MENTAL HEALTH AND VISANNE (DIENOGEST) MY PERSONAL EXPERIENCE MANAGING ENDOMETRIOSIS PAIN | ENDOEMMM

[@katsartsandcrafts]

I'm sorry to hear about your experience. I'm glad you were able to connect with yourself and determine that visanne was causing your mental health symptoms. I wasn't warned about the possible side effects with visanne and i have struggled with extreme anxiety, depression and suicidal thoughts for most of my life. It took a little while for me to make the connection that Visanne was actually worsening my mental health symptoms. Like yourself, my physical symptoms were relieved while taking the medication and returned once i stopped taking it. I haven't gone back to the endo doctor because i don't really trust them after that. Thank you for sharing your story 💖

[@nessrinechammakhi8218]

am on visanne now for three years and thank god for it , now i can work normally before i had pain that i can't stay in a work more that two months because of the pain but thanks to the med the cyst that i had, had diseppeared my doctor said you're lucky because not everyone had a receptor on uterus that can combine with the med , the only problem i had was with my hair it became very thin and i feel like my body is bloating and whenever i stop the med for more than two months the cyst reuccure

[@endoemmm]

So happy to hear you had a positive experience with it!

[@ahapmenhap8799]

Thank u for info

[@reyakhadka5088]

I m also taking since more than 2 years and since one year i have very bad vagina infection like yeast infection it’s too itchy ,i went to doctor they gave me more antibiotics but still i have same problem ,my life is hell now, i can’t stop vissanne and my vagina infection is not cure 6:38

[@badwitch5]

I don’t know the whole story but saying someone could be happier on Visanne because they‘d have less physical pain isn’t a bad thing to say, in my opinion. We know that chronical pain makes people depressed as well. If would be trial and error anyone, in terms of mental health. But I don’t know the situation and the way he spoke so I don’t want to invalidate your experience. Thank you for sharing your story!

[@christeenthornton4853]

Thank you for this video, from the bottom of my heart. I have been getting dismissed constantly abt my mental health concerns, thank you. This made me feel so seen.

[@endoemmm]

So happy that this video has helped you in your journey. Thinking of you!

[@rsakina110]

Thank you so much for sharing your experience! I started visanne back in January and watching this has kind of opened my eyes on things I’ve been going through. I unfortunately started visanne at the same time I started taking gabapentin so it made it hard to distinguish which of them was causing the side effects. I felt great the first few days, literally like all the tension and tightness had disappeared, but then after 5/6 days the pain came back and was even worse. I had trouble falling asleep, felt my mind was racing all the time and just had really sad/miserable thoughts. I’d cry randomly during the day for no reason and it scared me. But then again it’s so hard to say what was causing all of that because dealing with the pandemic, a recent death, a horrible semester of school, and my family not understanding my pain could have all contributed to that. I eventually phoned my pharmacist and she recommended I slowly stop gabapentin. I didn’t feel as emotional after, but my pain was still there and the intrusive thoughts and insomnia haven’t gone away. I just thought it was the stress of school and my usual anxiety and depression being annoying. I’ve thought about stopping visanne for a while but I’ve been terrified about having my period again because I don’t know what to expect if the pain is so bad with visanne. And with school I couldn’t find a good time to stop and see what happens, but I think I might give it a go later in December and see if I feel better. Unfortunately my gynaecologist is not as great as everyone thinks she is and hasn’t been helpful at all, but I’m glad someone mentioned these side effects because I’ve just thought it was me and my bad mental health and not the visanne. Thank you again for sharing your experience! ❤️❤️❤️

[@endoemmm]

Oh my goodness, thank you for sharing your experience and for you openness around it. I know it can’t always be easy to share about our health journey, so thank you! Definitely agree with you! If you notice changes and you have them noted, it’s always a good thing to chat with your doctor about some concerns 🤍 Always here if you need a friendly face in your journey.

[@sunniway3038]

@@endoemmm so after stopping visanne, how are you dealing with endometriosis and the pain?

[@cecilappleby5077]

Hi there! I've taken Visanne July of 2022 post 4th failed IVF. It worked great, I was pain free and helped shrunk my endo. However, the only down side I experienced hair fall, I was shocked I didn't go bald. I didn't experience depression maybe because I was able to regularly work out. Fast forward to March 2023, we proceeded our 5th round of IVF. 8 months post taking visanne, my endo cysts shrunk and my AMH was great, I got pregnant but I unfortunately miscarried at 8 weeks. It was a very sad experience but looking at the positive side, I got pregnant for the first time. Possibly related to taking Visanne that helped manage my endometriosis.

