LIVING WITH LEWY BODY DEMENTIA Q&A PART 2

[@christibellz]

My mother had Lewy body dementia and she could talk with us and laugh until the end. I find your humour is absolutely wonderful, keep up the positiveness, you guys are wonderful.

[@ACharmingAbode]

Thank you for sharing that with me! That makes me feel better 🙏💜

[@kellyboulton2476]

@@ACharmingAbode My mom passed away last April and also knew us until the end! I love Jason's humor, your sweet, bubbly personality and your laughter together!! ❤️🙏🏼 Praying for you!!

[@teijaflink2226]

So important to have humour, the dark jokes are funny.

[@samamthaj9768]

Jason explaining the brain fog was powerful!

[@debbieb8431]

You immediately brought me to tears when you said you don’t fear the future because you know where you are going. I don’t know how those with no faith can make it thru the day.

[@pamelapainter7350]

"Tall, good looking & humble." Jason, you are spot on! 😉😆

[@jandoherty9766]

I love Jason and his wonderful sense of humor he’s so funny. Also he’s got the most beautiful smile

[@cmkirn]

There is SO a need for education re: dementia. You all are providing an invaluable service so people can expand their knowledge of what someone with dementia is like.

[@maggiewilliams1826]

Yes ma’am. I have been diagnosed with Parkinson’s and am having issues with memory and feeling like my brain is in a fog. I worry about being a burden to my family but I know where I’m going.... To be with Jesus

[@candyhighsmith3415]

Every man I know says, “take me out back....” Honestly you have a great attitude. When my mom was diagnosed with Parkinson’s, I asked her how she felt about that. She said, “If God wants me to have Parkinson’s then I’ll have Parkinson’s.” I hope that I can have such grace.

[@alifeblessed2218]

What beautiful grace your mom had! Thank you for sharing this comment!

[@JenJean1234]

🤣 "you just assumed the better half was you." I almost fell out of my chair!!! Jason, you are a stitch!!!🤣😆😁

[@ACharmingAbode]

😂😂

[@mandiesmaison458]

So funny, cracking up, he is on form 😂

[@jolynnsommerville7961]

You guys are awesome! Bless you both!

[@SB-kg2is]

That cracked me up too. 😂😂😂

[@karynefagg209]

@@ACharmingAbode I laughed so loud, this is the Jason we have grown to love, his sense of humour - good one Jason!!

[@pamelapaxtoncreations1206]

You guys are a sweet couple. Glad you’re not scared of the future and living with joy, in the moment. ❤️🙏🏻

[@JCWest-pr2mx]

My favorite question, "Are you afraid of the future?" My favorite answer, "No, because we know we are going." AMEN!

[@cathymoorman7687]

The "better half" reaction was the funniest! Cracked me up. Bahaha 🤣🤣🤣

[@ACharmingAbode]

😂😂😂

[@deborahisaacs5541]

God hold you both close everyday. You both are so young, my husband has dementia, we are both 68....it is tough...dealing with dementia plus old age issues l have, especially depression and arthritis. God is in control and one day when all this is over we have forever and heaven waiting...

[@ACharmingAbode]

🙏🙏💖

[@Mumdownsouth]

Prayers for all, especially for those baby angels and their family. Some more big prayers for a new baby this side. 🇨🇦

[@ACharmingAbode]

Thank you so much!! 🙏💙💖

[@357QueenBee]

My brother had an accident over 20 years ago and had brain injury. His gaze was lost. It was bad for about 2 years. He got better. So I understand the gaze. Jason’s sense of humor is awesome. Any illness is handled better with a good attitude.

[@marnabro]

He does have a super sense of humor. That helps lots.

