Mobility Aid Q&A

Chronically Jenni is back with an updated mobility aid q&a video answering all your questions about all kinds of mobility aids and how to feel more confident & comfortable about using them!
If you have any further questions let us know in the comments!
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[@becka_tics5166]

I found that decorating my cane really helped me be excited to use it and show it off! I was really embarrassed walking out of the store, using the cane I’d just bought, but when I decided to paint it and sculpt a vine going around it with flower buds and a bumble bee, it became something that I wanted to use and felt proud to use!

[@zlcoad1]

10:26 I currently don't have any mobility aids but they're on their way. Today though I was out with a pushchair and some woman gave me evils when I told my toddler I couldn't go as fast as her. I was clearly moving slowly and in pain!! Some people are just ignorant.

[@ilanahirschberg8933]

I am currently going through the process of choosing mobility aids, so this video was perfectly timed! Very helpful, thank you. 🥰

[@CreandoAmor]

🐋

[@jesscox9265]

This is exactly what I needed right now! I've been diagnosed with hEDS after years of problems, as well as PoTS in 2019, I've been trying to work out ways to manage my symptoms and I think mobility aids will be really helpful, so, thank you! P.s. You're autfit looks so cool and comfy, where's it from?

[@drawninthefog]

I’ve also found a huge difference between my manual and power chairs. When my wife pushes my manual chair it’s like I stop existing to a lot of people. I’ve also found bus drivers can be quite rude about having to get up to lower the ramp but when I moved to a power wheelchair they’ve been super helpful. Possibly partly related to all the buses here in Leeds having manual ramps

[@Spooniepsych]

Jenni your videos are always so thoughtful, informative and friendly. It’s like having a big sister take my hand and show me the way. Thanks for mentioning acceptance or of our own disability too. Thanks as always you absolute star ⭐️ 😊

[@ChronicallyJenni]

Awh thank you so much you're too kind x

[@drawninthefog]

I hate getting asked “what happened?” - I get that a lot from taxi drivers, and weirdly from my dentist who I’d visited a couple of times already while using mobility aides 🤔

[@deecrute]

Thank you so much for this! Seriously, NHS should have been doing this - you are our saviour!

[@CreandoAmor]

Muy interesante todo es importante resaltar lo que dices no hay que dar explicaciones médicas con un lo necesito llega. Como digo yo quien quiere ayudar ayuda y quién no hay que decirle échate a un lado que ese otro sí quiere ayudar 😅. Gracias por tu trabajo que ayuda a visualizar que a veces no se trata de no poder caminar se trata de poder ahorrar energía para poder superar el día porque hay muchas cosas que no se ven en cuanto a la salud de las personas y que es tan fácil como dejar de juzgarnos unos a otros que es lo que el mundo está pidiendo ya como una urgencia. Me alegra saber que en tu país están más conscientes.

[@lisaburnett1990]

Thank you so much for these videos. I'm using mobility aids more and more. It was one of your videos that gave me the confidence to buy my 1st rollator which changed my view. Debating on getting a wheelchair. Fibromyalgia, osteoarthritis and possible POTS

[@zlcoad1]

I'd definitely get a chair if you think it will benefit you. I'm getting a power chair soon. The less I HAVE to walk, the more I CAN walk. Fibro and osteoarthritis too x

[@sprite6457]

Listen, I’m 17 and I have multiple issues. Including: Heart, scoliosis, and nerve damage in both my legs. Both my parents and their family members have bad hearts so it was just inevitable for their children to be born with the same hearts😅. Anyways, my doctor has already done the laying,sitting, standing Pots exam on me and I’ve hit the requirements ‘easily’ using her own words. BUT where I’m still under 18, they won’t send me to an actual cardiologist and just prescribed lots of water and a packet of salt if I feel like passing out. I’ve had history of blacking because of my heart. Soon I will be turning 18 and eligible for the adult table top tests with the actual cardiologist. For the last couple months I have doubled my water intake and keep packets of salt for emergencies. However, doing this has not improved my conditions. I am medically finished with my growth spurts and bones fusing for my adulthood. Regular walking and standing are a challenge, anything over 30 minutes to an hour and I’m in pain from my heart to my back and legs. The last 4 years I have had to walk up short flights of stairs to my classes, leaving me out of breath and in pain by the top I reach the top. I become light headed, unbalanced, my heart pounding out of breath, and the nerves in both my legs begin to act up. So much to the point where I begin to limp. None of my doctors have ever suggested a walking stick or cane to help, and my parents think I’m way too young to be using a cane. I know it would look weird for their kid to be using a walking aid this young but I feel this could help me… Could a cane, shoulder crutch, Vive forearm like that help me with my problems or would I be making a fool of myself for thinking I need one…

[@shirleybrown77]

❤❤❤❤

[@freja905]

I’ve used everything except a manual because I physically can’t. I’m now inbetween a rollator and an electric wheelchair (for times when I need to travel a distance) I am still having problems accepting that this is my life now. I’m still ‘grieving’ and it’s hard.

[@CoolUsername7723]

Hi (im not trying to be rude asking this) Is there a reason you have several of the same for each type of aid?

[@sjjk-f6t]

Hi jenni how are you able to wear playsuits and jumpsuits

[@pyenygren2299]

17:02 Treating mobility aids properly _SHOULD_ be the bare minimum.