[@nusratsdailys7507]

How are you now??

[@cecilappleby5077]

@@nusratsdailys7507I stopped taking any medications for my endometriosis. It has been a year and so far I'm doing good.

[@nusratsdailys7507]

@@cecilappleby5077 did you ever done any exicision surgery?

[@nusratsdailys7507]

@@cecilappleby5077do you have endometrioma cyst?? And adhesion?

[@jennycalida5549]

Thank you so much. There not much I can find in regards to this medication. Now at least I know why I am feeling so depressed lately.

[@nuggetsofchiken]

I tried visanne for 6 months, it did not work for me. It made me so incredibly depressed and I gained a ton of weight. Thank you so much for sharing this, I felt like I was going crazy. I still have not seen an endo specialist so laparoscopy yet in sight… hope to find relief in a different progestin.

[@forher2818]

Did you lost the weight easily after u stopped visanne

[@SoffyChannel]

I'm so grateful for this video and also how you stated that you know your body best. My family told me my whole life that my excessive period cramps were normal, my doctors didn't offer me anything but the pill until I got sterilized at 25 years old this year - first stage endo. Not bad and sure as hell no explanation for my pain but my operating doctor also suspects that I suffer from Adenomyosis as well. I've been on Zafrilla because after the operation I had severe bloodloss over my two periods and my body wouldn't have been able to handle a third period... I got on Zafrilla which is a Visanne knockoff (same dienogest) and I was so scared... I never wanted to take hormones as I'm suffering from depression and OCD, I also read the pamphlet of the Zafrilla pills and it's stated that doctors should be extremely cautious getting their patients on this medication if they're suffering from depression. I asked my gynecologist, she didn't care. She didn't tell me anything about this medication really (I tried going to 2 other ones, the gyns were also bad, so at the moment I'm still searching for a good one) Fast forward a month and I'm suffering from migraine, bad depression, menopause symptoms (random anxiety, random heat and sweat outbreaks, my heart was beating like crazy at night) and basically almost the whole pamphlet of side effects. It was nothing compared to my menstrual agony but the thought that this is the only thing that could help me is honestly devastating. I stopped taking it. I stopped going to that doctor but it feels like I'm doing nothing. I had an operation, I took the pills. No doctor does a partial hysterectomy at my age and my operation wounds haven't even healed yet.. I'm so sorry to vent but it's so tiring to live and suffer like this and no one even believes your experiences.. So thank you for this video! And for everyone that is scared of taking the Visanne - Every body is different and maybe it helps you! Please try it but also please listen to your body!

[@millename]

Thank you for sharing. I have been prescribed dienogest right after my laparoscopy - 4 months ago and I still cannot push myself into taking it...

[@SoffyChannel]

@@millename I definitely felt the same way as well, every fiber in my body was against taking that stupid stuff. After all I've been through and as sad as it sounds I'm still proud of myself that I tried it. Unfortunately, every woman has such different experiences with both their pains and with this medication, so the only way to find out is to try. I wish I could give you some advice on this... I wish you all the best, Milena!

[@ariannegutierrez8193]

Prescribed Visanne today and honestly watching and reading about it makes me think that maybe I should just not take it. That I can still "take" the pain, what's unproductivity 7 days a month than having other side effects? Still, these videoes are SO helpful. Now at least I know what to look out for and to mentally prepare before I start taking it next week.

[@endoemmm]

I hope it went well! Your experience may be different than mine - so I'm thinking of you as you start the process!

[@reshmaranidashofficial5955]

Yes please don't take.. it's not helping more rather creating other problems

[@mrsmerily]

My sideeffects- weight gain, really painful knees, weak teeth, nails. My skin was pretty ok, but i am using retinol anyway. Really tired. Did it help? Yeah, year later it has not come back, but i still had something coming out irregulary and much longer pain than with endo. It made me depressed as heck... no i didnt feel happier. Saw my doctor today that i wanna stop, but she didnt wanna admit any my complaints and tried to find any other reasons for my problems but the pill. I know my body... i can tell something is wrong when i get really bad pain in my knees after a week taking the pill.

[@endoemmm]

Sorry to hear that you had similar experiences with feeling lower. Hoping that you find relief and support in your journey!

