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CHARCOT MARIE TOOTH DISEASE (CMT)

  Рет қаралды 53,324

Medical Centric

Medical Centric

Күн бұрын

Пікірлер: 83
@sobble821
@sobble821 Жыл бұрын
I have this (I'm 14 years old) but I just got approved for a big surgery to help extend my tendons next month so yay!
@MedicalCentric
@MedicalCentric Жыл бұрын
I wish you good luck and quick recovery.
@KristinThompson
@KristinThompson Жыл бұрын
@@theloftiestlemon Did the surgery help? TY for sharing.
@fahimshahriar8378
@fahimshahriar8378 Жыл бұрын
What county are you from
@Yesitsme18
@Yesitsme18 Жыл бұрын
I'm 50 years old and was diagnosed when I was 14. Had 2 triple bone fusions and pins in toes. I really wish you the best. You're not alone.
@fahimshahriar8378
@fahimshahriar8378 Жыл бұрын
@@Yesitsme18 If you tell your life history, what kind of problems did you face at what age?
@AugustRush2023
@AugustRush2023 Жыл бұрын
I will pray for those who have CMT AMEN
@PeterDavid-w5y
@PeterDavid-w5y Жыл бұрын
I have cmt 1a and 2a
@j.p.bratcher5269
@j.p.bratcher5269 10 ай бұрын
Thank you
@catsario7512
@catsario7512 8 ай бұрын
Thankyou
@ryryplayzroblox1174
@ryryplayzroblox1174 5 ай бұрын
thanks i have cmt 1b mpz
@Rabbitrails315
@Rabbitrails315 4 ай бұрын
I believe I have CMT 1a or 1b. I haven't gotten an official diagnosis yet, but that's what I think I have.
@giana126
@giana126 Жыл бұрын
Glad to see representation.. was diagnosed almost 15 years ago
@terrie001
@terrie001 Жыл бұрын
It hurts and I am so dishearten when I see my little nephew living with this each day as he grows. The poor boy still think he is normal right now and didn’t question his difference. I can’t imagine when he starts to realize he is not the same as others in school, and worse when other kids start to question him about his walking posture. Just today, I had to help clean his fingers with my hands through the running water. His fingers were all curled up, and he doesn’t know to use his own fingers to rub off the dirty stuff. I was tearing inside, and now in the middle of the night, I am watching this, tearing in my bed. Imagining what is ahead of his life and what his future may entails. 😢
@johnhalbe6530
@johnhalbe6530 10 ай бұрын
I bet he can't wait until he high.
@ellehopkins4326
@ellehopkins4326 2 ай бұрын
Kids in elementary most likely won’t believe anything is wrong with him if he doesn’t present much out of the norm. People didn’t start believing me until high school when they noticed me getting slower and falling a bit more. I’m 40 now. Hopefully he will have a nice, unproblematic childhood.
@youngboy3814
@youngboy3814 2 жыл бұрын
Wish thier way a cure my life is a living hell and I’m only 18 ..been going thru severe nerve pain for about a 2 years now.. it’s sad that thier no cure . No medication has helped me .. I’ve tried duluxatine ,gabapentin and I take 4 ibuprofens a day and I get no sighn of relief… idk what to do my life is miserable I can’t even work . I can’t even take my pups on a walk… plz pray they find a cure …
@ashwincarpenter9977
@ashwincarpenter9977 2 жыл бұрын
Try Ayurvedic treatment once Google it, looks like some Ayurvedic treatment is available for the disease I am not sure whether it will work or not but it's worth giving a chance
@Brandonson80
@Brandonson80 2 жыл бұрын
I know how you feel. You are not alone. Sending love to you.
@leannehelg4625
@leannehelg4625 2 жыл бұрын
My 6 year old has just been diognised with this
@endahynes8760
@endahynes8760 Жыл бұрын
Have a look at alpha lipoic acid for the nerve pain
@youngboy3814
@youngboy3814 Жыл бұрын
@@Brandonson80thank you so much u are not alone aswell always know that.❤
@AugustRush2023
@AugustRush2023 Жыл бұрын
God bless u Aj ❤❤❤❤❤❤❤❤❤
@gbosearcher-3686
@gbosearcher-3686 2 жыл бұрын
My sister in law has this disease. A terrible disease. Took years to figure out what exactly was wrong with her.
@MedicalCentric
@MedicalCentric 2 жыл бұрын
I hope she is getting adequate treatment now.
@gbosearcher-3686
@gbosearcher-3686 2 жыл бұрын
@@MedicalCentric She is. She has a twin sister, who doesn't have it. In fact, no one in her family has ever had it.
@Life_with_rare_disease
@Life_with_rare_disease 2 жыл бұрын
Plz tell which type of CMT she has.. and which Gene is affected? I also have CMT.
@gbosearcher-3686
@gbosearcher-3686 2 жыл бұрын
@@Life_with_rare_disease I don't know which kind. But I can tell you that she has balance issues, wears ankle braces and wrist braces, has trouble walking. When she was younger, she was clumsy, but thought it was because she was tall ( 6'2" ). I sent her this , but didn't hear back from her. Long story short version. My brother recently died and she is being petty.
@Life_with_rare_disease
@Life_with_rare_disease 2 жыл бұрын
