Miranda Hart nails it again. Chronic Illness [CC]

[@Edd492]

Thank you Miranda. I’m 56 now and have lived with chronic illness since I was 14. Physical and mental illness have plagued my life - endometriosis, thyroid problems, fibromyalgia, tinnitus, anxiety and depression. People look at me and can’t see any of it. I’m a smiling depressive. But I’m still standing. Thank you for highlighting these hidden diseases. You’re lovely. X

[@caroltracey37]

The only way someone "gets it" is when they have "got it". No one can imagine what it's like to be in pain constantly unless they experience it, no one can imagine what it's like to be constantly fatigued unless they experience it, all the "invisible" and chronic illnesses that we suffer from just cannot be imagined by people who haven't "got it" God bless you Miranda you have "got it" and you "get it" so very eloquently.

[@binkybunnysway943]

How true is this. It's deffo only when we experience it we understand

[@ThornyRoseV]

If she is healthy enough to work she definately doesnt get it. Being mildly sick is not the same as being severely ill and bedbound 99% of the time.

[@emma-louisecampbell3208]

@@ThornyRoseV what a load of rubbish

[@JoGray1987]

@@ThornyRoseV there's different degrees of the illness. My friend has it yet she's a hairdresser, does aerobics, yoga, cycling. Yet I have it, I was a black belt in karate did weight lifting and aerobics had to give it all up because of pain and fatigue... My 77 year old mum is only starting to realise what I've been going thru all these years as she now has difficulty walking, pain in her back and Arthritis in her hands.... So everyone's illness is the same but different because there's so many other things that go with it like ibs, reynauds, brain fog, insomnia. So she probably has some form of it or knows someone who has it. We're all suffering and hoping for a cure and if she can help by highlighting it, then that's great because not enough is done to help us. 🙂🙏♥️

[@anahidkassabian4471]

@@ThornyRoseV The last thing we should be doing is judging each other. I worked a demanding full time job with significant fibromyalgia, because I was blessed with a partner and son who were willing to help make that happen. And I learned over time how to ask for what I needed, which is much easier to do in the UK than it ever was in the US. All of us have different situations, it can look easy from the outside, but it never is. Never.

[@anneosullivan972]

Now everyone is in lockdown, I don't feel quite so alone. Hard to understand people strangely complaining even though they can still do so much. Debilitating long term pain lockdown is somewhat more like solitary confinement requiring every bit of emotional strength you have to keep going and to hide your suffering from the ones you love. Well done Amanda for speaking for so many. I can tell from your empathy that you understand from your own experience. So my heart goes out to you and hope you find strength and guidance to battle your own pain. Always have hope

[@technonarg5978]

Thank you Miranda,it means so much to me to hear somebody voice something I can't express for myself. Even friends and family don't really "get it",when they ask "how are you?" they really mean "Please tell me you are alright"

[@sylviamarie4473]

As someone in a refuge dealing with mental illness and daily, ongoing and never ending chronic pain caused from scoliosis and years of medical gaslighting before this so that now I have little options left for treatment. As someone on several heavy medications every day, almost every hour. As someone still waiting for a carer 5 months later, who fought back against PIP for 8 months while they dehumanised and accused me of lying. As someone who has had countless opportunities, chances and moments of joy either stolen or twisted by chronic pain. By how it affects every single aspect of your life, your relationships, your education, your ability to work and earn your own money etc etc. This just means so, so much. Thank you Miranda. Chronic illness and chronic pain IS lockdown. It’s about time more able-bodied people realised the injustices we are still facing and the imbalance in this pandemic. Love to anyone who can sadly relate ❤️

[@nicolagarieri306]

People just don’t understand, especially when your illness isn’t visible. You get accused of being lazy. Peoples comments can be extremely hurtful. I know that many with chronic illness would give anything to be healthy and normal again. X

[@gnarbeljo8980]

Yes. It’s not just comments but teachers, employers, who don’t understand it’s not voluntarily regulated, and even worse: the process of trying to find medical doctors who A: take it seriously and B: don’t just see you as a guinneapig for experiment.

[@simona3706]

At the beginning of lockdown I thought: well, now everyone is about to taste what my life has been for the last 20 years... I wasn’t being bitter, just realistic. But then I realised that everyone was endlessly complaining about their situation whilst I was the one who didn’t have to complain about it because I was already used to it 😳 Your words are much appreciate Miranda! I just wish people could be as understanding as you are 💟

[@paulsurbitonryan9632]

Simona, I’m sorry for being so spoilt. I’ve haven’t had that suffering life. You have. Forgive us for we know not what we do. Love and prayers...

[@suzanneverhoeven1314]

Dear Simona, I keep thinking for them its harder because they have all this energy and dont know where to put it. But at the same time Im thinking, oh grow up at least you have the energy to chat and to bake and to do whatever you like as long as it is on a low social basis.

[@simona3706]

@@paulsurbitonryan9632 💚

[@simona3706]

@@suzanneverhoeven1314 💙

[@elspethbrownlee5177]

So true ..it’s like normal every day ..every week...every month ..every year ...it all rolls into one.....It’s the sadness I feel. Being poorly...Not seeing or being seen on the outside...wow. Yo,summed it up properly .My illness that no one else sees...Thank You .this took about 30 mins to write. I am a Chronic sufferer......again thank you 🙏

[@johanna1124]

When she named Lyme disease first, I just broke down in tears. I have lived with Lyme disease since I was 15, and for several years it was largely dismissed/ignored by mainstream doctors here in the US...and there was just something so comforting in her acknowledging it.

[@sylviadavis8278]

We need you soo badly, Miranda. No one understands. We just live in pain, brain fog and crap everyday. I love you.

[@JACKDAWFISH]

So true, in spite of the pain, it's the brain fog more than anything I'd love to get rid of. From near photographic memory to ...."It will come to me eventually, I think it starts with".... might as well laugh.

[@maryelizabeth6797]

The worst part for me are the looks you get from people (without these issues) that silently says, just pull up your socks and get on with it. Chronic fatigue is not so much ‘I need to sleep’ as it’s more like being a mechanical toy and your batteries are wearing down. Life feels like it’s being lived in slow motion. If, like me, you live alone than every chore takes a long time. Coupled with pain, it can take longer.