[@LordgivemetheStrength]

You guys are two wonderful human beings. Your love for each other is the way God intended a marriage to be. ❤️

[@patsanders5377]

Y’all are the cutest couple. And so happy. You can tell, for sure, that Jesus lives in your life. And that’s the most important thing in the world. God is using both of you in a mighty way. Blessings and love from Marietta, Georgia. Jeremiah 29:11 ♥️♥️♥️

[@indigogirl903]

My friend who had LBD what we did to be "normal" was to do the fun things she liked to do! She loved food!! She loved ice cream and singing! She loved her religion! Compared to other diseases...this was slow and more managable! Also she liked her hair and nails done, I did her tweezing and makeup. Like I said before the last two weeks she went down incredibly fast. But she knew all of us!! So do what makes you happy!! Stay active!

[@conniejenice]

I can tell you about our experience with the med for dementia , my mama was on it for 8 years and she got where she couldn’t swallow so we took her off at 90 . They said after that many years it probably wasn’t working . Well we did take her and we seen a change fast even my mama did. So we got back on it. . So it works for her, at 91 she still knew all family her and still lost of good memories and remember a lot better than I did at times . So be encourage she took some that y’all re taking.

[@TheBonnieberry]

I will pray for your daughter.I wanted desperately to be a Momma but was not to be .We married later in life and although we tried never came to pass.I have 11 nieces/nephews and now at 56 many new great nieces/nephews.

[@joanie6385]

😂🤣😂🤣 I was laughing before he made that face about the better half comment. I’m crying over here!!!!

[@ACharmingAbode]

😂😂😂

[@debboyea9567]

Me too!

[@janetkennally5812]

I went through all this with my mother, taking care of her for 13 yrs. only she had Alzheimer's. She took both Aricept AND Namenda. Just remember, you might not notice either one of these helping but what they hopefully are doing is to "SLOW" the process down so it's worth taking both as they might be helping. My mom was diagnosed in 2000 and passed away Dec. 2016 so she had it a loooong time! She was 96 when she passed. Her psychiatrist said she lived so long with it for a few reasons...1. She was being well taken care of 2. She was extremely smart. She retired at 72 as a Sr. VP for a bank in Pasadena, Ca. LOVED her job! You are doing a great job with Jason. You are both keeping busy, which is important.

[@gzrguy]

Just this evening binged on all your Living With Lewy Body Dementia videos. Was searching KZbin for LBD documentaries and the Lord showed me yours! I'm a night nurse in a Memory Care Unit in Presque Isle, Maine. Bet you know where that is! lol I sensed from your first video that you both are born again believers. So glad to have that confirmed in this video. Leslie and Jason, please keep up these informative updates. You guys are doing an amazing and much needed service for folks desperate for help and hope in dealing with dementia and particularly LBD. Jason, thank you for your service to our country. I'm so sorry you were injured in that way but so glad for God's evident grace in your life and Leslie's life and for the testimony you both are for Him! May the Lord bless you both. I shall continue watching! :-)

[@terrim771]

I just admire the love and laughter between the two of you. Sending prayers 💗

[@deborc2705]

Jason’s humour is delightful! You are lucky to have found each other at such a young age. Your giggling makes your channel uplifting.

[@leigho6658]

You two are very sweet together. Laughter is such an important component in marriage.

[@bonniemeijer1168]

You Both won the lottery. Because you have each other. Such a great copple. 💕

[@pattykochenower4222]

So so true !

[@teresahewgill3588]

I just love the both of you and was so excited to learn you are born again......you both radiate the love of Christ. I am lifting you all......or as we say in Texas.....y’all.....up in prayer. I also have a sweet grandbaby in heaven.

[@jdxx59]

Oh wow, I just love Jason’s quick wit and sense of humour.

[@bethkelly5833]

I loved how the reactions you guys had with the better half was laughter.

[@susyque8424]

Oh my goodness that hit home for me . People would see me taking my mom for walks ( she walked on her own lol ) and would stop and say hello and she would say hello back . And then same people would call me and say “ oh you’re mom looks great . “ And I didn’t notice a thing wrong with her

[@cherylwoods4974]

Today you two made an old lady, happy. Thank you for sharing your joy, humor and faith with us! One of the best things going on in the world right now.

[@triplet3mom]

You both are so awesome! I lost both my grandparents to Alzheimers. Thank you for making these videos, as I really enjoy them. Wishing you both nothing but love and blessings.

