Mild cognitive impairment and Parkinson's Disease (the full story)

[@MaggieG70]

You just don’t realize how informative and helpful your videos are for those with PD and those who love them. This is the first video I have seen on this aspect of PD. Thank you for sharing real life with PD.

[@LifewithParkinsons]

Hi Margie, thank you for your kind and encouraging words. The MCI video was long overdue, but took many re-films and rewrites. I hope to share some more. Thank you for watching!😀😁😊

[@bluecube7247]

Dx MCI, now 53.... early onset parkinson's symptoms started at 40😢 YOU MADE ME FEEL SO MUCH LESS AFRAID thank you so much😊❤

[@LifewithParkinsons]

Thank you for your kind words Blue. I am glad you feel less afraid.😀😁😊

[@Dstew57A]

Such a great thing you are documenting your journey. Really helps others and educates. I appreciate your sharing and work. Thank you. I loved that movie..the Fog😅

[@LifewithParkinsons]

Hello, thank you for your kind and encouraging words. I only saw the Fog movie one time. I should watch it again to see what I remember. lol😀😁😊

[@alreid9185]

Thanks for sharing your journey with us

[@LifewithParkinsons]

Thanks for watching Alasdair!😀😁😊

[@MikeMercury]

so thankfull for your videos

[@LifewithParkinsons]

Thank you Mike. Glad to get to know you😊😃🙂

[@GoProGoalieUzi]

Great job buddy! Good points and information. You are definitely not exaggerating when you say on and off "like a switch " 💯 ❤

[@LifewithParkinsons]

Thanks GoPro. Yup, hit the switch!!! From walking to crawling to couch. This disease is crazy sometimes.

[@judymcfarland917]

Very good video. My husband has PD. He has been using the red light therapy for 2 months now. He has not been able to smell anything for about 6 years. The last 2 weeks he has been able to smell things again. I ask him every day can you still smell. It really just amazed me so. I think it is because of the red light therapy. The other day he was taking a walk outside and stepped in some of our dogs crap. We got a good laugh, because he could smell it. About 3 weeks ago he started taking some CBD 1,000mg. full spectrum before bedtime and it really has helped him sleep. Another Thing he uses this pad that fits around his neck and vibrates. It seems to help in the evening with tremors. Hope this information may help someone.

[@LifewithParkinsons]

Hi Judy, that is fantastic evidence and documentation that red light therapy can be helpful and relieve some symptoms. I find it helps me a lot also. It's great, that amid the difficulties and frustrations of PD that you and your husband were able to share a laugh after stepping in some crap. That is a reward I could never pass up. Thank you for sharing that.😀😁😊

[@bluecube7247]

THANK YOU SO MUCH FOR SHOWING UP TO HELP US COPE.... i just don't understand enough

[@LifewithParkinsons]

Thank you Blue. I love doing these videos, thanks for watching.😀😁😊

[@techtom1]

Thanks David! Mild Cognitive Impairment (sometimes not so mild), multitasking (like driving and directions, use GPS). Dealing with stress, anxiety and depression (lay down and concentrate on your breathing). These and so much more are what make PD really fun. It’s important to have someone that is understanding and supportive. I share stories with a former colleague who now also has PD. Family is great but they may see you through the lens of the person they remember and not the new and improved you. I try and use humor whenever possible. No need to make yourself miserable. I now will pursue a specialty of making martinis. Shaken not stirred! 😂

[@LifewithParkinsons]

Hi Tom. Thanks for your support and for your comment. I try and use humor whenever possible as well. Nothing like a good laugh to get you back on track. I love your martini motto, shaken but not stirred. That is the best for us.😁😊😀

[@DeboraLeung]

So appreciate your presentation. I have been dealing with mild cognitive impairment since right after my diagnosis almost 2 years ago. I saw the OT and Speech Therapist who were great at suggesting ways to boost my memory, but I still have word retrieval problems, but the worst of it is any kind of multi-tasking. And sometimes even doing one thing at a time can be overwhelming. I used to be fast at measuring and math, but sometimes now, I find myself just being overwhelmed. Getting a good night’s sleep can be very difficult, and am lucky to even get 4 hours in…if I am lucky. (Most of the time it is 2-3 hours) My Speech Therapist told me that lack of sleep can make one more prone to dementia…oh lovely… my husband & I just completed home sleep study. The results will come in 2 weeks… Thanks again for sharing your own experiences, as it helps us each to know we are on similar journeys, and that there are ways to get through the maze and come out the other side. My sweet husband is my “care partner”, but we help each other, each and every day. One step at a time…I feel very lucky.

[@LifewithParkinsons]

Hello. Thank you for sharing a bit of your lives with us. The MCI can be very draining, especially when you look back and see how far you have come. I did that the other day by accident. I forgot my 1pm med dose and realized it when I took my 4pm dose, so I went from 10am to 4pm, nearly six hours between doses. The symptoms were so bad I forgot where I was. If my wife Hayley hadn't have been there it could have been a disaster. You are right, having a care partner around really makes a difference. If mobility in bed is a problem please check out this link to Comfort Linen. Their products have made a world of difference for me and many others. Thank you.😀😁😊 comfortlinen.com/lifewithparkinsons

[@andreab.1178]

Thank you for this video. My husband, dx 7 years ago, took the neuro-psych tests and was told he has MCI. Honestly, sometimes this seems worse than the PD symptoms! He was given the rivastigmine patch which has really helped. Man, insult to injury though. And thank you for singing from The Who!

