Life with Parkinson's 2025
2:26
21 сағат бұрын
My Parkinson's treatment plan explained
10:57
Change and Parkinson's Disease
4:32
28 күн бұрын
Sleep Better with Comfort Linen
1:40
Braceability - Brace yourself
6:05
Red Light Therapy after 18 months
7:07
Пікірлер
@HelloImPamela
@HelloImPamela Күн бұрын
Hi! You're an amazing soul! So inspiriing and motivating. My husband has Parkinson's. Between stages 2-3 and he's doing awesome! He sounds so much like you. He drives, cooks, cleans, etc. I love his attitude and love him with my entire being. We accept that he has it now. I had a challenging time accepting it, I was in denial. Thinking it was stress. Deep down I realized I knew. He's 65 and we think he's had it longer, but we were dealing with other issues. I'm a powerful patient advocate, and I want what's right for him to get the proper help, resources, support, and everything else. Whatever he chooses to do, I will support him. What you're doing is a huge gift. I can't thank you enough. I do have some concerns about the levodopa med he's on. It seems to help him, although we're hearing it may not the right way to start. Ngl, this has been challenging. But, Idc, I only hope and pray I will be half as strong for him as he's been for me! We're members of Dr. Micahael Hyland PT, and admire him so much. I'm so grateful that this is helping you!! Thank you for sharing your genuine self with us. We appreciate you. 💯‼💪🏻✨🦋💛 What a strong soul you are!
@LifewithParkinsons
@LifewithParkinsons 15 сағат бұрын
Hello Pamela, thank you for your kind and encouraging words. I am so glad to hear that you and your husband have been able to work through the pain and shock of the disease, and are getting back to living. That in itself is a victory. I appreciated everything that Dr Michael Hyland is doing for Parkinson's. What a special person. Please see the video link where I examine levodopa myths. Thank you!😊😁😃 kzbin.info/www/bejne/d4Pcip2cZa2Gfq8
@johnwesley2943
@johnwesley2943 Күн бұрын
Great video, well except for the Man U shirt 😂.
@linda5628
@linda5628 2 күн бұрын
Thank you for the update. I'm glad it's helping you!
@LifewithParkinsons
@LifewithParkinsons 15 сағат бұрын
Thank you Linda, I am amazed.😊😁😃
@rosered9029
@rosered9029 2 күн бұрын
Happy New Year, Dave and Haley!🫶👐🫶
@LifewithParkinsons
@LifewithParkinsons 2 күн бұрын
Thank you, Rose. To you as well.😊😁😃
@newworld6474
@newworld6474 2 күн бұрын
How many years did you have PD when your dyskinesia and/or dystonia begin?
@LifewithParkinsons
@LifewithParkinsons 2 күн бұрын
Hello, dystonia was an early symptom, here is a link to my diagnosis video. kzbin.info/www/bejne/fpm3kJ5tmsd3iZo Dyskinesia began a few years ago, it usually indicates, for me anyhow, that I am a bit over medicated.😊😁😃
@JeremyMcdonald
@JeremyMcdonald 2 күн бұрын
I can’t wait to try it!
@LifewithParkinsons
@LifewithParkinsons 2 күн бұрын
Hoping to get it in the mail tomorrow.😊😁😃
@ivankos3305
@ivankos3305 3 күн бұрын
Levodopa/carbidopa combo does not have any effects on my symptoms. Same goes for Cue1.
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
That is very rare, wish I had something to help you.😐
@ivankos3305
@ivankos3305 3 күн бұрын
Well, I do not know of anybody being cured by any means.....Do you know the reason why Dr.Tass and Synergic Medical terminated their cooperation?
@ivankos3305
@ivankos3305 3 күн бұрын
@@LifewithParkinsons ......Is this correct.".Many Parkinson’s disease symptoms result from groups of neurons that fire abnormally in unison. Using computer modeling, Dr. Peter Tass's team discovered they could reset these abnormal firings by providing a patterned stimulus with vibrations of 100-300 hertz (per second), ideal being around 15,000 RPM."....Was Vilim ball constructed to these specs?
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
@@ivankos3305 I do not know why the corporation was terminated. I do not follow Tass.
