living with liver disease, what life is like living with cirrhosis

[@reneephoeni]

My husband had cirrhosis for 13 years. He just passed away this past January you sound just like him. I understand what you and your family are going through believe me because I was the sole caregiver of my husband just keep hanging in there. Try not to stress out every day believe me, I know it’s hard God would give me the strength, thank you for being so honest with your story. I wish my husband could have seen your channel. I think it would’ve helped him but it is helping me to help others. Thank you God bless.

[@Orangestanley64]

That is exactly how I feel being my husbands caregiver. These videos help me understand what he was experiencing but couldn’t or wouldn’t say.

[@liverdisease-qb6rk]

I am so sorry for your loss. May your husband rest in peace. Thank you so much for everything you have said here. I wish your husband could have seen these videos too. It helps to know that you are not alone. God bless😊😊😊❤❤❤

[@kentlowry5435]

LD I'm here with you I have told you I have stage four Cirrhosis . Last week I was told they see a spot in the lower left lobe of my liver . Waiting to have an MRI to see what it is but man the fear is real now . I don't have all the things you are through but I know this is just going to get worse no turning it around now . I have so many fears . Like is the insurance going to cover this and that and how good of hell will I get . Im just going to say to the people following if you just have some liver damage stop right now. Because believe me I was there in the first stage and did not listen to the doctors , buried a brother from it ect . If you get past stage three it's pretty much a death sentence . Thank you DL so glad you went here this evening I was just telling my mom the holidays are so different now and ect . DL you are a blessing my friend and such a strong man . 🙏💙. Happy Easter DL to you and your family and to all your followers .

[@cathleenmaine-rozell4141]

Hello Saw your post ❤ I am stage 4 nal Cirrhosis not alcohol related. It is Probly related to a sugar/eating disorder. We all keep on keeping on, with the gift of eachother! Looking back-doesnt help- yet I do it too! Sending ❤ and Easter greetings from a 73 yo Granny! 😊

[@Kristen10-22]

God Bless you Wishing you a good weekend and prayers for you as well. Im sorry

[@Mmoose712]

Praying for you!

[@cheryldeanley2074]

So sorry to hear. I am so sad because I really care 😢

[@cathleenmaine-rozell4141]

@cheryldeanley2074 Don't b sad. Thank you for your kind words!! I am not in pain. Saved and looking forward to the adventure and wonder of Heaven. ✝️

[@WilliamJohnson-wq4ii]

Please don’t take this wrong. I’m very sorry you’re going through what you are. I lost my spouse to cancer, and if there was ONE silver lining, it’s he was able to say his goodbyes. His “I’m sorries”. That is the way I want to go when “that road becomes too weary and that hill too steep to climb”. I think having some knowledge that the end is drawing near CAN be a blessing.

[@liverdisease-qb6rk]

No worries. I did not take this the wrong way and you are right. I do get the chance to fix some things before I go and that really does make me feel better about it. Thank you for watching! God bless😊😊😊

[@RonsMom40-pu1en2gj4p]

I want to cry.

[@liverdisease-qb6rk]

I am so sorry. Thank you so much for having such a big heart!!!❤❤❤❤ God bless

[@ValentinaKajcinovska]

No you will get your new liver LD! I prayed for you 🙏✝️ I'm 55.. you will make it .

[@liverdisease-qb6rk]

Thank you so much!!!! I can't thank you enough for your prayers! God bless😊😊😊❤❤❤❤

[@northwoodszilly3036]

My sister was diagnosed with this stinkin disease and it scares me. She doesn't talk much about it. She had ascites bad, lost 29 pounds after the first drainage. She had burst varices too and vomiting of the blood. I get so afraid for her. I pray for her all the time. I pray for you and others here with this disease.

[@ValentinaKajcinovska]

It is a stinkin disease

[@liverdisease-qb6rk]

I am so very sorry. I know it does scare you. It's a horrible disease and there is nothing you can do. Thank you so much for sharing! God bless😊😊😊😊❤❤❤

[@jefferee2002]

I really consider myself blessed because i seem to have cought my cirrhosis earlier than many people. But the two things i suffered from most was, like you said, the lethargy and body aches. I'm sure the body aches were from my body basically eating itself alive, pulling out protein and calcium from my bones and muscle. And that lethargy made getting up and going to the bathroom something I had to talk myself into. I knew I had to increase my activity level from basically zero, so one day I forced myself to go for a walk. And i kept that up, and went on longer walks, and eventually bought an ebike The exercise has helped tremendously. My lethargy is basically gone and my body aches, while still there, are much improved. You really have to force yourself to be active sometimes. Not all the time, but sometimes. There are days I don't have to force myself, I want to. And, I have to say, being free of alcohol's grip feels terrific.

[@liverdisease-qb6rk]

Thank you for sharing this!!! You are so right. The exercise really does help. I was in the same boat. I was bed ridden for 3 months and had lost all hope. Until I found gennifer Shaffer on here and saw her walking. It inspired me so much and got me up and moving around. I had to push.... so hard. I can't even describe how hard it was... but I wanted to live. I wanted to be here. It was a force that I have never felt before. It changed my life and now I am so much better. That is so awesome to hear that you are feeling better now and enjoying your life!!!! Thank you so much for being here! God bless😊😊😊❤❤❤❤

[@wallsluggs]

You are a good guy. Your kids will appreciate your efforts. Alcoholism is a disease that some of us fall down on.