[@사월도령]

Hello. I am about to undergo surgery for endometriosis. How are you feeling now? Don't you eat visanne?

[@jessieee_p]

Thank you for sharing your experience. I’ve been taking Visanne for almost 4 months and the side effects have been terrible - my hair is getting thinner and falling out, I’m gaining weight despite eating well and exercising daily, but worst of all my endo belly is the most severe it’s ever been & nothing is helping to reduce the bloating. I can’t wear any of my normal clothes because my abdomen is so swollen :(

[@promisemkhabela527]

Oh no, you scaring me, I just started this treatment 4 days ago 😞

[@francinebaron2158]

@@promisemkhabela527how was it?

[@ximKatex]

Thank you for sharing your experience! I am going through highs and lows currently. As I am writing this I am very nervous and anxious. :-/ I always have negative thoughts especially about my work. I know it’s a stressful job as a projectmanger but I don’t recognize myself anymore. I am on Dienogest for 6-7 weeks now. I do not have Endo pain. It was found by chance. Back then I lived a happy live no knowing I am having Endo. Now we wanted to try this pill to stop ovarian cysts. I told my doctor on Thursday I don’t feel like myself. I am always scared, having cold hands, higher blood pressure and a racing heart while I am on my couch. She told me this is NO side effect and it’s just stress. Wow . I am going to another doctor now…

[@endoemmm]

Thank you for your comment and for sharing your experience. First and foremost, I want you to know that you are not alone. Your experiences matter and your voice matters. I'm so proud that you realize that something is a little new with your body to monitor it. If you're not receiving the care and support that you require with your medical journey, it's important to get support from a medical doctor to support you and to provide resources. I felt the same in my journey, but there are so many resources and supports that are there for you in your journey. Sending so much love to you and we're in this together!

[@debbiep99]

So my surgeon wants me on this and when I asked what the side affects were she said none. Which I found to be suspicious. I started on medical CBD instead because I don't trust the drug and what it will do in the long term.

[@melinagomez3788]

I took Visanne for three years. It made me so irritable and depressed. Got off it and have not been on it since.

[@user-bg2zu6bl5x]

You take continuous 3 years ?

[@FrauBlucher108]

Thank you for this video. I'm experiencing the same symptoms with Endodien (dienogest).

[@proceleb_sh]

thank you for sharing! I will start Visanne in few days, scared but hope for better

[@endoemmm]

Hope it all goes well for you!

[@riyabegum763]

Can you tell me is't work for your endometriosis cyst please

[@kk-xi8li]

I'm starting visanne on Monday and I'm terrified about these side effects....I don't know if I should take it

[@millename]

How were your first three days?

[@pinaymomincanadatv8596]

Thank you for your review.I had laparoscopic surgery 7weeks ago because of burst ovarian cyst and stage 4 endemetriosis.I start taking vissanne im on my 3rd week now.I will be calling my OB today that i will going off taking vissane,my mental health is falling,I have spotting for a week now and the cramps everyday is crazy.I felt anxious,and can’t sleep at night.

[@lisalynn489]

Thank u so much for sharing your experience. I didn't take it for long but within a few days it already started affecting my mood and making me depressed. I stopped taking them a few days ago. I hope there is another alternative for endometriosis treatment

[@shivika1060]

Please go for ayurvedic or homeopathic treatment.

[@paramitaroy9179]

I have endometrial cyst of 3cm×2cm.i am prescribed visanne 2 mg.yesterday I bought it but now I am scared to take it thinking about its side effects..don't know what will happen...

[@indftk]

Same, already 3 months it lays at my table

[@millename]

Same! 4 months on the table... I even opened the first pill yesterday, but still didn’t take it😅

[@faniaoso4734]

I am taking metrinelle and it has been amazing for me, my hormones have been balanced and the anxiety and intrusive thoughts are gone, trust the proccess and find good doctors and God.

[@leahoakley5116]

Thank you... this was a great review and also a beautiful reminder to be kind to ourselves and to honor our mental health. (Seeing endo specialist tomorrow! I feel like I'm cramming last minute for an exam! Lol)

[@user-iw2lf4lc9y]

Hi had endometriosis surgery 3 weeks ago, surgeon wants me to take Dienogest. I am nearly 40 and already peri menopausal. I am really reluctant to go on dienogest, my pain is manageable but heavy bleeding is my worst symptom, did dienogest help with that? My surgeon said that dienogest can help reduce my endo returning. All the side effects seem awful!

