Living With Parkinson's Meetup: April 2024 - Getting Things Done

[@andrewmcewan-sz7mc]

Thank you so much for your time,I wish my support group will catch up with you. I’m trying to restart the group due to covert we disappeared and very slow to bounce back.your support is amazing and helps me to finding my way with Parkinson’s and I hope to help my friends and family to understand.love you guys ,my prayers and thoughts are with you all.Kim Queensland Australia

[@davisphinneyfdn]

Thanks for your kind comment. We are here for you!

[@bengiesbrecht1026]

I’m 55 years old and was diagnosed with Parkinson’s about 17 years ago. This meetup really encouraged me. Thank you for your time. May the Lord bless you all. Anna

[@davisphinneyfdn]

Thanks for your message, Anna. We're glad to have helped!

[@splashesin8]

This is so hard, but thanks for letting us know. I will be missing his voice for sure. 💔 Love to all who knew him. He is unforgettable as are all of you. Love to his family.

[@StaverMarilyn]

What a great bunch of people! 💖

[@ralsharp6013]

Very informative thanks.. Quality of life is the important thing

[@doriscorr334]

Sorry to hear that Tom passed away. I love to listen to your talks from Germany. So helpful for me.

[@davisphinneyfdn]

Thanks for your message. And thanks, too, for listening. We're here for you.

[@melbalarck7139]

I have been diagnosed with Parkinson's for about 6 months. I'm 75 years old. Thank you all for your input

[@davisphinneyfdn]

Thanks for watching!

[@jendaley1]

I have only known Tom through the Monthly Meet Up sessions, and took advantage of the many pearls of wisdom he shared. What a gentle, kind and insightful man he was. I will miss his presence at these meetings, and my condolences to all of you who had the pleasure of knowing him personally.

[@MamaMama-ub6fh]

It was so hard for me but only god is the only weapon of mine to this battle

[@Akot572]

What a bummer about Tom Palizzi passing away. Never met the guy, but I saw him couple days ago on KZbin doing some kind of a bike ride.

[@davisphinneyfdn]

Thanks for your message. Tom was always up to some ride or other! He was particularly instrumental in our Tour de Victory, which is May 18th, 2024: davisphinneyfoundation.org/event/tour-de-victory/

[@MamaMama-ub6fh]

Im disgnoze parkinson at the age of 67yrsold now im 70yrs old a woman a widow of e children

[@eddavidson3051]

Not seeing the link to advocates around the country. Are there any in Albuquerque New Mexico?

[@davisphinneyfdn]

We have two ambassadors in NM, one in Santa Fe and one in Tucumcari. Our full ambassador list is available here: davisphinneyfoundation.org/ambassador-search/ And other links related to this meetup are available here: davisphinneyfoundation.org/webinar-recording-april-2024-living-with-parkinsons-meetup-blog/

[@MamaMama-ub6fh]

I dnt know where to go and where can i ask help im from.yhe phillipines

[@davisphinneyfdn]

Thanks for your messages. We don't local knowledge of providers and resources for Parkinson's care in the Philippines, but here are some ideas to consider: 1.) The International Parkinson and Movement Disorder Society has a couple of providers in the Philippines who are listed as members. You might reach out to them: mds.movementdisorders.org/directory/index.php?Search=Search&Region=AOS&mode=map&Country=Philippines#directoryresultstop 2.) A 2022 study about Parkinson's in the Philippines lists multiple authors in the Philippines. You can click on their names and see the medical centers with which they are associated and reach out to them there. www.sciencedirect.com/science/article/pii/S2590112522000408?via%3Dihub 3.) St. Luke's appears to have a movement disorders clinic. You could reach out to them to see if they have any recommendations for help: www.stlukes.com.ph/health-specialties-and-services/institutes-departments-centers-and-services/movement-disorders-servicewww.stlukes.com.ph/health-specialties-and-services/institutes-departments-centers-and-services/movement-disorders-service

[@jimrkelly]

I would suggest using dictation on your phone for text messages as well as emails. Not perfect but over time, at least on an iPhone, it gets better.

[@davisphinneyfdn]

Good suggestion. Many people with Parkinson's do use voice-to-text. There's also ongoing work focusing on improving these resources for people with Parkinson's: davisphinneyfoundation.org/recruiting-speech-accessibility-project/

[@berniehelbling2891]

What was the cause of death?

[@davisphinneyfdn]

Parkinson's and cancer were contributing factors to Tom's passing.

[@richardgonick931]

Have trouble speaking. Thoughts in my head can’t get to my speech desire

[@davisphinneyfdn]

A speech language pathologist, occupational therapist, or neuropsychiatrist might be able to help with these issues. You could try the parkinsonvoiceproject.org/ to see if a speech language pathologist's expertise might be of benefit to you. They have regular free classes/workshops.