[@katw9743]

@@maryelizabeth6797 couldn't of said it better myself ....I have cfs,fibromyalgia, IBS & acalasia ..... stay safe & stay strong

[@ellie-tk4jy]

i'm sorry. i hope at times you find relief.

[@lorrainel_uk]

There is someone that understands: Anthony William, Medical Medium. He has written six books and has produced many podcasts on Apple Podcasts about every single issue that has baffled medical research and science to this point. He broke the truth about Lyme disease in his first book: "Medical Medium : Secrets Behind Chronic and Mystery Illness and How to Finally Heal" which he's recently revised and expanded (available to preorder). I have no reason to push the book I'm just saying it really helped me. He puts out loads of free info on his website and social media platforms too. He tells us the true cause of Lyme is viral, not bacterial, although bacteria is involved. He was the first to put the spotlight on the Epstein-Barr virus as being a big troublemaker, a "sleeping giant", behind many of the labels we are currently given. Personally, I've managed to climb out of the grip of anxiety and brain fog by following his advice. And I understand Vitiligo whereas before it was a complete mystery to me. I've also lost 40 toxic pounds which I'm really pleased about. My sister has fibromyalgia which is why I discovered Medical Medium in the first place - because I was looking for answers. She wasn't interested at first so I took his advice myself. We're both now drinking celery juice every morning and following a low fat diet with lots of fruits, veggies, leafy greens and herbs & spices. Fructose is your friend. Fat isn't.

[@crinnatyrrell7719]

She is the most compassionate soul.....came across this by accident, I hope lots of other people do too

[@peggyrogers7012]

As I listened to you read your words all I could think was, "she knows me...she knows my life...how does she understand this so well?" Then it came to me, "she knows this from the inside, she has lived this." I love you for being our champion...my champion. You're brave and true. Thank you, Miranda.

[@indigoblue4791]

I thought the very same thing thing Peggy!! I wish we were wrong though, we know how it robs us of joy and hope l wouldn't want that for my worse enemies. Miranda is a wonderfully brave warrior too! 🌈🥰

[@peggyrogers7012]

@@indigoblue4791 I am so sad to hear your illness robs you of your joy and hope. That is heartbreaking. I wish it were not so. Chronic illness steals so much from those of us who have it. I refuse to give up my joy, my hope, my sense of humor, my love of life. I urge you to fight along with me when the days are tough and filled with pain. Fight to hold on to that compassionate heart you so obviously possess. You are a gem, IndigoBlue. Be kind to yourself.

[@sharonnicholls4661]

❤️

[@Angelchakra]

When people started talking about Covid fatigue, I thought 'now you know how I've felt the past 25yrs - and you've only felt like this a few weeks.' I'm hoping that people will be more understanding to those with chronic illness. I wouldn't wish this on anyone - it's not living, it's putting one foot in front of the other and trying not to trip over your first foot. It's trying to find a new way to navigate life because you're forgetting what life was like before being ill. My husband never knew me before I was diagnosed with M.E. over 25yrs ago, my children don't know what it's like to have a 'normal' mother and that makes me sad. Miranda, you've explained this so eloquently and so perfectly. I hope so very much that you'll have the energy to gallop down the road with your friends again :) sending you hugs from a fellow warrior 💖

[@excel04]

The grief of chronic illness doesn't go. It gets better but it doesn't go. 15 years after I stopped being housebound from chronic illness hearing this level of recognition about what it was like being a prisoner in my body still hits me where it hurts. It's a bittersweet journey. Any scrap of freedom you regain is never viewed with complacency, but gratitude. Like a meal that you were starving for, life always tastes sweeter because of such a journey.

[@juliepeel499]

As a chronic lyme disease sufferer i really get this! Shes spot on! I was misdiagnosed for years and now had EBV, CMG,MONO, CFS/FM/MS and left with brain,heart,bowel damage and a compromised immune system. Its sucked the life our of me these past 14yrs.i just want my life back!

[@jasminaalm]

Metastatic breast cancer here, side effects from repeated chemotherapies. Asthma, allergies, osteoporosis--I could go on. Locked down 15 months, immune system crashes, sepsis. Miranda, you're so on point. We are all heroes. Thank you for this. I chose to quit chemo 13 months ago, and I'm still here. So there.

[@binkybunnysway943]

Hi I saw sepsis and immune system crashes story of my life. I'm on sepsis X 7 since lockdown :/. Get stressed ect and down goes that little immunity and off we go again. I'm sorry to hear your struggles too

[@N_0968]

@@binkybunnysway943 Have you gotten antibiotics? I hope so.

[@rneedham667]

Beverly Jensen May you have a long and Beautiful life! My mom ( im 67) passed from cancer in 2005 at 77.But im telling you this because she had such strength. She had cancer 5 times in her life. She was a fighter. Stay strong Beverly, You Beautiful woman!🌺🌷🌹

[@marthavillegas6250]

Thinking of you from Los Angeles

[@julien3544]

Thank you. Lockdown has been the first time I've felt "normal" in 27 years.

[@humility1st]

Me too Julie, 28. Medical fatigue. EDS CRPS car crash now others are giving me art supplies as they have time they think I do. I have no time I can't function.

[@weka6533]

Agreed. Lockdown brought the world to me. People made the effort to get in touch on zoom. Unfortunately here lockdown is over and I’m back to the solitude

[@abiwk04]

exactly!

[@bevg9460]

I can relate Julie

[@emmahalsey32]

Klaus Schwab thanks you...

[@luminyam6145]

I love Miranda Hart, she is a magnificent person.

[@mariapetras5835]

BRAVO !!!

[@jadw6507]

I have fibromyalgia and Miranda is absolutely spot on. Life doesn't stop because you are in pain. Then people (even some doctors) say it's in your head. Thank you Miranda, I'll be for ever grateful to you for educating people.

[@joanne4758]

Janette Diez - I also have Fibromyalgia - chronic fatigue and chronic pain. I felt better during lockdown - it was like having permission to stop. As long as I look after my mental health - I can tolerate everything else. Thanks Miranda - Jo New Zealand

[@LondonMusicPsychology]

Me too

[@michellewright5077]

My friend has this and suffers badly.