[@helensmith3917]

You both have such a great sense of humour, in such a difficult chapter of your lives.

[@lmkays]

I love Kelsie so much. I know she will be a mama someday soon ❤️ Jason, PLEASE cook for us!

[@missybecker34]

I love your positive attitudes and Jason’s sense of humor! God never gives us more than we can handle! Your videos are so inspiring.

[@bertieboatright1206]

Jayson is so cute and funny . You make the best couple . I’ve been married for 52 years to my childhood sweetheart. He has some heart issues from agent orange in Vietnam. Some PTSD and I find that as he ages those memories are revisiting him.But his reaction to them is so different than when he was younger .and people just don’t get it . That’s ok because I got his back .those boys got a couple of good women . ( I tell him often)

[@clc4202]

I love the two of you....Jason is soooo clever and funny. Also, THANK YOU Jason for your service!!!!

[@rosemariealexman6798]

You two always make my days brighter with your smiles and humour. May God always show you the way.

[@bermudabluez8403]

Your positivity and love towards one another is absolutely amazing! Love you guys and you both remain in my prayers.💜

[@karisparis91]

That was lovely what Jason said about you and his daughters

[@darlenekoop2634]

I love Jason's sense of humour and your joyful personality -- what a blessing that the two of you have each other, and I'm so glad to know that you are Christians!! Thanks for letting us in on your journey and I will pray for you and stay tuned for more fun updates :)

[@judyabernathy80]

You two are great together! You can get through anything if you have a sense of humor. Blessings always. I’m reminded of The Gaither’s song called Because He Lives. It goes……Because He lives I can face tomorrow, because He lives all fear is gone. And, I know who holds the future, and life is worth the living just because He lives!! With faith like yours nothing is impossible!! ♥️❣️🙏🏼❣️♥️

[@kathylowreysmith8394]

I don't know if I could love two strangers more than I do y'all!! You guys are the cutest! My late husband was a Korean war veteran with PTSD and diagnosed with Lewy body dementia. He was much older though and watching your videos takes me back to familiar feelings. Thank you for continuing to share and educate!

[@MINIMOMMA06]

I too am a born again Christian, who happens to have M.S., Menieres Disease, I had brain surgery, I have Sarcoidosis, I have Scleroderma, Arthritis in my Spine, and 2 forms of Skin Cancer. I cry too, but I laugh every day! Some days are better than most, and some days are worse than most, but there's always someone who's worse off than me! I love you guys! You remind me so much of my husband and I. Notice that I didn't mention either one of your names, because I forgot them that fast. I was talking to a friend a couple if days ago, and the same thing happened, so I just told her that I'd pray for her people!😂😂

[@tamyyoung4890]

I absolutely love you two. No questions but simply needed to say...”Wow” you two are a inspiration to all. 🥰🙏🥰🙏🥰🙏🥰

[@Sedgies]

The eyes change. You’re right. They get a far away look in their eyes. My husband did that. I could tell immediately if he wasn’t feeling right. I pray for you two. Your love will see you threw the bad times. Ours did. Please take good care of yourself. It’s so important. My friends and family were so supportive. I couldn’t have made it through without them.

[@deamoffitt3699]

You are such a precious couple. I too am born again and I love that you give the Lord credit for your joy! I love that Jason has such a great sense of humor and how happy you both are!! My sister, also born again, age 79, has Lewy Body. She is in Assisted Living and they have been in quarantine since Thanksgiving day - can't leave their apartments (her's is a small studio) and it's caused her to decline big time!! ;( She now has hallucinations 24/7 - visual. It's so hard to see her this way, but she's ready to meet her Savior. Thank you so much for sharing your journey with us! Love you both and someday we will meet face to face in glory! You are a beautiful couple!! Dea from Rochester, NY

[@bettypecoraro8104]

Jason also looks healthy to me....and I love his sense of humor.