[@liverdisease-qb6rk]

Thank you so much for saying that! You are so right about that. God bless😊😊😊❤❤❤

[@kurtrussell5228]

It's not a disease

[@MonaYY_Rig]

Hi friend , LD I feel so sad hearing about your suffering, you’re very brave. Such a kind man. You certainly do not deserve this. I wish you would think about transplant if it were an option. I am a registered Organ Donor. I have seen amazing results at the Hospital. But we respect your decisions . LD many of us women are happy with cuddling and kissing and hugs and physical affection. It doesn’t have to be sexual relations all the time. You are such a sweet man I’m sure your wife and family are grateful you are sober and still here and able to spend all this quality memories with them . I really want to cry today for you 💚 Happy Easter to you and the Fam 💚💚💚✝️💟✝️

[@liverdisease-qb6rk]

Hey mona!!!! You are so right and I do hug and cuddle with my wife all the time! Unfortunately.... I did this to myself. It's just the way it is. It's taught me so many things. If I had the option to take it back... I don't know if I would honestly. It has taught me to be humble, love my neighbor, appreciate everything in life, and just being a better person in general. I have learned so many things since this began and the one thing that I can be so proud of everyday is... I am sober now!! I never thought I would be! Thank you so much for being such a kind and caring person! I cannot thank you enough! Happy Easter to you and your family! God bless😁

[@DJ-bj8ku]

I also beat myself up over past decisions that have compromised my future. I’m trying my hardest to live in the present because we can’t change the past and don’t know what will happen in the future. I know that in my head but it’s hard to feel it. You’re a good guy. I hope you get a new liver soon.

[@lawrencehenry606]

I think we all do but I know the Lord and My Savior has forgiven me but I also know my sin has consequences that I’m living with now. Don’t beat yourself up too bad. Just keep doing the best you can this world is hard and truth be known I’ve never meet anyone yet who has lived a perfect life so try to keep that in mind

[@liverdisease-qb6rk]

Thank you so much!!! I don't know if you have seen my videos from the past couple of weeks. But I have talked about that over and over. You are so right! You have to live in the now. It's all that we have. The past is gone and the future isn't here. You are right.... sometimes that's easier said than done. We have got this!!!! It's why I stay so busy. I don't have time to think about it. Thank you so much for being here! God bless😊😊😊😊

[@Mmoose712]

Praying that your liver numbers have improved. You are so young. I am thinking with time your body will heal. Praying for you so much!

[@liverdisease-qb6rk]

Thank you so very much for the prayers!! I really do appreciate it!!! I honestly do believe in the power of prayer. Thank you again! God bless😊😊😊😊😊❤❤❤❤

[@0rtmasta]

Contrast and compare your first video to today. Your confidence, how you look. It’s all there in the mirror, you’re a different person. You found your calling finally, instead of looking after people’s immediate needs (food), you provide support through your experiences. Keep going LD! I’m still sober, since January thanks in large part to you. Keep fighting!

[@liverdisease-qb6rk]

Thank you so much for saying that about me! I do look totally different now. I just said in another comment that I never thought I would get to where I am now and I am so blessed to be here! Thank you so much for your words of encouragement! God bless😊😊😊❤❤❤

[@liverdisease-qb6rk]

And I am so happy to hear that you have been sober since Jan! Congratulations!!!!!!❤❤❤❤

[@jamieburgett4652]

Ascites sounds alot like being 9 months pregnant... literally. I'm 4'11" and when I was pregnant... there was nothing that got me comfortable. Thankfully that was a phase. What you went thru is so much more. God Bless, LD. You're saving lives.

[@liverdisease-qb6rk]

It really is. It's so uncomfortable. It has to be the most uncomfortable thing I have ever been through. I had finally gotten tge fluid off back in January of last year. I had my tips procedure and stayed in the hospital for two weeks. 4 days after coming home.... the fluid started coming back again. I had to take a bath to go to my gi Dr that day, stood up and looked in the mirror and burst into tears. I didn't want to go through that again! I put my head down and pushed.... I did everything to make it go away. It finally did and I can't be more grateful! Thank you so much! God bless😊😊😊😊❤❤❤

[@RonsMom40-pu1en2gj4p]

My heart goes out to you. I know the sight of what you speak of.😢

[@liverdisease-qb6rk]

Thank you so much and I am so sorry that you have had to see this disease in your life. This is why I am on here talking about this everyday. I want to try and prevent as many people as I can from ever having yo go through this. It still can happen, but stopping drinking can definitely help prevent it from happening. Thank you so much! You are s very kind human being. God bless❤❤❤

[@Kristen10-22]

You aren’t alone in your fear of when it might come back. I’m afraid to leave the house or go far from home. It’s traumatic period

[@liverdisease-qb6rk]

I am so sorry!

[@jefferee2002]

Please don't live in fear. Death is inevitable for all of us. But don't think there is nothing more after it. And in the meantime, live this life. Enjoy this life.

[@Kristen10-22]

@@liverdisease-qb6rk It’s ok… I also think the older I get the more introverted I’m becoming. I do get out I just beat em all to the store before it gets packed & overwhelming

[@Kristen10-22]

@@jefferee2002 thank you 🙏🏻 I’m working this emotional support puppy now. Lol! Goose is coming along nicely. Personal trainer coming Monday! Oh boy… she doesn’t know what she’s in for. U tell or teach me how to do anything I’ll take the info & work on it balls to the wall! Lol

[@F110mech]

You seem like such a kind person. I pray for you and your family!