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
@@ivankos3305 I am not an expert on the vibration technology. Here is a link to the VILIM ball website vilimed.com/breakthrough-technology/
@Redstarfishgazer
@Redstarfishgazer 3 күн бұрын
Thank you sir nice video😊
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
You are most welcome!😀😁😊
@summerrichards5407
@summerrichards5407 3 күн бұрын
The medication you’re taking most likely is to affect dopamine levels and if you do your research on what elevates dopamine levels that might help you to see, maybe that the carnivore diet can facilitate the development of more dopamine and reducing the sugars won’t interfere with dopamine production or development those are just my thoughts and then I know there’s other videos with people that have Don carnivore and got off of their medication so maybe your answer is right in front of you just my thoughts. I did see that when I researched just minimally that dopamine is produced by protein and is that medication giving you protein necessary to develop the dopamine or is the medication a blocker to keep it in your system kind of like a SSRI
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
Hi Summer, thank you for your kind words. My main issue is that protein interrupts my medication. I have tried to increase my protein intake but it always kicks out my meds. Trying....😀😁😊
@Anthony99355
@Anthony99355 3 күн бұрын
Hi David, has anyone else had experience with one of the diabetes medications? I 0:48 know Ozempic has received all the attention, but I have been using semaglutide the last month and have felt pretty damn good. I don’t have diabetes or need to lose weigh. FYI also, i believe there are several trials on semaglutide and Parkinson’s. Not claiming a cure but it’s been pretty damn good for me.
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
Hi Anthony, thank you for letting me know this information, I have not heard about this yet. Will keep my eyes open. So glad to know it is helping you.😀😁😊
@Anthony99355
@Anthony99355 3 күн бұрын
Btw you look great! No homo
@lubago
@lubago 4 күн бұрын
I think my father has Parkinson’s. Not diagnosed yet. Will see a neurologist at the end of February. Do you mind me asking what medication you take for it and does it help decrease or stop tremors. My dad has not been able to sleep well at all since Nov. 20th because his tremors get really bad when he lies down to sleep. He is absolutely miserable!
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
Hello, sorry to hear about your Dad. here is a link to my medication video kzbin.info/www/bejne/mp7XkICZrMSWprs Here is a video link to a device made to deal with hand tremors. 3 videos in the trial. kzbin.info/www/bejne/b6aZdmdsjpKGi8k Any other questions please let me know.😀😁😊
@davidbarrett8348
@davidbarrett8348 4 күн бұрын
God’s Torah says it has the cure for all diseases…obedience to the commandments (Psa 103). Glory to Hashem. Shalom.🧎
@LifewithParkinsons
@LifewithParkinsons 3 күн бұрын
Thanks David
@WildernessMapper
@WildernessMapper 4 күн бұрын
I been looking @ bedding the last few days
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
My full support goes behind the Comfort Linen setup. They do have a money back guarantee if you wanted to give it a go.
@WildernessMapper
@WildernessMapper 4 күн бұрын
There is an easy way to deal with what's going on. He has a nickname, goes by "the good physician" or the "chain breaker" The Good Shepard. His name is Jesus Christ. John 3:16 for God so loved the world, that he gave his only begotten son, that whosoever believeth in him should not perish, but have everlasting life. & KJV 1 Corinthians 15:1 Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand; 2 By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain. 3 For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures; 4 And that he was buried, and that he rose again the third day according to the scriptures: I used to use needles and shoot up street drugs. Pop pills not prescribed. Chain smoked cigarettes. Jesus changed everything in my life. I know that you were prescribed what you're taking. Jesus can "break those chains" too, you don't have to do this alone sir. just call upon his name. Talk to him, I'm serious. I went back a day into my utube history to find your testimony. I was looking up amitriptyline that I was prescribed by my doctor & decided NOT to take it. The bottle sits in my medicine cabinet & I'm gonna trash it after seeing what you & others are going through. I wanted more info on this medication. Thank you for your testimony... Now when you're alone buy yourself in a room talk to Jesus, you don't have to do this alone. Just talked to him like he's there because he is.... God bless you sir. I'm throwing the bottle of amitriptyline away tomorrow. I'll take my chances with a little extra pain...
@mariohinojosa-cw5bg
@mariohinojosa-cw5bg 5 күн бұрын
Ha😮ppy new year
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@pigbin1066
@pigbin1066 5 күн бұрын
All the very best from Great Britain 😊
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@danacaro-herman3530
@danacaro-herman3530 5 күн бұрын
Happy New Year David and God's blessings to you and your beautiful family 🙏✝️❤️
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@ocrodger
@ocrodger 5 күн бұрын
Happy New Year from Southern California.
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well from West Kelowna, Canada!😁😊😀
@JeremyMcdonald
@JeremyMcdonald 5 күн бұрын
I totally agree with you. Parkinson’s is a disease that never lets up. And we are due a dose of realism that some people don’t want to acknowledge. This holiday season has been a struggle from dawn till dusk!
