Managing Bladder and Bowel Issues in MS

People with MS may find that bladder and bowel symptoms prevent them from fully interacting with their community, friends and family. It doesn’t need to be that way. Once diagnosed, these common MS symptoms are manageable and treatable. Learn about the latest advances and recommendations from clinicians at the forefront of MS research and treatment, and from people living with MS as they share experiences and insights. Complete our survey after watching this video. www.surveymonkey.com/r/bladderbowel. Download additional materials at nationalMSsociety.org/bladderbowel.

[@diane7352]

I am so sorry that MS patients have these challenges. So sorry....

[@sandraclark7771]

Very empathic and sensitive doctors make such a positive difference. This video is very helpful to watch before you talk to your own doctor, because it will give you the confidence and also provide hope that something CAN be done. Thank you xx

[@Queen-vv7wc]

Sandra Clark oh yeah all

[@dahlialewis4561]

Very informative.

[@draltopajee]

Lovely discussion i wish it's shared with all neurologist world wide

[@ktaylor6490]

7 years with MS, Dozens of issues , I truly can't wait for the End. Life with MS Sux!!!!

[@carollong7941]

Thanks for your honesty.. I am 80 yrs. I feel same way.

[@KitMinden]

Bladder and bowel problems are difficult for people with MS to talk about, much less manage. They can keep people from living as fully as possible with MS. Seeing an MS specialist may help find ideas for management.

[@lizfons2756]

So well done! Gave me a lot to think about and to discuss with my doctor. I wish every neurologist who claims to focus on MS could see this.

[@kascott2286]

8 years with MS, remission/ relapse. It's full of ups and downs. It's scary, but the more I know, the better I can tackle this.

[@happydays1336]

I no longer have any bladder or bowel control problems since I was prescribed Tolterodine. There are other drugs in the same class that work well, too. I recommend that people with MS discuss taking this drug with their neurologists.

[@Scarlett_84]

Bowels as well? Tolterodine is for the bladder

[@mike-cm6ug]

I had bladder problems for years starting in my early 20’s. I felt ashamed of it and just dealt with it in silence, keeping silent from my family and including at work. Luckily my wife was ok with my problem before we were married even. I always joked and would say that I’m an introvert because I don’t want to go anywhere fun. I really was just hiding the fact that I didn’t want to wear an incontinent item while trying to go somewhere fun to end of possibly having an accident again in public or even at a family house. I had MS symptoms show up at around 22 years old. Starting with the bladder issues. Thought nothing about seeing doctor about it, the symptoms would just appear and go away. So I remained silent with those symptoms too. I’m 36 now and now I keep having newer MS symptoms showing up as well as a couple recurring older ones. They come and go before I can even get the doctor to notice a sign of them. I tried calling to get in while still having them appear, but then I end of waiting more than a day or two to be able to see him. the symptoms are basically gone by the the next day or 2 like I as if I had a bad hiding inflammation or something that caused the symptoms to appear. And now I am almost normal feeling again the day to see him. Frustrating. We are checking things now, because I took the courage to finally tell my doctor everything I have been going thru by giving him a paper written documenting of the MS symptoms. I do encourage anyone who is not dignosed with MS yet, to not hide in the dark about a bladder problem or other problem even if it is coming and going and try to get the help you need. MS play hide and seek with you and the doctors.

[@wajabi]

I catheterize myself in the morning, afternoon and before taking on a long trip so I do not worry about sudden urges usually my urgencies is because I have to go 💩

[@ygbodybuilder3023]

Are you on any medication

[@rhiannancaraway]

I've had suspected MS for more than 3 years. I became suddenly incontinent at age 36 in 2021. I have been getting progressively sicker since. I had lesions and atrophy present at my MRI last July. As is all too common, the urologist completely dismissed me and my neurologist said the findings were normal aging...even though my MRI a year earlier showed nothing and I was only 38 when the findings showed up. So tired of my life not having any meaning to these doctors. The urologist literally said "You're very young for this to be happening. How do you feel about wearing Depends?" I said "I would rather just know why this has happened and treat it." I never saw him again.

[@bipolarpaparazzi4204]

Thank you. It is very hard to be intimate with this issue. 😔

[@debbipriz]

"Loss of Dignity" What else is really left to say? Dx 2006 RRMS disabled 2014 SPMS

[@glg617]

Debbi P wow 😯! I ABSOLUTELY HATE THIS DISEASE😡

[@guyjimmy5879]

Are any of you still here? I have MS. Id like to talk to someone like me

[@irosencrantz882]

Who the actual *F♡€K* DISLIKED this video???

[@brendahall5404]

Please add info about constipation in MS

[@heatheramakwe8558]

Great video! Very informative.