[@lawrencehenry606]

I can relate to the tiredness and the hurting and I do the same thing. Try to stay busy

[@liverdisease-qb6rk]

Thank you for sharing that! The constant lethargy is the worst.... I'm glad to hear that you do the same and stay busy. It really does help so much! Thank you! God bless 😊

[@grettawilliams9744]

I'm a displaced Texan and I love Southern sweet tea. For a pitcher of tea, you can use 1/4 cup of Stevie instead of sugar. It's pretty close to the real thing. I've been battling cirrhosis since march 2022 and I really appreciate your videos. God bless

[@liverdisease-qb6rk]

Thank you for that!!! Great idea! I am so sorry that you ate dealing with this. I really appreciate you watching these videos! I really hope they help! God bless😊😊😊❤❤❤❤

[@jonjusten4835]

Your videos make me feel I’m not the only one.

[@cherylleannhuntley5049]

It hurts me deeply to hear to share these issue's, however you are healing, you wont heal to 100%, but i know as a subscriber friend I'm thankful to see the outward changes in you. We all care about you LD and suffer emotionally with you. Live your life to the fullest! Your family will remember the goodness in you and how much you love them❤❤❤

[@Micru866]

Beautifully stated, it’s incredible how we connect with someone we never met in the real world. It’s a beautiful thing…I’m so grateful I found him and this community.

[@liverdisease-qb6rk]

Thank you so much for this!!! You are right... I won't ever be 100 percent, but I have come a very long way since this all started. It's really a miracle how far I have come. I never thought I would be where I am today. Thank you so much for caring!!! It really means so much to me! God bless❤❤❤❤❤❤😊😊😊😊

[@liverdisease-qb6rk]

​@@Micru866I am so happy that you are here!❤❤❤❤

[@Micru866]

@@liverdisease-qb6rk ❤️

[@cherylleannhuntley5049]

@@liverdisease-qb6rk Happy Easter to you and your family❤️

[@seg6629]

You really are one special person Thankyou again sir xx

[@johannhenderson5670]

You are a tough guy thanks for sharing your story. I do hope you get a liver transplant option. LD this helps me understand my late husband’s struggles with alcohol sad to say it controlled him. He must have felt awful just like you explained.

[@kathrynminnick8986]

I'm sorry your health is so compromised and every day is such a challenge. I also have huge sympathy for other viewers who have liver problems,, too. Here's hoping brighter days await everyone here suffering from cirrhosis or related problems. 🙏🌷

[@liverdisease-qb6rk]

Thank you so very much!!!! I can't tell you how much I appreciate you saying that you have sympathy for people with this disease! Thank you! God bless❤❤❤😊😊

[@chickensdontsurf]

I remember my brother having to just stay on the anti-nausea medication. I don't know what it was, I'm hoping to get his medical records through his widow, maybe I'll have more constructive information to share. I think the example videos you talk about here would be super helpful. Or "a day in the life" of you, I'm sure your whole day is full of routing, and I bet you have worked out better ways to do things since you've delt with it so long. Big hugs to you, I keep you in my prayers every day.

[@RonsMom40-pu1en2gj4p]

Maybe Compazine?

[@liverdisease-qb6rk]

Thank you so much for the prayers. It probably was Zofran that he was on. I take it all the time. They have it in pill for or you can take it sublingual. I don't like it under the tongue. It leaves a weird taste in your mouth that does not go away. Thank you for everything!!!!! I always look forward to your comment! God bless❤❤❤😊😊😊😊

[@chickensdontsurf]

@@RonsMom40-pu1en2gj4p I will try and find out

[@willthomsen7569]

You look good man. You got that horsepower deep down still keep at it NO DRINKING I believe you’re gonna make it

[@TheBohemiansWife]

I’ve heard the fatigue referred to as “bone crushing”, I also refer to it as “mind numbing”. Both are very accurate.

[@liverdisease-qb6rk]

You are so right! Thank you so much for being here! God bless😊😊😊❤

[@amandaflaherty7528]

I think the what if's are sometimes harder than even actively going through something. It can be overwhelming. I understand that part of what you're going through. I feel that I understand all of it even though I'm not experiencing it. And I know your intentions for this video aren't sympathy, but I need to tell you that I'm sorry you're going through it. From one friend to another, I'm wishing for you only the best and I hope you know that we care about your fears and your experiences. You've got this and we're here for you 😊 Also, you're still getting your message across, and your mission is clear! I have to share that I started watching your videos because I was afraid I might have cirrhosis, or of continuing down a path that might lead to it. I was seeking information and your videos were so informative to me because you weren't just talking about clinical signs and symptoms, but your entire experience. I continued watching because your videos and this little community inspire me to stay on my path. Every once in a while I like to say a big thank you for all you do! Have a great day and god bless you!

[@Micru866]

Hi friend, you said exactly how I feel. I had to press pause several times because although I know LD is strong and resilient I wish he didn’t have to go through all of this. I know we would have never met but if we could turn the hands of time…that would be great. I know that’s not reality. As you I empathize and although I do not have any of these conditions his story helped shake me to my core. To really question my drinking and the amount. I had transitioned to occasionally drinking spirits and that was another level for me from wine. It made me stop, have I had mishaps yes but never to that point again. Anyways thank you for your post. I love seeing you here. Have a great day!

