Our Son's Clubfoot Story : Plenty of Hope Ahead!

[@annabennettt]

i was born with club feet! so grateful for my parents and doctors who made my feet straight and strong today. crazy how many people have it i know so many people who have it in my town ❤️

[@eshanithenuwara7318]

Anna Bennett hi I would like to direct message u to understand ur story of recovery... how can I connect with u ?

[@puttabhagyasri4015]

At what age should the treatment be started

[@hariniacharya20]

@Anna Bennet how are your feet and legs now. Do you have pain?

[@firstnamelastname7857]

Do you or did you have any issues as you got older? Minor or major?

[@lolaarigbede7972]

@@eshanithenuwara7318

[@SunshineBear1211]

I’m 23 wks pregnant and the ultrasound shows my boy has a clubbed foot. I’ve been very worried and upset and your video brought me much relief. Thank you for sharing!

[@LydiainLyon]

I'm so glad to hear that! Of course nothing is certain, but if you find qualified care, the prognosis for this condition is really good, and chances are good that it will be a distant memory in a few years

[@p.singhd5736]

God bless you and your baby

[@isabelleal8114]

I’m 23 wks pregnant and the ultrasound shows my boy has a clubbed foot, in fact they will do another ultrasound with the specialist to confirm it. I really was very worried about it and yes, your video makes me feel so much better! ❤️ thank you. In fact is the same hospital that you mentioned but in Portland 🙏🏼

[@ruchijha6422]

@@LydiainLyonafter how much time of treatment a baby can cure. Is any difficulty in running or dancing Please reply Sorry for my poor english

[@LydiainLyon]

Hi @@ruchijha6422, it depends on the case, but with the Ponseti method usually the casts part lasts about two months (each set of casts progressively stretches the feet into position, they stay on for a week at a time and the last one a bit longer). Then, they wear a brace, the boots and bar, at first all day, then progressively less, pretty soon it's just for when they sleep until they are around 4 years old. But it depends on the case of course.

[@britttreu721]

What a lovely little boy. So happy for you all that He gets to be painfree.

[@jahidmasud1099]

Thank you Lydia for the post. One of twins just diagonosed with clubfoot, your video gave me mental strength.

[@roohmakhan5167]

My baby boy is just 14 days old having club foot issue, this devastated me as i came to know that after 1 week of his birth. We both were in critical condition. But ALhamdulillah now quite well. Hoping high for his quick recovery IN SHA ALLAH

[@malvikarana9380]

So relatable...brought tears in my eyes.

[@Clawsome-Clips]

I honestly wish I had watched your video sooner. My son was diagnosed with only a right clubfoot at 20 weeks and it felt like my world was collapsing. He's now going to be 2 in May and his foot doesn't even show any signs of surgery or treatment. Thank you again for showing all of this.

[@mohnisha1305]

Hi, my son too was born with his right club foot. He's going to be 2 month old on 25th August. Did your son also get Ponseti casting every week?

[@erlynn5]

Thank you so much for posting this lovely video of your son's clubfeet journey. Our 6yr old adopted son who joined us only 2 months ago was born with spina bifida and bilateral clubfeet. He had to undergo quite a few corrective surgeries before we even knew him. To the untrained eye he comes across as a typically active boy who always seems to be jumping and running around now. So grateful to all the medical staff and the caretakers who looked after him well all these years. Your video gave me a glimpse of what his journey was probably like while we weren't with him. Thanks again❤️.

[@rhear6705]

I also had clubfoot as a baby. Im so thankful for my parents, and all the doctors that helped me get through it. They have inspired me to become a pediatric surgeon (A surgeon for kids). Just knowing that I wouldnt be able to walk without the doctors help makes me feel so good.

[@LydiainLyon]

Rhea R that is wonderful, best of luck in your studies!

[@rhear6705]

@@LydiainLyon Thank you so much! :). I hope you are safe and healthy right now

[@MrChelseatel]

I was born with a club foot back in 1957 after many large operations when I was a child I am now 61 and have only just stopped playing competitive football.......I still run go to the gym and have had a near normal life so well done to all of the doctors who studied this symptom back then and now..you gave me my life back ... THANK YOU all a Middlesex Hospital...1957 staff ....