[@joanne4758]

@You're Right I sent an email to a Toby Perkins, Labour, Chesterfield thanking him for taking issue to Parliament with a group from Chesterfield. Biggest problem here - it is not classed as a disability - we have a very pro-active social worker now - so can see things changing. All the best to you sister - she is blessed to have you.

[@jadw6507]

@You're Right there are some good doctors out there and some, as my mother would call them, horse doctors. But yes at times there is something worse and they brush it to the side. I always insist if I feel there is definitely something very wrong and do my research. Doctors don't like it but makes them do something about it.

[@arianaBrianna]

Everyone with chronic illness needs full access to dedicated mental health support. Well done Miranda for supporting this

[@Tingtong7130]

My son, now 7, was diagnosed with a chronic illness at 3. The only thing worse than having chronic illness is watching your child have it. I ride a wave grief on a regular basis. I have begged and pleaded for it to go or for I to have it instead. My heart has broken many times but he is growing stronger with age and he astounds me and if he can keep going so should I. Keep going everyone, you are stronger than you realise.

[@sally-annturner6743]

I know what you mean - my son had Chronic Fatigue Syndrome from aged 10 on top of other issues - it IS crippling isn’t it? Sending love ❤️❤️❤️

[@acavell6184]

Worst !!!!!!was watching my mother!!! with back pain for 20! odd years! then the curse!, the worst form of Motor neurone disease the motor neurone disease association nurses had ever seen

[@traceyasbury4506]

Thank you for not making fun. My chronic illness caused me to have a seizure last month and now I don’t even have a driving licence. Not to wallow in self pity, but most people don’t understand even though they are sympathetic. Miranda your comments touched my heart

[@fluffykitten23]

10 months after Covid 19 infection, still suffering often debilitating symptoms. This is called LongCovid. Now have nothing but compassion for anyone suffering chronic illness. Thank you for saying this.

[@Lucyverre]

Wishing you well 🌹

[@acavell6184]

14 years after staphylococcus aureus too tired to list.

[@Ladybird22373]

Did you recover ?

[@Seahawkess]

OMG you see us, Miranda, and you share our hearts, hopes, fears, disappointments, the stigma, the cruelty- I began weeping because living with ME (from chronic Epstein-Barr Virus in 1986) HAS BEEN LOCKDOWN and just Monday having cancer surgery feels like too much so I’m weeping because you see us and the ONLY way you can know what you do is being sick yourself for which my heart breaks, Amanda. From the bottom of my heart: thank you.♥️🌈💝

[@christinechin1909]

I wept too. ☺️

[@Hannah-hx5sp]

Thank you from the bottom of my heart. The chronically ill are the ones at the highest risk right now. I’m currently shielding and feeling very sad having no purpose. Many people complaining that they can’t cope being in strict isolation for a week or two while i and many others have spent 6 months + in that position. And even prior to that we have limitations others cannot comprehend.

[@elizabethtrainer9732]

Chronic illness has kept me inside for nearly 3 years, starting to turn into Agoraphobia. Thank you for these kind words.

[@DreamsSketcher]

So sorry Elizabeth. Me too. 4 years for me. 49. People have no idea when they complain being kept in for 4 weeks. Too unwell to ever get out or have visitors even before pandemic. Life is now managing extreme illness all the time. Reacting to all the meds, which are also killing me. Best friends disappear because they can’t handle seeing me sick. Not even around enough to get tired of the broken record I feel is me with chronic illness. Too ill to do little things, or do things to relieve stress. Someone well meaning gave me a pamphlet, for that, my mother in law. I can’t do even one thing listed which made it feel worse. I couldn’t believe she hadn’t put that together. Miranda I could kiss you for this, For even NOTICING! I got out of my bedroom downstairs for a few minutes this week. I was so excited! My biggest frustration is the healthy world wants us to be falsely cheerful or at least stoic. People are always praised for never complaining before they died, which adds a great deal of stress and little outlet for those managing great stress and in essence, imprisonment from a life they can see...out there. Just to keep healthy people from having their mood ruined. Just trying not to be a burden and seeing the stress on my family is extremely hard to cope with.

[@duck7237]

Me too. I understand exactly what you're talking about.

[@PetroicaRodinogaster264]

Sympathy and empathy to you as I also feel that way. Covid lockdown has not been an issue for me because I have been locked down for 4 years. Caused by bullying and mean spirited people, I am now afraid to even go to my front gate for fear of meeting someone. It is a physical pain now and I am at a loss. I am not sad, suicidal or angry. Just afraid. I am even too afraid to get help.

[@sarac.3259]

@@PetroicaRodinogaster264 I can't imagine how awful that must be. I have had times, however, when I have felt battered by life. It is difficult to know what to suggest just now, but if you have the means, could there be a book that might lift you and inspire you? I recently bought The Things You Can See Only When You Slow Down - my yoga teacher shared it - and I love it. There are so many more great people than awful ones around, in my experience. You just have to make that leap of faith. If you were able to find the energy, in the future - when we are permitted to - to volunteer (charity shop, stuffing envelopes at a charity, making tea at a care home or amateur theatre etc), you would meet nice people and feel a sense of achievement. If you hate these ideas, then I hope I have not upset you, but I feel you probably have much to offer but fear being treated unkindly. I hope you can find a way to walk out of your gate and enjoy what is beyond -the trees, the birds, the sky.

[@dianarolph1770]

Petal poppy I don't know your situation - but maybe you could talk about it with some charity like Samaritans- I know there are others- years ago there was one called Befrienders - there probably are more now. Presumably they are lists of them on Google- I hope things improve soon.

[@ewep1919]

Thank you for understanding. Some chronic illnesses aren’t visible and people think you’re fine. They don’t understand the lack of motivation, the weariness, the anxiety and depression.

[@lizholmes6488]

Oh miranda you made me cry it's just nice to know other people understand from a skiver according to others who suffers from psoriatic arthritis, fibromyalgia a disease that doesn't exist according to my sister who's a nurse and just had to have knee replaced after falling in the bath for umpteenth time along with the broken ribs, years n years of feeling worthless and now reading all the comments I don't feel as bad now I'm off for a nap lol love to u all

[@hannahc4054]

I have both PCOS and Endometriosis. And thank you so very much. Not only do women like myself suffer from stigma from society but also a sexist medical industry who always claims “the pain is in your head” or “have a nap”. Words needed to be said.