[@liverdisease-qb6rk]

Wow!!! What a nice comment! Thank you so much for saying that!!! I really do appreciate you being here so much!!! I am so happy that you found this channel and have made the decision to stay away from the booze. That just really made my day!!! Thank you so much for being a part of this community and contributing such a positive message! God bless😊😊😊😊❤❤❤❤

[@amandaflaherty7528]

@Micru866 hey Mic! I love seeing you here, too! It's been a very cool experience going from just commenting to share my thoughts feelings, to making these genuine, strong connections with a number of kind and caring people. No matter where you stand with alcohol, it's wonderful that you're just looking to improve your life in any way and willing to lean on others who want the same. I'm also so glad that Ld has a group of people who care about his experiences just as much as he cares about ours. Have a great day, friend! 😁💞

[@amandaflaherty7528]

@liverdisease-qb6rk of course, Ld. I'm so glad we're all here, and I forever will be continuing to wish you the best 😁❤️❤️❤️❤️

[@Micru866]

Hey LD, another great video. I have to admit I had to stop watching and go back to it several times as it made me emotional. I know you’re a strong person but I empathize with what you’re going through. I know none of us are promised tomorrow but understand that diagnosis can get in our head. Just keep enjoying your family, friends, beautiful sunny days and even the rainy ones, and keep spreading awareness of this disease. We should all live our lives with purpose as none of us are guaranteed tomorrow. LD I know you’re doing just that. Thank you for sharing yourself with us. I look forward to the curry butternut squash soup, I actually have one I need to roast soon. Have a great Saturday all!!

[@liverdisease-qb6rk]

Thank you so much micru866!!!! I am so sorry that the video made you get emotional. I just wanted to talk about the things that go through my head so that other won't feel so alone with their thoughts as well. I try everyday to live in the "now". Sometimes that's harder said than done. Thank you so much for being such a kind person!! I am so blessed to have you here! God bless😊😊😊❤❤❤❤

[@Micru866]

@@liverdisease-qb6rkit’s ok LD, tears are good for the soul. It means we care for each other as humans. I feel that’s been lost a long the way in recent years. Anyways thank you for all you do and keep shining because all of this is therapeutic for you and all of us.

[@liverdisease-qb6rk]

@@Micru866 thank you!!@@

[@Kristen10-22]

Your girls r so lucky they have a chef in the house. Love ya David Yeah sweet tea !!!! Thanks LD

[@liverdisease-qb6rk]

Yes ma'am!!!! They never have to cook anything! My wife doesn't know how to cook very well. She has never had too! I have tried to teach my daughter... but she doesn't want to learn. I can lead the horse to water.... 😊😊😊

[@Kristen10-22]

@@liverdisease-qb6rk yep can’t make em drink it It’s an art and u have the gift

[@ValentinaKajcinovska]

Happy Easter everyone ❤🙏✌️

[@liverdisease-qb6rk]

Happy Easter to you too!!!🐰🐣😊

[@Kristen10-22]

My hb grandma and grandpa had a dairy / corn farm in St Mary’s, Ohio. Oh I loved it there. Silos too, old barns gorgeous Your day looked a lot like our day here.

[@liverdisease-qb6rk]

That's so cool! I grew up playing in silos! Did you guys do the same? God bless

[@Thagy1973]

LD you are such a kind hearted dude and my heart goes out to you and your family. God bless 🙌 🙏

[@UnseemlyGenie00]

My peach flowers didn't survive this year. There was an early frost. Next year will be better. You da man

[@annfoster5190]

I understand all about varices and dont like feeling nauseated either. Fortunately I don't feel queasy very often but I bruise easily because my platelets tend to run low. It only takes a teeny tiny little bump (always on my arms) and I get these huge dark purple spots. They don't take as long to clear up because my hepatologgists took me off of Ibuprofen. For pain he recommended me to take Tylenol but no more than 2000 mgs a day. Most days I do fine on 1000 to 1300 mgs as needed. I agree with you L.D. about not living to eat but eating to live. I'll turn 65 in a weeks and its by the grace of God I'm still am alive I have four years of sobriety under my belt and my primary care doctor and hepatologgists are a real Godsend. They are closely monitoring my cirrhosis and in February my tests indicate that my cirrhosis is compromised and as long as I stay sober and eat the diet they've recommended, I have a lot more hope Thanks for all your videos, they are always encouraging ❤

[@liverdisease-qb6rk]

Thank you! That is so good to hear that things are doing better for you now. And 4 years is so awesome!!! It's a real struggle dealing with this. It really is. We can get through this together!!!!! I know we can! I am so blessed to have all of you here, so that we can exchange ideas, stories, and things that have helped us get through this. Thank you so much for being a part of this wonderful community! God bless❤❤❤😊😊

[@Kristen10-22]

LD everything your worried about is completely VALIDATED! I wouldn’t wish any of this on my worst enemy if I had one. I’m understand some of the worries just different worries for having a ca mutation. You are changing your body through your mind. Thanks for being so vulnerable. God Bless yall

[@liverdisease-qb6rk]

Thank you Kristen!!!! I really appreciate you saying that!!! God bless you as well.❤❤❤❤❤❤❤❤

[@Kristen10-22]

MERCH is AWESOME !!!