[@MrChelseatel]

I have read quite a few of your posts and would like to say your children will be fine if you do what the doctors require........Good Luck to you all and to your lovely children xxx

[@LydiainLyon]

@@MrChelseatel thank you!

[@chanceguzman8038]

I really needed to see your video, my son is due in may , two months ago the Dr told us he has 2 club feet . I lost it , didn’t know what it was. Been doing my research but finally googled a video on it and you guys popped up. Thank you , you really don’t know what you did for me. I don’t even know what to write … but I can breath better now

[@Grammx8]

Good luck with your new little one . 😊

[@chanceguzman8038]

@@Grammx8 thank you and god bless

[@natalynndawn4650]

My son is going to be 12 in September and he was born with clubfoot. He did the other method with taping his feet instead of the casting but had the bars until about 4 years or maybe 3 in half as he figured out how to get them off lol. He will always require prosthetic beace/AFOS as he has other conditions that affect his feet and gait. But Shriners has been there for him and us since he was 17days old ! Thank you for sharing your story!

[@kennedy6644]

It's not the end of the world, I was born with bilateral club feet 40yrs ago. Had the casts, surgeries available at the time played soccer, football. College education, met a beautiful wife who gave me two children with healthy feet!! I've got chicken legs! But they're strong, life is what you make it

[@thebastardgentleman9821]

Damn right. Our chicken legs are built different lol

[@raidthanfl]

My son has bilateral club foot. The beginning was rough. The casting and his boots n bar were a struggle. I remind him every day that diamonds are made under pressure. He is 22 months, runs around like a madman, climbs everything, he “surfs” on top of his lightening mcqueen car. These babies are way tougher than us “normal” footer people

[@gayathrikittu3285]

now how is ur baby

[@AbhishekGupta-po5tl]

Loved your video I am Orthopedic surgeon in India and we get to see so many of these children Your video helped me in connecting with them better and added and extra emotional touch for my patients Thank you

[@LydiainLyon]

Abhishek Gupta thank you for reaching out, I’m so glad this is helpful!

[@votecurtistheguineapigforp9603]

Isn't it the best thing in the world to simply stare at your newborn for hours? I don't think I slept until about 1 month of age. I couldn't get enough, and I'm glad I didn't take one single moment for granted!! ;)♡ well done mom..and dad too!! Beautiful babe

[@LydiainLyon]

Thank you for your kind words! We certainly enjoyed his baby phase!

[@garrygarry5693]

VOTE CURTIS THE GUINEA PIG FOR PRESIDENT

[@missskittles144]

Thank you for sharing! I don't have any children but I work with them and found this very informative! Your little guy is soooooo cute! So glad he's doing well

[@LydiainLyon]

I'm so glad this was helpful, thanks for stopping by, you are too kind!

[@belindahopkins-leigh9193]

We have club feet in the family. Two cousins feet were facing the wrong way. A childhood of many operations and plates in which has affected them their whole lives. I’m so glad there is new treatments which aren’t so barbaric and your gorgeous boy has a bright normal future ahead x

[@shahnasharaf1197]

May God bless ur adorable little prince and ur whole family..

[@نحنمعك-و3ظ]

نفس حالة ابني ، عمرة الان 19 شهراً الان قدمية بصحة جيدة الحمدلله

[@bambis46]

Boy this brings back memories. The castings used to break my heart.

[@dr.sunilmulgund9406]

He is such a cutie.... Let God give him all the strength he can...

[@kathyd7374]

What an adorable little boy! Well done mom and dad! Keep up the good work! My grandson was born with clubfeet. My son and DIL have always been serious about making sure their son was in his braces and they followed the Dr's instructions to the letter. Grandson will be four in a month, and he is doing EXCELLENT! He is still in the braces overnight, but during the day he walks, runs, jumps and shows no signs that he ever had club feet! In a few weeks they will make their next visit to Dr. Dobbs in St Louis and, if all looks good, he will be out of the braces for good!

[@LydiainLyon]

Thank you

[@LauraSmith-pf7ho]

I was born in 1962 with bilateral ‘club feet’. My feet were manually repositioned at birth. My mother always said she was glad they took me out of the delivery room for this because she didn’t think she would have survived watching the doctors do that to me. Then from time I went home till 2 years I wore a straightening brace that held my two feet parallel to each other. I also wore orthopedic shoes for the next 15 years. I never wore sneakers or flip flops till I was in Junior high school. Thank goodness medical intervention has come a long way in 60 years! Your little Jonas is perfect in every way and positively ADORABLE!!!