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thanks Jeremy, I really hope you get a break somehow from the daily struggle.😊😁😀
@lornaglenwright5590
@lornaglenwright5590 5 күн бұрын
Happy new year - hope it brings continued good health, attainment and joy.
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@joanwooldridge7944
@joanwooldridge7944 5 күн бұрын
Happy New Year!! 🎆
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@jillc9343
@jillc9343 5 күн бұрын
Happy New Year!🎉
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@silvera4352
@silvera4352 5 күн бұрын
Happy New Year!
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@Parkinsonsandtheinvisibleman
@Parkinsonsandtheinvisibleman 5 күн бұрын
Happy new year 😊
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@Parkinsonsandtheinvisibleman
@Parkinsonsandtheinvisibleman 4 күн бұрын
@@LifewithParkinsonsreally appreciate you contributing & supporting those of us in the Parkinson’s community. I especially appreciate the video’s you post with your partner. You both discuss difficult subjects with down to earth honesty and grace. Have a great new year to both of you 😊
@davemorse8511
@davemorse8511 5 күн бұрын
Wishing you all the very best in the new year… from Down Under.🎉🍻
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you Dave. All the best to you as well!😁😊😀
@trainman2860
@trainman2860 5 күн бұрын
Happy New Year.
@LifewithParkinsons
@LifewithParkinsons 4 күн бұрын
Thank you, you as well!😁😊😀
@Setubal321
@Setubal321 6 күн бұрын
Don't feel. stop talking. Try it out.
@LifewithParkinsons
@LifewithParkinsons 6 күн бұрын
Thank you for the encouragement.😀
@danacaro-herman3530
@danacaro-herman3530 6 күн бұрын
I'm sorry you suffer David, my husband suffers very much as well. But I'm his only caregiver and I have several serious health conditions myself and he's extremely dependent on me for almost everything. Please relay to your fellow Parkinson's community how grueling it can be for caregivers as well. Especially when they have no family
@LifewithParkinsons
@LifewithParkinsons 6 күн бұрын
Hi Dana, thank you for the suggestion. I will do that.😊😁😀
@markingram276
@markingram276 8 күн бұрын
You are so ill informed , sad to hear you sprouting such garbage .
@jennebeattie3168
@jennebeattie3168 9 күн бұрын
Just lovely ❤
@LifewithParkinsons
@LifewithParkinsons 9 күн бұрын
Thank you Jenne, our yearly tradition.😊😁😀
@Setubal321
@Setubal321 10 күн бұрын
Are you vegetarian???
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Yes, I am actually going vegan and am going to follow the Yogic Diet.😊😁😀
@joshuabriggs7114
@joshuabriggs7114 11 күн бұрын
I feel ya on the Anxiety thing! :(
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Hi Joshua, yes it's a drainer of energy. That clip was from a few years ago, things are much better now.😊😁😀
@kevinmurphy-g9t
@kevinmurphy-g9t 12 күн бұрын
Expensive you say ? I eat half as much food in a day on carnivore because protein keeps me feeling full -scurvy? You need to do more homework My Parkinson’s tremors have greatly reduced since starting carnivore and reducing my inflammation ( no more eating food from a box )
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Hi Kevin, glad to hear the carnivore diet is working for you. 😀😊😁
@shakinginmyboots1
@shakinginmyboots1 12 күн бұрын
I agree! But honestly I don’t know how else to say it. I mean i feel like if you have it you already know its kind of 💩 i also agree that you can’t always choose to be positive. Its a lot of work and not at all my default. Really good points all David ❤
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Thank you for your kind words and insight Esther, much appreciated.😀😊😁
@tracygrotefend6362
@tracygrotefend6362 12 күн бұрын
Merry Christmas!!!!
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Merry Christmas to you too! 😄😁😊
@joshuabriggs7114
@joshuabriggs7114 13 күн бұрын
Merry Christmas!
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Merry Christmas to you too! 🎄⛄️
@m4rz585
@m4rz585 13 күн бұрын
merry christmas :)
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Merry Christmas to you as well!😁😊😃
@junecricri3782
@junecricri3782 13 күн бұрын
Thank you for your motivation 😊😊😊
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
My pleasure 😊
@pigbin1066
@pigbin1066 14 күн бұрын
Happy Christmas 😊
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Thank you so much. Merry Christmas to you as well!😁😊😃
@evied.4475
@evied.4475 14 күн бұрын
Good to see you two laughing! More please. 😊
@LifewithParkinsons
@LifewithParkinsons 10 күн бұрын
Thank you so much!😁😊😃
@MyJourneyWithParkinsons
@MyJourneyWithParkinsons 14 күн бұрын
Hi Dave, how are you? My name is Joey. I was just recently diagnosed with early-onset Parkinson's in January of 2024. I can relate to one of your symptoms. Fine motor skills. Losing fine motor skills in the left hand. Yeah, shame on this left hand, eh? thank you so much for your story. God bless you.