[@liverdisease-qb6rk]

Thank you so much Kristen!!!!! I can't thank you enough for getting some and for letting everyone know that you like it!!! Never in a million years did I think... one day I'll be doing these videos on here... and have merch too??? It's so crazy! Thank you from the bottom of my heart! ❤❤❤❤❤ God bless😊😊😊

[@Kristen10-22]

@@liverdisease-qb6rk bottom of mine too

[@northwoodszilly3036]

Happy Easter ✝️ to you and your family, from Wisconsin, LD. Keep up the good work. I watch your videos every night before bed. You are encouraging.

[@liverdisease-qb6rk]

Happy Easter to you and your family as well! Thank you!!! I hope you have a beautiful weekend! Sending love from south carolina! God bless 😊 🙌 🙏 ❤️

[@michellejessey8654]

I have this feeling that you will make a huge recovery in the next 5 years

[@SquireNotesMusic]

Happy Friday all and happy Holiday weekend remember don’t drink and don’t worry, worrying is like a rocking chair it’s something to do but it gets you nowhere ❤

[@liverdisease-qb6rk]

Hey!!! Happy weekend to you too and happy Easter!!!! You are so right! God bless😊😊😊❤❤❤❤

[@Redsnapper123]

Heavy man

[@liverdisease-qb6rk]

Thank you for watching! God bless 😊

[@Orangestanley64]

Towards the end of his life my husband couldn’t be out of bed more than 20-30 minutes. He refused to go to the doctor and when he did go to the hospital it was against his will and he had to be on psych hold because of delussions. His brain was not working due to HE and wernickes and he was not making decisions in his best interest. He was so uncomfortable all the time from ascites and what I’m sure was varices which restricted his ability to eat more than a spoonful or two. for my husband his brain was so damaged that there was no coming back from it even if he did all the right things. We aren’t exactly sure what caused his actual death but it was due to cirrhosis and the damage done. I pray for you. And all the other people and their caregivers because it is the truth of alcoholism which they don’t glamorize in all the “fun alcohol” tv commercials. I cry every day for him and miss him terribly. He only lived less than 2 months after his diagnosis and died suddenly and unexpectedly in my arms after a seizure. We were married 36 years. He was only 62.

[@liverdisease-qb6rk]

I am so very sorry for your loss. May your husband rest in peace. You are so right.... they don't talk about that part when they are doing the commercials, everyone is having a blast on the beach or whatever it is. The dark side of this is just that.... in the dark. That's why I am trying so hard to bring light to this subject so that people know how dangerous this substance really is. The encephalopathy, ascites, varices, spleen problems, everything that comes along with this is not glamorous at all. People need to know that it's a very painful and horrible thing to go through. Thank you so much for taking your time to share this. These are tge things that people need to know. God bless❤❤❤❤❤

[@Kristen10-22]

U made me cry at the beauty of the land. God I miss home. Hb & I used to go for a drive & just “get lost” on the country roads. Getting lost here is difficult

[@liverdisease-qb6rk]

I'm so sorry Kristen! I wish you were back home. My new channel is going to be something that I really think you are going to enjoy. I haven't talked about it yet.... ut it's coming. I have such an awesome idea and will be starting it next week. I promise you! You are going to love it!!!! It's right up your alley! God bless😊😊😊❤❤❤❤❤

[@Kristen10-22]

@@liverdisease-qb6rk I knew I came across you for a reason 🤩😆💐♥️

[@liverdisease-qb6rk]

@@Kristen10-22 we sure did!!!

[@Kristen10-22]

@@liverdisease-qb6rk yep Nothing is by coincidence

[@EricWard-ou2oj]

Thank you for sharing

[@deborahmckinley4732]

Wow many things to deal with. Thanks for sharing LT.

[@Kristen10-22]

BAM 💥 U NAILED IT I tell R all the time buddy I stay so busy all the time because if I stop I have to think… I don’t tell him this part though… If I stop I have to think about all I’ve lose in this life. Take away the drug of choice you aren’t numb anymore. If I think… I feel…. I don’t believe I could handle the full weight of my sadness/grief. I believe it would swallow me whole. U nailed it! Addicts think like that too.

[@liverdisease-qb6rk]

Thank you Kristen! I know exactly how you feel and I am so sorry that you have all of those thoughts. It never goes away completely.... it makes it a daily battle within ourselves. But... you are strong!!!! Very strong! Not everyone can escape the grasp that it has on us. Thank you for sharing! God bless

[@Kristen10-22]

I was thinking on my walk today.. (yikes!) Anyone who is / has dealt with a chronic disease or illness it’s extremely isolating & lonely. Some of us have family to lend support, empathy or compassion yet when it’s you that has an illness nobody knows how it makes u truly feel inside. I can even relate to the guilt. Guilt for having & survived cancer cost a lot of $. We had meals sent to the house for dinner for months thru “R” school every night, all the cards & no way honestly to thank everyone made me feel guilty. Surviving alone can bring Survivors guilt. All I’m trying to do say is it’s lonely & scary. I have felt God I know it. I had attended an “Anointing of the Sick” Mass. God feels like a warm hug inside. I think it lasted for a bit. I didn’t want the feeling to leave. Idk why I’m sharing this. Maybe someone needs to hear it. Grateful to you all

[@liverdisease-qb6rk]