[@hannahc4054]

Update: I now have arthritis.

[@kidtroll9]

Many don’t understand that someone who struggles with chronic illness will almost always have depression as well. You have defined this well. God bless you. As a caregiver to a chronically ill person I see the daily struggle. Those who struggle are truly hero’s and inspire me.

[@carringtonlefayette8644]

You are doing Angels work on earth. Take care and Blessings. Australia 💟💟💟💟💟

[@janettomlinson389]

❤️😢🌷

[@shandrabrooks6431]

I feel like Chummy is talking to my heart right now. I live with Lupus and Fibromyalgia. I can no longer do day long hikes because of photo-sensitivity. I was an outdoorsy person and now those outings end with kidney infections. Thank you Miranda. You are the best. FYI...I hope they make you the next Doctor because you’d rock being a Galifreyan.

[@PetroicaRodinogaster264]

I agree one hundred percent. I would start watching again if Miranda was the Dr.

[@kimwarburton8490]

Hope ur light sensitivity reverses as mine did Birdsong also used to make me cry Now i cry cos 'x' reason stopped me practicing on my 125cc since xmas xD cfs unravelled dr whals ted talk showed me healing was possible n i stopped being bedridden

[@deborahmeyers7839]

God bless you I understand I am still here too ovarian cancer survivor 4th time love and hugs to you xxxxxxx

[@OlderWomenRock]

Thank You Miranda . Your words are so true. It’s a cruel , tough road . Long term CFS here . It’s very rare that I hear anybody give us any credit whatsoever. In over 20 years I’ve only had a few kind words , very little support or acknowledgement . As much as I’ve tried to explain , even my son doesn’t believe Me. Xxx

[@trtaylor29]

I was diagnosed with MS when I was 21. I'm now 45. I've lived more of my life with a chronic disease then without. I have slowly shut out the world outside my front door. It's exhausting. We are not alone. Thank you for articulating this Miranda ❤

[@annelewis7531]

How young you were when you got your diagnoses, My diagnoses came when I was 38, It is so hard enough coping with MS when your older to cope with it when you're so young must be doubly, no , trebly as hard. To me you are a hero. Miranda's words express what I often feel.

[@janetbrockbank323]

I was diagnosed with RRMS when I was 49 and I’m now 52 and I hate MS so much but we are all in this together and I love Miranda even more now xxxx

[@karinberryman2009]

Have you watched Dr Terry Wahls on the dietary needs - for our mitochondria. You’ve done 24 yrs, Dr Wahls did about 20 plus years and reversed her condition. Please please give it a go! 🙏 for it to make a great difference!

[@trtaylor29]

@@karinberryman2009 I haven't but I will look into it! Thanks ❤

[@trtaylor29]

@@annelewis7531 THANK you so much for your kind words! It means so much. It makes you my hero ❤

[@LizzieMc]

During lockdown my sister was diagnosed with terminal oesophagus cancer, I’m not sure what is killing her the most chemo or the cancer. I’ve moved next door to her to hopefully make life a little somewhat easier. It is a chronic time and a chronic illness for her. Well, she made it to 50 yrs old❣️ My love goes out to everyone struggling, please accept help when offered, even if it’s just to accept a phone call that could just give you a little burst of comfort and happiness even if short lived. Thank you Miranda 💕xxx

[@AnneS508]

My heart goes out to you. I lost my brother to esophogeal cancer 11 years ago. He was just shy of 52.

[@anjakersten]

This is the best description of chronic illness I’ve heard in a long time. I just literally thought I’ve been in lockdown for so many years dealing with Hashimoto’s and fatigue. Thank you for this Miranda!

[@lizjohnson9274]

Thank you for those words. I have stage 4 lung cancer and in spite of having a loving family and friends, I feel isolated. COVID has now isolated many people and i feel for them. Cancer has bought me some understanding of other people with chronic illness and their situation, but I am still learning. I will say humour keeps me going and my undying optimism and of course love.

[@pinkgoddess]

Thank you for this. As a deafened person at the beginning of lockdown it really shocked me how my life hadn’ t changed that much. Keep safe and be well everyone x

[@8875ploofelinda]

I had this exact realization.

[@JACKDAWFISH]

Yes! it really hasn't changed my life, this is how I live anyway!!!

[@sarahstyles6859]

Same. Life as normal for me really.

[@essexgal2085]

I have wet face cheeks now! I returned to work on Tuesday, a phased return after 2 months off, due to a very bad fibromyalgia flare. I only worked 9 hours over three days (at home, have worked from home permanently for 2 yrs because of the fibro) and feel wiped out to the point I couldn't go to dinner tonight at my support bubble's home even though all I'd be doing is sitting, eating and talking. Thank you for sharing 'our' message Miranda. Love and light X

[@Sallymartin83]

Fibromyalgia, CFS/ME, depression, and anxiety fighter for many years and you seem to have summed up perfectly what I try in vain to get my friends and family to understand and comprehend daily. Thank you

[@elroy8272]

Listen to Lady Gaga "Till it happens to you" Know one can understand..not really. Bless you.

[@paulasmyth3912]

I was ill for a few years, severe pain in my joints neck and side of my legs. I was diagnosed with fibromyalgia put on tablets put on weight which made it worse. I had a food allergy test done and discovered I was severely food intolerant, I'm now vegan and wheat free and no longer have any pain. Worth looking into it. 😘

[@kimwarburton8490]

I hope u see the improvements i have had I was 90% bedbound, but 80% coping with solo living (parents took over travel 2 appts, bills n food shop n advocacy when i lost ability to communicate etc) Iv not returned to being bedbound since oct 2018 n just got a 125cc for my own transport Everything iv done can b found within the framework of the cfs unravelled guys' (dan nueffer) ans rewire course I still have unresolved stored trauma and neg selftalk causing me stress But once those r gone, i sense i could have a well balanced life which incl part time work in the right environment

[@kathleenmoritz4340]

@@kimwarburton8490 Kim, this is wonderful news to hear! I'm so happy for you & proud of you in the progress you've made. It's not often that you read about someone that followed through a program and recieved a better life, health and outlook for it. I pray that you continue on and find abundant blessings and health for you and your family. Be well, much love... Kathy, California, USA

[@kimwarburton8490]

@@kathleenmoritz4340 aww Thankies

[@NinjaLynda]

Thank you for this Miranda. I myself suffer from: (born with) Ehlers-Danlos Syndrome/Essential Tremor (which is like Parkinson's)/PTSD/anxiety/depression/brain fog/chronic pain & chronic fatigue etc... So I've spent many of my 42 years living in a state of lockdown, due to chronic life long illnesses. So Covid lockdowns really haven't changed anything for me. Chronic illnesses are truly horrible to live with. So thank you for raising awareness.