[@marychocoz]

I had this medication and i asked the doctor about side effects- she said nothing more than pain on breast or little bleeding for some days which will vanish gradually! I had this for 2 weeks and i have experienced many days of depression and feeling low and difficulty sleeping - i dont know if this is related

[@lorenfranco4590]

Same as mine.6 days of regular menstruation but before that i had spotting 2 days every other day

[@debalinabose2546]

I feel sooo low after talking dinogest I'm crying without any reason I'm in depression

[@endoemmm]

I’m thinking of you! Hope you have a supportive medical team to talk through your concerns 🤍

[@mashcomments]

I took it once and had these crazy headaches right after + crying out of the blue and the next morning was thinking about killing/hurting myself every 10 seconds. It was the worst day of my whole life I had never ever been that depressed in my life. Fortunately it was so sudden that we were sure it's caused by it. I still had the headache for like 48h. Worst experience of my whole life

[@amara7735]

I have taken dinogest, for 3months now, previously i had multiple endometroid cysts on both the ovaries in sizes of 2to 5cm, but after dino they have disappeared completely, along with the medications i took care of my diet did exercise. I feel like we cant just be dependent on the drug alone for the endo to decrease, its actually a multip disciplinary thing where u control what u eat, how much u exercise and how u control your stress levels. I had a lot of side effects in my first month, like hairloss, acne, mood dysregulation, constant feeling of bloating etc, but was able to manage everything until i reached the last month, ofcourse but the spotting is trouble some. So ladies please dont lose hope after looking through the side effects, personally i felt that dinogest is a good drug for endo.

[@merveaydn9164]

What diet have you followed?

[@karolita1]

@@merveaydn9164 it would be very appreciated if you share a bit about your diet

[@abolisohoni]

I have ovarian cysts possibly endometriotic and several fibroids. I was having bad pain for 2 days during menstruation. My sister in law who is a gynaecologist told me that she thinks I have endometriosis and I should try dinogest 2mg. I started it and started spotting after 15/17 days then it turned into light bleeding and then it progressed into heavy bleeding on few days with some pain. I live in USA and my doctor told me to stop it. I stopped it and my bleeding continued but the pain went excruciating that I was crying in pain. It was more than contractions. Pain is little better and bleeding is also better but I never had this kind of pain or such heavy bleeding before.

[@endoemmm]

I’m so sorry that this was your experience with it. It can be a tricky balance to try and find the right medication that works with our bodies. So happy you reached out to a medical professional for some guidance. How’re you finding the bleeding and pain these days? Are you able to connect to an endometriosis specialist? In the USA there is a group called The Endometriosis Foundation and they have a comprehensive list of specialists and resources that can help throughout the process!

[@pavithranatarajan6777]

I started taking dienogest from this April ma'am! Started having painful lengthy periods! I'm planning to stop it today! How long it will take to become normal? Please reply ma'am!

[@endoemmm]

@@pavithranatarajan6777 I always advise talking to your doctor / medical practitioner prior to stopping prescribed medication. If you've gone through this step - and they have advised you that you should stop, it took me a couple of months to have symptoms fully subside :)

[@pavithranatarajan6777]

@@endoemmm Tqsm for replying ma'am!

[@natashasyahirsah2530]

Been taking vissane for nearly a month. Just within a month I have gained weight 😢 my belly looks disgusting, but i no longer experience pain during period… but still it’s really bothering me everytime i looked in the mirror how my body drastically changing

[@rufinaaz3709]

Same I’m also gaining weight very fast .

[@natashasyahirsah2530]

@@rufinaaz3709 i stopped taking vissane now

[@shellylizette8949]

am on visanne although the pain has subsided a bit, i am starting to lose hair and im scared and want to stop taking it

[@ruchij2329]

Thank you for the review. A gyno suggested me this and I got Visane but didnt took it. I consulted other gyno now and getting a better alt. pill

[@stilnocs1114]

Whats the alternative? Still contemplating to take it i bought pills good for 3 months

[@chietulloch2670]

I’m prescribed 3months also.. taking it for 2days I’m planning to stop it.. what possible alternative??

[@fade_trade]

Mam plz tell me what medication are you using instead of dienogest bcuz i also suffered depression bcuz of it ..plz tell me what you are using to control endometriosis now

[@icyillusions90]

I was recently diagnosed with endometriosis after going through a keyhole surgery to remove a ruptured cyst (7cm). I don’t have any any symptoms of period cramps prior to this episode. Doctor prescribed this because i need to control the tissue growth and prevent spreading. I’m hesitant to take the pills cos my wedding is approaching 😢 Thanks for sharing this!

