a part of me that suspects Lewy Body Disease for her. I know I'm not the Dr. and in a way it doesn't matter. We still have to deal with what she's going through. I pray that you find some answers. It sounds like you're both dealing well with it, but my prayer is a discovery can be made in the treatment of this disease and that you have many happy years together!!

[@4BarbaraJ]

Thank you for bravely sharing your personal story. There are so many of us that follow your story and care about you both. That being said, it just makes me sad that people feel they can invade your privacy. I admire both you and Jason and wish nothing but good for you both. Congrats on the new grand baby on the way.

[@sarahm1236]

You are both precious. His light shines through your difficulty journey. Such blessing for us to observe a sister & brother who are doing it well! ❤️✝️