Hey Kristen... you are not alone. I can relate to what you are saying here. I have a very good support system and I don't know what I would be doing if I didn't. I am so lucky, and I understand how you feel about the Survivor guilt. We have had so many people help us along this journey. So many. We wouldn't have made it without all the help that we have received. We have been financially broken through this. That was not always the case for us. I was so ahead of the game in life in that aspect, to lose it all. Having an illness like this or yours or anything major, it's so expensive. But.... I am here, alive and so are you. We can't take anything with us when we leave. So... it is what it is. We get another day to hug our families and see our children smile.... and that.... is worth more than any amount of money in the world. I wouldn't trade any of it. Every I have been through is for a reason and I have learned so much about myself and my family through all of this. Love..... it's the most important and beautiful thing that we have as human beings. Thank you and I hope that you have a wonderful day! God bless

[@Kristen10-22]

@@liverdisease-qb6rk I ♥️ U I am so grateful to have you to remind me. I was looking in the rear view too long. I know I’m here for a reason. God needed to remind me how strong I am & literally show me. I just wish I didn’t need such “big shakes awake” lol! God has always walked next to me. I can’t make sense of it sometimes is all. Trust me I’m not that special. Instead of asking why me I ask “Why not u Kristen?” God & I have a challenging relationship. I get close then back away. Like that’s how deep this unloveable shame is. I guess I had to change states, lose family alive & gone to save me. I think I had to give up my wide open spaces & beauty of nature to save me. Exchange my health over being able to open your windows, or get lost in the Metroparks. It’s ok… This Too Shall Pass Jimmy was all about saving too. He bought his own Ford Ranger at 16 with cash. I swear he hoarded $. Hmm only in the end steal it for a company that gave him over 100 grand a year. In the end nothing matters but how we made others feel & how deep we ♥️. I wouldn’t trade what I have now for the world!! I would however love to be on my beach.. Longboat Key. I had my hand in a wild dolphin before. The experience was so spiritual I literally just sobbed. K now I’m rambling. lol I’m happy u understand how I feel at times.. it’s always there.. today it’s close to the surface. I’m grateful for you if u only knew how much. Thanks for your comment. I am in awe of your kindness your compassion & your empathy towards those you haven’t met in person. Thanks LD I feel better ❤️‍🩹

[@Kristen10-22]

OK I’m moving Heaven no noise pollution Omg

[@liverdisease-qb6rk]

❤❤❤❤❤

[@527ctguy]

I do not have liver issues but have borderline HP so I cut out salt - I can relate to outside venues having too much salt.

[@liverdisease-qb6rk]

I am so sorry that you have borderline hp. I really hope that you can turn it back around! Thank you so much for being here! God bless😊😊😊

[@Candice-1989]

Can i aak what stage you are? Ive just been diagnosed with non alcohol cirrhosis of the liver stage 2... I'm a widowed Baptist Pastors wife from Georgia. Im 57

[@cheryldeanley2074]

Hey G, especially loved this video. You have explained a lot of my questions that I had about your health. Thank you so much ! I never would have thought that you had to limit your travel plans due to cirrhosis. That sucks😢. I've looked up images of ascites. Wow that is crazy. Everyone that is curious should look that up. Like I said I'm not phone savvy. I would love to do a video chat with you. I have 50 years of drinking. How would I get in touch with you? Before I go speaking of peaches, why when I buy them in the supermarket in the summer they are hard as a rock and take a week and a half to get soft. Are they picking them too early? And I have to plug Jersey tomatoes. We are the best lol. Love ya so much. Your first video changed my life. ❤❤❤

[@Kristen10-22]

Hey girly!! Love and hugs to you my friend. Yep his first vid changed me too. ❤ hugs to a pleasant nights rest

[@cheryldeanley2074]

Hey Kristen love you too girl always thinking about you ❤️

[@Kristen10-22]

@@cheryldeanley2074 always thinking of u too!! For real . If we lived near one another think of all the friends we’d truly have in real life! Jersey Girl & H town girl lol

[@liverdisease-qb6rk]

Thank you jersey girl!! You are so right. For anyone who hasn't seen ascites.... look it up. It's horrible. I do have to limit where I go, because if something goes wrong, I have to be close to a hospital. And .... one that can handle something like my problem. Not every hospital can manage someone like me. It's really scary. I would love to talk to you!!!! Do you have Facebook or Instagram? If not... I will send you my email address. I just don't like it being up here for long due to the trolls. I have received some emails that I would rather not even discuss. There are some really mean people out there. Let me know and I will find a way to get my information to you. Thank you so much! God bless 😊 🙌 🙏

[@veehope2702]

Does ginger really help for the nausea? I've been praying for you.