[@bharthirathod4465]

Can you tell me more about hairfall, how often was it and was it more?... Because I am experiencing a lot of hairfall since I started dienogest.

[@endoemmm]

It was a lot of shedding in the shower and when I brushed my hair mostly! I stopped brushing my hair when it was wet - it seemed to help reduce the amount. I’m now off Visanne and my hair fall has been less!

[@alesharshth]

Did you start this medicine? Was there hairball or weight gain? I am starting this now and a little scared

[@Jesshagag]

I’ve been having the worst hair loss of my life and I’ve been on it for like two months … does it go away???

[@riaatomato]

my OB prescribed visanne but im really hesitated on taking it because my body really reacts bad on medication sometimes and knowing that i was depressed few years ago makes me really anxious on taking it. your video really helps and will try to go for a 2nd opinion. :(

[@chietulloch2670]

Same here took it for 2 days now.. please let me if you decide to continue.. I don’t really understand why she gave me vissanne ..

[@riaatomato]

@@chietulloch2670 how was it?? I didnt have my period yet so i have few more weeks to consult 2 doctors if i really need visanne because my symptoms are not bad.

[@rewindcrochet7]

Anyone who experience cough in the morning? Please let me know. I am on my 3rd week of Visanne and i am feeling happier and motivated that’s a good for me but i have cough in the morning. This cough is a bit strange

[@buenasflores07]

Thank you. This is very helpful. 🥰 God bless you 😇

[@boitumelosephiri6876]

I've been on visanne for 3 years now, for the first three months it worked had no pain whatsoever but after that it seemed like it made it worse cause I would get random pain for weeks nonstop, i just had surgery 3 months ago and I've been in constant pain since, still on visanne, I want to stop taking it and see how I feel but I'm scared cause I don't know of any alternatives and neither does my doctor.

[@bt7537]

Do you gain weight using visanne ? Are there any negative effects? Thank you for sharing, I’m about to start taking visanne for cyst care. Please advise.

[@zulaikayusuf4710]

Thanks alot from Mauritius 🇲🇺

[@WandilHair]

Thank you for sharing, sending love and healing! 💓 I'm also on Visanne, started this year July, started feeling normal again after 4 weeks of taking it🙂, but 3 weeks back the pains returned😩, and I'm back on the pill. I haven't had any issues with it so far.

[@endoemmm]

Sending lots of love and healing to you too! I'm happy you haven't had issues on it so far - hoping that it stays like that and you find pain relief within your journey.

[@reshmaranidashofficial5955]

I am taking thia still i am having bleeding.. i am having pain .. what to do dont know

[@crunchyAsmr12M]

It's been 2.5 month i am taking visanne, still bleeding with clots 😢😢

[@madhurimadasgupta1381]

Is it solved now?

[@이준희-f1k2w]

Thank you thank you so much for this video.

[@simonebritz4401]

Thank You for sharing ❤

[@amandahoffman59]

Thankyou

[@endoemmm]

No problem - I hope this video helped and that you are doing well in your journey

[@wendyprado9924]

Thank u so much!!!

[@عبيرآلفراج]

Thankyo you make me feel that iam not crazy ❤

[@CinziaCapece]

eh, a me purtroppo questo dienogest non sta servendo .. sono magari i GRAMMI o , il mio corpo che e' strano.

[@annemariehardneck4317]

I've been on Visanna for the past 2 months and the side effects are bad Because I developed anxiety ,emotional breakdowns and back,body pain.

[@ain12496]

❤️

[@endoemmm]

Hope you are well!

[@krystledevilliers3655]

I got visanne from my Dr yesterday, but have now decided not to drink it... I don't want to take any chances. Just a quick one what are you using now for the endometriosis? Any advice

[@nompumelelomdodana3867]

I almost committed suicide on visanne. My doctor didn't even give me a warning on what it would do to mentally. Even after one year of staying clear from it. I still suffered major depression that led me to quit my job. Worst experience ever.😥

[@ilmioaccount-ce3gh]

Using dienogest made me think about suicide every day. Unfortunately doctors do not consider at all these side effects. I hope you are in a better place now.

[@zedekiel.01209]

its been 2 years before i realized that its vissane that made may behavior changed. i suffer behavior and mental problem. become to sensitive and emotional