[@sillysausage2244]

👏👏👏 My chronic illness was the perfect 'training' for lockdown, since it keeps me a prisoner of my home, or town on the better days. When the first lockdown began, I felt a little schadenfreude that ppl would get to experience something similar to what I had for several years previously. I didn't think it would go on for this long tho!!

[@jhollybee3946]

Thank you for your kind & loving message. I’ve been home & bedbound for just over 6yrs with severe ME (from EBV), POTS, etc. When I’m able I’ve enjoyed watching “Miranda” during the time I’ve been ill. Thank you for making me laugh during this difficult time. I’m keeping you in my thoughts & prayers & please know you’re not alone. 💙✨

[@kimwarburton8490]

I hope ur able to reverse urs as i did mine I was bedbound 90% off n on sometimes for months on end until 2yrs ago. Changed diet to paleoketo n other stuff. Mental health/stored trauma is my next chsllenge n i think its guna b the biggest of all re improvement too. Consistency is key 👍

[@redvelvetshoes]

“They cannot believe their lives have come to this “ . This broke me. That is me.

[@margaretpeel5758]

Thank you for using your voice , your heart and your position to help from someone who knows how valuable empathy, understanding and respect is ❤️

[@clairethomas1044]

Me too. It’s also the guilt that I feel, even though I had no control, and still have no control, over my illness. It’s the madness of wanting family and friends to see you as you were, but not feel pity or annoyance, but still make allowances for all the ways you are now diminished.

[@natashanodding3999]

Me too, that line really made me catch my breath x

[@TheYummyMummyChannel]

Big hugs 🤗

[@primrosedahlia9466]

Same❤️

[@debbievela3482]

First, let me say that I have been watching Miranda for years. It is one of those joyful moments I can steal from this thing we call life. I am writing because my precious adult daughter suffers from adult onset epilepsy, which has worsened and now taken her out of her profession, has turned her young children away by their other mother and told this awful chronic disease my daughter has is that of a "drug addict". Thus the children are made to fear her instead of understand this illness. My daughter cries at the loss of her children, her job and her drivers license. Which on TOP of her years of struggle living in a world when the LGBT community has been tormented. Now is facing leg paralysis from the seizures. This pandemic has only exacerbated the isolation by the struggles of obtaining medication without income and obtaining food without a vehicle nor the funds to get an Uber. In the height of this pandemic the delivery impossible as the slots for food delivery were filled up by people who had a vehicle and could drive and get parking lot delivery yet chose door step delivery thus people with housebound illness left to starve. Thank you for listening to me tell a tiny slice of the reality and struggle my daughter endures every single day alone. - my heart hurts for all

[@sarac.3259]

I am so sorry to read this. I hope that somehow things improve. It is only a tiny consolation but that is why I won't order food deliveries - I have two friends with ME and I feel others need them far more than fit and well car-drivers. You may feel forgotten but you are not. I hope things turn a corner for your daughter.

[@hollowsgirl88]

Thank you for that Miranda. I have a whole set of these illnesses and am currently taking care of my father who is dying. A sick person looking after a sicker person 🙄 Sometimes I feel like I might die too from the pain and the fatigue. Your message helped me today so thank you so much 👍

[@armarilloimapillow2350]

Thank you immensely for your insightful and compassionate words. Having a few health issues that make it difficult at times to function with a modicum of normalcy my heart goes goes out to those whom are suffering. With the death of my son recently and having another son with severe depression, anxiety, and PTSD there are days that seem unending and pointless but having people like Miranda giving a voice to us all is comforting and encouraging. Thank you!

[@mochilds6146]

I wonder how she understands our world so well . Beautiful poignant words ,my heart goes out to her . I have a chronic lung disease and know this lockdown life so well but life can and is joyful every day . As captain Sir Tom said 'Tomorrow is a good day ' ❤ xxx stay joyful 😊

[@sandie157]

Chronic illness is lockdown...so true. The comments on aspects of life of a person with chronic illness spoke true. Thank you . We are wariors and every person is a hero. 💖💖💖 I am so glad I saw your post today ❣💖

[@trish002]

I have been called fake, lazy & been looked down upon by those who have watched my health fade. Unless you have a chronic illness that is debilitating to the point that on some days, even the fine spray of a shower hurts, you have no idea what a person who suffers goes through. Your friends other than your closest don't bother to keep in contact & family turns a blind eye. It's demoralising, it's hard to keep strong & I long for the life I had before this illness hit. Stay strong fellow warriors 💪 ❤

[@anneslinger2189]

My mom has been dealing with ME/CFS for 20+ years. THANK YOU Miranda for working to bring awareness to chronic illness.

[@pamelajarvis7728]

Just found this, Miranda....thank you sooo much!!! 15 years ME but no longer bed bound so grateful for improvement. Your description is so accurate and clearly heartfelt...lockdown indeed! Thank you so much for bringing such encouragement by speaking out as a well known and well respected celebrity!! Much love..

[@theythemgae9025]

Wow... So chronic glandular fever & it complications are classed as a chronic illness. This won't change the years of pain, frustration and general unwellness but this i really needed to hear. Being physically unable to get out of bed on so many occasions and being labelled as lazy and screamed at by my parents. I can't even. I failed my high school cuz I had to leave the exams due to a severe chest infection I should have been in the hospital for. Neglect can take on so many forms. Glad I am in a safe place and able to manage my own self now and in a better health situation.