[@abrahanchavez8352]

First time joining the nationalMssociety KZbin page Thanks for helping with information I'm dealing with MS Thankfully I recieved my Medication last month Therapy Helps me alout too Therapists informed me about This website sometimes you have issues that you deal with MS Like this like with you leaking at Times I just can't hold in my urine yesterday I had Therapy & needed to use bathroom luckily I was Able to get to Bathroom in Time How embarrassing would it have been if I urined on myself Thanks for the information I appreciate it MS hasn't really progressed I don't have blood coming out I Appreciate It So much for the information ❤!I was gonna ask my neurologist about this But I have enough information with this I got an appointment today I have to go too Thanks!

[@abrahanchavez8352]

MS Wont stop Me💪🏽

[@jmgates11]

Wow! That was so good to hear, it really gives me hope!

[@timshoemaker2050]

This video made sense to us. My wife has a SP tube cause she can't get out of bed cause of PPMS. I have EP so I wear pads at work.

[@staceywilliams7718]

I hate it having this problem but do notice eating certain food, drink promote urgency so I've eliminated it. I drink green tea with ginger which help and drinking room temperature water is also helpful. I bought cranberry tablets to avoid uti from a mountain rose they have organic herbs spice and oils. I. stop drinking coffee, store bought juice, most importantly soda. When out I time myself and scheduled to urinate every 4to6hrs so I know a public is near by. I know this is alot I refuse to let MS to control me but. me control it. I can say my incidents have been minimal. I use a cane when I'm out only and incorporated cardio exercise, yoga so I guess I'll see where this take me, I'm 44yrs diagnosed june 2014 rrms.

[@shel4697]

So helpful

[@John-qw4vs]

Great video.... thank you

[@SylviaGroves]

I new something was wrong when i started peeing my pants more often

[@spacecase88moonchild5]

more fruits veggies n water for sure kinda tired everywhere I go looking for the closet one 🚽

[@Silvia19641]

My bowels work perfectly but the problem is at "the ending": my sphincter refuses to open and deliver "what is ready to go". After some years with MS It's like I've lost the connection between the brain and the sphincter, remembering we got it since we were toddlers. I have to spend a long time trying to make it work... daily... It's quite stressful. With the bladder it's kind of the same problem, with the sphincter refusing to obey when I give it the order to open.

[@scooterscat3309]

Well said I experience exactly same symptoms.

[@sandrak9173]

Kind of the same here, sure I have to pee more now… but I can only do nr 2 , once / week… and then when I go… nothing comes out 🙄 🤦🏽‍♀️ and then just wait…….

[@wrongwayfeldman5393]

All I know is when I feel like I have to go I barley have 5 minutes to find a John

[@lindastewart3386]

I find I eat and drink normally at home up to 8pm and then nothing after, going to bed at 1pm with bathroom being my last stop right after finishing daily exercises. When I go out, I drink nothing (which is not good) as washroom for someone as handicapped as myself are hard to find. Truly handicapped washrooms for people in wheelchairs are almost not existent. They assume you can walk and have no room for a wheelchair to turn around. I need exercises to strengthen my bladder muscles. Can someone help? Please do not tell me to get down on a floor as if I can not walk, I surely can not get off a floor.Thanks Linda age 62

[@khadijahalshawaf3588]

Crett the ok r ha cab d D free we trr Dr we qghh J a CFC why hgdtukpug C CCD

[@SylviaGroves]

How long do you live with ms or how fast can it take you.

[@texasmade9090]

My new symptoms is I can’t stop pooping ! Sometimes I poop for 3 hours !

[@cathyknight7981]

Eat pumpkin seeds

[@wajabi]

Usually when I feel the urgency to urinate it is because I have to go poop. Lately I have had extended periods without pooping and it scares me. Anyone else here with that scary problem?

[@aminaschmiat6476]

I have constipation problems I take a laxative to go but bladder is if I need to go I need to go or I'll wet myself

[@sandrak9173]

Yep 🙋🏽‍♀️ 😩

[@nickmalveaux6131]

I was a bed wetter as a child. Had problems with that until 12. Could that have been an MS problem back then? I wasn't diagnosed until 2002.

[@Stacy_SJA]

Not necessarily.. could be something with your muscle tone. Some kids stop urge bedwetting when they hit puberty.

[@lucasluc7341]

i'm 16 i have problem when i pee before its like prostate enlarged then after few weeks it became like when i pee the stream is weak and also when i poop i'm straining sometimes i feel mild pressure in my anus

[@margueritereffitt3476]

😢

[@thruthfog]

My bowel movements are slow, it feels like my anus is closing up to the point where I need suppositories and water bottle enama. What can help? The doctor told me it's walls are getting thicker and never relax.

[@eistenlawson2722]

I want to thank Dr Madida who I met on KZbin for curing me of Parkinson Disease.

[@zdhmfkemoscwcbmqygwq9737]

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