Mixed Connective Tissue Diseases :: Rheumatoid Arthritis, Sjogrens and Lupus

[@Marty_RA]

“Having a severe medical issue is like having a part time job that you don’t really like.” You hit the nail on the head! Thank you for your informative videos.

[@cindyleduc9146]

Very informative.. thank you

[@youonlydieonce7487]

Glad it was helpful!

[@silvercurlsyaya]

Standing ovation for all of the information you shared! I have PM-SCL and have watched many videos and your video is thorough and informative. Thank you!

[@youonlydieonce7487]

Wow, thank you! 😊

[@ediehilton2566]

I have ehlersdanlos,raynauds sjogrens, parathyroid disease,hiatal hernia reflux ibs degenerative disc disease and I tested positive for lupus anticoagulant and I have anemia. Life is very rough right now

[@leaveittolefty]

you are awesome! i was disgnosed with systemic lupus erythematosus three weeks ago. started medication. understanding it takes time to work (i dont understand why…) so am educating myself on this new journey.

[@youonlydieonce7487]

Think of it as the medications are trying to unravel a process that is well underway. Not a light switch that can be simply turned off. The process of Lupus has caused several of your body systems to react differently than they have in the past and those changes have to be undone. The medications you have been given are working to undo those changes and that just takes time. Hang in there. I hope the best for you and that you have a dedicated Team to help you. Lupus is a life long journey that needs regular attention. Best wishes.

[@lesliebucari4096]

You are Wonderful ❤

[@shaylehirschman1748]

Thank you for this video. There is a very important and common illness, one of the most horrific connective tissue diseases there is, called Chronic Lyme Disease. So horrific are the infections, co-infections, worms, and parasites, that medical students are taught the disease does not exist, Mayo doctors write in their clinical notes why diagnose this patient when their disease may be difficult to treat before abusing us, the blood test for Lyme was proven by investigation to be designed to be seronegative regardless of the patient’s condition, and no conventional doctor or clinic will help these patients unless we present with Palsy and then they must. The public doesn’t know about chronic Lyme disease and how awful it is. Getting a diagnosis can take ten years, and we are just dead people walking until we die. My Lyme disease caused severe, runaway concomitant fibromyalgia which doctors don’t even believe in. Please help educate the public and help save lives by including chronic Lyme disease in your discussions of connective tissue disease. Thank you so much.

[@youonlydieonce7487]

Chronic Lyme is definitely a real disease process. Although this is not commonly listed as the cause of death on a death certificate, it certainly causes debility, disability and has significant symptoms of suffering associated with this process.