[@kimwarburton8490]

Irene lyon has been gamechanging I had emotional neglect

[@Karlsz]

Oh, Miranda, I love-oo ever more. I’ve been on “lockdown” going on 7 years due to fibromyalgia. Thank you for understanding. 💗

[@ruthgrimley7653]

Isn't she a beautiful lady. I've suffered fibro too for almost 30 yrs now x

[@emilieshomegarden3677]

🙌 also a CFS/fibro warrior here.... lockdown came a bit easier for me since it was general life for going on nearly 10 years... silently suffering and faking it daily. Chronic illnesses take so much more out of us than other people expect.... Here’s to you and your resilience! 💜🦋 *gentle healing cyber-hugs*

[@heatherarcher8624]

Same here dear. Fibro stinks

[@carolynworthington8996]

More than 30 years for me...love her! Well said.

[@cloverite]

30 years? I have had Fibromyalgia for two years now and hoped it was temporary, is there any support you can get my GP basically helped to get a diagnosis and then left me too it.

[@sueanndavis9623]

Thank you Miranda! Not many people understand what it’s like being chronically ill and you’re right, it’s very much as you said. It’s not something that celebrities or the news usually try to raise awareness for. I knew you were my favorite for a reason!

[@jillyturl3217]

Listening to this eloquent account of my 9year battle with CF/ME has brought comfort and tears. I don't have the energy to put into words the relentless toll this dreadful condition has taken on me, thank you Miranda. I shall never forget this. GOD bless you.

[@CAZZIEK321]

Bless you Miranda. I’ve had CFS/ME for over 25 years now, and yet I know I am one of the lucky ones. But you are right, when at its worst my life was locked down and many others are far worse off than me. So much loss. Not wanting to be political but knowing it can’t be avoided, the thought of coming out of Covid lockdown too early is worse than being in lockdown, my house feels safe and I know am one of the lucky ones. Those who are fit and well just cannot understand that I may not bounce back if it get Covid. I’m now going to add a positive about my illness. I live a good and acceptable life, I worked full time and slowly improved over the years. I don’t want anyone with CFS to give up hope. Isolation is hard, I live alone but I have the cat, though she’s probably sick of hearing me talking to myself still, the laser pen is all we need to entertain us. It’s not easy to stay positive sometimes but tomorrow is another day. Never give up hope. Xxx

[@fionaross3495]

You are really a positive person and most importantly people need to be positive because it promotes a well being. Listening to the the birds children play. Sitting a garden. These are the reasons to get up each day. Everyday I assign myself tasks. I have carcinoid cancer in my liver and exhaustion is tremendous I live on caffeine shots. But I am fortunate because I have been able to start a vegg garden of sorts. I used to make bags but the medication gives me bad arthritis. But I force myself to get up each day and try to make the most of each day.

[@cazziek6172]

@@fionaross3495 Thank you so much for your comment and your amazing positivity, you certainly are an inspiration. Yes, we must be grateful for the good things we have. I know there are few blessings that come with chronic illness, but it adds a value like no other to the precious moments. Stay as you are xxx

[@kimwarburton8490]

@@fionaross3495 i found a gratitude, self love and activity i enjoyed diary to be surprisingly beneficial I just list 5 of each each day n really helps me focus on whats real esp if/when in a neg mindset xD

[@lindafirth1562]

Wow Miranda! I loved you before watching this but you are now my personal hero. Your notes capture so much truth and warmth. Please don't give up on raising awareness. You've already made a difference for me. X

[@juliedowling1430]

Bless you Miranda, I cannot thank you enough for being a voice for those of us who struggle secretly every day, for whom life is watched from the inside of a window and for when no one really wants to know why or listen to how your really feeling!!! Thank you 🙏 x x

[@monicacall7532]

Bless you Miranda. I’ve been living with chronic pain for 42 years due to going partway through a windscreen in a car accident plus genetics that have caused the worst kind of arthritis. Since June 1 I’ve been a Covid long hauler. Your words and thoughts touched me very deeply. When one lives with chronic conditions one looks for ways to hide feelings and not call attention to oneself for fear of imposing on others. Thank you for caring!

[@glenysward3741]

Miranda thank you for saying these words for all of us with multiple immune system illnesses and diseases. Many of us have had to fight and struggle for decades with little or no help from modern medicine and pharmaceuticals. Yet, in our quiet fashion, we do our best to show inordinate kindness to everyone if we are able and are more compassionate because we know what it is like to lose good health forever. Keep up the excellent work Miranda. Well done.

[@carolinegreene372]

You put it all beautifully, Miranda. Along with some other things I have the inherited hypermobility disorder EDS, and I’ve found being in lockdown has helped me realise more clearly how overwhelming I find 'normal' life. This quieter, less frantic way of being suits me. I enjoy less coming in to my foggy brain. With chronic illness there is much more to bear than just the symptoms themselves. Even family members drop hints along the lines of 'just get on with it', 'we’re all tired, stop whingeing' etc. On the one hand people really don’t understand unless it happens to them, and on the other hand, if I try to explain the myriad ways EDS affects me they glaze over or it’s labelled as complaining. Fatigue is depressing, frustrating, all the things you acknowledge. Thank you for speaking about this, and sending you warmest wishes in your own situation x

[@m.lovett1460]

Thank you! Thank you so much for talking about this. There is not enough conversation about chronic illness and yet there are so many people suffering and just trying to get by one day at a time. Unfortunately the allopathic community hasn’t caught up to how to deal with much of it, but as you said, there are functional doctors out there that are helping people. My husband is recovering successfully from chronic fatigue syndrome through his naturopath. Thank you again, Miranda, for giving voice to so many who aren’t being heard and whose symptoms are not being taken seriously. ❤️❤️❤️

[@kimwarburton8490]

Pleased to hear this I was diagnosed too n have made improvements But im doing it solo n using monies for therapy

[@marciabarber2552]

Thank you Thank you Thank you for this. You have always been my comic hero -- now that I'm turning 75 I was so pleased to hear your musings on what it feels like to live with what I call my Alphabet Illnesses. We need people to stand up for all of us who have suffered mostly in silence for decades. One tiny hope is that studies around "Long Covid" sufferers will shine a light on what we have known and experienced. Keep talking us up, we need you more than ever. Thank you from Michigan.