@LifewithParkinsons
@LifewithParkinsons 14 күн бұрын
Hi Joey, I am doing well. Thanks for your comment. Checked out your channel. If you keep posting let me know, I will follow and perhaps we can collab on something.😀😁😊
@MyJourneyWithParkinsons
@MyJourneyWithParkinsons 14 күн бұрын
@LifewithParkinsons Hello Dave, how are you? Oh, that would be fantastic. I would really love that. Sure, I will keep posting and hopefully we can do something together very soon. I will be looking forward to that. Thank you so much. Let's keep in touch. God bless you. I will keep you in my prayers.
@LifewithParkinsons
@LifewithParkinsons 14 күн бұрын
@@MyJourneyWithParkinsons Sounds good
@junecricri3782
@junecricri3782 14 күн бұрын
Yup 😢
@LifewithParkinsons
@LifewithParkinsons 14 күн бұрын
😃
@davemorse8511
@davemorse8511 16 күн бұрын
Thanks Dave, totally agreed with everything you said, specially your last comment. 🙂☮️
@LifewithParkinsons
@LifewithParkinsons 15 күн бұрын
Thank you Dave, glad you enjoyed it😀😁😊
@junecricri3782
@junecricri3782 16 күн бұрын
Yup thats how i feel🥲🥲🥲 parkinsons sucks ...
@LifewithParkinsons
@LifewithParkinsons 15 күн бұрын
I understand😀😁😊
@linda5628
@linda5628 16 күн бұрын
There is a video on KZbin on Ninad Music, posted 3 years ago called “ Natural Sound Therapy For Parkinson’s” Deep Brain Stimulation Music Raise Your Mood And Cognition If I listen to it long enough it seems to alleviate (temporarily) some of my Parkinson’s symptoms. I’ve listened to others with no effect (at least for me) but this one seems to help.
@CG-yy2fc
@CG-yy2fc 16 күн бұрын
THANK YOU!!! Mine didn't come with instructions 😅
@LifewithParkinsons
@LifewithParkinsons 15 күн бұрын
No problem😀😁😊
@chenonline
@chenonline 16 күн бұрын
David you rock. You look so much better than 1 year ago. Great job
@LifewithParkinsons
@LifewithParkinsons 16 күн бұрын
Thank you so much!😀😁😊
@yelenabrusilovsky9315
@yelenabrusilovsky9315 16 күн бұрын
Thank you for your work to help people to fight with parkinson's. Just want to add what I do that helps me a lot. 2 years ago i heard about vibrating gloves and decided to try something similar. I bought vibrating ball, peanuts, platform, and rollers and every morning do vibration to whole body. On laps, under knees, on sides, back, arms, and shoulders. The same time I hold something vibrated on hands to vibrate my fingertips. Also on feet and toes are ends of a lot of nerves, so I put vibrating peanut there too. I do it almost every morning for more than 2 hours. All that helps make my muscles to become a lot stronger and nerves connecting with brain. There is one more thing I do: on youtube is a lot of videos with parkinson's music. It vibrate the brain with 528hz frequency and I listening to it for a few hours a day, hope it helps also. Wish everyone good health and success to fight for better life.
@linda5628
@linda5628 16 күн бұрын
I have started doing similar things with vibration and music for Parkinson's and also find it helpful.
@LifewithParkinsons
@LifewithParkinsons 16 күн бұрын
Thanks for your comment. I am very interested the the PD music you talk about. I will have a look at it an try it out. The full body vibration is a great idea also., Thank you😀😁😊
@joshuabriggs7114
@joshuabriggs7114 18 күн бұрын
Im convinced that CD/LD exacerbates anxiety/depression (as well as constipation) but what am i gonna do? Need that Dopamine!
@LifewithParkinsons
@LifewithParkinsons 17 күн бұрын
L-Dopa can definitely increase anxiety and depression. Does not really help constipation. Here is a video I did about L-Dopa.😀😁 kzbin.info/www/bejne/d4Pcip2cZa2Gfq8
@smcm8467
@smcm8467 19 күн бұрын
What kind of dr prescribed all this? Depression symptoms can it be typical for Parkinson’s people? You need to find out what the results of long term use of all these drugs.
@LifewithParkinsons
@LifewithParkinsons 17 күн бұрын
My movement disorder specialist. Depression symptoms and PD go hand in hand.😀😁😊