[@LydiainLyon]

Thank you for the kind words and for sharing your experience -- I am so very grateful treatment has improved as well, that sounds terribly painful!

[@debbieking3442]

Thank you for posting your story. Being a first time grandmother l have a better understanding what my Little grandson going to go through. I feel much better and l know he's going to be fine. Thank you for posting.

[@LydiainLyon]

Debbie King I’m glad this was helpful to you! Congratulations on your grandchild! ♥️

[@gunswillyify]

Thank you for sharing your story I just found out about our lil one left foot being a clubbed foot … this gives me hope thank you .

[@tinazake6777]

I really can't wait for this to be over.... My baby was also born with clubfoot

[@moselleconger4156]

What an adorably cute family!

[@LydiainLyon]

Thank you, you are so sweet!

[@dreamweaver7797]

God bless your family and above all Jonas...I just had my 20 week ultrasound and one of my sons foot is clubbed...I was very DEVESTATED but those like you whom embrace it and work with it I admire...thank you

[@LydiainLyon]

Thank you for your kind words! It will absolutely get better :)

[@MrChelseatel]

Stephler please read my story at the top of the page ...there is a great chance your son will live a normal life ...please god

[@joycesilver3314]

This is so full of hope. Had our first casting and it’s rough .

[@LydiainLyon]

Yes it's certainly not a walk in the park, especially in those earliest days. Good luck with these next few weeks, hang in there!

[@joycesilver3314]

@@LydiainLyon Thank you 🙏🏽

[@mohnisha1305]

Hi, so very happy to see Jonas making a full recovery and leading a happy healthy life, What a Sweet little fella. ❤😊 So I had breech delivery and my son was born with unilateral club foot, we started the Ponseti method as early as he was 2 weeks old( He'll be turning 2 months this month end) everything was going great but on his 3rd casting, we noticed mild bruises on his foot after we removed the previous cast. Did this happen with anyone out there?? I understand he's a newborn his skin is sensitive and loose but this just broke my heart. The Dr's and the technicians always take great care and wrap his foot in cotton before casting, yet this happened. Nonetheless we are continuing the casting method each week but every week I go through extreme anxiety before his cast is removed hoping there are no new skin injuries inside. If any parent out there experienced this please ping back and share your thoughts on the same, it would help us.

[@streetfeat2937]

I did Physical Therapy of tons of babies with Club feet ..But this one was the most special.

[@apriltoo]

You have beautiful kids...hope he's ok now. And you are both wonderful & amazing parents, they are lucky to have you both 😇

[@LydiainLyon]

April Me thank you ♥️ He is doing great these days, still bracing and feet look perfect :)

[@thespibunny272]

My baby girl has bilateral club feet. She’s still in the casting process & has managed to knock off her right foot cast 2 times. She’s wiggly & growing. I’m hoping the doctor will give her the Dobb’s BNB to allow for more wiggle room when the time comes. Thank you for your video, it gives me hope for her future & what’s to come.

[@luciemartin390]

I was born with clubfoot in my right foot and have never met anyone with one and this video made me feel normal so thank you :)

[@MrChelseatel]

Luctarus ...read my story at the top of the page ..

[@vivekchatterjee04]

Same here 😀

[@Wandiamusa]

I was born with clubfoot on my left leg too.

[@rhear6705]

I had it on my right leg.

[@christinabaca5470]

You moms are sooooooooooooooooooo strong I don’t think i could of seen by baby in pain

[@sonialopez4657]

Hiii! I loved your video! I'm expecting my first baby girl, she will also have club feet. & your video made me feel sooooo much better about this process that's yet to come. Bty your baby boy is adorable 💙

[@LydiainLyon]

Sonia Lopez oh I'm so glad! Congratulations on your sweet girl! There were certainly some rough days but it was all over so quickly, and he was a trooper! If you haven't heard of it, you should check out the "Clubfoot mommas" Facebook page, I've gotten some helpful hints and support there! And I've blogged about it some as well, I still need to put together a helpful tips and tricks post too! themotheringyearsblog.wordpress.com/category/clubfoot/ Thanks so much for your kind words :)