[@nomadchica]

this is my hope, too! :)

[@barbaralkennedy1870]

What a gift this woman is. 🙏

[@KayPeak1]

Thank you. I’ve been in training for global lockdown since 1994 with multiple chemical sensitivity and it is nice to be reminded of all the other people out their in their own chronic bubbles. Love to all of them and I hope they find a happy life balance

[@kimwarburton8490]

Iv had that Dermatitis as a kid Went away except 'allergy' to laundry n dish soaps I had to stop using normal hand soaps, shampoo, deodorant conditioner etc Was a blinking nightmare using bicarb soda n vinegar rinses! Olive oil face cleansing was a bonus tho hehe oh n dr bronners castille soap is amazing (once discovered)

[@perlita1212]

I met you a couple of days on you comedy series "Miranda",which I call laugh therapy. You're my hero. I've from fibromyalgia for few years now and hearing you on this serious angle of chronic illness makes me feel hopeful a grateful to hear you create awareness on this so underestimated issue. God bless you. You're an angel. My hero Miranda. 🤩😍😜

[@CrumbsDM]

Yes, depression, anxiety and stress can be chronic illnesses too. I am slowly recovering from this with counseling and medication. Take care of yourself Miranda. You have given me many laughs with your Miranda series. I thought it was just me that people looked at like that when I did something daft. The mixture of disgust and dislike on people's faces sometimes is quite distinctive and unpleasant. But hey, it's not the critic who counts, it's the voice inside that tells us we are worth more than that, that daft stuff we sometimes accidentally do doesn't mean people can treat us less than we deserve. We all deserve to be respected and heard even when the critics try and squash us back down again. Much love to you Miranda and to those who are finding life and lockdown difficult xx

[@caramelkisses8396]

I already loved her and now all the more for her heartfelt words and recognition. Most times even people in your family don't understand or empathize with the challenges you face daily!! It's awesome that someone would take the time to help spread awareness!!

[@annecarter5181]

There is so much depth & compassion to this woman. She has made me laugh for years but now she deeply touches the heart. ❤️

[@marty4885]

I sent this to my daughter Emily, who runs a facebook page for Gastroparesis (Emily's Stomach) warriors. I think what you stated means so much for those who lack the voice to say it themselves. There are a host of illnesses that no one has ever heard of! Thank you for lending your heart and thoughts. X

[@munchkinheaven]

Thank you Miranda, for singing our song!

[@stonewarebirds3620]

Miranda, i am crying as i watch you read this because this is my life, this is so true, and i am saying Miranda, my favourite living comedian, the love of my daughter’s life, how do you know this, when so many just don’t get it??? ❤️

[@eirishemd]

Thank you for sharing this. I have been immune compromised for over 20 years. Medical staff are very kind but my family never and I lean never ask me how I’m feeling and how I’m dealing with lockdown while dealing with chronic illness. Frankly they obviously don’t give a darn. A kind word goes a long way ❤️❤️❤️

[@sbaxter3252]

I wish I could like this a hundred times! Nothing more to add 🤍

[@auntyharry]

These sincere words struck so many chords in my heart. A lot of truths here. I don’t feel like a hero, though. Thank you, Miranda!

[@debjonesloyal4190]

I have spondylosis, kyphosis and d.d.d i hadnt left the house in over 3 years. Its a physical and mental prison. Thank you Miranda.

[@lindseyankers3790]

Thank you for this, Miranda. My 17 year old daughter has CRMO and hubby has CLL. You have realised totally how chronic illness affects a person. 🤗❤️🏴󠁧󠁢󠁷󠁬󠁳󠁿

[@jewellstone4756]

Thank you for posting this. Beautifully written. My aunt and I were talking the other day about what an amazing, inspirational woman you are. She's the one who introduced me to your show several years ago, and we talked about how impressive it is that you have this hysterical show that makes people laugh until they cry (seriously. I had to keep pausing it cos I couldn't even see the screen anymore) but then suddenly impart such important life lessons. To this day, I find the line about "the world might never affirm it so it takes us a little longer to realize it" incredibly impactful, especially because that was the first time I ever questioned the negative light I always saw myself in. You make such a positive difference in so many lives, my own included, and I cannot thank you enough. Love oo, lady. Praying for you through this difficult time. God bless. 💖 Find the Joy! 💖

[@bblake5116]

Crohn’s since I was 16, I’m 44 now and it’s hard to remember being a well person. I also have other illness’s too, depression, anxiety, arthritis, sinus inflammation, vertigo.

[@rhonda6791]

Crohn’s is a horrible disease. I know. My heart is with you xx

[@tastegeorgia674]

I am also 44 and have crohn's. Diagnosed at 19 but had symptoms for years prior. A good day is an able bodied person's worse day.

[@rhonda6791]

@@tastegeorgia674 I was misdiagnosed but wound up really having ulcerated colitis. After 8 years of everyday acute I had 3 body parts removed. After a couple of years I developed periocarditus, heart and lungs. Now that’s everyday and debilitating. But as debilitating as this is, and it is, nothing can ever compare with chron’s , colitis. That was a nightmare. My heartfelt sympathies for you.

[@cindylou943]

Ulcerative colitis here. I don’t leave home much. I too suffer with depression & anxiety along with chronic migraine. I’ve been in ‘lockdown’ for 10 years..

[@rhonda6791]

@@cindylou943 I’m sorry and understand. I was first hospitalised in 1998. Take as much care as you can.

[@dearsuester]

I have had chronic illness ever since I had SARS 1 in 2003. It almost killed me, I was 7 months pregnant and had been to see Disney on Ice in Dublin we sat in the front row. Two weeks later I was fighting for mine and my unborn baby's life. To make a long story short. We both survived. Since 2005 I have been suffering all those wretched things you speak of Miranda. Thank you for doing this and we appreciate that it is not easy. You are a hero xx

[@tarrmarion]

Thank you for your words of meaning, I am a Fibromyalgia sufferer with most of the Symptoms you spoke of. I was already in Lockdown a few years before covid and it was lovely to hear someone say that. Your understanding and compassion warmed my heart through my tears, God bless you.

[@glynisforbes-bloomfield3325]

Thank you for sharing your thoughts and it is so nice to be recognised., I must agree with an earlier comment, you do look tired. Please, please rest, we need you at your best now more than ever. Take care sweet girl and stay safe 🙏🏻

[@jeanerathomas]

Thanks for getting it. I have had MS for 18 years, since my late 20’s and the last few years has seen me housebound, with constant pain and fatigue and many other challenges. I really appreciate you’re post xx

[@lynnebutters6908]

Thankyou for sharing this video. As someone living with multiple sclerosis, this video went straight to my heart. ❤️

[@moiragoldsmith7052]

Bless your beautiful soul... Thank you for your kind voice in the wilderness Miranda.