[@LifewithParkinsons]

Hi Andrea thank you for your kind words. I agree the non-motor symptoms from Parkinson's are worse than the motor symptoms. Glad to hear your husband found something that is helping him thank you for saying hello. 🙂😃😊

[@JeremyMcdonald]

Well said, my friend. I, too, can experience mental fog. I would describe it as thinking very slowly. Thx for another good video and explaining PD to the uninitiated.

[@LifewithParkinsons]

Thanks Jeremy. When the fog comes on I try to tell myself just to relax and work through the situation. Sometimes it even works.

[@SDWP]

I'm glad to hear they didn't diagnose you with dementia and you have a good support system.

[@LifewithParkinsons]

Hi Michele, yeah me too that would not have been a very nice day. I am very grateful for my support system 🙂😃😊

[@rosered9029]

Doctors, neurologists, pharmacists, etc. have value in our day, but your transparency, and the support of your wife and family, are the true gold for me and hubs (11+ yrs into Parkinsons). When my hubs suddenly sinks into the scarier med and cognitive pit, we drop what we're doing immediately now and become fully present to one another. I draw on every truth I've learned over the years through my faith, and infuse gentleness, simplicity, kindness and loving honesty into words that I choose. We have repeat this "eco system" because we have noticed that his grooved thoughts and feelings of condemnation transform gradually back into healthful thinking. I believe this happens because, as he listens to me, he moves onto a healthier path in his brain, leaning into my strength until his strength returns. 5 to 10 minutes later, the stroke-like collapse of his face begins to transform back into quiet healthful strength.

[@LifewithParkinsons]

Hi Rose, wow you touched my heart in a positive way with your comment. The love you and your hubs share is inspiring and uplifting. I hope others feel the same when they read your input.😀😁😊

[@sharoncribbs7516]

I understand what you are talking about. I went for extensive testing and was told my cognitive issues were age related. I'll be 71 soon. I'm not sure I accept that as I can't multitask any more. I have trouble with keeping things organized or planning meals, etc. Both my parents had dementia. It is very frustrating. I can only imagine how you must feel when you are so young. Thanks for sharing and stay strong.

[@LifewithParkinsons]

Hi Sharon, thanks for sharing your cognitive struggles, it can be a vulnerable spot, like you say, both your parents had dementia. It can be difficult to envision the future. No multi tasking here either, but if I do one thing at a time, I can do them well. Thank you for watching and commenting every video. Appreciate the feedback.😀😁😊

[@JohnPascale-t4x]

Hi David, I've been taking Lion's Mane Mushroom Extract from Real Mushrooms Inc. 1000 mg per day has been extreamly helpful for me with MCI ! But if you don't take 2 capsules per day it won't help with Mild Cognitive Impairment!

[@LifewithParkinsons]

Hello, thank you for the great tip 😃🙂😊

[@toryberch]

Hey David 👋😊👋 I'm sorry you had to go through that moment of freaking out 😮😮 but I've been there. Actually I've had 2 freak out moments this year from my dementia progressing. One was losing 5 days of time and one was sniffing Pinesol lol. I've always loved the smell of it but had common sense to put it down. I had a difficult time stopping for several days ( off n on though) I had no idea I was huffing lol 🤣🤣 Stress is best kept in check with MCI and not sniffing Pinesol 😁

[@LifewithParkinsons]

Thanks Tory. Freak out can be very difficult to deal with especially when you lose track of time. I agree with you sniffing pinesol is a bad idea 😃 thank you for the comment and thank you for sharing your experience with everyone 😃😊🙂

[@angelakindon9839]

Thanks!

[@LifewithParkinsons]

Thank you so much for your support, Angela😀😁😊

[@danear2]

Please describe a little bit on the gloves effects on your health please 🙏

[@LifewithParkinsons]

Hello, I will have a full update on glove progress soon. Needless to say it's helping a lot, but I still have PD and off times.

[@alecspeer]

"Dramatic "on and off times"" - yep, too often in daily life. Oh! Did you mean "traumatic?" What to do? Do as much of anything that requires engagement as you can, Because if you don't, then it's always "time for a nap" which turns out to be several hours long, And "another one [day] bites the dust." Why do we always make the bad decisions? Because we over-think and doubt oneself? Maybe a little paranoia, maybe an imaginary cabal against you? Why cannot others see me when I am (to me) obviously symptomatic? I was diagnosed at age 71. David, and others like you who are diagnosed so young, you have my profound sympathy for what's coming in your years ahead. So many of them in the future... these pesky PD symptoms....hanging around. Sidebar. When I was a young kid, B&W television was the big thing, and Friday nights were sci-fi and horror films night on the tube. The Fog. The Day the Earth Stood Still. Frankenstein. +1

[@LifewithParkinsons]

Thanks for the feedback and comment each week Alec, it's been great to get to know you. The days do seem to slip away more quickly now. Yesterday after I posted this video I was like, what, noon already!!! I love your video list, some good ones there. I had a B&W tv for a while growing up as well, but obviously it was a hand me down, better than nothing I say. I think about all the people like me who are getting diagnosed younger and younger. I can't help but to think that this group, including me, will need more interventions to help with symptom relief in the future. 30+ plus years with PD, to me it seems obvious. I am no doctor or researcher, but Occam's razor seems likely here.