@@gbosearcher-3686 well its good to know which type it is. This will help in tracing the scientific research towards its treatment in the future. This can be checked through a simple test of Axom sequencing. Although there is no treatment available right now but researches are going to regrow shwann cells in the body. For more information watch shorts on my channel
@l.b.603
@l.b.603 Жыл бұрын
Geez. I am 65 and have all the symptoms they talk about here on this video. I have stayed away from doctors, practice yoga every day and live my life. I haven't gone to physical therapy or occupational therapy. When I need to find a way to do something, I do it. If you focus on something, you become it. If you see yourself as poor me I have this disease, then you're not going to be happy. You are not a victim! Stop focusing on your disease and live your lives. Just get on with it. Yay I fall sometimes; Yay I can't run. Yoga helps Immensely with balance, gait, movement and so forth. Staying thin helps. I am plant based. Fat leads to joint problems and more muscle loss. Get thin and remain thin. Be thankful for what you have folks!
@pcm2fchris
@pcm2fchris 8 ай бұрын
lol. hey there. good for you. feel better?
@sjv9147s
@sjv9147s 5 ай бұрын
​@@Navigation24-7Yep, it sounded patronising. Makes a cocktail of yoga, thinness + vegetarian diet a panacea for all ailments.
@anitastamm7350
@anitastamm7350 18 күн бұрын
Thank you
@___SM07
@___SM07 5 ай бұрын
I have CMT problem from So long and now my Doctor say to for surgery.Lets see what happen next.but i hope for better.
@MedicalCentric
@MedicalCentric 5 ай бұрын
@___SM07 It's understandable to feel uncertain, but it’s great that you're hopeful. Surgery can be a big step, but it often leads to improved quality of life. Wishing you the best outcome and a smooth recovery-stay positive! 🌟
@___SM07
@___SM07 5 ай бұрын
@@MedicalCentric Thanks so much for your appreciation 🙏❤️I have problem with foot drop and both feet toa drop as well.Its not working but doctor say that's he can cure myself.Lets see but I am afraid little bit too because people told me that is a complicated surgery.Lets me guide about as well please 🥺
@MRana0009
@MRana0009 5 ай бұрын
Hi actually i dont know your name sweety can i ask you some question about this because my two litte kids diagnosed it​@@___SM07
@yoxn.jexnghxn
@yoxn.jexnghxn Жыл бұрын
I’m 14 and I have this it started at around the age of 3 it’s a living hell when I fall I can’t stand back up when I lie down I feel uncomfortable with my legs I can’t hold balance or run I can’t jump or play sports my dream was to be a soccer player.. at 7 years old I also dreamed of being a doctor and treating myself since no one could find a treatment for me..
@yoxn.jexnghxn
@yoxn.jexnghxn 8 ай бұрын
@Zakkgames164 it’s so sad having dreams and having people say “accomplish your dreams no matter what” but no matter what we will do it’s not gonna go away or get better it only gets worse in time
@yoxn.jexnghxn
@yoxn.jexnghxn 8 ай бұрын
@Zakkgames164 real
@عبدالعزيزالعيسي-ك9ط
@عبدالعزيزالعيسي-ك9ط 4 ай бұрын
😢
@ryryplayzroblox1174
@ryryplayzroblox1174 5 ай бұрын
i have cmt amd i am ten and gonna have a sergery in a year on my right foot to remove the arch and make is less tight it’s bean very hard i have to drive two hours to get to the hospital and gat a afo i am vary very scared to get the surgery i am scared because me dads right for after about 5 surgeries and his foot looks like a melted gumi worm
@MedicalCentric
@MedicalCentric 4 ай бұрын
@ryryplayzroblox1174 It’s completely normal to feel scared about surgery, especially after seeing what your dad went through. Charcot-Marie-Tooth (CMT) can be tough, but your doctors will work hard to make sure your surgery helps you feel better and improves your foot’s function. It’s great that you’re being so brave! Make sure to ask your doctors lots of questions to feel more comfortable, and try to focus on how this surgery can help you in the long run. You’ve got a lot of strength in you! 💪
@allibrown8960
@allibrown8960 Жыл бұрын
Myelin is not the same as melanine.
@isorukuyamamoto7638
@isorukuyamamoto7638 Жыл бұрын
And they kept mispronouncing it.
@FlowerWhiskers111
@FlowerWhiskers111 Жыл бұрын
I got this illness. Pain 24/7. Only stem cell treatment
@PBuchanan175
@PBuchanan175 Жыл бұрын
Have you tried stem cells? Did insurance cover?
@FlowerWhiskers111
@FlowerWhiskers111 Жыл бұрын
@@PBuchanan175 Insurance doesn't cover. I've tried. It works amazingly!
@kevinfitzgerald7474
@kevinfitzgerald7474 Жыл бұрын
Yeah I've been told to watch out for scrapes and cuts in my lower legs so they don't get worse. But I was never told that lyme disease, tick diseases, environmental illnesses can also worsen cmt symptom. Cmt is not a disease, it's a symptom of a hereditary long haul environmental illness that cause demyelinating peripheral nueropothy. This medical system is solely just ocd in symptoms. It's not a disease. Well I have a tick disease, mold of long haul, just like the one that caused cmt which has worsened my cmt and these Environmental illnesses do worsen cmt symptom. The numbness that I had in my lower legs is going away by using supplements, nutritional ivs and detoxing. Stem cells can reverse, repair these nuerological problems.
