Melanie Case

  Рет қаралды 66

Katie Wright

Katie Wright

Күн бұрын

Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic dissection went undiagnosed for about two years, and after it was discovered, it led to her diagnosis with Marfan syndrome.
Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org (thevedsmovement...) , loeysdietz.org (loeysdietz.org) , and marfan.org (marfan.org) .
If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit
calendly.com/d...
Links to resources, events, and research opportunities:
VEDS Collaborative Research Study: Email vedscoll@ohsu.edu (mailto:vedscoll@ohsu.edu)
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:
marfan.org/cal...
Join a Walk for Victory:
marfan.org/walk/
Help and Resource Center
marfan.org/ask
loeysdietz.org...
thevedsmovemen...
Support
Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: staying-connec...
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Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
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Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
Source (staying-connec...)

Пікірлер: 1
@mariannefung7993
@mariannefung7993 Ай бұрын
Extremely informative.. What a very lucky woman to have survived childbirth and then the dissection with aneurysm for two years; wow!
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