[@christinecooke1535]

You two are a gift to each other and your love is palpable. This is such a service you are doing to educate the public about Jason's condition. I was the foster mother of a child with cerebral palsy for 13 years. Much of my time was spent on education and advocacy.

[@rebajaynes1320]

I love your upbeat perspective on your husbands illness. I try to stay positive with my husbands issues. His years in the military has taken it's toll on his memory. With ptsd and serious sleep issues it makes for long days for him. My husband has mentioned that feeling of "static" in his brain. He will have days where he just can't focus of anything or have conversations. Praying for you family.

[@bellaangus1213]

Hey guys ~ The video that you informed about his disease. I wasn’t sure why you were recommended and I figured it out. My husband of 35 years died unexpectedly while at work. We couldn’t get pregnant all those years ago. I’m officially a dog mom. Ray died 10/30/20, I saw him at lunch and I remember when he was leaving how good he looked. Then 2 hours later I got the call and raced to the hospital and got there right after they brought him in. He didn’t make it ~ with Covid my life got really small and I have Lupus and I’m diabetic and have a handful of other issues. Ray was going strong and he’s a builder. I’m so very lost and we got married when I was 22 and I’m now 58. They you for sharing all of your husbands issues. He is also amazing and you are awesome. You opened my heart and allowed me to focus elsewhere. My love and prayers to you and your entire family. My ginormous dogs Bella GreatDane/Black Lab and Angus is Husky/Pyrenees. Without them I don’t know where I would be. Life is fleeting and I’m grateful that he knew he was loved and I will miss him every hour or everyday. You’ve made me laugh more in your videos than I have since he died. I’ve got a huge box of books on tape ~ I would totally send them. Thanks again and I joined your daughters channel also. I’ve been binge watching your channel. You truly are a Angel as Ray is my Angel in Heaven. Thank you Melanie North North Georgia Mountains USA 🙏❤️🥰😘❤️🙏 So sorry if tmi.

[@ACharmingAbode]

I am so very sorry for your loss. I wish I could just give you a hug! I"m so glad you found our channel. Thank you for coming along on our journey. Sending you prayers, and enjoy those sweet pups of yours! 💙

[@rebeccal1110]

Loved this video! Your testimony is apparent in how you both have chosen to embrace what life has brought with happiness, and peace. I love that you proclaim the name of Jesus as a cherished source of strength!

[@mistywatsonsears797]

Such a beautiful couple. Im so glad I found this channel. You're my age. Praise God you've got each other to lean on. My prayers are with you both. God knew what he was doing when he brought you together. I'm so sorry you hafta go through this disease. But, I can see that the good in your life together definitely outweighs the bad. I pray you have many more years of love and laughter, together!!💚

[@susanw9443]

You are providing such a resource for people who are going through this illness. God bless!

[@JenJean1234]

I am so thankful your channel popped up in my feed! I think you are awesome! You always cheer me up and inspire me with your decoration ideas. Your faith is also an inspiration! God bless you both! 🙏❤

[@catherinewallis5694]

Your strength, love and passion for one another is so very inspirational, and I just love your humour! You make me laugh so much. Prayers for you all.

[@dianemcclement4540]

I love your story - but pray for you both as you go through this horrible disease. Jason has such a gorgeous smile! Take that with you as time changes. Took care of my father with Alzheimer's for 6 yrs - was very difficult but rewarding at the same time. God Bless you both

[@bugsybird8619]

My mother had Alzheimers and it was hard to see her steadily decline. I referred to it as steps down. Every 6 months she would lose something. The worst for me was when she lost her speech. That was in steps too. I couldn't determine if she knew me or not. She suffered for about 10 years before passing, 7 years in a nursing home. Thanks for sharing your story.

