More seizures and another hospital stay

  Рет қаралды 17,175

ParentXP

ParentXP

Күн бұрын

Filmed the morning after I took Elin in to hospital with medicine resistant seizures and vomiting. She was in a good mood despite the relentless fits and was just about to try some keppra loading after we had tried buccal midazolam and clobazam as epilepsy rescue medication.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 29
@laurawhite1679
@laurawhite1679 Жыл бұрын
Glad she is feeling better now
@cerealfibre6938
@cerealfibre6938 Жыл бұрын
Oh deer, Elin. Please get well soon, we love ❤ you all.❤❤❤❤💋💋💋💋
@ddinottia39
@ddinottia39 Жыл бұрын
Is there anyway they can give her medicine for her vomiting? Poor thing!! So heartbreaking that it cause nasty rashes from the vomiting! Prayers that she feels better! 🙏
@abigailmagiera9938
@abigailmagiera9938 Жыл бұрын
Feel better soon
@aliciacolouringcorner30
@aliciacolouringcorner30 Жыл бұрын
Get well soon elin you got this
@patrickbarrett3898
@patrickbarrett3898 Жыл бұрын
That's heartbreaking to watch.... Your resilience is unbelievable...
@Dimitra__
@Dimitra__ Жыл бұрын
It is difficult to see Elin like that. Stay strong Tova and family! I'm so glad that she is fine now and it was a good idea to let us know from the very start of the video , because it was comforting to know that despite how I was seeing Elin , she was over it and she is now well!!! Give love and hugs to the girls and especially for Alice's foot :)
@ashleywright3315
@ashleywright3315 Жыл бұрын
I'm so sorry about poor Elin and Alice, I am so glad that Elin is now better as u no I exactly no what it is like. Sendin much love 2 Elin,Alice,Mum and dad xx
@brendalevesque6384
@brendalevesque6384 Жыл бұрын
Oh poor Elin. I hope things calm down soon and Elin begins to feel better. I’m glad you will be getting a break soon too. Best wishes to you both.
@johncully6650
@johncully6650 Жыл бұрын
I am so glad to see she is a lot better, and I hope that she now has as many good days as possible. You have two fantastic lovely girls.👍👍👌👌
@wendymurray4603
@wendymurray4603 Жыл бұрын
It's this damn weather I'm not feeling well the whole of this month with my vertigo glad all is well again though.😊❤
@ezy4114
@ezy4114 Жыл бұрын
Get well soon
@gracefox6988
@gracefox6988 Жыл бұрын
God bless Elin, & blessings to you both. Send much love.🙏❤️
@jenniferfrakes5211
@jenniferfrakes5211 Жыл бұрын
Tova have they ever tried depakote? It took my seizures from frequent to none in nine months? Also clonazepam the dissolvable form is the only rescue med that kept me out of the hospital just a thought it might be something that would work for her also ask for as needed nausea medication that makes a huge difference and also ask her doctors if you could drain the stomach contents I would have her Mickey button when she is that sick. I have the same diagnosis as her but can talk these things have made a huge difference for me hopeing I can help her in some way
@Jdjustsaying
@Jdjustsaying Жыл бұрын
This is so tough on all of you. ❤❤❤wishing you all the best ❤
@chrislazaro2098
@chrislazaro2098 Жыл бұрын
Thinking about the two of you ❤❤x
@pennymcnaughton5963
@pennymcnaughton5963 Жыл бұрын
❤️❤️❤️
@belindataylor2389
@belindataylor2389 Жыл бұрын
Poor poor Elin bless her. I'm sorry if you got a video link message on messenger i was hacked. I messaged you once to say hi I hope your doing alright apart from poor Elin having seizures bless her.. we now have some sort of diagnosis for Helen muscle skeletal I'm not sure what that is but it's to do with her muscles. and something called spasms and she's having quite a few seizures now too but they don't no why we are having a Brain scan for doctor to rule out central cause I don't no what they are looking for. I hope Elin feels better soon xxx
@belindataylor2389
@belindataylor2389 Жыл бұрын
Didn't see on oxygen so that's good xx
@lloydlocke2822
@lloydlocke2822 Жыл бұрын
❤️
@KyleTomlinson122
@KyleTomlinson122 Жыл бұрын
I use melatonin
@KyleTomlinson122
@KyleTomlinson122 Жыл бұрын
😰
@elenasfait8799
@elenasfait8799 Жыл бұрын
Tiganilor
@alexthesaintbernardlover5938
@alexthesaintbernardlover5938 Жыл бұрын
Feel better soon
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