[@sonialopez4657]

Lydia DN and I'm soo excited for everything that's yet to come, I know we'll have hard days but we'll get threw it! (: I'm sooo excited, nervous, overwhelmed & everything else all put together. I have about four weeks left & I'll have my baby in my arms ❤️

[@pallavisharma6321]

heloo mam... thnx for this lovly vidio.my 2 months baby girl also suffer from plaster .I hope she will also be fine soon

[@dezi777fllr9]

Im expecting my first baby who is also a girl and she has clubfoot. Ive been so worried

[@kritikamishra1794]

@@sonialopez4657 is she fine now

[@kathiewarren2825]

God bless you.my grandson has club foot hes 4 mounth old now going though the same things.

[@marthaosmond6961]

Today I found out at our 20 week appointment that our son has clubbed feet. I was so confused as to what it was and his future, but your video has brought me to tears and given me the hope and reassurance that I needed. Thank you so much ❤️

[@LydiainLyon]

I'm so glad this was helpful

[@azkaakhtar7773]

Hey, how is your son doing now?

[@vishalsingh-ew2db]

He is such a adorable kid and your family is also very careing. can you tell me how much time takes the entire process. i have just started same treatment of my son.

[@ketomyway3881]

THank you - what a lovely video!

[@LydiainLyon]

Happy to share, thank you!

[@sanjidaalam7847]

Thanks for sharing. Watching it gives me hope during pregnancy 🤰

[@nibiladas5642]

Me also

[@gemmalouisexx8334]

Hi 👋💖.. I loved you’re video 💯, I was born with clubbed feet too & muscle wasting in my right calf .. but I got the same procedure as you’re beautiful little boy💙.. hope you all are doing great ♥️xx

[@arshwali9903]

God bless you all. I can feel the pain you have gone through, my daughter is in braces this time.

[@mirandac6436]

My son was born with this same condition and we just finished his tenotomy. Loved the video of your little dude!

[@LydiainLyon]

Boy, that tenotomy is no fun.. but I was amazed that he just bounced back just fine the next day! Glad your little one's at the end of casting now!

[@meshmeshaalzain5372]

Thanks for this encouraging video I am pregnant in week 32 I was terrified after I knew in week 26 that my son will be born with a clubfoot But after watching this video I was relieved........ :) thank you

[@LydiainLyon]

Oh I'm so glad to hear that it helped ease your mind! It's so scary to hear that something is wrong in an ultrasound, but the wonderful thing about clubfoot is how treatable it is. It's not always easy, but the hardest part of it goes by so fast, and now that we're in BNB, for us it's been smooth sailing! Congratulations on your pregnancy, I hope everything goes well with the delivery! Your sweet baby will be out of casts in no time

[@p.singhd5736]

Today my 19 wks pregnant wife's 3d ultrasound report shows our baby has club foot.. i had little bit nervous. But after watching your baby's clubfoot treatment with good recovery gives me positive thoughts and power.. Thanks for sharing.. And God bless your son.. soon he will run and play ..

[@hananamin6525]

My son was born with clubfoot too and he is one and a half years old now. He tries to stand but is still not able to walk properly. Plz let me know what can I do to help him walk. Your video is very heart touching as we went through some pretty tough times too. Not only was he clubfoot but premature as well. God bless your son and all kids around the world. :')

[@LydiainLyon]

Hanan Amin I don’t have any good advice since I am not a doctor or expert, but it sounds like your son is very loved and in good hands - I do know every child walks at a different age, clubfoot or not, but perhaps a physical therapist may have additional guidance. Wishing you and your child the best!

[@renuvu9033]

Ur child has luckiest person on earth

[@ginettepignan9353]

Magnifique bébé

[@carribeangyalamybell1148]

Thanks for sharing this because I just Found out today my baby have it am 19 weeks pregnant and devastated I been crying Lost of Words feeling like Termination is Needed of my pregnancy but I have Some hope from watching this video ,thank you for sharing and inspiring me Not to give up.🙏🙏🙏

[@LydiainLyon]

Oh my goodness I know it can be emotional for sure finding out, but glad to be able to give some hope - clubfoot is absolutely treatable and the outcomes nowadays are really great, hang in there ♥️

[@SappyFeller]

I was born with both club foot in bothering feet very bad I had the same amount of castings done. I'm not sure if I had the bar but my feet are fine. I just have pain standing for hours at work. I noticed this as I grew up playing sports and sitting in the car and then getting up to go inside the house I could barely walk. It happens to me still. The pain is a lot and I hope your cute little guy never has to go through that stuff. Watching this made me very emotional hoping he never has after pains in his feet later in life.