[@BraveGirlJudy]

Thanku for sharing your story. My father had dimentia 12 years. He no longer knew who I was so it was heart breaking. I lost him 4 years ago and miss him so much. I myself live with 8 auto immune diseases he use to help me try to naturally help me with pain. He taught me a lot and now that I’m detrimentally sick I miss him more than ever. God bless u guys ❤️

[@judyabernathy80]

Jason, you are such a great guy. I can tell your sense of humor has taken you a long way in your life. Your personality is so charismatic. Both of you are so in tune with each other. It’s a joy to watch the two of you interact. Blessings to each of you always. ♥️❣️🙏🏼❣️♥️

[@eileenhaskins2710]

To enjoy fishing you have to enjoy fishing because many times there just aren't fish. I love you both and I'm proud of your attitudes.

[@acornsandlillies8788]

Our thoughts and prayers are with you. God brought you two together because he knew you were the right person to live with this even though it is hard some days. My Dad also had dementia and he knew who we and my mom were till his last weeks. He got unresponsive because of a bad virus. Keep going . You're doing great. Jason I stuck to the end of this video. 😛

[@mindybluephotography]

12:40: Do you fear the future? I love that y'all had no hesitation in saying NO. Amen!

[@ACharmingAbode]

Amen! 🙏💙

[@cdesjardins1988]

I'm still here all the way to the end! Thank you Jason for answering these questions and having such a great sense of humor. I've laughed so much with these last two videos! ❤

[@gailbader8149]

I love Jason's sense of humor!

[@hayleydover7025]

I just found your channel a week or so ago and have watched almost all of your videos!! I wish you and your family the absolute best!! Jason’s humor and wittiness is amazing!!

[@mercedesflores1440]

What a beautiful couple you are and a wonderdul testimony of your faith! Amen, you know where you are going. Praise the Lord!

[@anitafuertes378]

My dad had Alzheimer’s and I could tell his good days and bad days. In the end when he could not talk I still knew what he was thinking . Even better than my mom.

[@ozarkview928]

I was so touched when your husband said he does not fear the future, love his sense of humor ! 😂You two are so refreshing!

[@carolyngarrison10]

Jason, you have a great sense of humor!

[@ronijava]

Thank you both very much for every show you do. I was watching them alone and loving each episode. Today, my husband watched this one with me. He laughed and loved Jason’s jokes and your bright, cheerful personalities. My husband is 68 and has just been diagnosed with Lewy Body, too. The way you both describe the experience is so helpful, really a gift to the world. My husband said Jason’s explanations of brain fog rolling in and how reading has become too much of a strain were spot on. He feels the same. Thank you again. Love your channel!!! 💕🤗💕🤗💕

[@ACharmingAbode]

So glad it was helpful! Sending hugs! ♥️

[@ericarandall2692]

I absolutely love seeing you two together. Your love for each other shines so bright in your videos. Thank you for sharing your journey with all of us. Keeping you both, and your daughter, in my prayers. 🙏🏻

[@deborahbarry7074]

I absolutely love you guys. You are both open and honest and clearly have an amazing love for each other.

[@sharonx9]

You guys are so great together. I loved it when he said "you assumed the better half was you!"

[@leroyloehr5380]

My husband and I watch your videos all the time. You both are excellent voices for dementia. You have given such good information, and your honesty and integrity shines through. Thank you.

[@annalorance7698]

God Bless you two. Sweet love between you two. It is very obvious that you two have become one! Precious!

[@tammerahall6949]

You guys are awesome! The love and respect you have for each other is refreshing.🥰

[@maryreynolds5310]

Well, I think you two are an inspiration to not only the Lewy community, but in general. You give hope to those who seek it, and confidence in those who need it the most. I admire you both! You both took Lewy Body by the you know what and are going to fight it, push it back for as long as you can! Life is precious to you both, and you will enjoy it! That is the attitude that will see you through anything! P.S. The flow you two have together is perfect..the connection, the trust, we could all learn from you guy’s. xo

[@karlaristow3816]

I cannot say how blessed I am by seeing your example of deliberate living in the past/present...love is encouraging. It is revealed not only in the romantic times but in the daily routine ones.