[@liverdisease-qb6rk]

It really does! Thank you so very much for the prayers!!!! I know they have made it my way! God bless❤❤❤❤

[@sethjr9815]

Didn’t realised you are from South Carolina, I’m from Australia and flew to North Carolina in 2022 for work, nice place very similar to New South Wales. I was limited to bed rest for a couple days because of some stomach bugs the kids caught and passed onto me, vomiting and runny stools, think I lost 4kg in 3 days I’m told I should limit flying because of the difference in pressure in the cabins and if something were to happen mid flights and Australia is the middle of no where flying anywhere below 8 hours is considered short there is very limited on what they can do for me. Luckily I live close to 4 of the best hospitals here so don’t need to travel far but I’m pretty much Australia bound and can’t visit any relatives overseas now. I feel you about the dread of the hospital visits, because always dreaded to see if the numbers are worst or better, a side note is while I do have decompensated cirrhosis but there have being studies showing there are people who have gone to a new phase of recompensated cirrhosis where it goes to fibrosis and later to weak liver(it sounds bad but it means it ain’t getting worst) and prognosis is very good. My numbers are getting better slowly but on the right track The sex drive is because of the beta blockers

[@liverdisease-qb6rk]

Thank you for sharing this! I didn't know that beta blockers could do that. I am on beta blockers as well and have been for almost 2 years. It hasn't done that for me. They make me really tires, so I take them at night before bed. I'm sorry that you are basically stuck in Australia. I know how you feel. I wasn't aware of the change in cabin pressure could cause problems, but that makes a lot of sense. I really appreciate you being here and thank you for taking the time to share your story. God bless 😊

[@RafaelHernández-w4q]

You should do the ascites video

[@liverdisease-qb6rk]

I will for sure. Keep an eye out for it. I have done one in the past. If you go through my videos there is one I did some time back. But... I will do another one soon! Thank you! God bless ❤❤❤❤

[@EricWard-ou2oj]

Kachava breakfasts I feel you

[@chp6489]

❤️LD❤

[@liverdisease-qb6rk]

Thank you!!!! ❤️❤️❤️❤️❤️❤️ you too! God bless

[@JackiePena-h4z]

Peppermint tea is great for nausea, & it tastes great 😊 peppermint oil works wonders as well.

[@liverdisease-qb6rk]

I do that sometimes too! I have fresh mint growing in my garden. It really does work, and mints as well. I keep them on me at all times. Thank you for the advice! God blesz

[@DougMacDonald-w1f]

How is your pancreas doing currently LD? I'm just concerned after the video after the last operation. Praying it's OK bro!

[@nategremore9162]

I would like to see your current,updated diet to live!? It’s one thing I can’t get from my Dr.s here.

[@liverdisease-qb6rk]

Absolutely!!! I will do a video on just that in the next few days. Keep an eye out! Thank you so much! God bless😊😊😊❤❤❤

[@js1mom]

We should always eat to live!

[@KristiLEvans1]

Try monk fruit or stevia for your sweet tea!

[@liverdisease-qb6rk]

I will! Thank you! I am going to show david how it's made here.... although I don't suggest anyone drink it! Hahaha!!! Thank you! God blesz😊😊😊

[@KristiLEvans1]

@@liverdisease-qb6rk I feel ya! I was a fifth-a-day vodka drinker for a few years. Can’t have nothing with sugar, now. lol. That’s the way it go.

[@Kristen10-22]

I like it when u go off topic ❤ LOL I want one too

[@liverdisease-qb6rk]

Hahaha!!! Thank you Kristen!!! I have another video that I will add on today. Went out this morning to do something and the family of deer were back. They have a new addition.... an albino deer! Got it all on film!

[@Cat-oj4oz]

Hello, my friend, I've heard that ascites can be relieved at home... a port is inserted, and a person can be trained to use a draining device... have you looked into this? Also, do you take anything for nausea? Massive prayers moving in your direction...I so want you to find solutions to the difficulties of cirrhosis. Also, I've heard EECP is being used off label to help soften the scarring of the liver. I just keep on looking for answers everywhere. We all want you to live a more comfortable life. You are so loved...

[@liverdisease-qb6rk]

Thank you so much for being do kind! I have not heard of that being done at home before. I know that they want to ensure that it's tge most sterile environment they can when they do tge drain. I have gotten septic before from a drain. It almost took my life. Thank you so much for doing your research to find something to help me! That means so,so much! God bless 😊 ❤️❤️❤️❤️❤️

[@robertwilliam9558]

Has the Cirrhosis done any damage to the eyes?

[@liverdisease-qb6rk]

Absolutely. I didn't wear glasses before this. I can't see without them now. It has really done so many different negative things to my body. Thank you for the question! I forgot all about that. God bless😊😊😊

[@glutitis]

In the 80s, when I started my career on drugs and in the medical community, which is crazy in itself, if you had bursting varizes , they would actually shove a plastic balloon down your throat, blow it up, very firm and hang a weight on it. Like can you imagine? ( further interested? It's called a Sengstaken-Blakemore tube) It's done in emergency situations, still, but therapies have wildly evolved, with endoscopy, blood pressure management, ligatures, working with heat and on.... As staff, these bursting varizes are among the worst, you'll find yourself in, at work, maybe beside throwing up poop .It looks like a Taliban beheading clip, it stinks because patients pukes swallowed and now coagulated blood, among the fresh, really red, as in movies, blood? That's horror. Beside, many don't make it through and die, so you'll deal with a really scared and often screaming for his live, patients. Well..... No. No intention to scare anyone. We, as professionals faint, after the work it's done😂 My preferred medication after such horror, was a good old morphine injection. Good old days. Now, I'm sarcastic and triggered myself. Bravo😅 Greets

[@kentlowry5435]

💙❤️🙏

[@liverdisease-qb6rk]

❤❤❤❤😊😊😊😊🙏🙏🙏🙌

[@DebraReule]

I LOVE YOU LD🫂♥️🙏

[@liverdisease-qb6rk]

Love you too!!! ❤❤❤❤❤😊😊😊😊 God bless

[@JackiePena-h4z]

Chef I agree with you on loving peaches 🍑!!!!! They are so delicious 😋 can you eat fresh fruit? Like mango,🥭 or papaya? Not sure if there’s too much sugar in it?