[@LydiainLyon]

Thanks for sharing your story -- I'm sorry you still deal with pain. I'm hopeful we'll be able to avoid that as he grows up, but I imagine some level of discomfort or pain is unavoidable :(

[@zeeshanhassan225]

Now jouns old is. And his feet is normal . How many years left this journey.

[@tahirkhan3717]

Also.pray for me to achieve this goal

[@adrivette1]

My son Kai was born in October with a right club foot and he’s currently going through the treatment. His final cast was removed yesterday so it was our first night with the brace.

[@LydiainLyon]

Hey! Glad you guys are getting good treatment

[@adrivette1]

Lydia DN Not bad so far! he isn’t too fond of the exercises still but we’ve got a solid routine going

[@tanzeelariaz4344]

My son was also born with right club foot and he is wearing shoe and bar now after 3 months casts and muscle tomy

[@amankichiriaamankichiria9762]

@@tanzeelariaz4344 dear apko doc Kia kehty h k Kab tak baby k foot theek jo jay gay

[@mahendragupta5879]

Nice lil champs your video give hopes for all👍

[@anusuyachinnan1537]

Where did you get the shoes? I want this boot and bar for my son can you tell me.

[@sagarreddy2424]

Ur video it really shows hope... For many.... My baby is also has clubfoot shown in untrascan.... Ur video really helped me..... Could you post the video while he walks to.

[@ajantagogoi3986]

Great ! all blessings and love 💜... from India

[@leeanne5338]

My sister and I were just told we were born with a cricket foot. They cast me but they didn't do it to my sister, she just got the shoes with the bar and all she did was cry and cry.

[@whydudesta]

Our 2nd son is on the way and today we had an ultrasound that showed bilateral club feet. I know worse things can happen but I can't help but be sad if anything is different than it should be for our son. I'm nervous and currently in research mode.

[@ShidaSheruji]

So cute..😍

[@jenankrouchick9081]

We found out yesterday that our 2nd baby girl will be born with a left clubfoot. I'm so scared and so sad. Thank you for your video though, it's nice to see and understand the path to recovery. Has your baby boy started walking or crawling yet? Thanks again!

[@LydiainLyon]

Jenan Krouchick hi! I know, it can be a little scary, but the great thing is how treatable this is -- you guys will be ok and faster than you think it'll all be a memory! ♥️ Yes Jonas has been crawling like crazy, he started around 8 months I think? (I can't exactly remember) And he pulls up to standing all the time now at 10 months, he's been totally on track so far with milestones. Our doctor likes to say if a child takes a little longer to do something, they were going to arrive there at that time regardless of the clubfoot. It really hasn't been a notable hindrance for us so far! Good luck with your little one!

[@anindaadattaadhikari184]

Thanks dear for the video

[@chedurthipatiahalya3547]

Where are you from? (Place &hospital name ) please

[@hafsailyas3075]

i am 23 weeks pragnt and today my anomlay scan showed that my baby has club feet.. i am still hopeful that GOd will make a way...

[@aronlelenora9572]

❤❤❤❤

[@komalgulwani1428]

Hi,is ur son is having normal life now,can u share ur experience now with me

[@cocosurgerow]

Put ear muff sound protectors on the baby for the saw

[@zeeshanhassan225]

How many year u follow up the doctor

[@Zackariyaouchen]

bravo !

[@joannaalcantar6393]

My son just got his first casts on both feet. He is definitely not use to them yet. He cries when he tries to stretch because he cant move his feet. I have to hold him alot right now. Can't wait for the casting part to be over. He still has a few weeks to go.

[@LydiainLyon]

Yes the first casts are probably the hardest, hang in there, it will get better

[@himanshirajput637]

Can you please confirm the weight of cast? And cast was wear by the baby for how many months or Year?

