MS and African-Americans: Diagnosis and Clinical Course - National MS Society

[@ayeshakarreem8813]

Dr Royal was my MS Specialist at University of MD. Unfortunately I had only two visits with him when I was informed that he was relocating to ATL, Ga. Unfortunately, I wasn’t able to establish a good relationship with him. I’m now awaiting an appointment with another MS Specialist hopefully I’ll get further treatment with this new Dr. I too feel that my RRMS isn’t being properly managed at this time.

[@kkcamp02]

It took me almost 20 years to get diagnosed. And I was going to doctors in Los Gatos and Woodland Hills, Ca. And I had textbook MS symptoms.

[@moniquetorres2910]

Thank You for sharing the information I have a appointment in about 3 weeks.

[@sharayrichburg2749]

Thank You.😊. .I have RRMULTIPLE Sclerosis. .many questions. .black Woman Army Veteran. X REAL Estate Broker, Cheerleader. ..Montel Williams came to my high school Mountain Get Outta My Way tour..Amazing but having MS is Not Easy..

[@macsam8778]

This message was done 11 years ago. It hasbeen 16 years for me, dealing with ms...I hate using these two letters to describe this, bothers me. The m, starts my first name and the latter my last name, can I just say, "I hate it". There's nothing that I use such a strong word to say how I feel, that, I do! Being black and living with ms, is hard. Today, it seems possible to live and thrive with this heart/headache of a disease! When I was diagnosed, it was considered inconclusive, so, I just lived and worked to support myself. Sometime after that, I had a child, but was doing this as a single parent. Some friends and colleagues and a few family came into my space as helpers, when needed. Things seemed to be going great. But a relapse came and took over, leaving me wondering, what's next!!?? I was put on steroids then, on injectables and pills which made it possible for me to live and work. It all worked for a long time within the 16 years of my diagnosis.

[@msdjones30]

I'd like to know if it's in Africa anywhere 🤔🤔???

[@KNukzzz]

Very very very uncommon, also can be misdiagnosed due to the lack of proper MRI technology

[@msdjones30]

@@KNukzzz exactly so how can it be genetically engineered. U.S. is lying. America is killing us with the food and the toxic living here. All women are working like men! United States is not for the African..

[@kathylopez1336]

Yes, that's so true I would like to hv a Black Dr to help me w/my MS. I don't get help i need w/my dropfoot My Dr/PT doesn't fully listen when I've been asking for help. I can read but if i don't hv any that fully listens I'm running into a brick wall

[@1983bigstar]

I had to catch a hint from a white doctor say the words Multiple sclerocis, I went to a book store and bought a book on MS. And bam, that was all I needed to understand and see in what terms to use when talking to a doctor. I had a white eye doctor tell me that I did not have MS. because I was Black !. But, I did get dx in about two yrs of symptoms. That was in year, 1998. I was around 32, today I am 59yrs old. I hate all. !

[@kathylopez1336]

Yes there is a stigma

[@theunquietmindpodcast]

We discuss this in our podcast. Myelinandmelanin.com