@DarrenWalley
@DarrenWalley Жыл бұрын
Can they. I have CMT Type 1A & I have numbness in my lower legs & left hand. 😢
@kevinfitzgerald7474
@kevinfitzgerald7474 Жыл бұрын
@@DarrenWalley Hi. I've had cmt since I was born and my lower legs and feet were never numb or tingly. Then as I got older I ended up getting tick diseases and mold and when these were never diagnosed and turned nuerological yrs later and then my lower legs and feet got numb and my cmt got worse. I'm seeing now a holistic naturopath clinic whi found the environmental illnesses. Main stream medicine nuerology does not have the testing or they won't look for causes. Yes stem cell treatment can reverse nuerological problems. That's what my holistic drs are saying and treating other nuerological disorders. A hereditary cmt is a symptom of an environmental illness that happened many many decades ago in my family.
@Navigation24-7
@Navigation24-7 9 ай бұрын
Thanks for sharing, I had no issues until I turned 40 and fractured my ankle due to instability and just lived with it 20 more years, I finally got surgery but the lower leg pain is still bothering me…
@welshboy1466
@welshboy1466 7 ай бұрын
I have cmt just had a op to correct my feet
@MedicalCentric
@MedicalCentric 7 ай бұрын
I wish you a swift and smooth recovery from your foot surgery. ❤️
@limixl
@limixl Жыл бұрын
I wasn't born with but i jumped from a trampoline when i was 2 and now i have it
@MedicalCentric
@MedicalCentric Жыл бұрын
Charcot-Marie-Tooth (CMT) disease is a hereditary condition, and it is not caused by jumping on a trampoline or any other external factors. CMT is a genetic disorder that affects the peripheral nerves, leading to muscle weakness and sensory loss in the extremities. It typically runs in families and is not related to injuries or accidents. If you have concerns about your health or believe you may have CMT, it's essential to consult with a healthcare professional for a proper diagnosis and to discuss your symptoms and medical history. They can provide guidance and information about managing the condition if it is indeed CMT or determine any other potential causes of your symptoms.
@Navigation24-7
@Navigation24-7 3 ай бұрын
I don’t think I have it but when I was 40y my right foot started feeling a little weird and wanted to fall in like a drop foot. About six months later I was rushing for the door and fractured my ankle so bad, and didn’t seek proper medical attention. After living with it for years I was diagnosed with Common Perineal Nerve Palsy. Then in 2020 I caught COVID and my lower legs started to feel like a truck had backed over them, that pain has never gone away, it’s worse at night. Desperate for help I went to a neurologist who did various tests and they showed my nerves were mostly working ok. That doctor sent me to a CMT surgeon who decided I have it, he operated on my right foot, I really always thought my issue was from the ankle fracture, but I have really high arches that I was born with so he said it was CMT. I was forty and never had any issues with my feet or legs prior to hurting my ankle. It was a huge surgery and nearly a year out my foot still has numbness, it lowered my arch and gave me more stability however before the foot didn’t really hurt now I have numbness that may never go away. I am now recovering from a total knee replacement surgery on that same side, not even a year after. Because of years of throwing off my gait it messed up my knee. I am now 62y and still have the crippling lower leg pain. I am going to have a MRI of my spine and see what that shows, I really need answers and a diagnosis and hopefully a treatment, they never did heredity testing on me. (Knee replacement is extremely painful). Thank you for your post.
@isorukuyamamoto7638
@isorukuyamamoto7638 Жыл бұрын
Your didn’t mention 1X.
@isorukuyamamoto7638
@isorukuyamamoto7638 Жыл бұрын
Howard Tooth was not black. And Pierre Marie was not a blonde woman. Maybe less woke illustrations of the three scientists would be a good place to start.
@MaggieClaydon
@MaggieClaydon Жыл бұрын
Why did you leave cmt 4C out?
@granthagen3207
@granthagen3207 6 ай бұрын
"melanine sheath"???
@MedicalCentric
@MedicalCentric 6 ай бұрын
The melanin sheath is not associated with Charcot-Marie-Tooth disease (CMT); rather, CMT affects the myelin sheath, which insulates nerve fibers. ❤️
@Suaviso
@Suaviso 7 ай бұрын
I’m 31 going on 32 with this issue and honestly CMT has ruined my life
@MedicalCentric
@MedicalCentric 7 ай бұрын
I'm truly sorry to hear that you're facing this challenge with CMT; your strength in sharing is admirable. ❤️
@Prettysusssss
@Prettysusssss Жыл бұрын
My-el-in not melanin
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