[@LydiainLyon]

Hi, I'm not sure about exact weight of the casts, (I have kept a few of them in storage so I should check sometime!) but they are a bit heavy for a baby. He was able to lift his legs though and move them around, he developed some good core strength by the end. Each set of casts is kept on for a week, and the final set after the tenotomy procedure is on for three weeks. So considering we had five sets (if I remember correctly), that would be a total of about 7 weeks in casts.

[@aaliyahibarra8066]

I was born w/clubfeet and I’m so glad my parents were able to make my feet straight and newborn till I was 5 we’re those special shoes with the bar and having multiple casts on my feet

[@LydiainLyon]

So glad you got good treatment early on! I'm curious, do you have any memories of the bracing phase?

[@aaliyahibarra8066]

No not really I was a baby when I needed the brace

[@OverPowerz]

I also had club feet when i was born, had the same treatment and im so glad that my feet work just as normal.

[@jameskaiser2512]

Aaliyah Ibarra yo I’m the exact same

[@malanamarie5206]

My mom had 2 babies with bilateral clubfoot one was me and the other my sister

[@rainemanansala9530]

Hi Ma'am Do you still have available boots and bar open for donation? 😊

[@lukedavoli836]

I was born with both club feet in Australia, and I can safely say that it is a journey. I’m 20 now with about 8 or so surgeries on my right foot and 10 on my left to my name, probably more to come. Unfortunately at the time, as my doctor says, the ponseti method wasn’t generally used so instead I went straight into surgeries. The reason the ponseti method is so heavily used now is because the aftermath of surgery is avoided with the same results, if not better. My feet are still not straight, and i cannot participate in physical activity that involves any form of strain on the feet, because they are just too weak. Yes it’s annoying and I’m petty much always in pain when I walk after 10 mins but it doesn’t really affect me; I don’t let it affect me. Do I think surgery was the best option? Absolutely not. Will my feet ever be straight? Definitely not. Do I care? Hahahaha nope.

[@LydiainLyon]

Wow that is quite a journey, I'm sorry to hear that you still have so much pain. I don't mean to pretend like it's all roses and butterflies, I hope that's not what people get from this video -- but I'm so grateful we have much wider access to the Ponseti method nowadays, I'm hopeful for a better outcome for my son in the future and from what I'm told and what we've experienced so far, as you mention, not having to do surgery means he has a chance at relatively normal feet with significantly less pain. Thank you so much for sharing your story, it's one reason I hope to share the word far and wide about the Ponseti method! That is awesome that you don't let the pain get you down!

[@malanamarie5206]

I’m 15 I had cast and 2 surgeries before I was one I’m lucky although my feet aren’t pretty and hurt a lot I could only imagine what you have to go through

[@ashithat2979]

What is your problem now?

[@ashithat2979]

@@malanamarie5206 what is your age now?what is your problem now?

[@malanamarie5206]

@@ashithat2979 hello! I am almost 18 now and I still have a lot of problems. Mobility in my feet is very limited and I still walk on the sides. I am currently in the process of receiving custom orthotics to keep my feet in the right place as I walk. I am also in physical therapy for this as well a genetic condition that I was recently diagnosed with called Ehlers Danlos Syndrome. While it’s not often seen in my type of the condition many forms cause clubfoot so it is likely the cause of mine considering my sister was also born with clubfoot. Ehlers Danlos Syndromes can cause a LOT of problems which includes joint hyper mobility and pain so clubfoot is most likely not the only reasons for the pain in my feet. If you have any more questions I would be happy to answer!

[@shreesmakeover6642]

My child is 3 month old ..i started his tretment from 6 days old .. plasters r all right but he don't want wear his shoes...he cried a lot ...I cnt handle him .... what can I do .....pls suggest

[@ashleesmith6332]

I was born with club foot on both feet and I wasn't so lucky unfortunately haha. I'm nearly 16 and I've had 7 operations (one more next year)

[@LydiainLyon]

Ashlee Dolan I’m sorry, that is really tough! Did you have a bad doctor to start off or was your case just more complex? I know it’s not always smooth sailing, I just share our story because a lot of people worry when they first hear their child has clubfoot and they panic because they see scary stories. But it doesn’t have to be all doom and gloom, many cases are simple and straightforward too! And of course, some are not. Good luck with your upcoming surgery, I hope it goes well for you!