[@garlandfraley734]

Love Jason's humor too. Here's a real personal question, what kind of eye line do you use. Nice seeing ya...prayers for the whole family,lynn

[@ACharmingAbode]

Bare minerals long lasting eyeliner! Thank you 😊

[@lanajackson3730]

You two are awesome! Prayers for your whole family. 👍🏻🙏🏻🙏🏻

[@annetteharris3966]

Jason has a brilliant sense of humour & can see how you fell for him . You are both great communicators & so loving xx

[@herewego1115]

Prayers for your girls and their medical issues

[@loriross4901]

Your first Lewy body dementia video came up as a suggestion on my feed today. I watched all 8 of them. These videos will be a blessing to anyone who is affected by this disease. I, fortunately, am not affected. I have, however, subscribed to your channel. You are both amazing and hilarious!! I love the Jesus joy that you share. My prayers for more good days than bad. God bless you.

[@vickyramsey3436]

He is my late husband to the tee! I mean the humor! Unbelievable familiar! He had vascular dementia and passed 2019. The Dr thought he had Lewy Body at first but then it was decided it was vascular. My thoughts and prayers to you both!

[@terriefirmin3190]

Jason has such a quick wit...so glad he is sharing his journey with us..thanks to the both of you so much.

[@librenonlibre]

An infinity of thank yous for posting your LBD journey. I hope you know what an extraordinary help it is on more levels than I can express. Love to you both, in heaps and heaps...

[@sadie4538]

Leslie, I’m sorry to say but Jason just taught you a lesson in humility (re: the better half) 😂 🤣😂. But all kidding aside, there’s no better half here cuz both of you equally possess a fine disposition and most importantly are good to each other! God bless you and keep you both! 🥰🙏🏻

[@jenniferpike9572]

Love your positive attitudes and Jason's humor!

[@lexi7773]

Jason is such a funny guy, you both are so sweet. I will definitely pray for your daughter. Bless you and yours my friends.

[@nurserobbi781]

I think you are both great. I too am a nurse and Jason your attitude and courage are such great examples to others on the same road or those just facing life changing diagnoses of any kind. I commend you. I am also an army brat and understand how hard it must be to leave yourself open and vulnerable on a public forum. I pray for you all and also hope I can follow your example Jason through life's challenges. Robbi from Minnesota

[@Natalie-uu6fs]

Love Jason and his sense of humor!

[@tmaffeo]

You guys are so adorable together . Love getting to know you . God Bless your babies in heaven . They must have needed Angels . My daughter had problems as well . We prayed to st Gerard all the time . she wound up having I V F. Finally , two beautiful and healthy children 👶🏻 👶🏻 later . Your hubby cracks me up. his persona is spot on . not to mention your outgoing and happy personality 🌻🌻🌻 looking forward to your next video

[@lindabow100]

You guys are awesome. I can’t believe that I have watched you and Kelsie separately, never realizing that she was your daughter! She really looks like her Dad 🧡

[@ACharmingAbode]

Awww that is so sweet 💖 Thank you for watching!

[@suechernet1618]

Love you guys! Prayers and blessings for your family❤️

[@eileenhaskins2710]

Our pastor developed altziemers and Bob was able to stay home until the end. Marlene actually worked outside the home and when it got to the point where Bob could not go to a day program our son went and cared for him while Marlene was not there. Nurses and care aids came in as needed. It was a kind and caring time. They watched old westerns together. By then he did not speak, but he seemed contented until he went home.

[@cherylp2895]

I love Jason's sense of humor and as a fellow Christian, I agree that you "choose" joy. Thank you for being open about your faith and your journey. My parents have lived with us for nine years now because my mom has what we think to be LBD and it's such a support to watch your videos.

[@cindyb8775]

you're a blessing to me. so glad I found y ou.

[@racheljones3697]

Can’t wait for the attic storage video 👍🏽 I store ALL my seasonal decorations up there too .. I have shelving and a ton of totes .. but it’s still a mess .. HELP ME you darling two 🥰 I’m new to your channel TODAY and I’m hooked .. I’m binge watching your channel today !! Thank you for sharing your journey together in your Happy Abode 😘

[@ACharmingAbode]

Yay! I love binge watching! So happy you found our channel! 💖😊