[@GrannyMoonWillow]

THank you for this! I have what is called Post Polio Syndrome and when it began I felt like I was watching who I was die! I'm adjusting and have been for quite a few years now. Everyday is and adjustment. I also have developed diabetes. I had Polio in 1954 at the age of 11 months old, but was one of the fortunate ones, who with treatment and surgeries went on to lead a very "normal", active life until the PPS kicked in! Very few Dr.s know anything about it and it's quite frustrating. But I keep a positive attitude most of the time and I am a great believer in Jesus. If I didn't have my faith, I don't know how I would handle this!!! Love oo xx

[@krisHippo]

There are Polio Survivors groups in each of the Australian states. Do you have access to a similar support network where you are? They've been quietly effective at practitioner education and advocacy within the health system.

[@nataliekalbers]

Hi Norma! Check out www.guptaprogram.com/ It is Dynamic Neural Retraining System for anyone who still has symptoms from a previous illness. So many are having post covid syndrome now, so people are finally realizing that this works! This will work for you too!

[@jeanettecross5270]

Thank you for articulating my own thoughts so sympathetically. I have become increasingly isolated over the last 23 years due to fibromyalgia. I am a naturally upbeat, sociable, adventurous person, but the constant cycle of pain, fatigue and depression is turning me into a recluse. I don't know what you are going through, Miranda, but I love you and send you so much love.

[@rosedoucet2188]

Yes! Chronic Lyme disease sent my life on a trajectory I didn’t choose. I have experienced all of the emotions and troubles you mention. Love to you Miranda!

[@louburnett6782]

Chronic pain, anxiety and on-off depression: and fab, fun-loving, wife daughter colleague and skippy person. Love you for highlighting this Miranda xx

[@nikkiedavis4832]

I love miranda she is such an amazing person . My daughter has just turned 6 adores her and has just started watching her show .she watches it everyday. ❤

[@sarahstyles6859]

Thank you so much Miranda. This made me cry knowing someone understands and knows exactly ow to say it. Lockdown lifestyle opened up the world to me enough to be part of it in some way. For that I’m sooo grateful

[@carolhiller1112]

Thank you Amanda for this. I’m a sufferer of ME/CFS and you have written my life as it is every day. People don’t understand this illness. GPS don’t understand it either and we need more recognition of the seriousness of it. 😘😍😞

[@MissiBoo]

I was in tears watching this. I was diagnosed with ME/CFS 13 years ago. This video sums it up perfectly. Thank you Miranda, you are my hero 💖

[@shaunamurray8501]

Thank you so much for that. In my experience you have also described the the first 2 years after having a child - utter exhaustion, strange bodily reactions, being house-bound, having no more ability, capacity or time to do the fun things that previously sustained you, no one understanding, and only getting comments from others along the lines of how wonderful it all is and how happy you must be. We really need to get real as a society and support each other much, much more than we do now.

[@tracivosberg6618]

You have said exactly how I feel. People need not to judge a book by it cover. Chronic illness is real. Thank you

[@mrBadTiming]

Miranda, transcribe these words and try to get them into NHS to be used as necessary reading for all medical professions. Hopefully people and their feelings will not be dismissed as easily.

[@Diane-wp4ju]

Miranda you've made me cry and I love you for it💕 I was diagnosed with IBS 32 years ago, and anxiety and panic disorder 8 years ago. I am a prisoner inside my own head. These conditions cannot be treated with any conclusion, and are to most people (including some doctors) a figment of my imagination. I'd love to travel someday, but can't even get on a bus. I know how lucky I am. I know there are people suffering far worse fates, but just for the acknowledgement that I and people like me are alive. I thank you ❤

[@LemonwaterLally]

Thank you made me cry.....when people have asked me over the last year how I have been coping with lockdown I tell them nothing has changed for me, this has been my life for 25 years without much empathy or understanding from others, not even some of my own family members.....I have lupus SLE and my heart goes out to all the others that are suffering from chronic conditions....you’ve got this because you have to 😘 💗

[@daniellamcgee4251]

❤

[@louisedavies9113]

Wow. Thank you so much for your understanding, empathy, kindness and respect. Best wishes to you, Miranda.

[@sunningsnake]

Oh my goodness. I am flabbergasted..in a good good way. I just discovered your TV show and adore you... and imagine my surprise to see, for the first time, a celebrity mentioning ME, POTS, Fibro...all things I've dealt with for 30 YEARS... housebound/bedbound for 8 YEARS. Bless you my dear and thank you from the bottom of my heart. I am in tears. Thank you for raising awareness about the fact that we are ALWAYS in lockdown 💜💜💜💜💜💜

[@narelleworks8448]

Oh if only I could have a doctor hear your eloquent words. You’ve nailed it as they say. Virtual hugs to you from Australia. I hope you are a feeling better dear Miranda. 💚💙💜 Even now with IBS-D I struggle to have a life. Like many, lockdowns mean no interaction with the checkout operator on irregular visits to buy food at night which seemingly is my best time. But of course food choices are becoming limited too. There’s a body clock thing called Non-24 which I also believe I have. To my family I just look like a lazy lump who just can’t be bothered getting out of bed many days. I’m diabetic and thankfully unmedicated and menopause is thrown into the mix for good measure. Yet there are the odd good days for me. Even when I had CFS there was the odd semi good day. I wonder about those in nursing homes who are aware that their bodies have let them down but their minds are still active. What kind of loneliness hell must that be. When your daughter is undergoing chemo for Stage IV Breast Cancer and I am useless to help or to be relied on for the simplest thing, that’s when it’s most frustrating. I still feel that my family silently says, particularly now, that I’m a hypochondriac. I don’t have a deadly disease to fight. Just wake up, get up and DO something. Maybe I imagine what they say. Maybe I imagine the weirdness in my body.

[@krisHippo]

It's not imaginary! I wish you an unexplained increase in good days, hours, and moments to balance the gaslighting lack of understanding you're facing. ❤️🫖❤️🤞