[@sibongilemakhabeni6541]

This video give me more hope as I also carrying ababy like that one cause I did ask my self every day is he going to walk but on the other side I just told my self God can't give me what icant handle

[@roobaalbert7040]

Mam how many years used for him orthopaedic shoes. My son also club foot. Treatment is going on.

[@LydiainLyon]

He was about 4.5 years old when he graduated from the boots and bar :) (See this video: kzbin.info/www/bejne/jp7UnKCti5KjarM) Good luck to you!

[@thirupathi595]

My wife 21wk pregnant and the ultrasound shows baby has a bilateral club foot ,we are worrying about the baby please suggest my next step..

[@rubineliromanesparza8735]

Thank you for sharing your story. You have a beautiful family.. how soon do you have to start with the casting? My baby is 18 days born. And has one club foot only.. and barely going to take him to a orthopedic

[@LydiainLyon]

Thank you! I'm glad you enjoyed it :) There's some great information here www.clubfoothub.com/about-casting.html with more details on treatment procedures. But don't stress about only now getting started: some children (like in international adoptions, for example) start treatment after they're several years old! Not to mention not everyone knows before the baby is born that they have clubfeet. I would highly, highly recommend finding an orthopedist who is trained in the Ponseti method however -- most orthopedists don't specialize in clubfoot treatment and don't have the skill or experience. This page has a good list of questions to ask an orthopedist: www.clubfoothub.com/im-expecting.html and you can find Ponseti doctors by location here: www.ponseti.info/ponseti-doctors-by-location.html

[@sangitasvlog95]

Are your baby crying after casting....your baby feel hurt after casting plzzz tell me

[@Ajmal_khan888]

Ofcourse you are great parents....

[@LydiainLyon]

thank you

[@MsRenren24]

My daughter was born with a club foot (right foot only) however her case is really mild. Did your little one have a hard time with the BNB? We are currently going through bracing, as the doctors are trying to avoid surgery. It’s been really rough. Any tips/pointers?

[@LydiainLyon]

I've found some great advice on the Clubfoot Connection Facebook page, as well as www.clubfoothub.com/ -- it is a little tough the first little bit but it got much easier for us once we were all used to it -- and definitely easier once he was only wearing the boots for night and naps! One thing I would say is make sure the boots fit properly, I've seen a lot of families in that Facebook group posting about the boots not staying on, etc. when the boots are HUGE on their kids! I think some doctors are trying to avoid having to make them buy multiple pairs so they size them up, but that makes it a huge pain to try to fit them! We started in size 000 and worked our way up one size at a time. Otherwise I have a few tips on fit and socks, etc here: kzbin.info/www/bejne/g5CWm3l7lrh_Y80 Good luck!

[@jengwonie2913]

Hoping there's someone out here who's done with boots and bar that's willing to donate. I'm from the Philippines and it's a struggle finding used mitchell boots in here. We cannot afford to buy brandnew mitchell boots 🥺🙏

[@janewalmsley8270]

Thank you for this just what I needed... my son has just been fitted with his first cast im finding him to be a little unsettled and wonder is it sore for them???... hopefully as time goes on he will get used to them...

[@LydiainLyon]

Yes, it's so tough to see them go through it! Luckily little ones adapt so fast -- hopefully in no time this will get a little easier, and before you know it casts will be over!

[@lalasandoval4315]

my granddaughter screamed bloody murder on her first cast and got used to them and then today the tenotomy so much pain but I keep reminding myself it will all be worth it!! good luck with yr little one!!

[@kincialover123]

My baby journey as well he had his last cast done today after 3 weeks he is going to start wearing the brace 🥰😍

[@LydiainLyon]

Congratulations on getting to the end of casting! Braces are so much more convenient, yay for all the baths!

[@kincialover123]

Lydia DN yes 🙏🏼

[@manishanarayanasamy872]

Hai. May I know whether do the baby do have any pains due to clubfoot? And is now your baby fully recovered recovered? Really in pain of seeing my baby clubfoot.

[@LydiainLyon]

Hi, as far as I can tell he doesn't seem to deal with pain. He walks and runs now, climbs furniture, etc. and seems rather content. He doesn't seem to be bothered by the boots and bar (brace) he wears at night. But I do see his walking doesn't seem quite as strong and assured as other children his age -- he does just fine but he looks like a walker of a few months younger, if that makes sense.