[@liverdisease-qb6rk]

Hey there!!!! Thank you!!! They are my favorite fruit by far! I can't eat those. They have too much sugar in them. I love, love, love mangoes! But... anytime I have tried eating them, my bs spikes really bad. Thank you! God bless😊😊😊

[@kennithminnich]

Ive known a couple alkies that got new livers. Most were too weak to survive surgery.

[@NorthStarGeneral]

It's really too bad that you can't use cannabis. I understand why you don't and the general concerns associated with using a substance man but as a concerned viewer that has seen cannabis, especially high dose edible raw cannabis, change the lives of many sic people and as one human to another I feel it's my duty to say this even though I know where your at.God bless brother.🌄

[@MartyCL]

Wonder how your system is with taking Lactulose? Tend not to know when it will kick in as you can’t go too far from a bathroom.

[@liverdisease-qb6rk]

Oh... it really keeps me from going too far. It does cause a lot of emergency situations! Thank you! God bless😊😊😊❤❤❤

[@omitimehernandez2010]

How do you control your diabetes? A keto diet has worked for me. Do you eat sugar or carbs. Just wondering. Cheers

[@liverdisease-qb6rk]

I do not. I try to keep my carbs as low as possible. I had a really hard time getting it under control... but I do now! Thank you so much! God bless😊😊😊❤❤❤

[@jackduffy2513]

I've always thought, what if they cut off the left 75% of your liver and wait for it to grow back and then cut off the right 75% and wait for that to grow back. When it grows back, does it grow back cirrhotic? That's always confused me because its suppose to be able to grow back to full size for sure so im wondering maybe if you get to the point where your liver is cirrhotic, maybe it loses it's ability to grow back if you get a piece of it cut off...

[@RafaelHernández-w4q]

Jesus has a plan for you LD if you eat right I think you can last a lifetime

[@liverdisease-qb6rk]

Thank you so much!!!! God bless😊😊😊😊❤❤❤❤❤❤

[@yosoytercio245]

👍🏼

[@liverdisease-qb6rk]

Thank you! God bless 😊

[@MarshaMarshaMarsh4]

Ahhhhhh, yes- the forced feedings 😊

[@liverdisease-qb6rk]

It is so hard to do! Thank you so much! God bless😊😊😊

[@EricWard-ou2oj]

Have you done a video on encephalopathy?

[@breesechick]

I don't think that maybe this is the cause of my fibromyalgia symptoms. They can't figure out what's wrong with me.

[@liverdisease-qb6rk]

I'm so sorry. I hope they can figure it out soon! Keep me posted please! God bless

[@briangodwin27c]

Honest question how did you break it to your family about the no transplant choice. Come up on that in the next 2 months.and im not surenhow to approach it sorryni havent been commenting lately just alot going both physically and mentally. Just jot sure how to uave theat convo. 3 brother their wives 9 neices and nephews 1 son and a sons mother and her and her fiancees daughter loves me. How do you go about kicking somebody in the berries over that. I had

[@liverdisease-qb6rk]

Hey there! No worries! I completely understand what you are dealing with. It's not easy. I have just been open and honest with them about it. They respect my decision. I did this to myself and I wouldn't feel right taking a liver from someone who didn't do anything to themselves. Thank you so much for being here! God bless. I hope that you get to feeling better soon. 🤎

[@Kristen10-22]

Hunting dogs?? Woah

[@liverdisease-qb6rk]

Oh yeah! My puppy is a Kemmer kur. They are squirrel dogs. He uses them to hunt wild hogs too.

[@faitheastman7422]

Are you on the transplant list?

[@chadbagley3229]

Have you tried the carnivore diet?

[@giatasha2181]

Carnivore is not good for people who have pancreatitis. It is not good for this stage of cirrhosis

[@liverdisease-qb6rk]

I can't. My body doesn't respond well to that much meat. I have tried, but it's too hard on me. Thank you so much for the comment! God bless😊😊😊

[@micki45melanson91]

Sorry im scared but doin rote thimgd livet zdr etc

[@kurtrussell5228]

How much were you drinking a day and for how many years?

[@liverdisease-qb6rk]

I drank 1/2 of a 1/2 gallon of vodka every 2 days. A lot! And I drank beer and fireball shooters as well. It was horrible. Thank you for watching! God bless😊

[@kurtrussell5228]

@@liverdisease-qb6rk crap, that's what i drink.... about a pint and a half of vodka a day give or take.....been doing it for about 5 years....

[@kurtrussell5228]

@@liverdisease-qb6rk ...... i guess I'm on borrowed time.... if it's not to late already

[@Dozelton]

How bout coffee?

[@liverdisease-qb6rk]

I drink it all the time! It helps out some. Thank you! God bless😊😊

[@RonsMom40-pu1en2gj4p]

Do you have routine endoscopy? My son started blowing off his scopes bcoz he was so sick of drs.

[@liverdisease-qb6rk]

I do. I have had one basically every month. I am so tired of it too, but I go. 😊😊😊 God bless

[@xavierisrael3320]

Have you considered smoking grass for the appetite and nausea relief? Yeah its illegal in SC but who the cares if it helps ones health? Shit’s legal in like half the country