[@jamessalter5330]

Did anyone else in your family have it, or just Jonas?

[@LydiainLyon]

James Salter just him as far as we know

[@jamessalter5330]

@@LydiainLyon just like us

[@vimby4268]

Hi at my 20wk scan the Dr told me that baby is in breech and has bilateral clubfoot. What are the chances that this is a positional clubfoot due to the way baby is lying which will rectify itself once baby is born?

[@vickyvlogs5448]

Hi how is your baby now

[@brandoortega7832]

Huhuhu I just wanna cry all day and pray . My baby boy is club foot also and I'm searching where to buy a BNB huhuhuhu I hope my baby will be okay soon

[@renuvu9033]

Thank u mam I have same problem to my child the way u express survive this problem is a roadmap to parents who had suffering from their child......

[@LydiainLyon]

I'm sorry to hear about this suffering, my goal is just to share a bit of hope along the way. If you can find a good, qualified Ponseti doctor the outcome is excellent! Best of luck

[@renuvu9033]

@@LydiainLyon Thank u for replying

[@garrygarry5693]

Anilabhi Reddy

[@renuvu9033]

@@LydiainLyon To day my child walk and run with out any support after your video inspiration I consult a good doctor from sun shine hospital Hyderabad . Any way thank again from my family 💐💐💐

[@elizabethiveson1784]

My daughter was born with a club foot and so was I so. I had to go through all that twice once as a child and again with my own child not fun Im still affected by it

[@LydiainLyon]

I'm so sorry to hear that you are still affected by it. It must be scarier knowing exactly what they're going to go through -- it's wonderful that treatment methods have improved nowadays though, hopefully your daughter will have a better outcome!

[@vsrkraju1234]

Hi Lydia My sister blessed with a baby boy He is suffering from club foot Please let us know within how many days we can go for his treatment

[@LydiainLyon]

Hi, please look up your closest ponseti-trained doctor here: www.ponseti.info/ponseti-doctors-by-location.html or find a clinic through MiracleFoot: www.miraclefeet.org/where-we-work Treatment can start as soon as possible after birth :)

[@soniaenriquez8194]

This is my granddaughters picture, but this is a happy grandma writting my comment, my grandson & his sister (twins) born February 20, 2018 has his first Shriners appointment tomorrow for his feet, your happy family just assured all of us to a happy outcome, we were told his right foot was mild to moderate, his left foot just looks alittle pigeon toed but will get same treatment, again THANK YOU for putting our minds, and hearts at ease. OH! and luckily we don't live to far either just in Layton, to SLC

[@LydiainLyon]

Oh I'm so glad to hear this! It certainly is scary to hear your perfect (grand)baby has something not quite "perfect," but it's so treatable and while there are tough times, it's not nearly as bad as I feared! One day at a time and soon it's like a bad dream! And it sounds like your grandson has a pretty mild diagnosis, that's great!

[@nicolaporter6993]

Hi my daughter was born with a club foot on her right foot....she’s is almost three....and she has boots and bars too...but we keep going back and forth to casts as her heel keeps going tight....at the moment she is in her fourth lot of casts....but she don’t care she is still walking around everywhere......

[@LydiainLyon]

Nicola Porter oh I’m sorry she’s had such a rough go of it! Amazing how tough these kids are ♥️

[@MrChelseatel]

Lovely video....xxx

[@anindaadattaadhikari184]

How is your baby now ? My baby is using Boots and bar for 14 hrs . Sometimes she refused to use , it's really tough time for me

[@LydiainLyon]

yes it's a little hard to get used to at first but if the fit is good (I'd check with your doctor if you think they don't fit correctly) then they usually are able to get used to them after a little bit, my son did great with them after the initial adjustment period. He's now four years old and just wears them at night, we're approaching the end of bracing. Good luck, hang in there!

[@anindaadattaadhikari184]

@@LydiainLyon How many hours he uses to wear shoes now?

[@LydiainLyon]

@@anindaadattaadhikari184 when he sleeps, so about 12 hours

[@nibiladas5642]

Hai madam. My fifth month scanning doctor noted my baby has clubfoot so i was very tensed. I have one doubt mam this club foot will cure or not. How long we will wait for the good news of our baby.